[nabs-l] Voc Rehab Appeal
justin williams
justin.williams2 at gmail.com
Thu Apr 18 04:10:38 UTC 2013
Outstanding. I'm happy foryou.
-----Original Message-----
From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of Suzanne Germano
Sent: Friday, April 19, 2013 12:00 AM
To: National Association of Blind Students mailing list
Subject: Re: [nabs-l] Voc Rehab Appeal
I understand them wanting to know why the eye doctor here would not work but
to make it such a battle that I don't understand. I would have been
perfectly happy seeing someone here if they could do what I needed. I am
just glad it appears to have been resolved.
On Thu, Apr 18, 2013 at 8:52 PM, Kaiti Shelton
<crazy4clarinet104 at gmail.com>wrote:
> That very well could have happened to. She certainly had enough
> supporting evidence to justify going to Indiana for the lenses was
> reasonable. :)
>
> On 4/18/13, Arielle Silverman <arielle71 at gmail.com> wrote:
> > Or maybe Suzanne's appeal was so well-argued that, once the
> > supervisor actually read it, he was convinced to approve the request!
> > Arielle
> >
> > On 4/18/13, Kaiti Shelton <crazy4clarinet104 at gmail.com> wrote:
> >> The squeaky wheel will get the grease sooner or later... I agree
> >> with you, Sam. It's sad that we have to squeak so loud in order to
> >> get something that's truly important for us to have some times, but
> >> at least it gets worked out. Congrats, Suzanne.
> >>
> >> On 4/18/13, Suzanne Germano <sgermano at asu.edu> wrote:
> >>> It is a relief thank you.
> >>>
> >>>
> >>> On Thu, Apr 18, 2013 at 3:16 PM, Sam Nelson
> >>> <samnelson1 at verizon.net>
> >>> wrote:
> >>>
> >>>> Hi Suzanne,
> >>>> Voc rehab can be so strange! Congratulations on getting it
> >>>> aprooved though! Maybe they realized you weren't going away until
> >>>> this got settled and they wanted to just get you out of their
> >>>> hair. It's sad that
> that's
> >>>> the
> >>>> kind of relationship we have to have with these people a lot of
> >>>> the time.
> >>>> But good you got what you needed. That must be a relief!
> >>>> Sam
> >>>>
> >>>> -----Original Message-----
> >>>> From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of
> >>>> Suzanne Germano
> >>>> Sent: Thursday, April 18, 2013 4:38 PM
> >>>> To: National Association of Blind Students mailing list
> >>>> Subject: Re: [nabs-l] Voc Rehab Appeal
> >>>>
> >>>> I have left a message for Bob but now out of the blue they
> >>>> decided to approve it.
> >>>>
> >>>>
> >>>> On Thu, Apr 18, 2013 at 2:10 PM, Arielle Silverman <
> >>>> Arielle.Silverman at asu.edu> wrote:
> >>>>
> >>>> > When I appealed Arizona rehab to send me to Louisiana Center
> >>>> > for training, I spoke with Ed House. I don't recall what his
> >>>> > position is but he apparently has the authority to override
> >>>> > initial counselor decisions if there is justification. You can
> >>>> > get his contact info from Bob; I don't have it anymore.
> >>>> > Arielle
> >>>> >
> >>>> > On 4/18/13, Suzanne Germano <sgermano at asu.edu> wrote:
> >>>> > > I have the contact info for NFB AZ state president and will
> >>>> > > be emailing
> >>>> > or
> >>>> > > calling him.
> >>>> > >
> >>>> > >
> >>>> > > On Thu, Apr 18, 2013 at 12:05 PM, Kaiti Shelton
> >>>> > > <crazy4clarinet104 at gmail.com
> >>>> > >> wrote:
> >>>> > >
> >>>> > >> Absolutely, go all the way to the director of the entire
> >>>> > >> rehab services for your state if the vision director won't
> >>>> > >> listen, and if the overall director doesn't listen then you
> >>>> > >> honestly might have grounds for a lawsuit.
> >>>> > >>
> >>>> > >> I'd really get in contact with your NFB state affiliate
> >>>> > >> about this.
> >>>> > >> They would know the system much better than any of us and
> >>>> > >> would
> be
> >>>> > >> able to stand behind you with this. At this point, just do
> >>>> > >> what you have to do to make sure your needs are met.
> >>>> > >>
> >>>> > >> On 4/17/13, justin williams <justin.williams2 at gmail.com> wrote:
> >>>> > >> > Go as high as you have to go.
> >>>> > >> >
> >>>> > >> > -----Original Message-----
> >>>> > >> > From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf
> >>>> > >> > Of Suzanne Germano
> >>>> > >> > Sent: Thursday, April 18, 2013 2:41 PM
> >>>> > >> > To: National Association of Blind Students mailing list
> >>>> > >> > Subject: Re: [nabs-l] Voc Rehab Appeal
> >>>> > >> >
> >>>> > >> > I have emailed requesting a face to face to make sure they
> >>>> > >> > have a
> >>>> > clear
> >>>> > >> > understanding of my request even though I sent a 2 page
> >>>> > >> > appeal with 12 supporting documents. Not to mention my
> >>>> > >> > initial request and follow up letter were very clear on what I
needed and why.
> >>>> > >> >
> >>>> > >> > The supervisor thinks all i want is a regular low vision exam.
> I
> >>>> > >> > already paid for one of those out of pocket in November. I
> >>>> > >> > paid for red contacts
> >>>> > >> > ($400) out of pocket in Dec as I needed them before school
> >>>> > >> > started. I
> >>>> > >> tried
> >>>> > >> > going with 30% lighter than I was wearing for outdoors but
> >>>> > >> > they are still not right for indoors and reading. I could
> >>>> > >> > not wait for the approval process. I paid $600 out of
> >>>> > >> > pocket for glasses
> that
> >>>> > >> > I only need
> >>>> > because
> >>>> > >> of
> >>>> > >> > returning to school. I paid $200 out of pocket for a
monocular.
> >>>> > >> > I
> >>>> > >> > bought all this because I knew rehab would take forever
> >>>> > >> > and I was not going to start the semester in a position to
> >>>> > >> > fail.
> >>>> > >> >
> >>>> > >> > What does not make sense is that they will pay for the
> >>>> > >> > contacts if
> >>>> > >> ordered
> >>>> > >> > form an AZ Dr that is one of their vendors but not if form
> >>>> > >> > the Dr in Indiana. The contacts will cost the same. the
> >>>> > >> > difference would be the Indiana Dr would be able to find
> >>>> > >> > the right color and the AZ doctors will not. They also
> >>>> > >> > said they will pay for a low vision exam here in AZ above
> >>>> > >> > what Medicare covers. So why they will nto pay for a
> >>>> > >> > doctor who
> >>>> > >> specializes
> >>>> > >> > in determining the right contacts for an achromat is
> >>>> > >> > beyond
> me..
> >>>> > >> >
> >>>> > >> >
> >>>> > >> > On Thu, Apr 18, 2013 at 11:15 AM, Kaiti Shelton
> >>>> > >> > <crazy4clarinet104 at gmail.com
> >>>> > >> >> wrote:
> >>>> > >> >
> >>>> > >> >> And if that doesn't work, go to the superviser's boss and
> speak
> >>>> > >> >> directly to them. This run around game sounds ridiculous.
> >>>> > >> >>
> >>>> > >> >> On 4/17/13, justin williams <justin.williams2 at gmail.com>
> wrote:
> >>>> > >> >> > I would try to talk to the supervisor one more time by
> >>>> > >> >> > phone if I could.
> >>>> > >> >> > If
> >>>> > >> >> > you explain your situation, and that you have filed an
> >>>> > >> >> > appeal, you may be able to speed things up.
> >>>> > >> >> >
> >>>> > >> >> > -----Original Message-----
> >>>> > >> >> > From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On
> >>>> > >> >> > Behalf
> Of
> >>>> > >> >> > Kaiti
> >>>> > >> >> Shelton
> >>>> > >> >> > Sent: Thursday, April 18, 2013 1:36 PM
> >>>> > >> >> > To: National Association of Blind Students mailing list
> >>>> > >> >> > Subject: Re: [nabs-l] Voc Rehab Appeal
> >>>> > >> >> >
> >>>> > >> >> > Hi,
> >>>> > >> >> >
> >>>> > >> >> > Suzanne, I totally sympathize. I know when people
> >>>> > >> >> > don't
> read
> >>>> > >> >> > what you send them it could be quite frustrating, and
> >>>> > >> >> > I'm
> not
> >>>> > >> >> > going to even bring up the consumer choice stuff that
> they're
> >>>> > >> >> > not paying attention to.
> >>>> > >> >> >
> >>>> > >> >> > I'd speak directly to the person at the top by phone.
> >>>> > >> >> > It looks to me like you have tried the councelor, tried
> >>>> > >> >> > the superviser, so the next person up is probably the
> >>>> > >> >> > one you have to
> >>>> go to.
> >>>> > >> >> >
> >>>> > >> >> > On 4/17/13, justin williams
> >>>> > >> >> > <justin.williams2 at gmail.com>
> >>>> > >> >> > wrote:
> >>>> > >> >> >> Try to talk to the supervisor if the counselor proves
> >>>> > unresponsive.
> >>>> > >> >> >> Failing
> >>>> > >> >> >> that, Cap is your next attempt. Try not to do this;
> >>>> > >> >> >> try to work
> >>>> > it
> >>>> > >> >> >> out with the counselor and the supervisor.
> >>>> > >> >> >>
> >>>> > >> >> >> -----Original Message-----
> >>>> > >> >> >> From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On
> >>>> > >> >> >> Behalf
> Of
> >>>> > >> >> >> Suzanne Germano
> >>>> > >> >> >> Sent: Thursday, April 18, 2013 12:25 PM
> >>>> > >> >> >> To: National Association of Blind Students mailing
> >>>> > >> >> >> list
> >>>> > >> >> >> Subject: Re: [nabs-l] Voc Rehab Appeal
> >>>> > >> >> >>
> >>>> > >> >> >> Basically advice on appeals. Anyone's experience with
> >>>> > >> >> >> getting services out of state when a similar service
> >>>> > >> >> >> is available
> in
> >>>> > >> >> >> state but the instate service clearly would not meet
> >>>> > >> >> >> the needs. Best way to deal with people who are
> >>>> > >> >> >> clearly not
> even
> >>>> > >> >> >> reading what you send them.
> >>>> > >> >> >>
> >>>> > >> >> >>
> >>>> > >> >> >> On Thu, Apr 18, 2013 at 9:18 AM, Littlefield, Tyler
> >>>> > >> >> >> <tyler at tysdomain.com>wrote:
> >>>> > >> >> >>
> >>>> > >> >> >>> Suzanne:
> >>>> > >> >> >>> While I sympathize with your issues (I've had to deal
> >>>> > >> >> >>> with a really lovely dvr system), I"m kind of
> >>>> > >> >> >>> confused as to
> what
> >>>> > >> >> >>> you want out of this
> >>>> > >> >> >> message.
> >>>> > >> >> >>> Are you asking for advice? Just complaining?
> >>>> > >> >> >>>
> >>>> > >> >> >>> DVR's goal is to help get you employed. While they
> >>>> > >> >> >>> don't always
> >>>> > do
> >>>> > >> >> >>> the best job, they do help some. As part of that
> >>>> > >> >> >>> though, they
> >>>> > tend
> >>>> > >> >> >>> to be part of the government; the government isn't
> >>>> > >> >> >>> exactly known for speedy resolution of problems.
> >>>> > >> >> >>> if you've tried to appeal to the supervisor, there is
> >>>> > >> >> >>> usually a state office (or a main coordenating
> supervisor).
> >>>> > >> >> >>> I recommend you take that route and explain the
> >>>> > >> >> >>> situation and the due date to them.
> >>>> > >> >> >>>
> >>>> > >> >> >>> Ultimately, you need to be nice. I understand your
> >>>> > >> >> >>> frustration, but going higher up you'll get a lot
> >>>> > >> >> >>> more
> help
> >>>> > >> >> >>> if you're easier
> >>>> > to
> >>>> > >> >> >>> work with.
> >>>> > >> >> >>> HTH,
> >>>> > >> >> >>> On 4/18/2013 9:59 AM, Suzanne Germano wrote:
> >>>> > >> >> >>>
> >>>> > >> >> >>>> I appealed a decision on March 15th and requested
> >>>> > >> >> >>>> mediation. On April 11th I emailed my counselor to
> >>>> > >> >> >>>> in quire if she and her supervisor had agreed to
> >>>> > >> >> >>>> mediation. On April 12th her supervisor sends me a
> >>>> > >> >> >>>> letter which clearly shows he never read the appeal
> >>>> > >> >> >>>> documentation and asked if I was agreeable to the
> >>>> > >> >> >>>> conditions of the letter or if I wanted ot
> >>>> > >> >> >> continue with mediation.
> >>>> > >> >> >>>> Seeing that they are still denying the request and
> >>>> > >> >> >>>> he clearly does not even understand the request I
> >>>> > >> >> >>>> had to fax him today saying No I do not agree and
> >>>> > >> >> >>>> still want mediation. I think it
> >>>> > was
> >>>> > >> >> >>>> a delay technique since I need the approval by May 14th.
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> I simply do not understand why if their goal is to
> >>>> > >> >> >>>> help
> us
> >>>> > become
> >>>> > >> >> >>>> employed why everything is such a battle and nothing
> >>>> > >> >> >>>> they do makes sense.
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> It was all I could to to keep form saying "clearly
> >>>> > >> >> >>>> you
> did
> >>>> > >> >> >>>> not read my original request or my appeal with
> >>>> > >> >> >>>> supporting documentation or you would have never
> >>>> > >> >> >>>> sent the letter you did"
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> This is part of what I wrote in the appeal
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> "I am appealing the denial of services dated Feb
> >>>> > >> >> >>>> 28,
> >>>> > >> >> >>>> 2013
> >>>> > based
> >>>> > >> >> >>>> on the fact that the three contracted vendors in AZ
> cannot
> >>>> > >> >> >>>> provide the service I requested.
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> I have complete achromatopsia which part is severe
> >>>> > >> >> >>>> light sensitivity.
> >>>> > >> >> >>>> I have been wearing red contacts since 1995 when I
> >>>> > >> >> >>>> had them prescribed by
> >>>> > >> >> >> Dr
> >>>> > >> >> >>>> Hagerston-Portnoy at UC Berkley who studies
> Achromatopsia.
> >>>> > >> >> >>>> Until
> >>>> > >> >> >> January
> >>>> > >> >> >>>> 2013 my vision requirements for the red contacts
> >>>> > >> >> >>>> were for mainly outside
> >>>> > >> >> >>>> and very bright places (i.e. grocery stores). However,
> >>>> > >> >> >>>> since
> >>>> I
> >>>> > >> >> >>>> decided
> >>>> > >> >> >>>> to
> >>>> > >> >> >>>> fulfill a lifetime goal of completing my degree and
> >>>> > >> >> >>>> returning to work; my requirements have changed.
> >>>> > >> >> >>>> The current contacts are
> >>>> > too
> >>>> > >> >> >>>> dark and very likely the wrong color for 8-10 hours
> >>>> > >> >> >>>> a day of classroom and homework. The classrooms are
> >>>> > >> >> >>>> not extremely bright as many dim the lights somewhat
> >>>> > >> >> >>>> for power point
> >>>> presentations.
> >>>> > It
> >>>> > >> >> >>>> is still much to bright for no filter but too dark
> >>>> > >> >> >>>> for
> the
> >>>> > >> >> >>>> reds
> >>>> > I
> >>>> > >> > have.
> >>>> > >> >> >>>> I have also noticed that the red makes reading
difficult.
> >>>> > >> >> >>>> After much research I have found many achromats go
> >>>> > >> >> >>>> with a lighter filter or even a different color
> >>>> > >> >> >>>> browns, magentas etc. I already tried reducing the
> >>>> > >> >> >>>> color by 30%, from my original red from 1995,
> >>>> > >> >> >>>> through my low vision specialist who provides the
> >>>> > >> >> >>>> contacts. I paid $400 for the contacts
> in
> >>>> > >> >> >>>> addition to the exam just to find out that even this
> level
> >>>> > >> >> >>>> is
> >>>> not right for reading.
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> I requested for RSA to cover the cost of a very
> >>>> > >> >> >>>> specialized low vision contact lens exam and the
> >>>> > >> >> >>>> contacts through Eye Associates in
> >>>> > >> >> >> Indianapolis.
> >>>> > >> >> >>>> Dr Windsor and Associates work primarily with
> >>>> > >> >> >>>> acromats
> and
> >>>> > >> >> >>>> specialize in being able determine the right color
> >>>> > >> >> >>>> and percent color of the lenses. It is an extensive
> >>>> > >> >> >>>> 4 hours appointment in which I try on contact lenses
> >>>> > >> >> >>>> of several colors and darkness and see how they work
> >>>> > >> >> >>>> for reading , and how they work outside with
> >>>> > my
> >>>> > >> > script sunglasses.
> >>>> > >> >> >>>> What will be the best for the average lighting I
> >>>> > >> >> >>>> will be in during class and in study areas of
> >>>> > >> >> >>>> campus."
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> I included documentation about each of their
> >>>> > >> >> >>>> contracted vendors and how they determine color.
> >>>> > >> >> >>>> None of them did anything similar to Eye
> >>>> > >> >> >> Associates.
> >>>> > >> >> >>>> They only use very limited color choices. The low
> >>>> > >> >> >>>> vision clinic in Indiana has several contacts to
> >>>> > >> >> >>>> try. They spend
> >>>> > >> >> >>>> 4-5 hours
> >>>> > just
> >>>> > >> >> >> determining color.
> >>>> > >> >> >>>> Some achomats even use one color in one eye and one
> >>>> > >> >> >>>> in
> the
> >>>> > other.
> >>>> > >> >> >>>> The Drs jsut use "the most popular colors"
> >>>> > >> >> >>>>
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> So frustrating...
> >>>> > >> >> >>>> ______________________________**_________________
> >>>> > >> >> >>>> nabs-l mailing list
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> >>>> > >> >> >>>> rg<
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> >>>> > >> >> >>>
> >>>> > >> >> >>>
> >>>> > >> >> >>> --
> >>>> > >> >> >>> Take care,
> >>>> > >> >> >>> Ty
> >>>> > >> >> >>> http://tds-solutions.net The aspen project: a
> >>>> > >> >> >>> barebones light-weight mud engine:
> >>>> > >> >> >>> http://code.google.com/p/**aspenmud
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> >>>> > >> >> 40gmai
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> >>>> > >> >> >>
> >>>> > >> >> >
> >>>> > >> >> >
> >>>> > >> >> > --
> >>>> > >> >> > Kaiti
> >>>> > >> >> >
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> >>>> > >>
> >>>> > >> --
> >>>> > >> Kaiti
> >>>> > >>
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