[Diabetes-Talk] I can now take an insulin bolus directly from my iPhone after updating my tandem insulin pump and it’s fully accessible using voiceover

[d m gina]

Yes I would have to know how to do this all by myself.
My husband doesn't want anything to do with medicine or anything to 
help me out.
So I am doing all by myself.
He doesn't even want to learn how to give me a shot.
Dar
Original message:
> I, too, I am terribly, terribly sorry about this terrible fire!! What a 
> travesty!! And it seems these things always happen in the middle of the 
> night!! Again, I am so sorry!! The other hand, about the tandem pump 
> and the iPhone, this is great news! However, yes. There is a however. 
> And that is, I am with Jamie and this one. Until there is a way to 
> access everything, fill cartridges, everything else there is, including 
> turning the pump inside out, I won’t switch to it unless or until it is 
> completely and fully accessible. Years ago, I had a conversation with 
> my husband that went similar to this.  when I asked about the 
> accessibility of a given pump, he said, “ H honey, until there’s a pump 
> out there that is completely and fully accessible, as your husband, I 
> won’t even consider letting you use it. I want you to be able to 
> maintain your independence as you always have.“



> Bern

> Sent from my iPhone

>> On Jul 21, 2022, at 9:16 AM, Eileen Scrivani via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Hi Patricia,

>> This is great news that you can now control your pump completely 
>> through the app. I would be very interested in a Tandum pump once they 
>> get the cartridge issues worked out. Please keep us posted.

>> As for the fire I'm glad no one was hurt and your damage to property is 
>> manageable.

>> Eileen


>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Patricia Maddix via Diabetes-Talk
>> Sent: Thursday, July 21, 2022 1:55 AM
>> To: NFB Diabetes Division <Diabetes-Talk at nfbnet.org>
>> Cc: Patricia Maddix <pmaddix at comcast.net>
>> Subject: [Diabetes-Talk] I can now take an insulin bolus directly from 
>> my iPhone after updating my tandem insulin pump and it’s fully 
>> accessible using voiceover

>> Dear friends,
>> After our neighbor‘s house burned down on Sunday morning and damaged 
>> part of the side of our garage I finally was able to take the time to 
>> update my tandem pump to enable me to take a Bolus directly from the 
>> app on my iPhone. Yes, everyone got out of their houses safely due to a 
>> young neighbor who happen to be awake and saw the flames and the 
>> initial explosion and ran a block to wake all of us up. Those 
>> additional minutes may have saved lives and enabled enough time for my 
>> husband to get outside and start hosing down the side of our house to 
>> reduce the amount of flames that were able to take hold. Only a Only a 
>> small amount of the siding caught fire, some windows shattered from the 
>> heat, the fence burned down, our wood pile burned up and gas and 
>> electric utility boxes damaged. But the main thing is we are safe. Now 
>> life must go on.
>> So, just wanted to share that I’m having a similar experience to Liz 
>> Oleksa and being able to  take an insulin bolus from my phone. All of 
>> the regular bolus features including calculating dose from carbs, 
>> calculating needed corrections, accounting for insulin on board are 
>> available through the app except for the extended bolus feature. I have 
>> only had one meal since getting it up and running but everything worked 
>> great.  Need to practice with it a bit more so it becomes second nature 
>> but everything seems to read aloud.
>> The main thing that I think we have to learn from this is that all of 
>> the pump  features should be able to be made accessible in this manner 
>> and if it can be done on the insulin pump it certainly can be done on 
>> other medical devices. So no medical device manufacturer has an excuse 
>> that it cannot be done.   We have very solid proof that it can and has 
>> been done.
>> I think that in the near rather than distant future we Will be looking 
>> back at this landmark event as the beginning of an explosion of 
>> accessibility for blind and low vision users of insulin pumps and 
>> hopefully other medical devices.
>> Patricia

>> Sent from my iPhone

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