[Diabetes-Talk] AIRA & pump questions

Thu Jun 27 18:54:31 UTC 2019

Dar, very good question. Unfortunately, the reason nobody has taken these companies to court is because there is no law mandating accessible medical equipment. If there's a problem with a web site, a building, there are codes one can readily quote if there's a violation. There just isn't anything for accessible medical equipment. Of course, the question, why not? Good question. Hasn't been done.
Veronica

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-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of d m gina via Diabetes-Talk
Sent: Thursday, June 27, 2019 11:17 AM
To: diabetes-talk at nfbnet.org
Cc: d m gina
Subject: Re: [Diabetes-Talk] AIRA & pump questions

My question again is this,
After you get done with the pumps you have, I read that new pumps won't 
have anything for the blind to use,
if this is correct, then why isn't national nfb or acb working together 
to take companies to court.
I also want to have something in email from a company that is saying,
Since you have ira you don't need us to put anything on a pump for the blind.
I will keep reading.

Original message:
> Dar, it's not separate but equal. As someone once said to me, we need 
> to use every tool in the toolbox, and I would agree that if I am not 
> dressed and using a pump I don't want to be on camera. But nothing is 
> exclusive. For some, for now that may be the only choice.

> Jeanette

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Dar via Diabetes-Talk
> Sent: Wednesday, June 26, 2019 2:45 PM
> To: Diabetes Talk for the Blind
> Cc: Dar
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> From what you are saying is no new person can get a pump if they are 
> blind   If I am correct, this is what we should fight for, not worry 
> what ira does or doesn’t do.

> Always remember with nfb you start with $21 for 30 minutes and can add 
> 50 minutes more if you wish.
> I am pleased it is here and I make the choice to use it

> I would love to know the companies who know about ira and wish not wish 
> to help diabetics

> I would like to know why Mark from nfb is not taking them to court

> Dar
> Every saint has a past,
> Every sinner has a future

>> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Bern,

>> You make a good point in that AIRA is something that not all of us can 
>> afford. Even if I could see myself clear of spending that kind of money 
>> every month for the service, I would not use it for controlling my 
>> insulin pump functions. Yes, I too am in a half state of undress when 
>> working on my pump and aside from modesty issues, nor would I trust a 
>> stranger unfamiliar with the workings of insulin pumps on the phone to 
>> assist me in altering any settings of any type on my pump.

>> Where you and I disagree is that the day has come that pump 
>> manufacturers “must” make adaptations of some type on the pumps they 
>> currently have on the market. We will all be in an extreme, bad place 
>> when next our warrantees are up. Something needs to be done pronto!

>> Eileen

>> From: Bernadette Jacobs via Diabetes-Talk
>> Sent: Wednesday, June 26, 2019 12:50 PM
>> To: Diabetes Talk for the Blind
>> Cc: Bernadette Jacobs
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>> For those of you who use AIRA, I’m leaving all this up to your discretion.

>> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree 
>> tht as long as we have things like AIRA, and “Be My Eyes,” The pump 
>> makers out there won’t be forced to do what they really ought to do in 
>> the first place.  It’s not like others haven’t made their products 
>> accessible.  Things like AIRA and Be My Eyes can simply be used as 
>> scapegoats.  Then, as Veronica has also indicated, when using and 
>> setting up the pump, most of us are at least partially undressed.  I, 
>> for one, am not into posing nude for any camera.

>> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna 
>> happen here.  I’ll let them speak to my seminar.  But, they own’t get 
>> me to purchase it.  No can do.

>> Sent from my iPhone

>>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via 
>>> Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:

>>> Yep.

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> sandi via Diabetes-Talk
>>> Sent: Monday, June 24, 2019 9:30 PM
>>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>>> Cc: sandi <sjryan2 at gmail.com>
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> Well said, my friend! Aira is a tool, but it’s neither the best nor the 
>>> most effective tool we could have. Most of the things it’s good at are 
>>> things that could be accomplished in other ways, many of those ways 
>>> better than this rather expensive, not-always-effective service.

>>> Sandi

>>> Sent from Mail for Windows 10

>>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Monday, June 24, 2019 8:32 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> AIRA isn't the best way to make us independent. It's 24/7 help, but 
>>> it's still sighted help for things that mostly could be made accessible 
>>> in a way that blind people could do it without any sighted help. Forms 
>>> can be formatted for online use; websites can be made accessible; 
>>> devices can be accessible, etc. Sure, until companies get a fire lit 
>>> under them, AIRA is here, but what's the incentive for companies to 
>>> work on accessibility when services like AIRA exist? It's a catch 22. 
>>> We need accessibility now, but now that we have AIRA, companies no 
>>> longer think they need to think about accessibility.

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m 
>>> gina via Diabetes-Talk
>>> Sent: Monday, June 24, 2019 8:05 PM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: d m gina <dmgina at mysero.net>
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> Joyce,
>>> I won't be at convention,
>>> Mike Henson wrote to me on ira list sharing that what we can't read, 
>>> ira is there for us, and does help us stay mobile in anything we want to do.
>>> At no time does it make us less independent, if anything it makes us more.
>>> I do hope and know we will do our best to try to et companies to put in 
>>> a chip for talking meeters.
>>> If they can do it for devices then what is one more device.
>>> Do let us know how the conversation works out.
>>> Thanks again,

>>> Original message:
>>>> When this topic came up there seemed to be some chatter along with

>>> So... In my opinion, it's not the best tool to give us independence. 
>>> True independence would be possible if companies gave a shit (excuse

>>> BTW, this is not a negative comment on AIRA but on society in general.

>>> Bridgitmy French) and worked to make products and devices accessible. 
>>> And now with AIRA, it's not as likely they will.
>>>> opinions regarding the use of AIRA with a pump.  I said I would make
>>>> contact with AIRA and I did.

>>>> I contacted Glenn Takemoto, , Account Executive andhe told me that
>>>> there has been some mention of insulin pumps.  He told me he would be
>>>> at Convention in Vegas and he would be interested in speaking to some
>>>> of the people who have been working for us blind Diabetic pump users
>>>> to get insulin pumps accessible.

>>>> If anyone is interested in making contact while at Convention, please
>>>> send me a note off list and I will send you my conversation with him.

>>>> Joyce

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>>>> sero.net

>>> --
>>> --Dar
>>> skype: dmgina23
>>> FB: dmgina
>>> www.twitter.com/dmgina
>>> every saint has a past
>>> every sinner has a future

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-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
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