[Diabetes-Talk] A call from Medtronics

Thu Aug 27 00:12:11 UTC 2020

Melanie, no there is no accessible pump in Europe. About 15 to 20 years ago, Europe had some accessible blood glucose meters that were not approved here. But right now there is no difference in insulin pumps.
Veronica

Veronica Elsea, owner, Laurel Creek Music Designs

> On Aug 26, 2020, at 4:57 PM, Melanie Torrance via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> I love people on their Soap/Milk Boxes! Does anyone know what’s happening in Europe and other parts of the world? Is there an accessible pump anywhere in the world?
> Melanie
> 
> Sent from Melanie's i phone
> 
>> On Aug 26, 2020, at 7:47 PM, blindhands--- via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> I totally agree with all of you regarding the lack of an accessible pump for the blind.    What we all need to do is keep on contacting the pump companies.  Put the effort into bringing this information out to the public.  I have had the opportunity to speak out regarding the need for diabetics to be aware of their diabetes.  We can't have good control without the access to running our diabetes.  I have gone to diabetic support groups in my area.  I have gone to conferences regarding heart and spoken up there.  I have also had the opportunity to speak for several Health organizations  and doctor groups over in India.  
>> 
>> Maybe getting worked up here will do the same as doing nothing, but don't sit back, let others hear what you have to say and let the folks that might be able to influence  the ones that could make a difference.
>> 
>> I am off my milk box now and will quiet  down .
>> 
>> Joyce Kane
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
>> Sent: Tuesday, August 25, 2020 8:05 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: Re: [Diabetes-Talk] A call from Medtronics
>> 
>> I upgraded my Medtronic pump in March of 2019 with a big to do over getting one of the discontinued model 723 for me. 
>> 
>> I complained bitterly to Medtronic and have expressed that I was in a group of other blind diabetics using pumps who were all having the same difficulty I have in needing a pump we could use and that we needed a pump with accessibility. My doctor, his nurse and their Medtronic rep went to bat over getting a pump I could use and it got pushed a little higher up within the Medtronic organization so far as I know. I was told back then that they were working on a pump that I would be able to use and I’d “be the first on their list” to notify when it was available. Well here we are a year and a half later and not a word, peep or squeak from them. I’m not holding my breath!
>> 
>> I’ll believe it when I see it!
>> 
>> Eileen
>> 
>> From: blindhands--- via Diabetes-Talk
>> Sent: Tuesday, August 25, 2020 6:01 PM
>> To: 'Diabetes Talk for the Blind' 
>> Cc: blindhands at aol.com
>> Subject: [Diabetes-Talk] A call from Medtronics
>> 
>> I hear a lot of talk on this list about Insulin Pumps and not accessible to us blind folks.
>> 
>> 
>> 
>> I would like to know if any of you have taken the time to contact Medtronic ???
>> 
>> 
>> 
>> Well I did  and I included  the concerns that folks have here on this list. 
>> 
>> 
>> 
>> I got a notice that they received my email.  Within a couple of days I received a phone call from Medtronic asking me some questions about my diabetes and wanting to confirm my contact information.  I was told that Medtronic is aware of the difficulty that a blind diabetic has and the need that we would like to continue with our pump treatment and time is running out for some of us.  I myself will have my pump 530G  5 years this November.
>> 
>> 
>> 
>> The contact person said the information gathered will go to the folks working on upgrades.  I told her that Dexcom stepped up to the plate to provide the information we need via an iPhone apt.  She told me that our issue will be worked on and possibly the next upgrade will be addressing our needs.
>> 
>> 
>> 
>> May I say this might be a good time to reach out to Medtronic and express opinion and needs for an accessible pump.
>> 
>> 
>> 
>> Joyce Kane
>> 
>> 
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/melanietorrance%40icloud.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com