[nfb-db] anyone on this list at honk?

Fri Nov 1 18:10:27 UTC 2013

Hi Marsha, yeah, oh don’t I ever know what a time consuming pain it can be tweaking aids, I’ve struggled for the last 3 years trying new aids only to be disappointed, I’m sure others on this list have experienced new aids where they sound like they are turning everything down, then, when some one talks to you they purp up just to let you either miss the first few words they’ve said, or you get the very last part of what was said.  As far as I know, all new aids do this, it’s a way, in my opinion for the companies to show off there fancy, and deaf blind people are not the only ones that are frustrated with new aids either.  According to this therapist I saw, she said that even sighted people are frustrated, so that tells me, that just because all the hearing specialists, and audiologists say that most people prefer the aids to cut down all the noise in there environment is obviously not entirely true.  I can’t even begin to tell you how many times I’ve had to go back for adjustments to some Siemens aids I have, I can’t even use them, because there no longer strong enough for my loss, I’ve had to go back to my resound aids from 2006, and I’m concerned that they might not hold up until I can get them replaced, the multi directional microphone in the right one has gone out, and the feedback calibration feature is failing, so now I can’t put the phone up to my ear with out them squealing, and I can’t hear on a cell phone, so I just use the speaker on my landline cordless phone for now, and aye know, people who talk to people like us that have to use the speaker phone just have to except that.

From: Marsha Drenth 
Sent: Friday, November 01, 2013 12:24 PM
To: NFB Deaf-Blind Division Mailing List 
Subject: Re: [nfb-db] anyone on this list at hknc?

Gene,
I am not yet at HKNC but will be starting my training in 11days. I took a tour first before deciding to do the training. If you can that would be useful for you to see. DARS should pay for the tour. 
Yes the audiologist is great. What I know is that they will fit you for aids, you try them out. If they do not work, then on to another brand or type. If you go out and need tweeking of something with your aids, then the audi will do so. I have even heard that if needed, the audi will go out to different places to help with the hearing aid equipment fitting and tweeking. 
When I was looking into going to HKNC, I talked to several people to see what their experience was. I found a few bad experiences, but mostly I found good ones. 
I have heard that people get frustrated with the long process of fitting and tweeking aids, but its well worth it. 
Its awesome that you have goals, keep at DARS. 
Getting into HKNC takes a long time as they have a huge waiting list. I know of several others who are waiting to get into too. I have been waiting 3 months myself, and this is supposedly a short wait. 

If you have other questions, please do ask... 

Marsha drenth   
Sent with my IPhone 

On Nov 1, 2013, at 1:03 PM, "Gene Richburg" <gene5402 at austin.rr.com> wrote:

  Hi, I heard that there are people on this list who are at HKNC, I would like to know if anyone knows how there system works in regards to getting hearing aids?  I hear that they have an awesome audiologist, and they would be able to get the right technologys together that will allow me to hear in any environment.  Now, my hearing loss is severe to profound, I have a very severe to profound loss in my left ear, with 25% hearing, then I believe in my right ear, it’s just very severe, with only 15% hearing left in that ear.  What I’m wanting to know, is how the process works, will they let me try aids out before Dars makes a commitment?  I am supposed to be going to HKNC at some point, I just have to get my I e p  plan developed through Dars, then I gotta get this New york state medical evaluation form done, and do what ever that requires, and all that, I’ll get there some day hopefully soon though, and I can’t wait, cause like Heather said, this db program here in austin tx sucks.  For example, they have made so many promices about what they were gonna help me with, then broke them.  Last year, I took a business class, and they took notes for me, and they said that when the training was in the halfway period, they would go over the notes, and make sure I understood them, then when the classes wer all finished, we would go over all the notes, well they decided that they didn’t wanna do that, then after it was all over with, then they told me that they couldn’t help me run the business, and I said, I know you can’t help me do that, but you can at leaste help me get the training and everything I needed to get started, and they just kept repeating them selves, so I just told them screw it for now, then I got an opportunity to go to HKNC, and I’m taking it, cause I want enough indipendents to not have to depend on the db program for anything.  If anyone wants to hear of anything else the db program didn’t do, I’ll tell you, I just don’t wanna go on and on unless people wanna hear about it Lol.
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