[nabs-l] Voc Rehab Appeal

Arielle Silverman arielle71 at gmail.com
Fri Apr 19 02:51:54 UTC 2013


Or maybe Suzanne's appeal was so well-argued that, once the supervisor
actually read it, he was convinced to approve the request!
Arielle

On 4/18/13, Kaiti Shelton <crazy4clarinet104 at gmail.com> wrote:
> The squeaky wheel will get the grease sooner or later... I agree with
> you, Sam.  It's sad that we have to squeak so loud in order to get
> something that's truly important for us to have some times, but at
> least it gets worked out.  Congrats, Suzanne.
>
> On 4/18/13, Suzanne Germano <sgermano at asu.edu> wrote:
>> It is a relief thank you.
>>
>>
>> On Thu, Apr 18, 2013 at 3:16 PM, Sam Nelson <samnelson1 at verizon.net>
>> wrote:
>>
>>> Hi Suzanne,
>>>  Voc rehab can be so strange!  Congratulations on getting it aprooved
>>> though! Maybe they realized you weren't going away until this got
>>> settled
>>> and they wanted to just get you out of their hair. It's sad that that's
>>> the
>>> kind of relationship we have to have with these people a lot of the
>>> time.
>>> But good  you got what you needed. That must be a relief!
>>>  Sam
>>>
>>> -----Original Message-----
>>> From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of Suzanne
>>> Germano
>>> Sent: Thursday, April 18, 2013 4:38 PM
>>> To: National Association of Blind Students mailing list
>>> Subject: Re: [nabs-l] Voc Rehab Appeal
>>>
>>> I have left a message for Bob but now out of the blue they decided to
>>> approve it.
>>>
>>>
>>> On Thu, Apr 18, 2013 at 2:10 PM, Arielle Silverman <
>>> Arielle.Silverman at asu.edu> wrote:
>>>
>>> > When I appealed Arizona rehab to send me to Louisiana Center for
>>> > training, I spoke with Ed House. I don't recall what his position is
>>> > but he apparently has the authority to override initial counselor
>>> > decisions if there is justification. You can get his contact info from
>>> > Bob; I don't have it anymore.
>>> > Arielle
>>> >
>>> > On 4/18/13, Suzanne Germano <sgermano at asu.edu> wrote:
>>> > > I have the contact info for NFB AZ state president and will be
>>> > > emailing
>>> > or
>>> > > calling him.
>>> > >
>>> > >
>>> > > On Thu, Apr 18, 2013 at 12:05 PM, Kaiti Shelton
>>> > > <crazy4clarinet104 at gmail.com
>>> > >> wrote:
>>> > >
>>> > >> Absolutely, go all the way to the director of the entire rehab
>>> > >> services for your state if the vision director won't listen, and if
>>> > >> the overall director doesn't listen then you honestly might have
>>> > >> grounds for a lawsuit.
>>> > >>
>>> > >> I'd really get in contact with your NFB state affiliate about this.
>>> > >> They would know the system much better than any of us and would be
>>> > >> able to stand behind you with this.  At this point, just do what
>>> > >> you have to do to make sure your needs are met.
>>> > >>
>>> > >> On 4/17/13, justin williams <justin.williams2 at gmail.com> wrote:
>>> > >> > Go as high as you have to go.
>>> > >> >
>>> > >> > -----Original Message-----
>>> > >> > From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of
>>> > >> > Suzanne Germano
>>> > >> > Sent: Thursday, April 18, 2013 2:41 PM
>>> > >> > To: National Association of Blind Students mailing list
>>> > >> > Subject: Re: [nabs-l] Voc Rehab Appeal
>>> > >> >
>>> > >> > I have emailed requesting a face to face to make sure they have a
>>> > clear
>>> > >> > understanding of my request even though I sent a 2 page appeal
>>> > >> > with 12 supporting documents. Not to mention my initial request
>>> > >> > and follow up letter were very clear on what I needed and why.
>>> > >> >
>>> > >> > The supervisor thinks all i want is a regular low vision exam. I
>>> > >> > already paid for one of those out of pocket in November. I paid
>>> > >> > for red contacts
>>> > >> > ($400) out of pocket in Dec as I needed them before school
>>> > >> > started. I
>>> > >> tried
>>> > >> > going with 30% lighter than I was wearing for outdoors but they
>>> > >> > are still not right for indoors and reading. I could not wait for
>>> > >> > the approval process. I paid $600 out of pocket for glasses that
>>> > >> > I only need
>>> > because
>>> > >> of
>>> > >> > returning to school. I paid $200 out of pocket for a monocular. I
>>> > >> > bought all this because I knew rehab would take forever and I was
>>> > >> > not going to start the semester in a position to fail.
>>> > >> >
>>> > >> > What does not make sense is that they will pay for the contacts
>>> > >> > if
>>> > >> ordered
>>> > >> > form an AZ Dr that is one of their vendors but not if form the Dr
>>> > >> > in Indiana. The contacts will cost the same. the difference would
>>> > >> > be the Indiana Dr would be able to find the right color and the
>>> > >> > AZ doctors will not. They also said they will pay for a low
>>> > >> > vision exam here in AZ above what Medicare covers. So why they
>>> > >> > will nto pay for a doctor who
>>> > >> specializes
>>> > >> > in determining the right contacts for an achromat is beyond me..
>>> > >> >
>>> > >> >
>>> > >> > On Thu, Apr 18, 2013 at 11:15 AM, Kaiti Shelton
>>> > >> > <crazy4clarinet104 at gmail.com
>>> > >> >> wrote:
>>> > >> >
>>> > >> >> And if that doesn't work, go to the superviser's boss and speak
>>> > >> >> directly to them.  This run around game sounds ridiculous.
>>> > >> >>
>>> > >> >> On 4/17/13, justin williams <justin.williams2 at gmail.com> wrote:
>>> > >> >> > I would try to talk to the supervisor one more time by phone
>>> > >> >> > if I could.
>>> > >> >> > If
>>> > >> >> > you explain your situation, and that you have filed an appeal,
>>> > >> >> > you may be able to speed things up.
>>> > >> >> >
>>> > >> >> > -----Original Message-----
>>> > >> >> > From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of
>>> > >> >> > Kaiti
>>> > >> >> Shelton
>>> > >> >> > Sent: Thursday, April 18, 2013 1:36 PM
>>> > >> >> > To: National Association of Blind Students mailing list
>>> > >> >> > Subject: Re: [nabs-l] Voc Rehab Appeal
>>> > >> >> >
>>> > >> >> > Hi,
>>> > >> >> >
>>> > >> >> > Suzanne, I totally sympathize.  I know when people don't read
>>> > >> >> > what you send them it could be quite frustrating, and I'm not
>>> > >> >> > going to even bring up the consumer choice stuff that they're
>>> > >> >> > not paying attention to.
>>> > >> >> >
>>> > >> >> > I'd speak directly to the person at the top by phone.  It
>>> > >> >> > looks to me like you have tried the councelor, tried the
>>> > >> >> > superviser, so the next person up is probably the one you have
>>> > >> >> > to
>>> go to.
>>> > >> >> >
>>> > >> >> > On 4/17/13, justin williams <justin.williams2 at gmail.com>
>>> > >> >> > wrote:
>>> > >> >> >> Try to talk to the supervisor if the counselor proves
>>> > unresponsive.
>>> > >> >> >> Failing
>>> > >> >> >> that, Cap is your next attempt.  Try not to do this; try to
>>> > >> >> >> work
>>> > it
>>> > >> >> >> out with the counselor and the supervisor.
>>> > >> >> >>
>>> > >> >> >> -----Original Message-----
>>> > >> >> >> From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of
>>> > >> >> >> Suzanne Germano
>>> > >> >> >> Sent: Thursday, April 18, 2013 12:25 PM
>>> > >> >> >> To: National Association of Blind Students mailing list
>>> > >> >> >> Subject: Re: [nabs-l] Voc Rehab Appeal
>>> > >> >> >>
>>> > >> >> >> Basically advice on appeals. Anyone's experience with getting
>>> > >> >> >> services out of state when a similar service is available in
>>> > >> >> >> state but the instate service clearly would not meet the
>>> > >> >> >> needs. Best way to deal with people who are clearly not even
>>> > >> >> >> reading what you send them.
>>> > >> >> >>
>>> > >> >> >>
>>> > >> >> >> On Thu, Apr 18, 2013 at 9:18 AM, Littlefield, Tyler
>>> > >> >> >> <tyler at tysdomain.com>wrote:
>>> > >> >> >>
>>> > >> >> >>> Suzanne:
>>> > >> >> >>> While I sympathize with your issues (I've had to deal with a
>>> > >> >> >>> really lovely dvr system),  I"m kind of confused as to what
>>> > >> >> >>> you want out of this
>>> > >> >> >> message.
>>> > >> >> >>> Are you asking for advice? Just complaining?
>>> > >> >> >>>
>>> > >> >> >>> DVR's goal is to help get you employed. While they don't
>>> > >> >> >>> always
>>> > do
>>> > >> >> >>> the best job, they do help some. As part of that though,
>>> > >> >> >>> they
>>> > tend
>>> > >> >> >>> to be part of the government; the government isn't exactly
>>> > >> >> >>> known for speedy resolution of problems.
>>> > >> >> >>> if you've tried to appeal to the supervisor, there is
>>> > >> >> >>> usually a state office (or a main coordenating supervisor).
>>> > >> >> >>> I recommend you take that route and explain the situation
>>> > >> >> >>> and the due date to them.
>>> > >> >> >>>
>>> > >> >> >>> Ultimately, you need to be nice. I understand your
>>> > >> >> >>> frustration, but going higher up you'll get a lot more help
>>> > >> >> >>> if you're easier
>>> > to
>>> > >> >> >>> work with.
>>> > >> >> >>> HTH,
>>> > >> >> >>> On 4/18/2013 9:59 AM, Suzanne Germano wrote:
>>> > >> >> >>>
>>> > >> >> >>>> I appealed a decision on March 15th and requested
>>> > >> >> >>>> mediation. On April 11th I emailed my counselor to in quire
>>> > >> >> >>>> if she and her supervisor had agreed to mediation. On April
>>> > >> >> >>>> 12th her supervisor sends me a letter which clearly shows
>>> > >> >> >>>> he never read the appeal documentation and asked if I was
>>> > >> >> >>>> agreeable to the conditions of the letter or if I wanted ot
>>> > >> >> >> continue with mediation.
>>> > >> >> >>>> Seeing that they are still denying the request and he
>>> > >> >> >>>> clearly does not even understand the request I had to fax
>>> > >> >> >>>> him today saying No I do not agree and still want
>>> > >> >> >>>> mediation. I think it
>>> > was
>>> > >> >> >>>> a delay technique since I need the approval by May 14th.
>>> > >> >> >>>>
>>> > >> >> >>>> I simply do not understand why if their goal is to help us
>>> > become
>>> > >> >> >>>> employed why everything is such a battle and nothing they
>>> > >> >> >>>> do makes sense.
>>> > >> >> >>>>
>>> > >> >> >>>> It was all I could to to keep form saying "clearly you did
>>> > >> >> >>>> not read my original request or my appeal with supporting
>>> > >> >> >>>> documentation or you would have never sent the letter you
>>> > >> >> >>>> did"
>>> > >> >> >>>>
>>> > >> >> >>>> This is part of what I wrote in the appeal
>>> > >> >> >>>>
>>> > >> >> >>>>   "I am appealing the denial of services dated Feb 28, 2013
>>> > based
>>> > >> >> >>>> on the fact that the three contracted vendors in AZ cannot
>>> > >> >> >>>> provide the service I requested.
>>> > >> >> >>>>
>>> > >> >> >>>> I have complete achromatopsia which part is severe light
>>> > >> >> >>>> sensitivity.
>>> > >> >> >>>> I have been wearing red contacts since 1995 when I had them
>>> > >> >> >>>> prescribed by
>>> > >> >> >> Dr
>>> > >> >> >>>> Hagerston-Portnoy at UC Berkley who studies Achromatopsia.
>>> > >> >> >>>> Until
>>> > >> >> >> January
>>> > >> >> >>>> 2013 my vision requirements for the red contacts were for
>>> > >> >> >>>> mainly outside
>>> > >> >> >>>> and very bright places (i.e. grocery stores).   However,
>>> > >> >> >>>> since
>>> I
>>> > >> >> >>>> decided
>>> > >> >> >>>> to
>>> > >> >> >>>> fulfill a lifetime goal of completing my degree and
>>> > >> >> >>>> returning to work; my requirements have changed.  The
>>> > >> >> >>>> current contacts are
>>> > too
>>> > >> >> >>>> dark and very likely the wrong color for 8-10 hours a day
>>> > >> >> >>>> of classroom and homework. The classrooms are not extremely
>>> > >> >> >>>> bright as many dim the lights somewhat for power point
>>> presentations.
>>> > It
>>> > >> >> >>>> is still much to bright for no filter but too dark for the
>>> > >> >> >>>> reds
>>> > I
>>> > >> > have.
>>> > >> >> >>>> I have also noticed that the red makes reading difficult.
>>> > >> >> >>>> After much research I have found many achromats go with a
>>> > >> >> >>>> lighter filter or even a different color browns, magentas
>>> > >> >> >>>> etc. I already tried reducing the color by 30%, from my
>>> > >> >> >>>> original red from 1995, through my low vision specialist
>>> > >> >> >>>> who provides the contacts. I paid $400 for the contacts in
>>> > >> >> >>>> addition to the exam just to find out that even this level
>>> > >> >> >>>> is
>>> not right for reading.
>>> > >> >> >>>>
>>> > >> >> >>>> I requested for RSA to cover the cost of a very specialized
>>> > >> >> >>>> low vision contact lens exam and the contacts through Eye
>>> > >> >> >>>> Associates in
>>> > >> >> >> Indianapolis.
>>> > >> >> >>>> Dr Windsor and Associates work primarily with acromats and
>>> > >> >> >>>> specialize in being able determine the right color and
>>> > >> >> >>>> percent color of the lenses. It is an extensive 4 hours
>>> > >> >> >>>> appointment in which I try on contact lenses of several
>>> > >> >> >>>> colors and darkness and see how they work for reading , and
>>> > >> >> >>>> how they work outside with
>>> > my
>>> > >> > script sunglasses.
>>> > >> >> >>>> What will be the best for the average lighting I will be in
>>> > >> >> >>>> during class and in study areas of campus."
>>> > >> >> >>>>
>>> > >> >> >>>> I included documentation about each of their contracted
>>> > >> >> >>>> vendors and how they determine color. None of them did
>>> > >> >> >>>> anything similar to Eye
>>> > >> >> >> Associates.
>>> > >> >> >>>> They only use very limited color choices. The low vision
>>> > >> >> >>>> clinic in Indiana has several contacts to try. They spend
>>> > >> >> >>>> 4-5 hours
>>> > just
>>> > >> >> >> determining color.
>>> > >> >> >>>> Some achomats even use one color in one eye and one in the
>>> > other.
>>> > >> >> >>>> The Drs jsut use "the most popular colors"
>>> > >> >> >>>>
>>> > >> >> >>>>
>>> > >> >> >>>> So frustrating...
>>> > >> >> >>>> ______________________________**_________________
>>> > >> >> >>>> nabs-l mailing list
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>>> > >> >> >>>> tyler%40tysdomain.com<
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>>> > >> >> >>>> bnet
>>> > >> >> >>>> .org/tyler%40tysdomain.com>
>>> > >> >> >>>>
>>> > >> >> >>>
>>> > >> >> >>>
>>> > >> >> >>> --
>>> > >> >> >>> Take care,
>>> > >> >> >>> Ty
>>> > >> >> >>> http://tds-solutions.net
>>> > >> >> >>> The aspen project: a barebones light-weight mud engine:
>>> > >> >> >>> http://code.google.com/p/**aspenmud
>>> > >> >> >>> <http://code.google.com/p/aspenmud>
>>> > >> >> >>> He that will not reason is a bigot; he that cannot reason is
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>>> > >> >> >>>
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>>> > >> >> > --
>>> > >> >> > Kaiti
>>> > >> >> >
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>>> > >> >> Kaiti
>>> > >> >>
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