[Diabetes-Talk] OmniPod and Medtronic 530G

Sat Feb 9 01:57:30 UTC 2019

Oh I wouldn't trust siri either.
She said notty words in one of my dog classes. loll.

Original message:
> Dar,

> Alexa is what Amazon Echo's use; the device you have in your house that can
> play music and you can ask it questions and stuff. I think you mean Syrie,
> which is the voice on Apple devices like iPhones.

> I still wouldn't trust Syrie on my phone to run medical devices. What
> devices like pumps need are voice-over, which Apple has for iPhones but is
> different than Syrie.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
> via Diabetes-Talk
> Sent: Thursday, February 7, 2019 8:32 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] OmniPod and Medtronic 530G

> No joke,
> I would trust it.
> You have her in your phone as well.
> If it would help me be even more independent I would give it a fare try.
> We are stopped in so many ways, just has to be one more way to get around
> everything.
> It was shared last night that the dot moves around the top of the pod I had
> thought of adding small dots to help you out.
> Where if what moves around the area, that wouldn't work.
> Keep up the swell work and making noise at least they are hearing from you.

> Original message:
>> Not to mention that with Alexa, literally anyone could give her
>> directions, accidently or otherwise activating a pump. I'm sure the
>> Alexa comment was a joke, but I wouldn't trust a medical device that
>> can be ran via my Echo. My lights, my vacuum, even my thermostat, but not
> my insulin pump.

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Veronica Elsea via Diabetes-Talk
>> Sent: Thursday, February 7, 2019 4:14 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] OmniPod and Medtronic 530G

>> Hi Verlyn.
>> First, as with most any pump, you can try it for a month and if it
>> doesn't work out, they will help you cancel all insurance and costs.
>> In addition, you can run the Omnipod with saline while you try it out
>> if you like. I'd be curious about this other blind Omnipod user as I
>> haven't yet met anyone. I knew of one guy many years ago but he was not
> totally blind.
>> I actually set up sessions with a trainer before I'd made up my mind.
>> It's not for the endocrinologist to say what you can and can't handle.
>> After all, not all sighted people like or can handle every pump they
>> see either. So we should have the right to try something and reject
>> it, just as they do. Some days I really get tired of having to be so darn
> perfect all of the time.
>> <grrrrrrrrr!> I actually decided not to go with this pump in 2009,
>> almost chose it in 2017 but went with the Animas instead. Bad move
>> there, as it turned out. So in 2018, I saw it as my last hope and it
>> is working out well for me. But truthfully, for all these 27 years
>> I've used a pump, there has been trickery involved in working around
>> inaccessible features and right now, that's just how it is if we want
> those benefits.
>> And no, we're not going to get Alexa or anyone like that right now
>> because that would have to get FDA involvement and special approval, bla
> bla bla!
>> Not happening.
>> Veronica

>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>> available on iTunes, along with other music from her and from the Guide
> Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                 Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407

>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Veryln Baldwin via Diabetes-Talk
>> Sent: Wednesday, February 06, 2019 8:54 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: Veryln Baldwin
>> Subject: [Diabetes-Talk] OmniPod and Medtronic 530G

>> Thank you to everyone that responded.

>> I spoke with Medtronic this morning about the 730G and was told they
>> were not sure they had any more in stock that could be given to
>> someone who had never had one as Medtronic is keeping these for
>> replacement for any 730G users that may have trouble with their current
> pump.
>> I did not know about the 530G until reading the groups responses. So I
>> will be back on the phone with Medtronic tomorrow in regards to this
> model.

>> Also, I will speak with Veronica regarding the Omni Pod as I have been
>> emailing with another blind Omni Pod user.
>> The difficulty at hand is convincing my doctor that I can indeed use
>> the Omni Pod indecently. When I saw her Monday she was not willing to
>> give me a prescription for it. In addition due to the small amount of
>> basal rates I use the pens will not work out either. Such a
>> encouraging visit as her last comment was, "I don't know anything that
>> might work." You can just imagine how that made feel. She is a great
>> Endocrinologist who has a passion for diabetic education. However, I
>> am the only totally blind patient she has had in all her years of
> practice.

>> I am determined to stay on a pump and will have faith that in the next
>> year one of companys will develop an accessible pump.

>> Thanks again and I'll keep you posted.

>> Blessings,

>> Verlyn

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>> laurel
>> creekmusic.com

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> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future

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-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future