[Nfb-arkansas] Fwd: A research opportunity for parents of blind and visually impaired youth

[tosheeler at cox.net]

> Date: Sun, 26 Jun 2011 21:49:22 -0400 (EDT)
> From: Lydia Schuck <lydia.a.schuck at wmich.edu>
> Subject: A research opportunity for parents of blind and visually impaired youth
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> 
> 
> Hello,  I am sending this email to all of the state parent leaders or parent contacts listed at the NOPBC web pages at the National Federation of the Blind website.  For several years, I was the president of the NFB parents' division in my state, Michigan.  I left that position when my daughter's needs grew overwhelming for my family over the period of a couple of years.  
> 
> I am still very active in our state NFB, and am also a commissioner on the Michigan Commission for the Blind Board.  There is always work to do.
>  
> Today I am writing you as a doctoral student at Western Michigan University.  As a part of my doctoral program coursework, I am planning a survey study called "Parent Perceptions of Transition-to-Adulthood Assessment of Blind and Visually Impaired Youth".  In my study, I will look at whether the IEP required transition assessment for blind and visually impaired youth prioritized the Expanded Core Curriculum and whether parents value inclusion of the ECC in transition-related assessment.  I will also ask questions to determine if parents felt they were part of the planning team, and whether they believe their children functioned as part of the team.  
> 
> Of course, I think this research is important and I plan to publish the results, as well as share my research at conferences. I hope to have some data to share at parent conferences by next spring.  I am writing to ask if any of you, as state leaders of parent organizations, would be willing to disseminate by email a link to my survey.  Email contacts would be a very effective way for me to reach parents, since parents could click straight through to the survey website.  The study will be reviewed and approved by our institutions Human Subjects Review Board, and I will only send the announcement of the survey to you if it is approved.
> 
> If you would be willing to post my announcement in an email to your parent list, or pass out flyers at your state convention, please reply to this email and tell me how your group could help disseminate my survey link to parents.  Your reply would then be included in my application for approval by the review board at Western Michigan University.  If the study is approved, I would then send you a link and an announcement for the survey.  I hope to collect data in October and November.   Thank you for considering my request and helping me to set up my parent contacts for this survey work.
> 
> Lydia Schuck
> 517-676-4621
> Doctoral Student, College of Health and Human Services
> Western Michigan University
> Kalamazoo, Michigan
>