[Diabetes-Talk] OmniPod and Medtronic 530G

Fri Feb 8 08:36:15 UTC 2019

Dar,

Alexa is what Amazon Echo's use; the device you have in your house that can
play music and you can ask it questions and stuff. I think you mean Syrie,
which is the voice on Apple devices like iPhones.

I still wouldn't trust Syrie on my phone to run medical devices. What
devices like pumps need are voice-over, which Apple has for iPhones but is
different than Syrie.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Thursday, February 7, 2019 8:32 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] OmniPod and Medtronic 530G

No joke,
I would trust it.
You have her in your phone as well.
If it would help me be even more independent I would give it a fare try.
We are stopped in so many ways, just has to be one more way to get around
everything.
It was shared last night that the dot moves around the top of the pod I had
thought of adding small dots to help you out.
Where if what moves around the area, that wouldn't work.
Keep up the swell work and making noise at least they are hearing from you.

Original message:
> Not to mention that with Alexa, literally anyone could give her 
> directions, accidently or otherwise activating a pump. I'm sure the 
> Alexa comment was a joke, but I wouldn't trust a medical device that 
> can be ran via my Echo. My lights, my vacuum, even my thermostat, but not
my insulin pump.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Veronica Elsea via Diabetes-Talk
> Sent: Thursday, February 7, 2019 4:14 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] OmniPod and Medtronic 530G

> Hi Verlyn.
> First, as with most any pump, you can try it for a month and if it 
> doesn't work out, they will help you cancel all insurance and costs. 
> In addition, you can run the Omnipod with saline while you try it out 
> if you like. I'd be curious about this other blind Omnipod user as I 
> haven't yet met anyone. I knew of one guy many years ago but he was not
totally blind.
> I actually set up sessions with a trainer before I'd made up my mind. 
> It's not for the endocrinologist to say what you can and can't handle. 
> After all, not all sighted people like or can handle every pump they 
> see either. So we should have the right to try something and reject 
> it, just as they do. Some days I really get tired of having to be so darn
perfect all of the time.
> <grrrrrrrrr!> I actually decided not to go with this pump in 2009, 
> almost chose it in 2017 but went with the Animas instead. Bad move 
> there, as it turned out. So in 2018, I saw it as my last hope and it 
> is working out well for me. But truthfully, for all these 27 years 
> I've used a pump, there has been trickery involved in working around 
> inaccessible features and right now, that's just how it is if we want
those benefits.
> And no, we're not going to get Alexa or anyone like that right now 
> because that would have to get FDA involvement and special approval, bla
bla bla!
> Not happening.
> Veronica

> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide
Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veryln Baldwin via Diabetes-Talk
> Sent: Wednesday, February 06, 2019 8:54 PM
> To: diabetes-talk at nfbnet.org
> Cc: Veryln Baldwin
> Subject: [Diabetes-Talk] OmniPod and Medtronic 530G

> Thank you to everyone that responded.

> I spoke with Medtronic this morning about the 730G and was told they 
> were not sure they had any more in stock that could be given to 
> someone who had never had one as Medtronic is keeping these for 
> replacement for any 730G users that may have trouble with their current
pump.
> I did not know about the 530G until reading the groups responses. So I 
> will be back on the phone with Medtronic tomorrow in regards to this
model.

> Also, I will speak with Veronica regarding the Omni Pod as I have been 
> emailing with another blind Omni Pod user.
> The difficulty at hand is convincing my doctor that I can indeed use 
> the Omni Pod indecently. When I saw her Monday she was not willing to 
> give me a prescription for it. In addition due to the small amount of 
> basal rates I use the pens will not work out either. Such a 
> encouraging visit as her last comment was, "I don't know anything that 
> might work." You can just imagine how that made feel. She is a great 
> Endocrinologist who has a passion for diabetic education. However, I 
> am the only totally blind patient she has had in all her years of
practice.

> I am determined to stay on a pump and will have faith that in the next 
> year one of companys will develop an accessible pump.

> Thanks again and I'll keep you posted.

> Blessings,

> Verlyn

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--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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