[Diabetes-talk] Fw: Good News?

[d m gina]

We are getting set up with the c:pap first.
Will do a sleep study as soon as I can get the paper work filled out.

Original message:
> Dar,

> 101 to 109 are excellent! numbers.  Sounds to me like you are doing 
> really well.

> Oxygen if you need it is a good thing.  Its important to keep breathing 
> <SMILE>.

> In the past, I remember you saying you had a heart attack, but did you 
> require surgery after it for the heart?  Three years back I had open 
> heart surgery.  Five of my 6 main arteries were badly blocked – all due 
> to the lovely diabetes.  They could not stent me because the blockages 
> were to high and close to the heart so it was the big procedure for me. 
> It was quite frightening, but here I am today.

> Anyway after my surgery I needed oxygen at night only because there 
> were fluids in the chest cavity that were not draining.  It prevented 
> my lungs from expanding properly.  Once I was forced to let them drain 
> the fluids off --  voila I was able to start breathing on my own at 
> night.  I got rid of the oxygen machine and haven’t needed it since.  
> Heed your doctor’s advice these cardiologists are a very smart bunch!

> Good luck.

> Eileen


> From: d m gina via Diabetes-talk
> Sent: Thursday, September 3, 2015 12:06 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina
> Subject: Re: [Diabetes-talk] Fw: Good News?

> With the exercising I am doing, I have a stronger heart.
> I'm pleased about this.
> Many times my numbers are like a radio station
> 101 or 109 sometimes higher depending on what we did the night before.
> I think my sugars are confused at night, I learned my oxygen is dropping to
> 77. Now they want me on oxygen.
> I will talk to the doctor on behalf of this, I have many concerns.
> Working with two different things can get confusing at times.
> I do love to walk my mile, where my sugars usually go down.
> Not bad, just comfortable.
> Keep up the swell work.


> Original message:
>> Eileen,

>> Diabetes is an individual disease, at the end of the day. Some
>> regimines work better for some, and not so much for others. So many
>> variables go into the equation, and while there are some constants, so
>> much more is variable.

>> What's an acceptable A1-C depends on a lot. For me, going below 7 means
>> I'm running too low. For others, they can go below 7 and be totally
>> fine. Type two's can usually have lower A1-C's too. There are
>> differences between type one and two, and people don't always
>> understand that. My grandma is a type two, and I'm a type one. She
>> typically has A1-C's 6. 5 and lower. She doesn't understand why I
>> shouldn't have mine lower, but the difference between one and two can
>> be varied enough to create such differences.

>> Like Veronica, I need to get my daily work-out in. As a teen and in my
>> early 20's, I ran three to five miles a day, and I danced-- ballet,
>> tap, jazz-- and while I still incorporate ballet barre exercises into
>> my work-out, I like to either power walk outside or use my elliptical
>> at home for cardio. I do my ballet barre exercises and stretches
>> afterwards. Sometimes I jog on a mini-trampoline too. In total, my
>> work-outs last an hour to an hour-and-a-half. I usually have to
>> disconnect during cardio then hook back up an hour afterwards. I test
>> before working out then an hour-and-a-half after the work-out. Have you
>> tried exercising at the same time each day? This can help with
>> consistency, and you can usually judge what your sugars will run before
>> and after since doing it at the same time. You could also do it after a
>> meal, adding a little more carbs to that meal. I have a three-year-old,
>> so I tend to work-out late at night, like between nine and ten, since
>> that's usually when I can get a lot done without distractions, smile. I
>> tend to run higher at night, mid to upper 100's, so this actually works
>> out. I also don't eat much during the day, mostly grabbing what I can--
>> Greek yogurt, Clif bars, salads-- and I usually don't snack unless low,
>> so I try to make supper the one meal I sit down and have a full course
>> with all the wonderful foods you are suppose to fit into each meal, smile.

>> But it's really individually based. You can't always judge your
>> treatment and effects of by how others are treated and their results. I
>> can eat a candy bar, bolus and remain at 120, while a friend of mine
>> will eat candy, bolus and have crazy, inconsistent sugars all the rest
>> of the day. If I do run high, say 300 or higher, which happens during
>> my lady time, when I correct, I can drop in an hour. The same friend
>> will take all day to come down from a high sugar. For breakfast and
>> lunch, my carb/insulin ratio is one per 22, while at supper, it's one
>> per 15. And this ratio can also change depending on the carb I'm
>> eating. Like if pasta, no matter the time of day, I usually do one per
>> 15, though I eat pasta sparingly. My friend always needs to do one per
>> 10, regardless of time of day or carb.

>> So what works for one, doesn't always work for another person. Do what
>> works for you and what your doctors recommend, and as long as you
>> achieve results you're happy with, it's okay. And if you want to try to
>> get your A1-C below 7, try. If you start running low frequently, then
>> you likely are good staying in the 7 to 8 range.

>> Bridgit

>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Eileen Scrivani via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 6:40 PM
>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: [Diabetes-talk] Fw: Good News?


>> Hi Veronica and all:

>> This for me has been a really interesting topic.

>> I too have been using a pump for a year and a half now.  While my
>> numbers are certainly better than what I had been experiencing, they
>> are in my mind, still not perfect or the perfect I’d like them to be.
>> I’ve found that getting rid of the long acting Lantus in my insulin
>> regiment has totally eliminated extreme highs.  That’s not to say I
>> don’t have highs & lows, but the highs are at least contained to being
>> no more than the high 200’s which I can live with and fix.

>> Usually, when I go high  its due to poor estimating of my carb
>> intake/insulin ratio.  I’ve been a diabetic since I was 5, and I have
>> had good control with really good A1C’s.  However, weird things started
>> happening to my control in my 40’s.  When I was using Lantus I would
>> see BG numbers that could be in the 300’s, 400’s and even higher!  I
>> found it really stressful and was constantly fretting over the numbers.
>> Its not like I wasn’t watching my diet or not exercising.  .  .  Making
>> the change to the pump and only having Novolog in my system has made a
>> big difference and leveled out the numbers.  The only thing I have been
>> left questioning has been my A1C results.  I’ve pretty much been around
>> 7.4 to 7.8.  Last year when I first started the pump I did get the A1C
>> down to 6.3, but that’s because I was having far too many lows while
>> adjusting insulin rates.  My doctor and Diabetic Educator have told me
>> over and over that the numbers I’m running are fine and they don’t want
>> me down around 6.something because that would leave me having too many
>> low BGs and could be damaging to the heart and heart function.

>> I’ve been questioning the advice, because I’ve heard other diabetics
>> always insisting that the closer to a 6 you can get the A1C the better
>> your control and the less the chance of complications.  This just has
>> left me feeling like I was doing something, somewhere so wrong by
>> having a 7.whatever A1C number.

>> So, bottom line is I feel a lot better after reading the posts by
>> Bridget, yourself & everet today.

>> As for exercising for a full hour – I wish I could! Even after a short
>> workout of 20 or 30 minutes my BG level crashes.  I disconnect the pump
>> during and then leave it off for another half hour to a full hour.
>> Still, I can sometimes have horrible lows.  I wish I could get a better
>> handle on getting that leveled out so I could exercise with a bit less worry.

>> Thanks for the great topic today and we’ll all just keep striving
>> together to improve control.

>> Eileen


>> From: Veronica Elsea via Diabetes-talk
>> Sent: Wednesday, September 2, 2015 5:22 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Veronica Elsea
>> Subject: Re: [Diabetes-talk] Good News?

>> Hi Everett!
>> Oh how I loved reading your post. Congrats and bravo for you. When I
>> was first diagnosed at age 34, for the first couple of years my A1C ran between
>> 13 and 16 no matter what I seemed to do. NPH insulin just didn't obsorb
>> consistently and no amount of fiddling seemed to sort me out. Within
>> two months on a pump, I had my A1C down to 7 to 8 range, where I seem
>> to spend a lot of time. I seem to go from being really on top of things
>> to phases of burn out, then back at it again, then burn out. So what I
>> really like here is that ability to be, well, human, knowing that
>> sometimes it's okay to ride the ups and downs with a supportive group.
>> The sanity for me is exercise. I feel really weird if I don't walk at
>> least an hour a day.
>> My biggest struggle right now is blood testing. My callouses are really
>> a problem and the swollen fingers from rheumatoid arthritis don't help much.
>> But as you said, just keep swimming. Just keep swimming. <grin> Oh wait!
>> Striving! <laughing!
>> So go for it, all of us!
>> Veronica

>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>> available on iTunes, along with other music from her and from the Guide
>> Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                 Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407



>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Mike Freeman via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 12:55 PM
>> To: 'Everett Gavel'; 'Diabetes Talk for the Blind'
>> Cc: Mike Freeman
>> Subject: Re: [Diabetes-talk] Good News?

>> Hey Everett! Bravo, my man! Glad your attitude adjustment is working!
>> Keep it up!

>> Mike


>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Everett Gavel via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 11:56 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Everett Gavel
>> Subject: [Diabetes-talk] Good News?

>> Hello All,

>> I just realized that, while I've recently begun sharing a little more
>> about my personal situation with my diabetes publicly on some 'blind diabetic'
>> lists, I've yet to share it here on my original and most favorite, most
>> read, bestest list of them all for blind diabetics. Please forgive me for that.

>> I do have some good news to share. Good for me, at least. A week or two
>> ago, my doc told me my a1c was 8.0. Now, that may not be all that
>> great, but try to understand, I'm pretty sure it's not been that low,
>> personally, since I was a young teenager, and possibly even before that.

>> I got diabetes when I was 10, and all through my teens and 20's, and
>> I'll admit, even into my 30's truly, I was as stupid, er, stubborn as
>> they come.
>> At least in regards to my diabetes. I pretty much ignored it as much as
>> I could without bringing on a quick death. About all I did for the
>> first couple of decades (I'm 45 now) was to take my insulin once and
>> for a while twice a day. That's it.

>> I never cared what my a1c was on those 3-month appointments I sometimes
>> kept with my docs. But a few years ago I started smartening up a bit.
>> Little by little I tried taking better care of my diabetes. I finally
>> gave in and got a Medtronic pump about 1.5 years ago.

>> Today, I can say I finally made the mental switch and gave into the
>> need, the smarter choice, to actually monitor my glucose levels regularly.
>> Nowadays, if I don't test at least 4 times a day, I feel wierd. Maybe
>> it's some kind of guilt or something, I don't know. But I *like* that
>> it feels wrong to not test at least 4 times a day, these days.

>> So, all that being rambled on about, while I realize it may be along
>> the lines of too little too late, I'm hoping for the other cliche to be
>> more true, where it says, better late than never.
>> ;-)

>> So my BS levels are 8.0. Well, okay, my 'BS' (and
>> sarcasm) levels are often far higher than that, but, my blood sugar
>> levels are now most often under 200, and for me, that's great. For
>> decades, my average has been between 300 & 400 when I'd test it. I've
>> been clocked more times than I can count, back in the day when the
>> Joslin Diabetes Center was where I went for my 3-month check ups as a
>> teen, at over 700. These days, I can't seem to find a monitor that
>> doesn't quit counting around 599 or 600, seems like. But I don't test
>> em out like that too much anymore either, so who knows? I'm glad I can
>> say I don't know that for sure, actually.

>> Anyway, I'm newly inspired by my 8.0 a1c. In 3 months, my new goal is 7.0.
>> I'm not just counting carbs and taking insulin to cover, now. It's a
>> challenge, and I love a good challenge. So I'm actually (gasp) paying
>> attention to what I'm eating, and not just counting carbs. I'm actually
>> focusing on, go figure, EATING BETTER.

>> So, I just wanted to share my small bit of good news and new inspiration.
>> You all, here, have been inspiring to me over the years, and I truly
>> appreciate all that you share.


>> Strive On!
>> Everett
>> In Colorado Springs, USA



>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com


>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
>> creekmusic.com


>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40samobile.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40samobile.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future