[Diabetes-talk] Skin Sensativity issues...

Sandra Ryan sjryan2 at gmail.com
Mon Jul 11 02:59:02 UTC 2016 

I definitely feel your pain, Bern. When I had plantar fasciitis, the
podiatrist wrapped my foot up for five days, which he said would take the
pain out. Well, it did help, but when he took off the tape, my foot had a
crust from toes to heel! It was awful! And I had a similar experience with
steri-strips after a surgery. They seem so tiny and harmless! But not to us!

Now, when I have blood drawn, or a shot that needs to be covered, for
example, they use this self-adhesive plastic tape on me. I can't remember
what it's called, but it has not had dramatic effects on my skin!

Sandi



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bernadette Jacobs via Diabetes-Talk
Sent: Sunday, July 10, 2016 8:46 PM
To: Diabetes Talk for the Blind
Cc: Bernadette Jacobs
Subject: Re: [Diabetes-talk] Skin Sensativity issues...

I, too, just as Sandy does, have skin sensitivity issues. When I was in
college, back in Wisconsin, I had my appendix and gallbladder removed. When
it came time for the stir surgeon to remove all the staples and stitches, he
came in;and looked at my incision. He got very quiet. Then, he said, I may
be a doctor. But, I've never seen anything quite like this!! He then
informed me that he counted all the blisters three different times on my
stomach. I had 28 teri strips along my incision.  He actually counted 56
blisters. Once he removed the strips, stitches, and Staples, he began
popping each blister with a needle one by one. At least twice, he kept
saying, I don't believe this obviously, I haven't let anyone use those
strips ever cents. I have the same trouble with the plastic Band-Aids. Can't
use them. I had the same similar issues with the support stockings that I
had to use after my knee surgery. I developed blisters from them, as well.
Interesting, to say the least.  It will be interesting to see what they all
come up with for the different kinds of tape and adhesive.

Bern.

Sent from my iPhone

> On Jul 10, 2016, at 2:19 PM, Veronica Elsea via Diabetes-Talk
<diabetes-talk at nfbnet.org> wrote:
> 
> Oh Sandy, what a bummer of an allergy to have. I know a lot of people 
> have trouble with the tape on the Omnipod. Someone told me about some 
> sticky stuff you can put right on your body and then tape over it but 
> that seemed to require more coordination than I seem to possess. 
> <grin> I have trouble with the kinds of tape they use when taping up a 
> shoulder like they do in physical therapy but I've never had trouble 
> with tape for insulin pump cannulas and such. And may it stay that 
> way! But it would sure be a great question for the Dexcom educators. I 
> wish they'd give out like a dummy model so someone could either 
> practice with the tape or find out if it will work before investing in the
hope and cost of the real thing.
> And yes, I will send comments to the FDA. After all, I do really want 
> this to succeed.
> Veronica
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide
Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Sandra Ryan via Diabetes-Talk
> Sent: Saturday, July 09, 2016 7:51 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Sandra Ryan
> Subject: Re: [Diabetes-talk] Accessible CGM
> 
> Hi Veronica,
> 
> Oops! Sorry for the pump mistake!
> 
> It sounds to me like, as a user of the product, your comments here 
> would be valuable for FDA consideration. I'm sure they don't just want 
> the glowing reports.
> 
> I wish I remembered the name of the individual who talked about the 
> Dexcom at the DAN meeting. I think her name was Katie, but that's not 
> enough info to be helpful.
> 
> I don't use the Dexcom, and wonder whether I could, since I'm allergic 
> to tape adhesive. Kind of an awkward allergy.
> 
> Good luck with the CGM. 
> 
> Sandi
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Saturday, July 9, 2016 4:30 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-talk] Accessible CGM
> 
> Sandy, be careful about your message. Medicare does cover pumps, but 
> not the pumps where the insulin is stored in the part that goes into 
> your body. So they will cover Medtronic and Animas, but not Omnipod. 
> So it's only some pumps Medicare will not cover.
> As for the Dexcom, I would agree that the tape is the weak link. 
> Although today I seem to have a sensor that just doesn't seem to want 
> to calibrate with my meter. If it doesn't calibrate by this evening, 
> it will be bye bye sensor after one day, not the full seven days. As 
> long as there's this much of a calibration issue, I'm not sure it's 
> ready to be signed off for insulin dosing. I'd love the convenience 
> and I do sure get that meters are only accurate within 20 per cent. 
> Then you take this device and get 20 per cent from the meter and oh 
> boy! The other thing is that there is a bit of a lag for any number in 
> the Dexcom because it's using a different fluid when it measures. But 
> I'd love to know how this person does the extra tape. I'm trying to 
> figure out how to cut a hole out of the middle of a piece of Tegaderm 
> and see if it will fit over the tape and just a bit beyond the edges. 
> I'm not quite there yet though. <grin>  But I hope they keep refining 
> everything and that regardless of insurance type, anyone who needs one
should have one.
> I do like the information so I hope things settle down soon. It's been 
> three weeks for me so far. Because of the Dexcom I did learn that the 
> current batch of Prednizone I'm taking is truly junk. I see when it 
> kicks in and by
> 8:00 at night, it's gone from my system. I've done more changes in my 
> basal rate in the past week than I've done all year. Sheesh! And for 
> my money, the worst thing about the Dexcom is if an alarm goes off 
> during a doctor's appointment. Oops! Hi Doc! <grin> Anyway, it will be 
> interesting to see how things progress.
> Veronica
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide
Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Sandra Ryan via Diabetes-Talk
> Sent: Friday, July 08, 2016 10:30 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Sandra Ryan
> Subject: Re: [Diabetes-talk] Accessible CGM
> 
> Right now Medicare doesn't cover CGM's or pumps. There is an FDA 
> advisory panel hearing on July 21 to consider re-labeling the CGM 
> (specifically Dexcom CGM) as a tool for determining treatment (insulin 
> dosing), which it is currently not approved for. This change could 
> lead to Medicare coverage, since they currently consider it an adjunct 
> to blood glucose meters based on FDA's current approval.
> 
> You can play a part in this hearing by going to
> 
> www.diaTribe.org/CGM
> 
> And signing onto their letter to FDA by July 13. There is also 
> information there about how to submit a comment to the FDA for the
hearing.
> 
> At the DAN meeting at convention, one person who has used the G5 
> device for five or six months stated that she is a surfer, and can 
> wear the device while surfing. She said she does use additional tape, 
> so the tape may be the weak link with this one!
> 
> Sandi
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, July 8, 2016 12:18 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Accessible CGM
> 
> And as I understand, Medicare does not cover it, correct? How much is 
> it out of pocket?
> 
> Do any insurances cover it?
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Friday, July 08, 2016 11:09 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-talk] Accessible CGM
> 
> Bridgit, you buy the Dexcom G5 mobile which comes with a receiver, 
> that we won't use. Then you put the Dexcom app on your iPhone. If you 
> want your doctor to have access to your graphs and numbers, you put 
> another app on the phone to do that.
> Once I figured out that my first four sensors had bad tape on them, 
> I've been doing a bit better. But I still can't get the thing stuck to 
> me without at least one wrinkle in the tape. By the end of the week, 
> my sensor usually doesn't stay on for that last shower. The hardest 
> thing for me was remembering to keep track of my iPhone, which must be
within 20 feet of you.
> Mine has interrupted me a lot during the night though and I definitely 
> am getting less sleep right now. But I have learned a lot in the last 
> three and a half weeks and it's nice to have the information for sure.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide
Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, July 08, 2016 8:36 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Accessible CGM
> 
> Thanks.
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Sandra Ryan via Diabetes-Talk
> Sent: Friday, July 08, 2016 10:28 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Sandra Ryan <sjryan2 at gmail.com>
> Subject: Re: [Diabetes-talk] Accessible CGM
> 
> Hi Bridgit,
> 
> It's the Dexcom G5 Mobile. 
> 
> Sandi
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, July 8, 2016 10:16 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: [Diabetes-talk] Accessible CGM
> 
> What's the name of the CGM that has an accessible app? Thanks.
> 
> Bridgit
> 
> 
> _______________________________________________
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> laurel
> creekmusic.com
> 
> 
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> laurel
> creekmusic.com
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> 
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> laurel
> creekmusic.com
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> 
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