[Diabetes-talk] Insulin Pumps, and Scar Tissue from Years of Syringes

Dr. Denise M Robinson deniserob at gmail.com
Wed Nov 16 21:53:24 UTC 2016


Bridget
Have you ever heard of CIPA? It is a known  *congenital* insensitivity to
pain with anhidrosis, or CIPA — a rare genetic disorder that makes you
unable to feel pain.
Check into that--may be a very interesting fact about yourself.

*Dr Denise M Robinson*
Denise M. Robinson, TVI, Ph.D.
CEO, TechVision, LLC
Specialist in Technology/Training/Teaching for blind/low vision/virtual
instruction for schools
Also Private training to your needs
423-573-6413

Website with hundreds of informational articles & lessons on PC, Office
products, Mac, iPad/iTools and more, all done with
keystrokes: www.yourtechvision.com







On Wed, Nov 16, 2016 at 4:23 PM, Veronica Elsea via Diabetes-Talk <
diabetes-talk at nfbnet.org> wrote:

> I would think that tissue response might be different than pain response
> but
> hey, my degree's in music! <grin> But the body is such a fascinating
> complex
> thing sometimes I think it's a wonder that any of us function. <grin>
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available
> on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, November 16, 2016 12:28 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Insulin Pumps, and Scar Tissue from Years of
> Syringes
>
> I also have a freakishly high tolerance for pain. Not sure if it in any way
> relates. When I went into labor with my son, I had no pain during
> contractions. And after my C-section, no pain at all. Not even discomfort.
> After my breast reduction, which I was told would be super painful
> afterwards, nothing. Same with my broken ankle. First, I had no pain, just
> a
> little discomfort when I broke it. The doctor assumed I just had a sprain
> because I was in no pain and could still rotate it. But after he saw the
> X-rays, he was shocked I was not in pain. Several bones were broke. I had
> to
> have surgery, and again, no pain at all afterwards.
>
> I feel pain if I'm pricked with something or burnt or knock hard into
> something- it's not like I never feel pain. But for these major things, I
> have not felt a drop of pain. No one can explain it.
>
> Wonder if this relates at all to my skin tissue and why I haven't
> experienced scar tissue or calluses. I've been very fortunate in this
> regard, but it is curious to me.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-Talk
> Sent: Wednesday, November 16, 2016 1:16 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-talk] Insulin Pumps, and Scar Tissue from Years of
> Syringes
>
> I wonder how much of the body's response is dictated by other inflammatory
> factors or reactions. Just seems to be some variation in the way we heal
> and
> respond to various little invaders, even those we put there ourselves.
> <grin> I too have put tons of lotions and stuff on my fingers but alas, no
> change. Guess it's making the best of the tissue we're dealt. <grin>
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available
> on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, November 16, 2016 10:52 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Insulin Pumps, and Scar Tissue from Years of
> Syringes
>
> That's another thing. I've been testing for 30 years, and I test about 6 to
> 8 times a day, and I have few calluses on my fingers. You can't really feel
> a difference where I test and where I don't. I do lotion frequently;
> perhaps
> that helps.
>
> I'm sure in another 30 years this will all be a different story, grin.
>
> I've always been told to rotate injections/pump sets from side-to-side and
> in various locations on each side. I've never heard to stick to one side
> for
> a month. Interesting.
>
> I agree that Joyce's training should have been set up the minute a pump was
> approved and shipped. Someone dropped the ball there.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-Talk
> Sent: Wednesday, November 16, 2016 12:38 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-talk] Insulin Pumps, and Scar Tissue from Years of
> Syringes
>
> I actually contacted the company myself and set up my own training because
> we didn't have a decent training department. The arrangements for this
> should have started as soon as everyone knew you'd be getting the pump.
> Sheesh!
> As for scar tissue, I have no idea why my right side is worse. I alternate
> one month on the left, one on the right and so on. When I first started I'd
> alternate with each injection but a Minimed instructor who visited our pump
> group said that you'd get better healing if you alternated month by month.
> Don't know if it's true, but if it is, I was about 16 years late on that
> one. <grin> I've been doing this just over 28 years. It's the same deal
> with
> my fingers. When I find a spot that doesn't have a callous, no problem
> getting blood. Come on geniuses! Let's see that next invention! <grin>
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available
> on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, November 16, 2016 6:09 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Insulin Pumps, and Scar Tissue from Years of
> Syringes
>
> Your endo should have coordinated a training for immediately after you
> received the pump. With both my Cosmo and Animas, the companies did not set
> up trainings, it was my endo and diabetes educator at the clinic who
> trained
> me. This should have all been set up a while ago. I would contact your endo
> right away and set a training up. They will not contact you, you need to
> contact them.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> blindhands--- via Diabetes-Talk
> Sent: Tuesday, November 15, 2016 10:20 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: blindhands at aol.com
> Subject: Re: [Diabetes-talk] Insulin Pumps, and Scar Tissue from Years of
> Syringes
>
> As of Thanksgiving Day I will have been taking insulin for 58 years and
> since I am right handed I would say I have been taking it more on the left
> side then my right above my waist band.  My right does feel not as plyable
> then my left.
>
> I will be getting the insulin pump tdelivered to my home on Thursday.  How
> long does it take for Medtronics to hook you up with a trainer and they
> come
> out and start training?  I don't have an appointment until 2 months from
> now
> with the endocrinologist.
>
> Joyce
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Joy Stigile via Diabetes-Talk
> Sent: Tuesday, November 15, 2016 6:54 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Joy Stigile <joystigile at gmail.com>
> Subject: Re: [Diabetes-talk] Insulin Pumps, and Scar Tissue from Years of
> Syringes
>
> Hi All,
> Since last Saturday, November 12, I have been taking Insulin for 50 years!
> My right side of my lower abdomen has less scar tissue then the left.  What
> is weird though, I inject my insulin more often in the right side then the
> left side.
>
> Warmly, Joy
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Everett Gavel via Diabetes-Talk
> Sent: Tuesday, November 15, 2016 10:44 AM
> To: diabetes-talk at nfbnet.org
> Cc: Everett Gavel <everett at everettgavel.com>
> Subject: [Diabetes-talk] Insulin Pumps, and Scar Tissue from Years of
> Syringes
>
> Hello All,
>
> I've recently realized an amazing difference in my insulin absorption with
> my insulin pump that I've been using for I believe it's going on 3 years
> now. Might be 2 years, though. I'm getting rather forgetful anymore. That's
> what years of pretending you don't have Diabetes gets you. It's amazing how
> much you learn after those teenage years when you know it all. Anyway,
> about
> the insulin absorption...
>
> I thought I'd been safely sticking my tubing in spots where there wasn't
> any, or at least very little, scar tissue from the decades of multiple
> syringe pokes per day since I was 10 years old, y'know? Up along the edge
> of
> my rib cage, above my belly button, on my kidney areas, etc. Places I
> wouldn't have and don't think I did, stick nearly inch-long needles into
> when I was using syringes, y'know?
>
> But I just the other day, almost a week ago now, tried sticking the site up
> on the side of my chest area, between my nipple and my arm pit, basically.
> And what a surprise, my blood sugars have not registered this well for this
> many days in a row for years. Possibly decades. Seriously. I've had near
> perfect sugar levels for almost a week straight now, and I'm not doing
> anything different than I have been for the last couple/few years.
> The only difference that I can recognize is that the injection/tubing site
> is in a place where I have never, ever stuck a needle in my life. And so
> I'm
> recognizing that not only over the last few months where I've been having
> trouble finding sites where it will absorb decently through my scar tissue,
> but it looks now like even when I thought it was absorbing okay most times,
> it hadn't really been. Because I'm telling you, this past week has felt
> great!
>
> Now, my question to you all is, has there been any research done on getting
> injection sites for insulin pumps that will penetrate past and/or through
> scar tissue, to absorb better? Because it seems that others like me, who've
> been taking syringe shots multiple times per day for decades, might have
> problems like this too. And as we continue on, the scar tissue isn't going
> to dissipate or lessen, but rather, get worse. So, has any big pharma
> company been researching how to help life-long type 1 diabetics absorb
> insulin better as they age and deal with growing scar tissue?
>
>
> Thanks,
> Everett
>
>
>
>
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