[Diabetes-talk] Fw: Good News?
d m gina
dmgina at samobile.net
Fri Sep 4 22:06:55 UTC 2015
Loved that one Mike.
Line them up rite/
Original message:
> I bet! Having a bar handy makes a lot of things more fun! Hiccup!
> Mike
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
> Of Veronica Elsea via Diabetes-talk
> Sent: Friday, September 04, 2015 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-talk] Fw: Good News?
> I have a mini trampoline that came with a bar which can be attached. It
> turned out that the bar made it really fun to do jumping kinds of
> things with it.
> Veronica
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
> available on iTunes, along with other music from her and from the Guide
> Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
> Of Bridgit Kuenning-Pollpeter via Diabetes-talk
> Sent: Friday, September 04, 2015 10:03 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Fw: Good News?
> First, I usually keep it close to an object I can hold onto if I need
> to orient myself. There's also a plastic lining around the outer edge,
> so if your feet feel the plastic, you know to step back or to the side.
> You can also purchase mini-tramps with hand rails attached. I have held
> onto my cane before also to keep orientated.
> Bridgit
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
> Of Danielle Ledet via Diabetes-talk
> Sent: Friday, September 04, 2015 9:10 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Danielle Ledet <singingmywayin at gmail.com>
> Subject: Re: [Diabetes-talk] Fw: Good News?
> Bridget How do you run on a mini trampoline without falling off?
> On 9/4/15, Bernadette Jacobs via Diabetes-talk
> <diabetes-talk at nfbnet.org> wrote:
>> Hey gang! Burn here! Yeah, I know. It's been a long time since I've posted.
>> I have been reading things on and off, and have found this to be the
>> most loving, relaxing, and informative. I too, for many years, have
>> felt like my
>> A-1 C was a forecaster of doom and gloom. I feel better, not worrying
>> about that, quite so much. I have been started on Invokana at the
>> beginning of the year. Since then, however, it's very seldom I see a
>> 200 number. One of the things I do, it may sound crazy. However, it
>> certainly indicates anything one way or another. When ever I feel
>> unusually thirsty, tired, or just not right. No matter how many times I
>> have tested throughout the day, I test.
>> That, for me, is usually an indication that I need to take some action.
>> Everett, I'm so thrilled for you. This is great. As for Veronica, and
>> Bridget, and Mike, I feel like this is old – home week for me, once
>> again, all of you, and your own way have reaffirmed my conviction. And
>> that is, we must all take every advice for what we here, and some of
>> it, needs to be taken with a grain of salt. What we must do, is really
>> listen to our bodies.
>> For it is we, who know our bodies best. Yes, there are some medical
>> professionals with great expertise. However, they don't live with us.
>> And they don't spend time in our bodies. We, here. Our our own
>> experts. Not that we shouldn't listen to anyone else. But, we still
>> know ourselves best. I thank you guys for being so wonderful. I
>> appreciate everyone's candor. This is great. I, too have been on other
>> lists. But I always come back to this one, when I need true, blue,
>> advice, insight, and expertise. Thank you guys!! You are absolutely
>> phantabulous!!!
>> Bern.
>> Sent from my iPhone
>>> On Sep 3, 2015, at 10:40 PM, Veronica Elsea via Diabetes-talk
>>> <diabetes-talk at nfbnet.org> wrote:
>>> I am really enjoying all of the kindness and wisdom on this list.
>>> Very well stated, Bridgit. And after reading all of these posts,
>>> hahahaha, let's see, I tried five times before dinner to do a stick
>>> and get a number. No luck! But I knew I was running high because I
>>> could feel it. No surprise though. Earlier today I was threading my
>>> way through a bunch of obstacles on the sidewalk when this branch
>>> just jumped out and clobbered me below my left eye. My prosthetic eye
>>> flew out, hit a pole and I spent the next fifteen minutes crawling
>>> around looking for it. My dog finally pointed it out with his nose. But
>>> boy tonight that eye is really hurting.
>>> And I do find that pain above a certain level just makes my numbers crazy!
>>> This is one thing diabetes did teach me. Stress hormones are not nice
>>> to the system. Not at all! I now treat pain I might have tried to
>>> tough out
>>> 30 years ago because I can see the results of it when I test. Well,
>>> that is, succeed at testing! Sheesh!
>>> And Dar, even something like an increase in oxygen could help even
>>> out your numbers. Please don't be afraid of taking care of that nice
>>> body you have. <grin> Thanks again, all of you.
>>> Veronica
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>>> available on iTunes, along with other music from her and from the
>>> Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>> Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Mark Tardif via Diabetes-talk
>>> Sent: Thursday, September 03, 2015 6:05 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Mark Tardif
>>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>> Thank you, Bridgit. And I will certainly be seeking those resources
>>> and I
>>> want to read the entire book, "Bridging the Gap." Thank you very
>>> much, and this is very much what I need to be aware of.
>>> Mark Tardif
>>> Nuclear arms will not hold you.
>>> -----Original Message-----
>>> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
>>> Sent: Thursday, September 03, 2015 9:01 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>> There's a lot of great resources out there for diet and exercise, and
>>> by diet, I mean meal plans, of the lifestyle variety, smile.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of
>>> Mark Tardif via Diabetes-talk
>>> Sent: Thursday, September 03, 2015 7:58 PM
>>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>>> Cc: Mark Tardif <markspark at roadrunner.com>
>>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>> And if it becomes necessary and my doctor recommends it, I will test
>>> 3 or
>>> 4
>>> times a day and become stricter about exercise and diet. Actually,
>>> my exercise routine is good, (a lot of walking, and in this
>>> neighborhood we have a lot of hills,) but my food intake certainly
>>> needs modification.
>>> Mark Tardif
>>> Nuclear arms will not hold you.
>>> -----Original Message-----
>>> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
>>> Sent: Thursday, September 03, 2015 8:50 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>> Mark,
>>> That's one big difference between ones and twos: two's tend to remain
>>> more
>>> consistent than type one's, and that's why two's can usually test
>>> less frequently. Personally, I think two's, regardless of A1-C's,
>>> should test four times a day, but as long as you're managing things
>>> and are healthy, what works for you is what works. One's have much
>>> more problems with inconsistencies, and that's why it's important we
>>> test as frequently as possible. At 200 and higher, I can definitely
>>> feel it, and I don't like how I feel in these ranges. Even if
>>> bolusing correctly, one's still tend to have more potential problems
>>> with inconsistencies.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Mark Tardif via Diabetes-talk
>>> Sent: Thursday, September 03, 2015 6:51 PM
>>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>>> Cc: Mark Tardif <markspark at roadrunner.com>
>>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>> I think what you said here is very important. I have type two
>>> diabetes, don't take insulin yet, just metformin, and my last A1C
>>> level was 5.9, and I felt perfectly fine and my doctor thought that
>>> was very appropriate in my case. Even though I like ice cream, my
>>> glucose readings rarely go above 200, and I can test once or twice a
>>> day with no problem.
>>> Mark Tardif
>>> Nuclear arms will not hold you.
>>> -----Original Message-----
>>> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
>>> Sent: Wednesday, September 02, 2015 11:53 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>> Eileen,
>>> Diabetes is an individual disease, at the end of the day. Some
>>> regimines work better for some, and not so much for others. So many
>>> variables go into the equation, and while there are some constants,
>>> so much more is variable.
>>> What's an acceptable A1-C depends on a lot. For me, going below 7
>>> means I'm running too low. For others, they can go below 7 and be
>>> totally fine. Type two's can usually have lower A1-C's too. There are
>>> differences between type one and two, and people don't always
>>> understand that. My grandma is a type two, and I'm a type one. She
>>> typically has A1-C's 6. 5 and lower. She doesn't understand why I
>>> shouldn't have mine lower, but the difference between one and two can
>>> be varied enough to create such differences.
>>> Like Veronica, I need to get my daily work-out in. As a teen and in
>>> my early 20's, I ran three to five miles a day, and I danced--
>>> ballet, tap, jazz-- and while I still incorporate ballet barre
>>> exercises into my work-out, I like to either power walk outside or
>>> use my elliptical at home for cardio.
>>> I
>>> do my ballet barre exercises and stretches afterwards. Sometimes I
>>> jog on a mini-trampoline too. In total, my work-outs last an hour to
>>> an hour-and-a-half. I usually have to disconnect during cardio then
>>> hook back up an hour afterwards. I test before working out then an
>>> hour-and-a-half after the work-out. Have you tried exercising at the
>>> same time each day?
>>> This can help with consistency, and you can usually judge what your
>>> sugars will run before and after since doing it at the same time. You
>>> could also do it after a meal, adding a little more carbs to that
>>> meal. I have a three-year-old, so I tend to work-out late at night,
>>> like between nine and ten, since that's usually when I can get a lot
>>> done without distractions, smile. I tend to run higher at night, mid
>>> to upper 100's, so this actually works out. I also don't eat much
>>> during the day, mostly grabbing what I
>>> can-- Greek yogurt, Clif bars, salads-- and I usually don't snack
>>> unless low, so I try to make supper the one meal I sit down and have
>>> a full course with all the wonderful foods you are suppose to fit
>>> into each meal, smile.
>>> But it's really individually based. You can't always judge your
>>> treatment and effects of by how others are treated and their results.
>>> I can eat a candy bar, bolus and remain at 120, while a friend of
>>> mine will eat candy, bolus and have crazy, inconsistent sugars all
>>> the rest of the day. If I do run high, say 300 or higher, which
>>> happens during my lady time, when I correct, I can drop in an hour.
>>> The same friend will take all day to come down from a high sugar. For
>>> breakfast and lunch, my carb/insulin ratio is one per 22, while at
>>> supper, it's one per 15. And this ratio can also change depending on
>>> the carb I'm eating. Like if pasta, no matter the time of day, I
>>> usually do one per 15, though I eat pasta sparingly. My friend always
>>> needs to do one per 10, regardless of time of day or carb.
>>> So what works for one, doesn't always work for another person. Do
>>> what works for you and what your doctors recommend, and as long as
>>> you achieve results you're happy with, it's okay. And if you want to
>>> try to get your A1-C below 7, try. If you start running low
>>> frequently, then you likely are good staying in the 7 to 8 range.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Eileen Scrivani via Diabetes-talk
>>> Sent: Wednesday, September 02, 2015 6:40 PM
>>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>>> Subject: [Diabetes-talk] Fw: Good News?
>>> Hi Veronica and all:
>>> This for me has been a really interesting topic.
>>> I too have been using a pump for a year and a half now. While my
>>> numbers are certainly better than what I had been experiencing, they
>>> are in my mind, still not perfect or the perfect I’d like them to be.
>>> I’ve found that getting rid of the long acting Lantus in my insulin
>>> regiment has totally eliminated extreme highs. That’s not to say I
>>> don’t have highs & lows, but the highs are at least contained to
>>> being no more than the high 200’s which I can live with and fix.
>>> Usually, when I go high its due to poor estimating of my carb
>>> intake/insulin ratio. I’ve been a diabetic since I was 5, and I have
>>> had good control with really good A1C’s. However, weird things
>>> started happening to my control in my 40’s. When I was using Lantus
>>> I would see BG numbers that could be in the 300’s, 400’s and even
>>> higher! I found it really stressful and was constantly fretting over
>>> the numbers. Its not like I wasn’t watching my diet or not
>>> exercising. . . Making the change to the pump and only having
>>> Novolog in my system has made a big difference and leveled out the
>>> numbers. The only thing I have been left questioning has been my A1C
>>> results. I’ve pretty much been around 7.4 to 7.8. Last year when I
>>> first started the pump I did get the A1C down to 6.3, but that’s
>>> because I was having far too many lows while adjusting insulin rates.
>>> My doctor and Diabetic Educator have told me over and over that the
>>> numbers I’m running are fine and they don’t want me down around
>>> 6.something because that would leave me having too many low BGs and
>>> could be damaging to the heart and heart function.
>>> I’ve been questioning the advice, because I’ve heard other diabetics
>>> always insisting that the closer to a 6 you can get the A1C the
>>> better your control and the less the chance of complications. This
>>> just has left me feeling like I was doing something, somewhere so
>>> wrong by having a 7.whatever A1C number.
>>> So, bottom line is I feel a lot better after reading the posts by
>>> Bridget, yourself & everet today.
>>> As for exercising for a full hour – I wish I could! Even after a
>>> short workout of 20 or 30 minutes my BG level crashes. I disconnect
>>> the pump during and then leave it off for another half hour to a full
>>> hour. Still, I can sometimes have horrible lows. I wish I could get
>>> a better handle on getting that leveled out so I could exercise with
>>> a bit less worry.
>>> Thanks for the great topic today and we’ll all just keep striving
>>> together to improve control.
>>> Eileen
>>> From: Veronica Elsea via Diabetes-talk
>>> Sent: Wednesday, September 2, 2015 5:22 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Veronica Elsea
>>> Subject: Re: [Diabetes-talk] Good News?
>>> Hi Everett!
>>> Oh how I loved reading your post. Congrats and bravo for you. When I
>>> was first diagnosed at age 34, for the first couple of years my A1C
>>> ran between
>>> 13 and 16 no matter what I seemed to do. NPH insulin just didn't
>>> obsorb consistently and no amount of fiddling seemed to sort me out.
>>> Within two months on a pump, I had my A1C down to 7 to 8 range, where
>>> I seem to spend a lot of time. I seem to go from being really on top
>>> of things to phases of burn out, then back at it again, then burn
>>> out. So what I really like here is that ability to be, well, human,
>>> knowing that sometimes it's okay to ride the ups and downs with a
>>> supportive group. The sanity for me is exercise.
>>> I
>>> feel really weird if I don't walk at least an hour a day.
>>> My biggest struggle right now is blood testing. My callouses are
>>> really a problem and the swollen fingers from rheumatoid arthritis
>>> don't help much.
>>> But as you said, just keep swimming. Just keep swimming. <grin> Oh wait!
>>> Striving! <laughing!
>>> So go for it, all of us!
>>> Veronica
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>>> available on iTunes, along with other music from her and from the
>>> Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>> Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Mike Freeman via Diabetes-talk
>>> Sent: Wednesday, September 02, 2015 12:55 PM
>>> To: 'Everett Gavel'; 'Diabetes Talk for the Blind'
>>> Cc: Mike Freeman
>>> Subject: Re: [Diabetes-talk] Good News?
>>> Hey Everett! Bravo, my man! Glad your attitude adjustment is working!
>>> Keep it up!
>>> Mike
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Everett Gavel via Diabetes-talk
>>> Sent: Wednesday, September 02, 2015 11:56 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Everett Gavel
>>> Subject: [Diabetes-talk] Good News?
>>> Hello All,
>>> I just realized that, while I've recently begun sharing a little more
>>> about my personal situation with my diabetes publicly on some 'blind
>>> diabetic'
>>> lists, I've yet to share it here on my original and most favorite,
>>> most read, bestest list of them all for blind diabetics. Please
>>> forgive me for that.
>>> I do have some good news to share. Good for me, at least. A week or
>>> two ago, my doc told me my a1c was 8.0. Now, that may not be all that
>>> great, but try to understand, I'm pretty sure it's not been that low,
>>> personally, since I was a young teenager, and possibly even before
>>> that.
>>> I got diabetes when I was 10, and all through my teens and 20's, and
>>> I'll admit, even into my 30's truly, I was as stupid, er, stubborn as
>>> they come.
>>> At least in regards to my diabetes. I pretty much ignored it as much
>>> as I could without bringing on a quick death. About all I did for the
>>> first couple of decades (I'm 45 now) was to take my insulin once and
>>> for a while twice a day. That's it.
>>> I never cared what my a1c was on those 3-month appointments I
>>> sometimes kept with my docs. But a few years ago I started smartening
>>> up a bit.
>>> Little by little I tried taking better care of my diabetes. I finally
>>> gave in and got a Medtronic pump about 1.5 years ago.
>>> Today, I can say I finally made the mental switch and gave into the
>>> need, the smarter choice, to actually monitor my glucose levels regularly.
>>> Nowadays, if I don't test at least 4 times a day, I feel wierd. Maybe
>>> it's some kind of guilt or something, I don't know. But I *like* that
>>> it feels wrong to not test at least 4 times a day, these days.
>>> So, all that being rambled on about, while I realize it may be along
>>> the lines of too little too late, I'm hoping for the other cliche to
>>> be more true, where it says, better late than never.
>>> ;-)
>>> So my BS levels are 8.0. Well, okay, my 'BS' (and
>>> sarcasm) levels are often far higher than that, but, my blood sugar
>>> levels are now most often under 200, and for me, that's great. For
>>> decades, my average has been between 300 & 400 when I'd test it. I've
>>> been clocked more times than I can count, back in the day when the
>>> Joslin Diabetes Center was where I went for my 3-month check ups as a
>>> teen, at over 700. These days, I can't seem to find a monitor that
>>> doesn't quit counting around 599 or 600, seems like. But I don't test
>>> em out like that too much anymore either, so who knows? I'm glad I
>>> can say I don't know that for sure, actually.
>>> Anyway, I'm newly inspired by my 8.0 a1c. In 3 months, my new goal is 7.0.
>>> I'm not just counting carbs and taking insulin to cover, now. It's a
>>> challenge, and I love a good challenge. So I'm actually (gasp) paying
>>> attention to what I'm eating, and not just counting carbs. I'm
>>> actually focusing on, go figure, EATING BETTER.
>>> So, I just wanted to share my small bit of good news and new inspiration.
>>> You all, here, have been inspiring to me over the years, and I truly
>>> appreciate all that you share.
>>> Strive On!
>>> Everett
>>> In Colorado Springs, USA
>>> _______________________________________________
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> --
> Danielle
> Email: singingmywayin at gmail.com
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