[Diabetes-Talk] 2019 NFB Legislative Priority

Sun Feb 10 19:00:06 UTC 2019

Veronica,

I don't disagree with you, but this is a starting point. Is anyone else
crafting and introducing legislation that includes accessible medical
devices? No. And the entire point of Washington seminar is so we can speak
directly with reps and their aids about this legislation. Any of us could
have attended a couple of weeks ago, and most affiliate's do provide
financial assistance for members who want to attend, because it's not cheap,
but it's one of the rare times we can meet with actual reps who make all
these decisions. We have the opportunity to say from our own mouths directly
to our reps why this is so important and why we need access like this. We
can contact company after company, but until there are laws supporting us, I
doubt any will listen and create accessible medical tech. So, we need
legislation to be drafted. Is this enough? No. Is the NFB and everyone else
doing everything possible? No. But again, it's a start, and we have to start
somewhere.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Sunday, February 10, 2019 11:58 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] 2019 NFB Legislative Priority

Sorry, I am not totally behind this legislation. Nobody is going to die
waiting ten years for an accessible dish washer. This process is too slow,
and filled with people who know nothing about our lives or the devices we
need. Dish washers don't involve the FDA, Medicare and everyone else. I
believe medical devices will get lost in the shuffle here because the group
of appliances is so large. Not like we heard from the NFB when crafting this
potential legislation, did we? Did I miss something? So if even the people
supposedly speaking on our behalf don't talk to us, what can we expect from
legislators and access board rule making? I don't think so.
Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Sunday, February 10, 2019 9:25 AM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] 2019 NFB Legislative Priority

Yes, this is incredibly important. We've been sending out these notices in
several places. We need support of the Federationist around the country, the
blind community in general and our allies to make this happen. Contact your
reps on capitol hill and get your family and friends to do so as well.
Working together is how we will get this pushed forward.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Milton
Ota via Diabetes-Talk
Sent: Sunday, February 10, 2019 10:02 AM
To: diabetes-talk at nfbnet.org
Cc: Milton Ota <mota1252 at samobile.net>
Subject: [Diabetes-Talk] 2019 NFB Legislative Priority

Hello All:

Here, attached is one of the Legislative Priorities that the National
Federation of the Blind took to Capitol Hill to present to congress. I
suggest that as many of you get on board with this by contacting your
congressman and asking him/her to support this bill once it drops and get a
bill number and assigned to a committee. The more of us diabetics let
congress know of the seriourness of accessibility of medical home equipment
it will get them to get the U.S. Access Board to work on developing
guidelines for manufacturers to design accessibility into their products.

As many of you are aware, diabetes is one of the highest and leading causes
of blindness.

If you have more questions about this legislative priority, I suggest that
you contact someone in the Government Affairs Section in the National Office
of the National Federation of the Blind, (410) 659-9314.

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