[Diabetes-Talk] G6 issue

Wed Dec 4 06:03:15 UTC 2019

Amen Jamie!

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie Gurganus via Diabetes-Talk
Sent: Tuesday, December 3, 2019 1:39 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: jamielgurganus at gmail.com
Subject: Re: [Diabetes-Talk] G6 issue

I agree.  Having been diagnosed at age 4 in the pre-historic age of diabetic care, I do appreciate how much easier managing my diabetes has become over the years.  My parents and I have gone from glass syringes, pork to the wonderful invention of synthetic insulin,  urine tests using tablets to the wonderful test tape and dip sticks, etc.  I did not test a blood sugar with a machine until I was a sophomore in college.  I also lost my vision while in college, but I managed to graduate using taped lectures and books. Being blind and a diabetic have been made a whole lot easier to manage independently with the help of technology.  It is great when it works!

					Jamie

					Jamie

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, December 3, 2019 3:23 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] G6 issue

A baby monitor doesn't alert you to a low before it becomes bad. It will notify you once a reaction is happening but not sooner. And what older kid or teen wants a baby monitor in their room? Yes, tech fails, and we need back-ups, but as a parent myself, I would feel much safer with a CGM as one of my tools if either of my boys had diabetes. I've also had type 1 since I was 4, bringing me to 35 years this coming year. I've managed diabetes with seemingly crude technology until now; we all have. But most of us agree that a lot of this tech has helped so much. Hence why us pump users dred having to go off pumps in a couple of years. Lots of things in life were and have been managed before modern tech; doesn't mean new tech doesn't enhance our lives now, or that any of us should condescend to people who rely on certain tech. Whether it be for health related reasons or anything else. Yes, have back-ups, but we also shouldn't have such derisive attitudes towards it either. And again, as a parent, any tool helping me better parent is not a bad thing.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Ed Worrell via Diabetes-Talk
Sent: Tuesday, December 3, 2019 3:13 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Ed Worrell <ntnmprt at hotmail.com>
Subject: Re: [Diabetes-Talk] G6 issue

Bridgit,

I agree that it would have been nice when I was a kid as well. I have had diabetes for 32 years now. I was diagnosed at the age of 5. 

People need to have a back up plan in place when technology doesn’t work. I do.

Parents maybe should hold on to a baby monitor. The CGM alerts worked, place the baby monitor near the device in the Child's room and you have the same thing as relying on your phone. It seemed to me that there was a ton of pointing fingers and not enough figuring out what to do next.

I understand Dexcom needs to make sure stuff like this doesn’t happen, but technology fails, life gets in the way, etc.

 Ed W.

> On Dec 3, 2019, at 12:24 PM, Ed Worrell <ntnmprt at hotmail.com> wrote:
> 
> I is because parents today don’t know how to control their children’s diabetes without the CGM system. 
> 
> They are mad as their children can “Die in their sleep” without the notifications being pushed to the parents devices on the other side of the house.
> 
> I made it just fine for 25-26 years without the CGM systems. Granted they have helped a ton in the last few years but I still can control my diabetes without them.
> 
> You know because technology fails at the most inopportune times.
> 
> Ed W.
> 
>> On Dec 3, 2019, at 12:01 PM, Jude DaShiell via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> From what I've read on facebook the dexcom follow service has been 
>> down since Friday, November 29, 2019.  I have no clue as to why and 
>> it has got lots of parents angry.
>> 
>> On Tue, 3 Dec 2019, Jamie Gurganus via Diabetes-Talk wrote:
>> 
>>> Date: Tue, 3 Dec 2019 11:45:59
>>> From: Jamie Gurganus via Diabetes-Talk <diabetes-talk at nfbnet.org>
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] G6 issue
>>> 
>>> Hi all!  As you may know, whenever there is an IOS update, Dexcom 
>>> gives us that wonderful warning message for what seems like ages.
>>> Since the latest update, I am getting a different warning that
>>> states:  Dexcom Share/follow services are not fully functional.
>>> 
>>> 
>>> 
>>> After clicking on "Continue to app", I can get my blood sugar value, 
>>> but I can't dismiss any alerts.  When this occurred in the past, I 
>>> would just close out the app, open it back up and the problem would be resolved.  Not
>>> this time.   So, you all know what happens when you don't OK the urgent low
>>> alarm.  I was not a happy camper at 3 AM when I could not silence 
>>> that blasting alarm.
>>> 
>>> 
>>> 
>>> I could not find anything on Dexcom's web site about this, and I 
>>> haven't called tech support yet.  I always fear that I will be 
>>> turned in to the Medicare police for using my phone as my receiver.
>>> Anyway, I was just wondering if anyone else is experiencing this.
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
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>>> 
>> 
>> --
>> 
>> 
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> 

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