[Diabetes-Talk] 2019 NFB Legislative Priority

Sun Feb 10 19:09:17 UTC 2019

Right or wrong, then we need to flood the national office and make this clear. And I mean flood it. We and other members and even our family and friends need to contact Riccobono and national and state how important it is to have a separate bill for medical tech, and make sure people with actual medical conditions be a part of the entire process. Five of us, 10 of us is not enough. I'm guilty of this a lot of the time too, but ranting is good and necessary at times, but at some point, we need to actually do something. How many here are contacting the NFB national office? How many are contacting state and federal reps? We need a concentrated effort on all fronts. And let's keep in mind; it's not just one person (s) or group (s) fault. There are a lot of variables that go into crafting legislation like this. So, I say we send our angry emails to President Riccobono and national and keep doing it until they get the point.

BTW, I was a part of another outside group that assisted in the NFB finally agreeing to the code of conduct that has recently happened, but it took a lot of concentrated effort on our outside group and a lot of communication with national to make it happen. Several people, Federationist and non-Federationist were a part of the group, and we finally made a loud enough noise. It's not changed everything or gone as far as we like, but it's a start. Perhaps those of us here and other blind people with medical conditions need to band together and force some hands too.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Amber Wallenstein via Diabetes-Talk
Sent: Sunday, February 10, 2019 12:20 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Amber Wallenstein <amber.wallens at gmail.com>
Subject: Re: [Diabetes-Talk] 2019 NFB Legislative Priority

I agree Veronica. I was aghast when I read how much time… I counted at least seven years, we will have to wait for anything to happen. I also agree the medical devices are going to get lost in the shuffle. I think there needs to be a higher priority  on medical devices and it needs to be a separate bill.

> On Feb 10, 2019, at 12:57 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Sorry, I am not totally behind this legislation. Nobody is going to 
> die waiting ten years for an accessible dish washer. This process is 
> too slow, and filled with people who know nothing about our lives or 
> the devices we need. Dish washers don't involve the FDA, Medicare and 
> everyone else. I believe medical devices will get lost in the shuffle 
> here because the group of appliances is so large. Not like we heard 
> from the NFB when crafting this potential legislation, did we? Did I 
> miss something? So if even the people supposedly speaking on our 
> behalf don't talk to us, what can we expect from legislators and access board rule making? I don't think so.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Sunday, February 10, 2019 9:25 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] 2019 NFB Legislative Priority
> 
> Yes, this is incredibly important. We've been sending out these 
> notices in several places. We need support of the Federationist around 
> the country, the blind community in general and our allies to make 
> this happen. Contact your reps on capitol hill and get your family and friends to do so as well.
> Working together is how we will get this pushed forward.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Milton Ota via Diabetes-Talk
> Sent: Sunday, February 10, 2019 10:02 AM
> To: diabetes-talk at nfbnet.org
> Cc: Milton Ota <mota1252 at samobile.net>
> Subject: [Diabetes-Talk] 2019 NFB Legislative Priority
> 
> Hello All:
> 
> Here, attached is one of the Legislative Priorities that the National 
> Federation of the Blind took to Capitol Hill to present to congress. I 
> suggest that as many of you get on board with this by contacting your 
> congressman and asking him/her to support this bill once it drops and 
> get a bill number and assigned to a committee. The more of us 
> diabetics let congress know of the seriourness of accessibility of 
> medical home equipment it will get them to get the U.S. Access Board 
> to work on developing guidelines for manufacturers to design accessibility into their products.
> 
> As many of you are aware, diabetes is one of the highest and leading 
> causes of blindness.
> 
> If you have more questions about this legislative priority, I suggest 
> that you contact someone in the Government Affairs Section in the 
> National Office of the National Federation of the Blind, (410) 659-9314.
> 
> 
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> laurel
> creekmusic.com
> 
> 
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