[nabs-l] Voc Rehab Appeal

Fri Apr 19 04:00:29 UTC 2013

I understand them wanting to know why the eye doctor here would not work
but to make it such a battle that I don't understand. I would have been
perfectly happy seeing someone here if they could do what I needed.  I am
just glad it appears to have been resolved.

On Thu, Apr 18, 2013 at 8:52 PM, Kaiti Shelton
<crazy4clarinet104 at gmail.com>wrote:

> That very well could have happened to.  She certainly had enough
> supporting evidence to justify going to Indiana for the lenses was
> reasonable.  :)
>
> On 4/18/13, Arielle Silverman <arielle71 at gmail.com> wrote:
> > Or maybe Suzanne's appeal was so well-argued that, once the supervisor
> > actually read it, he was convinced to approve the request!
> > Arielle
> >
> > On 4/18/13, Kaiti Shelton <crazy4clarinet104 at gmail.com> wrote:
> >> The squeaky wheel will get the grease sooner or later... I agree with
> >> you, Sam.  It's sad that we have to squeak so loud in order to get
> >> something that's truly important for us to have some times, but at
> >> least it gets worked out.  Congrats, Suzanne.
> >>
> >> On 4/18/13, Suzanne Germano <sgermano at asu.edu> wrote:
> >>> It is a relief thank you.
> >>>
> >>>
> >>> On Thu, Apr 18, 2013 at 3:16 PM, Sam Nelson <samnelson1 at verizon.net>
> >>> wrote:
> >>>
> >>>> Hi Suzanne,
> >>>>  Voc rehab can be so strange!  Congratulations on getting it aprooved
> >>>> though! Maybe they realized you weren't going away until this got
> >>>> settled
> >>>> and they wanted to just get you out of their hair. It's sad that
> that's
> >>>> the
> >>>> kind of relationship we have to have with these people a lot of the
> >>>> time.
> >>>> But good  you got what you needed. That must be a relief!
> >>>>  Sam
> >>>>
> >>>> -----Original Message-----
> >>>> From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of Suzanne
> >>>> Germano
> >>>> Sent: Thursday, April 18, 2013 4:38 PM
> >>>> To: National Association of Blind Students mailing list
> >>>> Subject: Re: [nabs-l] Voc Rehab Appeal
> >>>>
> >>>> I have left a message for Bob but now out of the blue they decided to
> >>>> approve it.
> >>>>
> >>>>
> >>>> On Thu, Apr 18, 2013 at 2:10 PM, Arielle Silverman <
> >>>> Arielle.Silverman at asu.edu> wrote:
> >>>>
> >>>> > When I appealed Arizona rehab to send me to Louisiana Center for
> >>>> > training, I spoke with Ed House. I don't recall what his position is
> >>>> > but he apparently has the authority to override initial counselor
> >>>> > decisions if there is justification. You can get his contact info
> >>>> > from
> >>>> > Bob; I don't have it anymore.
> >>>> > Arielle
> >>>> >
> >>>> > On 4/18/13, Suzanne Germano <sgermano at asu.edu> wrote:
> >>>> > > I have the contact info for NFB AZ state president and will be
> >>>> > > emailing
> >>>> > or
> >>>> > > calling him.
> >>>> > >
> >>>> > >
> >>>> > > On Thu, Apr 18, 2013 at 12:05 PM, Kaiti Shelton
> >>>> > > <crazy4clarinet104 at gmail.com
> >>>> > >> wrote:
> >>>> > >
> >>>> > >> Absolutely, go all the way to the director of the entire rehab
> >>>> > >> services for your state if the vision director won't listen, and
> >>>> > >> if
> >>>> > >> the overall director doesn't listen then you honestly might have
> >>>> > >> grounds for a lawsuit.
> >>>> > >>
> >>>> > >> I'd really get in contact with your NFB state affiliate about
> >>>> > >> this.
> >>>> > >> They would know the system much better than any of us and would
> be
> >>>> > >> able to stand behind you with this.  At this point, just do what
> >>>> > >> you have to do to make sure your needs are met.
> >>>> > >>
> >>>> > >> On 4/17/13, justin williams <justin.williams2 at gmail.com> wrote:
> >>>> > >> > Go as high as you have to go.
> >>>> > >> >
> >>>> > >> > -----Original Message-----
> >>>> > >> > From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf Of
> >>>> > >> > Suzanne Germano
> >>>> > >> > Sent: Thursday, April 18, 2013 2:41 PM
> >>>> > >> > To: National Association of Blind Students mailing list
> >>>> > >> > Subject: Re: [nabs-l] Voc Rehab Appeal
> >>>> > >> >
> >>>> > >> > I have emailed requesting a face to face to make sure they have
> >>>> > >> > a
> >>>> > clear
> >>>> > >> > understanding of my request even though I sent a 2 page appeal
> >>>> > >> > with 12 supporting documents. Not to mention my initial request
> >>>> > >> > and follow up letter were very clear on what I needed and why.
> >>>> > >> >
> >>>> > >> > The supervisor thinks all i want is a regular low vision exam.
> I
> >>>> > >> > already paid for one of those out of pocket in November. I paid
> >>>> > >> > for red contacts
> >>>> > >> > ($400) out of pocket in Dec as I needed them before school
> >>>> > >> > started. I
> >>>> > >> tried
> >>>> > >> > going with 30% lighter than I was wearing for outdoors but they
> >>>> > >> > are still not right for indoors and reading. I could not wait
> >>>> > >> > for
> >>>> > >> > the approval process. I paid $600 out of pocket for glasses
> that
> >>>> > >> > I only need
> >>>> > because
> >>>> > >> of
> >>>> > >> > returning to school. I paid $200 out of pocket for a monocular.
> >>>> > >> > I
> >>>> > >> > bought all this because I knew rehab would take forever and I
> >>>> > >> > was
> >>>> > >> > not going to start the semester in a position to fail.
> >>>> > >> >
> >>>> > >> > What does not make sense is that they will pay for the contacts
> >>>> > >> > if
> >>>> > >> ordered
> >>>> > >> > form an AZ Dr that is one of their vendors but not if form the
> >>>> > >> > Dr
> >>>> > >> > in Indiana. The contacts will cost the same. the difference
> >>>> > >> > would
> >>>> > >> > be the Indiana Dr would be able to find the right color and the
> >>>> > >> > AZ doctors will not. They also said they will pay for a low
> >>>> > >> > vision exam here in AZ above what Medicare covers. So why they
> >>>> > >> > will nto pay for a doctor who
> >>>> > >> specializes
> >>>> > >> > in determining the right contacts for an achromat is beyond
> me..
> >>>> > >> >
> >>>> > >> >
> >>>> > >> > On Thu, Apr 18, 2013 at 11:15 AM, Kaiti Shelton
> >>>> > >> > <crazy4clarinet104 at gmail.com
> >>>> > >> >> wrote:
> >>>> > >> >
> >>>> > >> >> And if that doesn't work, go to the superviser's boss and
> speak
> >>>> > >> >> directly to them.  This run around game sounds ridiculous.
> >>>> > >> >>
> >>>> > >> >> On 4/17/13, justin williams <justin.williams2 at gmail.com>
> wrote:
> >>>> > >> >> > I would try to talk to the supervisor one more time by phone
> >>>> > >> >> > if I could.
> >>>> > >> >> > If
> >>>> > >> >> > you explain your situation, and that you have filed an
> >>>> > >> >> > appeal,
> >>>> > >> >> > you may be able to speed things up.
> >>>> > >> >> >
> >>>> > >> >> > -----Original Message-----
> >>>> > >> >> > From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf
> Of
> >>>> > >> >> > Kaiti
> >>>> > >> >> Shelton
> >>>> > >> >> > Sent: Thursday, April 18, 2013 1:36 PM
> >>>> > >> >> > To: National Association of Blind Students mailing list
> >>>> > >> >> > Subject: Re: [nabs-l] Voc Rehab Appeal
> >>>> > >> >> >
> >>>> > >> >> > Hi,
> >>>> > >> >> >
> >>>> > >> >> > Suzanne, I totally sympathize.  I know when people don't
> read
> >>>> > >> >> > what you send them it could be quite frustrating, and I'm
> not
> >>>> > >> >> > going to even bring up the consumer choice stuff that
> they're
> >>>> > >> >> > not paying attention to.
> >>>> > >> >> >
> >>>> > >> >> > I'd speak directly to the person at the top by phone.  It
> >>>> > >> >> > looks to me like you have tried the councelor, tried the
> >>>> > >> >> > superviser, so the next person up is probably the one you
> >>>> > >> >> > have
> >>>> > >> >> > to
> >>>> go to.
> >>>> > >> >> >
> >>>> > >> >> > On 4/17/13, justin williams <justin.williams2 at gmail.com>
> >>>> > >> >> > wrote:
> >>>> > >> >> >> Try to talk to the supervisor if the counselor proves
> >>>> > unresponsive.
> >>>> > >> >> >> Failing
> >>>> > >> >> >> that, Cap is your next attempt.  Try not to do this; try to
> >>>> > >> >> >> work
> >>>> > it
> >>>> > >> >> >> out with the counselor and the supervisor.
> >>>> > >> >> >>
> >>>> > >> >> >> -----Original Message-----
> >>>> > >> >> >> From: nabs-l [mailto:nabs-l-bounces at nfbnet.org] On Behalf
> Of
> >>>> > >> >> >> Suzanne Germano
> >>>> > >> >> >> Sent: Thursday, April 18, 2013 12:25 PM
> >>>> > >> >> >> To: National Association of Blind Students mailing list
> >>>> > >> >> >> Subject: Re: [nabs-l] Voc Rehab Appeal
> >>>> > >> >> >>
> >>>> > >> >> >> Basically advice on appeals. Anyone's experience with
> >>>> > >> >> >> getting
> >>>> > >> >> >> services out of state when a similar service is available
> in
> >>>> > >> >> >> state but the instate service clearly would not meet the
> >>>> > >> >> >> needs. Best way to deal with people who are clearly not
> even
> >>>> > >> >> >> reading what you send them.
> >>>> > >> >> >>
> >>>> > >> >> >>
> >>>> > >> >> >> On Thu, Apr 18, 2013 at 9:18 AM, Littlefield, Tyler
> >>>> > >> >> >> <tyler at tysdomain.com>wrote:
> >>>> > >> >> >>
> >>>> > >> >> >>> Suzanne:
> >>>> > >> >> >>> While I sympathize with your issues (I've had to deal with
> >>>> > >> >> >>> a
> >>>> > >> >> >>> really lovely dvr system),  I"m kind of confused as to
> what
> >>>> > >> >> >>> you want out of this
> >>>> > >> >> >> message.
> >>>> > >> >> >>> Are you asking for advice? Just complaining?
> >>>> > >> >> >>>
> >>>> > >> >> >>> DVR's goal is to help get you employed. While they don't
> >>>> > >> >> >>> always
> >>>> > do
> >>>> > >> >> >>> the best job, they do help some. As part of that though,
> >>>> > >> >> >>> they
> >>>> > tend
> >>>> > >> >> >>> to be part of the government; the government isn't exactly
> >>>> > >> >> >>> known for speedy resolution of problems.
> >>>> > >> >> >>> if you've tried to appeal to the supervisor, there is
> >>>> > >> >> >>> usually a state office (or a main coordenating
> supervisor).
> >>>> > >> >> >>> I recommend you take that route and explain the situation
> >>>> > >> >> >>> and the due date to them.
> >>>> > >> >> >>>
> >>>> > >> >> >>> Ultimately, you need to be nice. I understand your
> >>>> > >> >> >>> frustration, but going higher up you'll get a lot more
> help
> >>>> > >> >> >>> if you're easier
> >>>> > to
> >>>> > >> >> >>> work with.
> >>>> > >> >> >>> HTH,
> >>>> > >> >> >>> On 4/18/2013 9:59 AM, Suzanne Germano wrote:
> >>>> > >> >> >>>
> >>>> > >> >> >>>> I appealed a decision on March 15th and requested
> >>>> > >> >> >>>> mediation. On April 11th I emailed my counselor to in
> >>>> > >> >> >>>> quire
> >>>> > >> >> >>>> if she and her supervisor had agreed to mediation. On
> >>>> > >> >> >>>> April
> >>>> > >> >> >>>> 12th her supervisor sends me a letter which clearly shows
> >>>> > >> >> >>>> he never read the appeal documentation and asked if I was
> >>>> > >> >> >>>> agreeable to the conditions of the letter or if I wanted
> >>>> > >> >> >>>> ot
> >>>> > >> >> >> continue with mediation.
> >>>> > >> >> >>>> Seeing that they are still denying the request and he
> >>>> > >> >> >>>> clearly does not even understand the request I had to fax
> >>>> > >> >> >>>> him today saying No I do not agree and still want
> >>>> > >> >> >>>> mediation. I think it
> >>>> > was
> >>>> > >> >> >>>> a delay technique since I need the approval by May 14th.
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> I simply do not understand why if their goal is to help
> us
> >>>> > become
> >>>> > >> >> >>>> employed why everything is such a battle and nothing they
> >>>> > >> >> >>>> do makes sense.
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> It was all I could to to keep form saying "clearly you
> did
> >>>> > >> >> >>>> not read my original request or my appeal with supporting
> >>>> > >> >> >>>> documentation or you would have never sent the letter you
> >>>> > >> >> >>>> did"
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> This is part of what I wrote in the appeal
> >>>> > >> >> >>>>
> >>>> > >> >> >>>>   "I am appealing the denial of services dated Feb 28,
> >>>> > >> >> >>>> 2013
> >>>> > based
> >>>> > >> >> >>>> on the fact that the three contracted vendors in AZ
> cannot
> >>>> > >> >> >>>> provide the service I requested.
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> I have complete achromatopsia which part is severe light
> >>>> > >> >> >>>> sensitivity.
> >>>> > >> >> >>>> I have been wearing red contacts since 1995 when I had
> >>>> > >> >> >>>> them
> >>>> > >> >> >>>> prescribed by
> >>>> > >> >> >> Dr
> >>>> > >> >> >>>> Hagerston-Portnoy at UC Berkley who studies
> Achromatopsia.
> >>>> > >> >> >>>> Until
> >>>> > >> >> >> January
> >>>> > >> >> >>>> 2013 my vision requirements for the red contacts were for
> >>>> > >> >> >>>> mainly outside
> >>>> > >> >> >>>> and very bright places (i.e. grocery stores).   However,
> >>>> > >> >> >>>> since
> >>>> I
> >>>> > >> >> >>>> decided
> >>>> > >> >> >>>> to
> >>>> > >> >> >>>> fulfill a lifetime goal of completing my degree and
> >>>> > >> >> >>>> returning to work; my requirements have changed.  The
> >>>> > >> >> >>>> current contacts are
> >>>> > too
> >>>> > >> >> >>>> dark and very likely the wrong color for 8-10 hours a day
> >>>> > >> >> >>>> of classroom and homework. The classrooms are not
> >>>> > >> >> >>>> extremely
> >>>> > >> >> >>>> bright as many dim the lights somewhat for power point
> >>>> presentations.
> >>>> > It
> >>>> > >> >> >>>> is still much to bright for no filter but too dark for
> the
> >>>> > >> >> >>>> reds
> >>>> > I
> >>>> > >> > have.
> >>>> > >> >> >>>> I have also noticed that the red makes reading difficult.
> >>>> > >> >> >>>> After much research I have found many achromats go with a
> >>>> > >> >> >>>> lighter filter or even a different color browns, magentas
> >>>> > >> >> >>>> etc. I already tried reducing the color by 30%, from my
> >>>> > >> >> >>>> original red from 1995, through my low vision specialist
> >>>> > >> >> >>>> who provides the contacts. I paid $400 for the contacts
> in
> >>>> > >> >> >>>> addition to the exam just to find out that even this
> level
> >>>> > >> >> >>>> is
> >>>> not right for reading.
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> I requested for RSA to cover the cost of a very
> >>>> > >> >> >>>> specialized
> >>>> > >> >> >>>> low vision contact lens exam and the contacts through Eye
> >>>> > >> >> >>>> Associates in
> >>>> > >> >> >> Indianapolis.
> >>>> > >> >> >>>> Dr Windsor and Associates work primarily with acromats
> and
> >>>> > >> >> >>>> specialize in being able determine the right color and
> >>>> > >> >> >>>> percent color of the lenses. It is an extensive 4 hours
> >>>> > >> >> >>>> appointment in which I try on contact lenses of several
> >>>> > >> >> >>>> colors and darkness and see how they work for reading ,
> >>>> > >> >> >>>> and
> >>>> > >> >> >>>> how they work outside with
> >>>> > my
> >>>> > >> > script sunglasses.
> >>>> > >> >> >>>> What will be the best for the average lighting I will be
> >>>> > >> >> >>>> in
> >>>> > >> >> >>>> during class and in study areas of campus."
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> I included documentation about each of their contracted
> >>>> > >> >> >>>> vendors and how they determine color. None of them did
> >>>> > >> >> >>>> anything similar to Eye
> >>>> > >> >> >> Associates.
> >>>> > >> >> >>>> They only use very limited color choices. The low vision
> >>>> > >> >> >>>> clinic in Indiana has several contacts to try. They spend
> >>>> > >> >> >>>> 4-5 hours
> >>>> > just
> >>>> > >> >> >> determining color.
> >>>> > >> >> >>>> Some achomats even use one color in one eye and one in
> the
> >>>> > other.
> >>>> > >> >> >>>> The Drs jsut use "the most popular colors"
> >>>> > >> >> >>>>
> >>>> > >> >> >>>>
> >>>> > >> >> >>>> So frustrating...
> >>>> > >> >> >>>> ______________________________**_________________
> >>>> > >> >> >>>> nabs-l mailing list
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> >>>> > >> >> >>>> http://nfbnet.org/mailman/**listinfo/nabs-l_nfbnet.org<
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> >>>> > >> >> >>>> tyler%40tysdomain.com<
> >>>> > http://nfbnet.org/mailman/options/nabs-l_nf
> >>>> > >> >> >>>> bnet
> >>>> > >> >> >>>> .org/tyler%40tysdomain.com>
> >>>> > >> >> >>>>
> >>>> > >> >> >>>
> >>>> > >> >> >>>
> >>>> > >> >> >>> --
> >>>> > >> >> >>> Take care,
> >>>> > >> >> >>> Ty
> >>>> > >> >> >>> http://tds-solutions.net
> >>>> > >> >> >>> The aspen project: a barebones light-weight mud engine:
> >>>> > >> >> >>> http://code.google.com/p/**aspenmud
> >>>> > >> >> >>> <http://code.google.com/p/aspenmud>
> >>>> > >> >> >>> He that will not reason is a bigot; he that cannot reason
> >>>> > >> >> >>> is
> >>>> > >> >> >>> a fool; he that dares not reason is a slave.
> >>>> > >> >> >>>
> >>>> > >> >> >>>
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> >>>> > >> >> 40gmai
> >>>> > >> >> > l.com
> >>>> > >> >> >>
> >>>> > >> >> >
> >>>> > >> >> >
> >>>> > >> >> > --
> >>>> > >> >> > Kaiti
> >>>> > >> >> >
> >>>> > >> >> > _______________________________________________
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> >>>> > >> >> 40gmail.com
> >>>> > >> >> >
> >>>> > >> >>
> >>>> > >> >>
> >>>> > >> >> --
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> >>>> > >> >>
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> >>>> > >> >
> >>>> > >>
> >>>> > >>
> >>>> > >> --
> >>>> > >> Kaiti
> >>>> > >>
> >>>> > >> _______________________________________________
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> >>>> > >>
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> >> --
> >> Kaiti
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