[Home-on-the-range] research on blindness and sleep disorder

James H. "Jim" Canaday M.A. N6YR n6yr at sunflower.com
Tue Jul 27 15:58:26 UTC 2010


friends,
I've received the message below.   this is a 
reputable study topic.  and apparently the 
pharmaceutical company is donating to NFB for each participant.
thought I'd pass this along.
jc

>To: <n6yr at sunflower.com>
>X-Antivirus: avast! (VPS 100727-0, 07/27/2010), Inbound message
>X-Antivirus-Status: Clean
>
>Dear Mr. Canaday
>
>I am contacting you because I believe that some 
>members of the Douglas County Area Chapter may 
>be interested in learning about our effort to 
>better understand sleep problems in people who are totally blind.
>I am from Vanda Pharmaceuticals, a 
>pharmaceutical company located in Rockville, MD. 
>Vanda is developing a new investigational 
>medicine to treat the complaint of the 
>sleep/wake cycle experienced by some individuals 
>with no light perception. For this reason, we 
>are interested in learning more about people who 
>have no light perception blindness and the 
>problems they face with sleep or wakefulness. 
>Below is an announcement about upcoming sleep 
>studies that some totally blind individuals may be interested in.
>
>We gladly welcome the opportunity to talk to you 
>about our plans and to learn more about you and 
>your organization. We also would appreciate if 
>you could pass this information along to other 
>individuals in your organization and your 
>community who may be interested by this research.
>
>
>Sincerely,
>
>C. Lavedan
>
>
>
>
>
>Announcing Upcoming Sleep Studies in Totally Blind Individuals
>Are you blind with no light perception?
>Do you have problems sleeping or trouble with daytime sleepiness?
>
>Non-24-hour sleep wake disorder occurs in some 
>individuals who are totally blind and lack the 
>light sensitivity necessary to reset the “body 
>clock”.  This can lead to problems with sleep 
>and/or daytime excessive sleepiness.
>You can help researchers understand non-24-hour 
>sleep wake disorder by taking a brief phone 
>survey. In addition, you will have the 
>opportunity to be informed of upcoming clinical 
>studies recruiting in your area.
>Survey Participants Need to:
>·        be over 18 years of age
>·        be blind with no light perception
>·        have sleep problems and/or daytime sleepiness
>
>Collected information will be kept strictly confidential.
>For each completed survey, a donation of $25 up 
>to $50,000 will be made to the National Federation of the Blind.
>If you want to participate in the survey, please 
>call toll-free 1-877-708-1931, Monday-Friday between 9:00 AM and 5:00 PM ET.
>
>
>
>
>
>
>
>
>Christian Lavedan, Ph.D.
>
>Head of Discovery
>
>Vanda Pharmaceuticals
>
>9605 Medical Center Drive Suite 300
>
>Rockville, MD 20850, USA
>
>Tel: 240.599.4500
>
>Fax: 301.294.1900
>
><http://www.vandapharma.com/>www.vandapharma.com
>
>
>
>
>
>[]
>
>
>
>
>****************************************************************************
>
>This message, including its attachments, is company
>
>confidential and may contain proprietary information.
>
>Any unauthorized distribution of this message is strictly prohibited
>
>





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