[nabs-l] Voc Rehab Appeal
Kaiti Shelton
crazy4clarinet104 at gmail.com
Fri Apr 19 03:52:48 UTC 2013
That very well could have happened to. She certainly had enough
supporting evidence to justify going to Indiana for the lenses was
reasonable. :)
On 4/18/13, Arielle Silverman <arielle71 at gmail.com> wrote:
> Or maybe Suzanne's appeal was so well-argued that, once the supervisor
> actually read it, he was convinced to approve the request!
> Arielle
>
> On 4/18/13, Kaiti Shelton <crazy4clarinet104 at gmail.com> wrote:
>> The squeaky wheel will get the grease sooner or later... I agree with
>> you, Sam. It's sad that we have to squeak so loud in order to get
>> something that's truly important for us to have some times, but at
>> least it gets worked out. Congrats, Suzanne.
>>
>> On 4/18/13, Suzanne Germano <sgermano at asu.edu> wrote:
>>> It is a relief thank you.
>>>
>>>
>>> On Thu, Apr 18, 2013 at 3:16 PM, Sam Nelson <samnelson1 at verizon.net>
>>> wrote:
>>>
>>>> Hi Suzanne,
>>>> Voc rehab can be so strange! Congratulations on getting it aprooved
>>>> though! Maybe they realized you weren't going away until this got
>>>> settled
>>>> and they wanted to just get you out of their hair. It's sad that that's
>>>> the
>>>> kind of relationship we have to have with these people a lot of the
>>>> time.
>>>> But good you got what you needed. That must be a relief!
>>>> Sam
>>>>
>>>> -----Original Message-----
>>>> From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of Suzanne
>>>> Germano
>>>> Sent: Thursday, April 18, 2013 4:38 PM
>>>> To: National Association of Blind Students mailing list
>>>> Subject: Re: [nabs-l] Voc Rehab Appeal
>>>>
>>>> I have left a message for Bob but now out of the blue they decided to
>>>> approve it.
>>>>
>>>>
>>>> On Thu, Apr 18, 2013 at 2:10 PM, Arielle Silverman <
>>>> Arielle.Silverman at asu.edu> wrote:
>>>>
>>>> > When I appealed Arizona rehab to send me to Louisiana Center for
>>>> > training, I spoke with Ed House. I don't recall what his position is
>>>> > but he apparently has the authority to override initial counselor
>>>> > decisions if there is justification. You can get his contact info
>>>> > from
>>>> > Bob; I don't have it anymore.
>>>> > Arielle
>>>> >
>>>> > On 4/18/13, Suzanne Germano <sgermano at asu.edu> wrote:
>>>> > > I have the contact info for NFB AZ state president and will be
>>>> > > emailing
>>>> > or
>>>> > > calling him.
>>>> > >
>>>> > >
>>>> > > On Thu, Apr 18, 2013 at 12:05 PM, Kaiti Shelton
>>>> > > <crazy4clarinet104 at gmail.com
>>>> > >> wrote:
>>>> > >
>>>> > >> Absolutely, go all the way to the director of the entire rehab
>>>> > >> services for your state if the vision director won't listen, and
>>>> > >> if
>>>> > >> the overall director doesn't listen then you honestly might have
>>>> > >> grounds for a lawsuit.
>>>> > >>
>>>> > >> I'd really get in contact with your NFB state affiliate about
>>>> > >> this.
>>>> > >> They would know the system much better than any of us and would be
>>>> > >> able to stand behind you with this. At this point, just do what
>>>> > >> you have to do to make sure your needs are met.
>>>> > >>
>>>> > >> On 4/17/13, justin williams <justin.williams2 at gmail.com> wrote:
>>>> > >> > Go as high as you have to go.
>>>> > >> >
>>>> > >> > -----Original Message-----
>>>> > >> > From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of
>>>> > >> > Suzanne Germano
>>>> > >> > Sent: Thursday, April 18, 2013 2:41 PM
>>>> > >> > To: National Association of Blind Students mailing list
>>>> > >> > Subject: Re: [nabs-l] Voc Rehab Appeal
>>>> > >> >
>>>> > >> > I have emailed requesting a face to face to make sure they have
>>>> > >> > a
>>>> > clear
>>>> > >> > understanding of my request even though I sent a 2 page appeal
>>>> > >> > with 12 supporting documents. Not to mention my initial request
>>>> > >> > and follow up letter were very clear on what I needed and why.
>>>> > >> >
>>>> > >> > The supervisor thinks all i want is a regular low vision exam. I
>>>> > >> > already paid for one of those out of pocket in November. I paid
>>>> > >> > for red contacts
>>>> > >> > ($400) out of pocket in Dec as I needed them before school
>>>> > >> > started. I
>>>> > >> tried
>>>> > >> > going with 30% lighter than I was wearing for outdoors but they
>>>> > >> > are still not right for indoors and reading. I could not wait
>>>> > >> > for
>>>> > >> > the approval process. I paid $600 out of pocket for glasses that
>>>> > >> > I only need
>>>> > because
>>>> > >> of
>>>> > >> > returning to school. I paid $200 out of pocket for a monocular.
>>>> > >> > I
>>>> > >> > bought all this because I knew rehab would take forever and I
>>>> > >> > was
>>>> > >> > not going to start the semester in a position to fail.
>>>> > >> >
>>>> > >> > What does not make sense is that they will pay for the contacts
>>>> > >> > if
>>>> > >> ordered
>>>> > >> > form an AZ Dr that is one of their vendors but not if form the
>>>> > >> > Dr
>>>> > >> > in Indiana. The contacts will cost the same. the difference
>>>> > >> > would
>>>> > >> > be the Indiana Dr would be able to find the right color and the
>>>> > >> > AZ doctors will not. They also said they will pay for a low
>>>> > >> > vision exam here in AZ above what Medicare covers. So why they
>>>> > >> > will nto pay for a doctor who
>>>> > >> specializes
>>>> > >> > in determining the right contacts for an achromat is beyond me..
>>>> > >> >
>>>> > >> >
>>>> > >> > On Thu, Apr 18, 2013 at 11:15 AM, Kaiti Shelton
>>>> > >> > <crazy4clarinet104 at gmail.com
>>>> > >> >> wrote:
>>>> > >> >
>>>> > >> >> And if that doesn't work, go to the superviser's boss and speak
>>>> > >> >> directly to them. This run around game sounds ridiculous.
>>>> > >> >>
>>>> > >> >> On 4/17/13, justin williams <justin.williams2 at gmail.com> wrote:
>>>> > >> >> > I would try to talk to the supervisor one more time by phone
>>>> > >> >> > if I could.
>>>> > >> >> > If
>>>> > >> >> > you explain your situation, and that you have filed an
>>>> > >> >> > appeal,
>>>> > >> >> > you may be able to speed things up.
>>>> > >> >> >
>>>> > >> >> > -----Original Message-----
>>>> > >> >> > From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of
>>>> > >> >> > Kaiti
>>>> > >> >> Shelton
>>>> > >> >> > Sent: Thursday, April 18, 2013 1:36 PM
>>>> > >> >> > To: National Association of Blind Students mailing list
>>>> > >> >> > Subject: Re: [nabs-l] Voc Rehab Appeal
>>>> > >> >> >
>>>> > >> >> > Hi,
>>>> > >> >> >
>>>> > >> >> > Suzanne, I totally sympathize. I know when people don't read
>>>> > >> >> > what you send them it could be quite frustrating, and I'm not
>>>> > >> >> > going to even bring up the consumer choice stuff that they're
>>>> > >> >> > not paying attention to.
>>>> > >> >> >
>>>> > >> >> > I'd speak directly to the person at the top by phone. It
>>>> > >> >> > looks to me like you have tried the councelor, tried the
>>>> > >> >> > superviser, so the next person up is probably the one you
>>>> > >> >> > have
>>>> > >> >> > to
>>>> go to.
>>>> > >> >> >
>>>> > >> >> > On 4/17/13, justin williams <justin.williams2 at gmail.com>
>>>> > >> >> > wrote:
>>>> > >> >> >> Try to talk to the supervisor if the counselor proves
>>>> > unresponsive.
>>>> > >> >> >> Failing
>>>> > >> >> >> that, Cap is your next attempt. Try not to do this; try to
>>>> > >> >> >> work
>>>> > it
>>>> > >> >> >> out with the counselor and the supervisor.
>>>> > >> >> >>
>>>> > >> >> >> -----Original Message-----
>>>> > >> >> >> From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of
>>>> > >> >> >> Suzanne Germano
>>>> > >> >> >> Sent: Thursday, April 18, 2013 12:25 PM
>>>> > >> >> >> To: National Association of Blind Students mailing list
>>>> > >> >> >> Subject: Re: [nabs-l] Voc Rehab Appeal
>>>> > >> >> >>
>>>> > >> >> >> Basically advice on appeals. Anyone's experience with
>>>> > >> >> >> getting
>>>> > >> >> >> services out of state when a similar service is available in
>>>> > >> >> >> state but the instate service clearly would not meet the
>>>> > >> >> >> needs. Best way to deal with people who are clearly not even
>>>> > >> >> >> reading what you send them.
>>>> > >> >> >>
>>>> > >> >> >>
>>>> > >> >> >> On Thu, Apr 18, 2013 at 9:18 AM, Littlefield, Tyler
>>>> > >> >> >> <tyler at tysdomain.com>wrote:
>>>> > >> >> >>
>>>> > >> >> >>> Suzanne:
>>>> > >> >> >>> While I sympathize with your issues (I've had to deal with
>>>> > >> >> >>> a
>>>> > >> >> >>> really lovely dvr system), I"m kind of confused as to what
>>>> > >> >> >>> you want out of this
>>>> > >> >> >> message.
>>>> > >> >> >>> Are you asking for advice? Just complaining?
>>>> > >> >> >>>
>>>> > >> >> >>> DVR's goal is to help get you employed. While they don't
>>>> > >> >> >>> always
>>>> > do
>>>> > >> >> >>> the best job, they do help some. As part of that though,
>>>> > >> >> >>> they
>>>> > tend
>>>> > >> >> >>> to be part of the government; the government isn't exactly
>>>> > >> >> >>> known for speedy resolution of problems.
>>>> > >> >> >>> if you've tried to appeal to the supervisor, there is
>>>> > >> >> >>> usually a state office (or a main coordenating supervisor).
>>>> > >> >> >>> I recommend you take that route and explain the situation
>>>> > >> >> >>> and the due date to them.
>>>> > >> >> >>>
>>>> > >> >> >>> Ultimately, you need to be nice. I understand your
>>>> > >> >> >>> frustration, but going higher up you'll get a lot more help
>>>> > >> >> >>> if you're easier
>>>> > to
>>>> > >> >> >>> work with.
>>>> > >> >> >>> HTH,
>>>> > >> >> >>> On 4/18/2013 9:59 AM, Suzanne Germano wrote:
>>>> > >> >> >>>
>>>> > >> >> >>>> I appealed a decision on March 15th and requested
>>>> > >> >> >>>> mediation. On April 11th I emailed my counselor to in
>>>> > >> >> >>>> quire
>>>> > >> >> >>>> if she and her supervisor had agreed to mediation. On
>>>> > >> >> >>>> April
>>>> > >> >> >>>> 12th her supervisor sends me a letter which clearly shows
>>>> > >> >> >>>> he never read the appeal documentation and asked if I was
>>>> > >> >> >>>> agreeable to the conditions of the letter or if I wanted
>>>> > >> >> >>>> ot
>>>> > >> >> >> continue with mediation.
>>>> > >> >> >>>> Seeing that they are still denying the request and he
>>>> > >> >> >>>> clearly does not even understand the request I had to fax
>>>> > >> >> >>>> him today saying No I do not agree and still want
>>>> > >> >> >>>> mediation. I think it
>>>> > was
>>>> > >> >> >>>> a delay technique since I need the approval by May 14th.
>>>> > >> >> >>>>
>>>> > >> >> >>>> I simply do not understand why if their goal is to help us
>>>> > become
>>>> > >> >> >>>> employed why everything is such a battle and nothing they
>>>> > >> >> >>>> do makes sense.
>>>> > >> >> >>>>
>>>> > >> >> >>>> It was all I could to to keep form saying "clearly you did
>>>> > >> >> >>>> not read my original request or my appeal with supporting
>>>> > >> >> >>>> documentation or you would have never sent the letter you
>>>> > >> >> >>>> did"
>>>> > >> >> >>>>
>>>> > >> >> >>>> This is part of what I wrote in the appeal
>>>> > >> >> >>>>
>>>> > >> >> >>>> "I am appealing the denial of services dated Feb 28,
>>>> > >> >> >>>> 2013
>>>> > based
>>>> > >> >> >>>> on the fact that the three contracted vendors in AZ cannot
>>>> > >> >> >>>> provide the service I requested.
>>>> > >> >> >>>>
>>>> > >> >> >>>> I have complete achromatopsia which part is severe light
>>>> > >> >> >>>> sensitivity.
>>>> > >> >> >>>> I have been wearing red contacts since 1995 when I had
>>>> > >> >> >>>> them
>>>> > >> >> >>>> prescribed by
>>>> > >> >> >> Dr
>>>> > >> >> >>>> Hagerston-Portnoy at UC Berkley who studies Achromatopsia.
>>>> > >> >> >>>> Until
>>>> > >> >> >> January
>>>> > >> >> >>>> 2013 my vision requirements for the red contacts were for
>>>> > >> >> >>>> mainly outside
>>>> > >> >> >>>> and very bright places (i.e. grocery stores). However,
>>>> > >> >> >>>> since
>>>> I
>>>> > >> >> >>>> decided
>>>> > >> >> >>>> to
>>>> > >> >> >>>> fulfill a lifetime goal of completing my degree and
>>>> > >> >> >>>> returning to work; my requirements have changed. The
>>>> > >> >> >>>> current contacts are
>>>> > too
>>>> > >> >> >>>> dark and very likely the wrong color for 8-10 hours a day
>>>> > >> >> >>>> of classroom and homework. The classrooms are not
>>>> > >> >> >>>> extremely
>>>> > >> >> >>>> bright as many dim the lights somewhat for power point
>>>> presentations.
>>>> > It
>>>> > >> >> >>>> is still much to bright for no filter but too dark for the
>>>> > >> >> >>>> reds
>>>> > I
>>>> > >> > have.
>>>> > >> >> >>>> I have also noticed that the red makes reading difficult.
>>>> > >> >> >>>> After much research I have found many achromats go with a
>>>> > >> >> >>>> lighter filter or even a different color browns, magentas
>>>> > >> >> >>>> etc. I already tried reducing the color by 30%, from my
>>>> > >> >> >>>> original red from 1995, through my low vision specialist
>>>> > >> >> >>>> who provides the contacts. I paid $400 for the contacts in
>>>> > >> >> >>>> addition to the exam just to find out that even this level
>>>> > >> >> >>>> is
>>>> not right for reading.
>>>> > >> >> >>>>
>>>> > >> >> >>>> I requested for RSA to cover the cost of a very
>>>> > >> >> >>>> specialized
>>>> > >> >> >>>> low vision contact lens exam and the contacts through Eye
>>>> > >> >> >>>> Associates in
>>>> > >> >> >> Indianapolis.
>>>> > >> >> >>>> Dr Windsor and Associates work primarily with acromats and
>>>> > >> >> >>>> specialize in being able determine the right color and
>>>> > >> >> >>>> percent color of the lenses. It is an extensive 4 hours
>>>> > >> >> >>>> appointment in which I try on contact lenses of several
>>>> > >> >> >>>> colors and darkness and see how they work for reading ,
>>>> > >> >> >>>> and
>>>> > >> >> >>>> how they work outside with
>>>> > my
>>>> > >> > script sunglasses.
>>>> > >> >> >>>> What will be the best for the average lighting I will be
>>>> > >> >> >>>> in
>>>> > >> >> >>>> during class and in study areas of campus."
>>>> > >> >> >>>>
>>>> > >> >> >>>> I included documentation about each of their contracted
>>>> > >> >> >>>> vendors and how they determine color. None of them did
>>>> > >> >> >>>> anything similar to Eye
>>>> > >> >> >> Associates.
>>>> > >> >> >>>> They only use very limited color choices. The low vision
>>>> > >> >> >>>> clinic in Indiana has several contacts to try. They spend
>>>> > >> >> >>>> 4-5 hours
>>>> > just
>>>> > >> >> >> determining color.
>>>> > >> >> >>>> Some achomats even use one color in one eye and one in the
>>>> > other.
>>>> > >> >> >>>> The Drs jsut use "the most popular colors"
>>>> > >> >> >>>>
>>>> > >> >> >>>>
>>>> > >> >> >>>> So frustrating...
>>>> > >> >> >>>> ______________________________**_________________
>>>> > >> >> >>>> nabs-l mailing list
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>>>> > >> >> >>>> http://nfbnet.org/mailman/**listinfo/nabs-l_nfbnet.org<
>>>> > >> http://nfbnet.
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>>>> > >> >> >>>> tyler%40tysdomain.com<
>>>> > http://nfbnet.org/mailman/options/nabs-l_nf
>>>> > >> >> >>>> bnet
>>>> > >> >> >>>> .org/tyler%40tysdomain.com>
>>>> > >> >> >>>>
>>>> > >> >> >>>
>>>> > >> >> >>>
>>>> > >> >> >>> --
>>>> > >> >> >>> Take care,
>>>> > >> >> >>> Ty
>>>> > >> >> >>> http://tds-solutions.net
>>>> > >> >> >>> The aspen project: a barebones light-weight mud engine:
>>>> > >> >> >>> http://code.google.com/p/**aspenmud
>>>> > >> >> >>> <http://code.google.com/p/aspenmud>
>>>> > >> >> >>> He that will not reason is a bigot; he that cannot reason
>>>> > >> >> >>> is
>>>> > >> >> >>> a fool; he that dares not reason is a slave.
>>>> > >> >> >>>
>>>> > >> >> >>>
>>>> > >> >> >>> ______________________________**_________________
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>>>> > >> >> >>> 40as
>>>> > >> >> >>> u.edu>
>>>> > >> >> >>>
>>>> > >> >> >> _______________________________________________
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>>>> > >> >> >>
>>>> > >> >> >>
>>>> > >> >> >> _______________________________________________
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>>>> > >> >>
>>>> > http://nfbnet.org/mailman/options/nabs-l_nfbnet.org/crazy4clarinet104%
>>>> > >> >> 40gmai
>>>> > >> >> > l.com
>>>> > >> >> >>
>>>> > >> >> >
>>>> > >> >> >
>>>> > >> >> > --
>>>> > >> >> > Kaiti
>>>> > >> >> >
>>>> > >> >> > _______________________________________________
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>>>> > >> >> >
>>>> > >> >> >
>>>> > >> >> > _______________________________________________
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>>>> > >> >> 40gmail.com
>>>> > >> >> >
>>>> > >> >>
>>>> > >> >>
>>>> > >> >> --
>>>> > >> >> Kaiti
>>>> > >> >>
>>>> > >> >> _______________________________________________
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>>>> > >> >>
>>>> > >> > _______________________________________________
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>>>> > >> >
>>>> > >> >
>>>> > >> > _______________________________________________
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>>>> > >> >
>>>> > >>
>>>> > >>
>>>> > >> --
>>>> > >> Kaiti
>>>> > >>
>>>> > >> _______________________________________________
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>>>> > >> edu
>>>> > >>
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>>
>>
>> --
>> Kaiti
>>
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