[nfb-db] nfb-db Digest, Vol 58, Issue 2
Sheila Leigland
sleigland at bresnan.net
Sat Nov 2 19:56:03 UTC 2013
hi I'm just learning about using my fm system. how do you set them up to
work at conventions? do you have to plug them in to something I know
that sounds like a dumb question but I virtually know nothing about this.
On 11/2/2013 1:28 PM, Tracie Inman wrote:
> Heather, Marsha, Janice, and All:
> You are not alone. I, too struggled with the ALD's. I took them back
> several times and told Curtis they weren't working properly. I was
> told to change the setting on my C.I. and to hold the cord out on the
> ALD . That was unsuccessful. We heard from many others who were
> struggling with the ALD's. In short, the ALD situation at the 2013
> convention was not a good one. President Naulty has written to Mark
> Riccobono and requested a meeting. The situation with the ALD's is
> one of the subjects on the agenda for that meeting. The Deaf-Blind
> division plans to work closely with National to improve this situation
> and others.
> While there are still many areas that we need to improve to make the
> conventions fully accessible to all, I do believe that we have made a
> LOT of improvement int he last few months. Operation Outreach is
> making a HUGE impact on the federation, the Deaf-Blind is speaking up
> for their needs, and the federation family as a whole is beginning to
> accept the Deaf-Blind. Yes, it takes time (and a lot of hard work),
> but we are getting there slowly but surely.
> Please keep advocating for your needs, keep working towards the goal
> of changing what it means to be Deaf-Blind, and keep overcoming your
> obstacles. Together we can make a difference.
>
> Sincerely,
> Tracie Inman
> NFB Deaf-Blind Division
> First Vice President
>
>
>
>
>
>
>
>
>
> On Saturday, November 2, 2013 8:01 AM, "nfb-db-request at nfbnet.org"
> <nfb-db-request at nfbnet.org> wrote:
> Send nfb-db mailing list submissions to
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>
>
> Today's Topics:
>
> 1. Re: nfb-db Digest, Vol 57, Issue 12 (Marsha Drenth)
> 2. Re: nfb-db Digest, Adjusting and A Few Questions (Marsha Drenth)
> 3. Re: un believable (Marsha Drenth)
> 4. Re: nfb-db Digest, Adjusting and A Few Questions (Marsha Drenth)
> 5. anyone on this list at hknc? (Gene Richburg)
> 6. Re: anyone on this list at hknc? (Marsha Drenth)
> 7. Re: anyone on this list at hknc? (Scott Davert)
> 8. Re: un believable (heather albright)
> 9. humh just wondering (heather albright)
> 10. Re: anyone on this list at honk? (Gene Richburg)
> 11. Re: anyone on this list at hknc? (Gene Richburg)
> 12. Re: anyone on this list at hknc? (Patricia Hubschman)
> 13. Re: anyone on this list at hknc? (Scott Davert)
> 14. fm systems and flying (Sheila Leigland)
> 15. Trying to use the computer with just a Keyboard (April Brown)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Fri, 1 Nov 2013 11:41:06 -0400
> From: Marsha Drenth <marsha.drenth at gmail.com
> <mailto:marsha.drenth at gmail.com>>
> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] nfb-db Digest, Vol 57, Issue 12
> Message-ID: <6EA06295-9C20-4487-BD4A-6D47F15CF708 at gmail.com
> <mailto:6EA06295-9C20-4487-BD4A-6D47F15CF708 at gmail.com>>
> Content-Type: text/plain; charset="us-ascii"
>
> Janice and All,
> I completely agree with you in this regard. Although the NFB for many
> years had a deafblind division, still we haven't until recently been
> accepted. Not that we are completely now, but as we have all seen,
> that trend is changing. Its the same with the guide dog division, for
> many years persons who use guides dogs were brushed off for their
> choice. No longer, NAGDU has worked hard to change that thinking. We
> as deafblind people are starting to stand up for our rights, we have a
> long way to go but will get there. I suppose if I have anything to do
> with it..
>
> I have also used the assistive listening devices at convention, two
> years ago. We came to convention with my own batteries, with my own
> ear buds and other related equipment that would connect it to my
> hearing aids. In the long run it still did not work. Its incredibly
> frustrating. Two years ago, when the ALD worked, I could hear, today
> if I tried to use one, that would probably not be the case.
>
> Does anyone know anything about the ALD's used at conventions? Whose
> are they? When were they purchased? And would there be a better
> options now? And is this something that the deafblind division should
> look at taking over?
>
> Just some thoughts...
>
> Marsha drenth
> Sent with my IPhone
>
> On Oct 31, 2013, at 8:25 PM, Janice Toothman
> <janice.toothman at verizon.net <mailto:janice.toothman at verizon.net>> wrote:
>
> > Hi Heather I think a common problem with DB people willingness to
> come to Conventions (apart from finances) is whether their will have
> the accommodations they need to get the benefits of the convention.
> It is sad that many feel they do not have adequate support (e.g. SSP,
> alternative to listening devices) and people who are appreciative of
> their difficulties and willing to work with them rather than brush
> them off as a minority, who has to fend for themselves. I know that
> not everyone is rude but their are many people who do not understand
> our unique needs. National seems to think that they can offer
> listening devices and expect that they will work for the DB. I
> complained three times that I could not hear last July; they exchanged
> the listening device-with no improvement. They said try changing
> adjust my hearing aids but that was also unsuccessful. I gave up. I
> really needed to listening because of the resolutions that the DB
> Division had to have passed. It was frustrating. It costs money to
> invest in technology that will assist the greater needs of the DB
> rather than someone perhaps with mild hearing loss.
> > Janice
> > On 10/31/2013 2:28 PM, heather albright wrote:
> >> I think I know 3 here in Austin! But the DB program in austin is a
> joke! I wish I knew someone who could make it better! Our state
> convention is next week, and I have not heard from any DB persons who
> are going to be there! Heather
> >>
> >>
> >> _______________________________________________
> >> nfb-db mailing list
> >> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> >> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> >
> > _______________________________________________
> > nfb-db mailing list
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> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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>
> Message: 2
> Date: Fri, 1 Nov 2013 12:12:09 -0400
> From: Marsha Drenth <marsha.drenth at gmail.com
> <mailto:marsha.drenth at gmail.com>>
> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] nfb-db Digest, Adjusting and A Few Questions
> Message-ID: <8CBD8D05-0201-4CCD-BB4C-7FFD6BD8ABC0 at gmail.com
> <mailto:8CBD8D05-0201-4CCD-BB4C-7FFD6BD8ABC0 at gmail.com>>
> Content-Type: text/plain; charset="us-ascii"
>
> April,
> Doing all you can is good, keep on doing that. I understand what you
> mean by lossing your vision. Most of the time its out of our control,
> in which we lose first or last.
>
> Like others have said, keep on posting, these are all things as
> deafblind persons need to discuss and think about..
>
> Marsha drenth
> Sent with my IPhone
>
> On Oct 31, 2013, at 12:18 PM, April Brown <aprilbrownwrite at gmail.com
> <mailto:aprilbrownwrite at gmail.com>> wrote:
>
> > I am sorry I haven't responded. It isn't easy for me to figure out
> how to respond easily.
> >
> > heather albright - That is a great idea. My regular doctor finally
> developed an online system a year ago. The specialists don't appear
> to have one. I think I need to request one. Though I generally get
> blank stares when I request anything.
> >
> > Marsha Drenth- I've always ignored my hearing loss. As long sight,
> that was what mattered. Now, with my sight undependeable, it's not
> easy. One thing that often isn't covered, is denial is as much about
> those around us, as ourselves. As a society, we're so set on everyone
> being the same, and if you aren't, you almost don't exist. It's as if
> people are scared to admit that someone can live differently than they
> do. Some days, those around us deny our needs to meet theirs, and
> it's sad. I would rather lose my hearing than my eye. I think my
> vision will be gone first though. With all my other disabilities,
> it's not easy. I keep going as best I can. Some days, it feels as if
> my eye is filling in for me, even though I'm not really seeing. As if
> that makes any sense.
> >
> > DELCINA M BROWN - I'm hoping to get the specialists to work through
> emails. It would help. I will keep posting, and reading every day.
> I don't want to ask questions that have been answered hundreds of
> times. I still have a little time, though how much, I can't
> guarantee. I have set a date to start seriously learning Braille
> though, so I can eventually learn refreshable Braille.
> >
> > Catherine Miller- Thanks! I think I need a stronger advocate than
> my husband. He sits there and trusts every word they say. He's been
> in the military too long. He lets them brush it off, and disappear as
> if that's normal. Twice now, a specialist has said what they had to
> say, and been gone from the room before I had even figured out the
> first sentence they said. I hear blind people complain about people
> speaking slower and louder to them, and yet, that's often just what I
> need to be able to comprehend people, especially males with low
> voices. He says I don't respond fast enough. And yet, I can't respond
> till I fully hear it. Listening to most people talk is like listening
> to a VHS tape played at double speed. I can never catch up! That's
> why I spend more time online. I can think, process, and then reply.
> >
> > I do not look forward to the day I have to learn how to use only
> keyboard commands to use a computer. As often as weird things show up
> as I type now, that will be a disaster. I will have to keep writing
> and publishing though.
> >
> > Thanks,
> >
> >
> >
> >
> >
> > April Brown
> >
> > Writing dramatic adventure novels uncovering the myths we hide behind.
> >
> >
> >
> >
> > This email is free from viruses and malware because avast! Antivirus
> protection is active.
> >
> >
> > _______________________________________________
> > nfb-db mailing list
> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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>
> Message: 3
> Date: Fri, 1 Nov 2013 12:16:04 -0400
> From: Marsha Drenth <marsha.drenth at gmail.com
> <mailto:marsha.drenth at gmail.com>>
> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] un believable
> Message-ID: <50D271A0-F414-44E0-B389-67A4CECC7D26 at gmail.com
> <mailto:50D271A0-F414-44E0-B389-67A4CECC7D26 at gmail.com>>
> Content-Type: text/plain; charset="us-ascii"
>
> I've never heard of a deafblind program in Dallas, but I haven't lived
> their for a few years. Again this might be something for NAD. Do you
> have an update?
>
> Marsha drenth
> Sent with my IPhone
>
> On Oct 30, 2013, at 5:44 PM, "heather albright" <kd5cbl at gmail.com
> <mailto:kd5cbl at gmail.com>> wrote:
>
> > I finally have contact with the fokes who know the individual and I
> told them I would ask on this list, is there a DB program in Dallas?
> There trying to find him a place to live and I don't know yet weather
> or not he is out of the nursing home! I suspect, they cant get him
> released till he has a place to stay! That is all I know for now!
> Heather
> > _______________________________________________
> > nfb-db mailing list
> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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> ------------------------------
>
> Message: 4
> Date: Fri, 1 Nov 2013 12:29:09 -0400
> From: Marsha Drenth <marsha.drenth at gmail.com
> <mailto:marsha.drenth at gmail.com>>
> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] nfb-db Digest, Adjusting and A Few Questions
> Message-ID: <31A578D8-F9B5-46F8-AB20-682239358A0F at gmail.com
> <mailto:31A578D8-F9B5-46F8-AB20-682239358A0F at gmail.com>>
> Content-Type: text/plain; charset=us-ascii
>
> Cathy,
> Thanks for the backing. I like to think that some of my social work
> classes are soaking in. LOL
>
>
>
> I am interested in hearing more about the total immersion program you
> attended to learn ASL. Where was this program? How long were you
> there? Any details you would like to share, would be interesting.
>
> Thanks,
>
> Marsha drenth
> Sent with my IPhone
>
> On Oct 31, 2013, at 10:37 AM, Catherine Miller <guillcat at gmail.com
> <mailto:guillcat at gmail.com>> wrote:
>
> > Doctors' staff are busy, and if they don't truly undeerstand what
> you need, they will brushhhhh you off. They are accustomed to knowing
> everything health-wise, but it will be up to you to teachh them about
> deaf-blindness. this is a tall order given your weakened emotionaal
> state brought on by the stresses of accepting the tremendous changes
> demanded by your senses during this time. An idea might be to send a
> letter explaining what your needs will be, making sure your dooctor
> reads it before your scheduled appointment.
> >
> > Congratulations on your decision to learn braille. I'm sure you
> knoow that it will open many new avenues of communication to you. It
> can be an arduous process, but try to read, learn, and practice everry
> single day to hasten the process. It will bring many rewards.
> >
> > I attended a total immersion program to learn ASL. All my teachers
> were Deaf.. Based on their prior experience, they urged me to learn
> the signs first, and to use tactile methods after I learned the signs.
> April, this waas a profound waste of time for three months of my
> life. I felt so stupiddbecause I could not follow the signs. They
> ddid not seem to realize I could see only movement. Finally I
> switched to tactile reception, and my learning rate became airborne.
> I had been standing on my head to see the signs, when all Ireally
> needed was a light touch of the fingers to assist my residual vision.
> Today I have lost more vision and mut rely totally on tactile; but my
> message is that no one knows better than you what you can and cannot
> see or hear.
> >
> > Finally, I want to address Marsha's disclaimer. I am a trained
> counselor, and everything she said is accu April: First I want
> to comment on your need to coommunicate optimally with your doctors.
> I urge you to embark on a new paradigm based in the assurance that
> you are totally within your rights to demand andd expect that your
> health care proffessionals are obligated to provide the form of
> communication that accommodates your individual needs. Visit your
> doctors with an advocate until you are strong enough to do it alone.
> Your advocate can be a good friend, a family member, or someone who
> understandds what your needs are, as long as it's someone you believe
> can stand behind you and not back down
> >
> > I'm sorry, but my software needs updating. It has switcheed the
> position of the first and last part of this email, and if I try to
> repair it, this email won't get sent. Know that we care, and that we
> are very glad you have found us here. We gain strength from your
> experience, April.. We hope you will continue to share with us.
> >
> > Cathy Miller.
> >
> > Sent from my iPad
> >
> >> On Oct 30, 2013, at 7:00 AM, nfb-db-request at nfbnet.org
> <mailto:nfb-db-request at nfbnet.org> wrote:
> >>
> >> Send nfb-db mailing list submissions to
> >> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> >>
> >> To subscribe or unsubscribe via the World Wide Web, visit
> >> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> >> or, via email, send a message with subject or body 'help' to
> >> nfb-db-request at nfbnet.org <mailto:nfb-db-request at nfbnet.org>
> >>
> >> You can reach the person managing the list at
> >> nfb-db-owner at nfbnet.org <mailto:nfb-db-owner at nfbnet.org>
> >>
> >> When replying, please edit your Subject line so it is more specific
> >> than "Re: Contents of nfb-db digest..."
> >>
> >>
> >> Today's Topics:
> >>
> >> 1. Re: montana convention (Marsha Drenth)
> >> 2. Re: Adjusting, and a few questions (Marsha Drenth)
> >> 3. Re: montana convention (maurice mines)
> >> 4. Re: nfb-db Digest, Vol 57, Issue 12 (DELCINA M BROWN)
> >> 5. Re: Adjusting, and a few questions (DELCINA M BROWN)
> >> 6. Re: nfb-db Digest, Vol 57, Issue 12 (Sheila Leigland)
> >> 7. Re: Adjusting, and a few questions (DELCINA M BROWN)
> >> 8. Re: Adjusting, and a few questions (MemberService)
> >> 9. un believable (heather albright)
> >> 10. Re: nfb-db Digest, Vol 57, Issue 12 (DELCINA M BROWN)
> >> 11. unbelievable (Janice Toothman)
> >>
> >>
> >> ----------------------------------------------------------------------
> >>
> >> Message: 1
> >> Date: Tue, 29 Oct 2013 16:22:05 -0400
> >> From: Marsha Drenth <marsha.drenth at gmail.com
> <mailto:marsha.drenth at gmail.com>>
> >> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> >> Subject: Re: [nfb-db] montana convention
> >> Message-ID: <A10D0778-4FA7-4972-B92E-CF5258689BBE at gmail.com
> <mailto:A10D0778-4FA7-4972-B92E-CF5258689BBE at gmail.com>>
> >> Content-Type: text/plain; charset=us-ascii
> >>
> >> Sheila,
> >> Congradulations on the new board position. I am happy to hear that
> the ICC presentation went well. But sorry to hear that you didn't get
> to formally gather a commiitee or division. It will all come in due
> time. Your on the right track though.
> >>
> >> This brings up another very good point, how many deafblind persons
> are on state boards? This would be an interesting fact to know. Have
> deafblind persons been excluded from the boards? I would hope not
> intentionally. And if we as deafblind persons can get on the state
> boards of affiliate would this increase our efforts. Of course I am
> not suggesting this just so we can increase the deafblind issues, but
> in general. Anyone who is elected to a board, must have the greater
> state affiliate in mind.
> >>
> >> Marsha drenth
> >> Sent with my IPhone
> >>
> >>> On Oct 29, 2013, at 2:18 PM, Sheila Leigland
> <sleigland at bresnan.net <mailto:sleigland at bresnan.net>> wrote:
> >>>
> >>> Hi a gentleman from I can connect spoke via skype at our state
> convention and the presentation was excellent. I have also been
> elected to the board and am second vice president so I'm hoping to
> influence and encourage positive feedback in our state concerning deaf
> blind issues.I didn't get to speak about forming a committee about
> these issues but hope to be able to bring this before the board
> sometime in the near distant future.
> >>>
> >>> _______________________________________________
> >>> nfb-db mailing list
> >>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> >>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 2
> >> Date: Tue, 29 Oct 2013 16:40:20 -0400
> >> From: Marsha Drenth <marsha.drenth at gmail.com
> <mailto:marsha.drenth at gmail.com>>
> >> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> >> Subject: Re: [nfb-db] Adjusting, and a few questions
> >> Message-ID: <C57D6EB0-F39B-4D88-8EA4-A0FBF119E529 at gmail.com
> <mailto:C57D6EB0-F39B-4D88-8EA4-A0FBF119E529 at gmail.com>>
> >> Content-Type: text/plain; charset="us-ascii"
> >>
> >> April,
> >> I don't have an answer for the doctor forms part of your post. I do
> want to responde to your post about your denial of your hearing and
> vision loss.
> >> The loss of any sense can be hard, some of us deal with it in
> different ways. When a person deals with the loss of two senses, it is
> doubly hard. Its a griving process, and denial is one of those stages.
> >> In my experience, taking action, getting involved, meeting others,
> learning, helps the process along. The reason I say this is, again in
> my experience, over the last two years I have lost 80percent of my
> hearing. I was blind all of my life. I swing back and forth from being
> absolutely frustrated to sad to acceptance. Getting involved, learning
> new skills, talking to others, asking questions, taking action, all
> give your mind, body and soul something else to work on. And even if
> that means one or two days you have to force the issue, of just
> getting out of bed, or getting out of the house, or making a call, or
> learning a new skill. Of course a counselor who is trained in mental
> health and the adjustment of disability, can also help.
> >> Your not the only onw in denial, in lossing your vision or your
> hearing. I know many other deafblind persons who struggle with this on
> a daily basis, some shut themselves into a house, others do something
> about, and then a majority of us, are some where in the middle.
> >> I wish I had some great words of wisdom, its a one day at time thing.
> >> I am sure if you keeping on posting about this, you will find that
> your not alone. Which can help that denial too.
> >>
> >> Here is my disclaimer, I am not a counselor, but a social worker.
> So my advice above is not official.
> >>
> >>
> >>
> >> Marsha drenth
> >> Sent with my IPhone
> >>
> >>> On Oct 29, 2013, at 3:23 PM, April Brown
> <aprilbrownwrite at gmail.com <mailto:aprilbrownwrite at gmail.com>> wrote:
> >>>
> >>> Hello,
> >>>
> >>> Until a year ago, I mostly ignored my low hearing. I've worn a
> hearing aid for years. A year ago, my vision suddenly failed
> drastically. Obviously, it was never good to begin with either, and I
> never did learn to read lips. I still don't have an official diagnosis
> or prognosis.
> >>>
> >>> Both of these issues have caused me issues in the past. Even
> as my vision fails, and my eye hurts constantly, I still comprehend
> better by seeing and reading. I intend to learn Braille in January.
> (Novemeber is a busy month for writers, and December is busy with in
> laws).
> >>>
> >>> Many, many years ago, in college, I attempted to take a sign
> language course. I didn't learn a thing. All I ever saw was
> motion, and nothing that made sense. At the time, I blamed it on the
> stress of my life. Now, I'm not so sure it was just stress.
> Still, I wish I had learned!
> >>>
> >>> In the meantime, and in the future, how do I convince doctors, and
> other professionals, that an email is better than trying to comprehend
> a phone conversation?
> >>>
> >>> To go along with another thread or two, a few times I asked for
> help on a blind list I had the "I can call you and talk you though
> it" response. Which is great, except, I don't really comprehend well
> on the phone, even from people I know. Especially if there is any
> background sound. I do appreciate the sentiment.
> >>>
> >>> I'm still very new in this situation, and yes, I'm partially still
> in denial, I'm sure.
> >>>
> >>> Thanks,
> >>>
> >>> April Brown
> >>>
> >>>
> >>> _______________________________________________
> >>> nfb-db mailing list
> >>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> >>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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> >> URL:
> <http://nfbnet.org/pipermail/nfb-db_nfbnet.org/attachments/20131029/05847988/attachment-0001.html>
> >>
> >> ------------------------------
> >>
> >> Message: 3
> >> Date: Tue, 29 Oct 2013 14:10:24 -0700
> >> From: maurice mines <kd0iko at icloud.com <mailto:kd0iko at icloud.com>>
> >> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> >> Subject: Re: [nfb-db] montana convention
> >> Message-ID: <2194663A-3DCE-4D37-A143-85D514B81EA8 at icloud.com
> <mailto:2194663A-3DCE-4D37-A143-85D514B81EA8 at icloud.com>>
> >> Content-Type: text/plain; charset=us-ascii
> >>
> >> Graduations. Hope everything goes well for you in the future.
> >>
> >>
> >> Sincerely Maurice Mines. Phone 360-524-0791. Work/school email,
> maurice.mines at pcc.edu. <mailto:maurice.mines at pcc.edu.>
> >>> On Oct 29, 2013, at 11:18 AM, Sheila Leigland
> <sleigland at bresnan.net <mailto:sleigland at bresnan.net>> wrote:
> >>>
> >>> Hi a gentleman from I can connect spoke via skype at our state
> convention and the presentation was excellent. I have also been
> elected to the board and am second vice president so I'm hoping to
> influence and encourage positive feedback in our state concerning deaf
> blind issues.I didn't get to speak about forming a committee about
> these issues but hope to be able to bring this before the board
> sometime in the near distant future.
> >>>
> >>> _______________________________________________
> >>> nfb-db mailing list
> >>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> >>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 4
> >> Date: Tue, 29 Oct 2013 21:57:04 -0400
> >> From: "DELCINA M BROWN" <delcenia at prodigy.net
> <mailto:delcenia at prodigy.net>>
> >> To: "Tracie Inman" <tracieinman at yahoo.com
> <mailto:tracieinman at yahoo.com>>, "NFB Deaf-Blind Division
> >> Mailing List" <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>>
> >> Subject: Re: [nfb-db] nfb-db Digest, Vol 57, Issue 12
> >> Message-ID: <BF7663D5797C4F738B20EA261C31AE88 at johne38069127c
> <mailto:BF7663D5797C4F738B20EA261C31AE88 at johne38069127c>>
> >> Content-Type: text/plain; charset="utf-8"
> >>
> >> First, let me introduce my self. My name is Delcenia Brown and I am
> a member of the National Federation of the blind of Cleveland, Ohio. I
> am new to this mailing list. Therefore alot of you I do not know and
> alot of abbreviation I do not know. It will be nice if sometimes some
> of you would spell out what you are talking about and it would be nice
> to know what state you are in.
> >>
> >> ?
> >>
> >> Tracy, I understand and appreciate what you are saying, your
> identity does not change because of your situation or how you handle
> certain settings. Taking advantage of what you have left is
> understandable. I am greatful for what little hearing and vision I
> have left. I also take advantage of that by reading with a CCTV when I
> can and using a fm system or pocket talker at the appropriate time.
> >>
> >> ?
> >>
> >> At the same time I wish someone had taken the time to teach me
> braille, sign language when I was younger. Now as I grow older and
> have other obstacles it is a struggle to learn braille. I still have
> no one to teach me sign language. So, yes, reminding Randy, that
> there are some deafblind that are hard of hearing and do not sign was
> a gentle response.
> >>
> >> ?
> >>
> >> Just recently, I have posted a notice asking if anyone in my state
> share my interests and got no response. However my state president
> does share my interest and I believe at the state convention which is
> to be held November 1 thru 3, 2013, the agenda does include
> information about the I can connect program.
> >>
> >> ?
> >>
> >> Now, the downside of things. I have completed my application and it
> was approved. I have had my assessment and I believe all of the
> equipment has been ordered based on messages that I have received.
> However, I still have not actually recieve anything as of today. This
> process started back in March or April. I am grateful for the
> possibility of obtaining the equipment, it is frustrating that it has
> taken so long and no one is returning my call.
> >>
> >>
> >>
> >> I gladly get on board!
> >>
> >> Delcenia
> >>
> >>
> >>
> >> ----- Original Message -----
> >> From: Tracie Inman
> >> To: nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> >> Sent: Tuesday, October 29, 2013 9:06 AM
> >> Subject: Re: [nfb-db] nfb-db Digest, Vol 57, Issue 12
> >>
> >>
> >>
> >>
> >> Hi Randy: I hope you're doing well and AADB is growing stronger
> under your leadership. I wish you all the best always. Just a gentle
> reminder my friend that many many Deaf - Blind are hard of hearing
> (non sign speaking) blind folks. Randy, indeed since getting the two
> C.I.'s I'm guilty of using voice, Assisted listening devices and voice
> interpreters as opposed to using my signing, using interpreters, etc.
> I have switched to English. My excuses has been that my vision is
> going "bye bye" and depending on tactile scares me. In time, that may
> be my only option but for now I'm surrounded by hearing family and
> friends so I've gotten into a "comfort zone" with the success of my
> C.I.'s. What I'm trying to say here is, remember that, just because
> you might not observe the folks signing doesn't mean they're not
> Deaf-blind.
> >> All the folks in the NFB Deaf-Blind division who are promoting ICC
> are Deaf-Blind. In fact, every one assigned to Operation Outreach
> (our outreach project to raise awareness of the ICC and the Deaf-Blind
> community requesting ALL 50 affiliates and the D.C. affiliate to form
> committees for the Deaf-Blind in their individual committee) -
> including our mutual friend Marsha drenth are Deaf-Blind.
> >> Speaking of, hey Scott if you want to help please contact me or
> Joe Naulty. We could always use more helping hands. We got two
> projects going on at the moment and probably will start a third. You
> know about Operation Outreach. We've also started a committee on SSP
> issues. If you want to help us, we can always use another helping
> hand. I do believe the Deaf-Blind division is working harder than it
> ever has before. I dare to say that we've accomplished more in the
> last few months than we have in many years. The latest announcement
> we heard was that Scott Labarre (affiliate President of Colorado and a
> National NFB Board Member) has agreed to set up a Deaf-Blind Issues
> committee in the Colorado affiliate. We also heard that the
> President of the Alaska affiliate is Deaf-Blind. So climb abaord the
> NFB DB Express and lets get chugging along on this exciting adventure
> raising awareness of Deaf-Blind issues, ICC, and the need for SSP's.
> All are welcome aboard.
> >>
> >>
> >> Best Wishes,
> >> Tracie Inman
> >> NFB Deaf-Blind Division
> >> First Vice President
> >> tracieinman at yahoo.com <mailto:tracieinman at yahoo.com>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >> On Tuesday, October 29, 2013 8:08 AM, "nfb-db-request at nfbnet.org
> <mailto:nfb-db-request at nfbnet.org>" <nfb-db-request at nfbnet.org
> <mailto:nfb-db-request at nfbnet.org>> wrote:
> >>
> >> Send nfb-db mailing list submissions to
> >> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> >>
> >> To subscribe or unsubscribe via th
>
>
>
> ------------------------------
>
> Message: 5
> Date: Fri, 1 Nov 2013 12:03:24 -0500
> From: "Gene Richburg" <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>>
> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: [nfb-db] anyone on this list at hknc?
> Message-ID: <2DB0B2A56BC84901A8727E672F23B63D at genePC
> <mailto:2DB0B2A56BC84901A8727E672F23B63D at genePC>>
> Content-Type: text/plain; charset="utf-8"
>
> Hi, I heard that there are people on this list who are at HKNC, I
> would like to know if anyone knows how there system works in regards
> to getting hearing aids? I hear that they have an awesome
> audiologist, and they would be able to get the right technologys
> together that will allow me to hear in any environment. Now, my
> hearing loss is severe to profound, I have a very severe to profound
> loss in my left ear, with 25% hearing, then I believe in my right ear,
> it?s just very severe, with only 15% hearing left in that ear. What
> I?m wanting to know, is how the process works, will they let me try
> aids out before Dars makes a commitment? I am supposed to be going to
> HKNC at some point, I just have to get my I e p plan developed
> through Dars, then I gotta get this New york state medical evaluation
> form done, and do what ever that requires, and all that, I?ll get
> there some day hopefully soon though, and I can?t wait, cause like
> Heather said, this db program here in austin tx sucks. For example,
> they have made so many promices about what they were gonna help me
> with, then broke them. Last year, I took a business class, and they
> took notes for me, and they said that when the training was in the
> halfway period, they would go over the notes, and make sure I
> understood them, then when the classes wer all finished, we would go
> over all the notes, well they decided that they didn?t wanna do that,
> then after it was all over with, then they told me that they couldn?t
> help me run the business, and I said, I know you can?t help me do
> that, but you can at leaste help me get the training and everything I
> needed to get started, and they just kept repeating them selves, so I
> just told them screw it for now, then I got an opportunity to go to
> HKNC, and I?m taking it, cause I want enough indipendents to not have
> to depend on the db program for anything. If anyone wants to hear of
> anything else the db program didn?t do, I?ll tell you, I just don?t
> wanna go on and on unless people wanna hear about it Lol.
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> ------------------------------
>
> Message: 6
> Date: Fri, 1 Nov 2013 13:24:03 -0400
> From: Marsha Drenth <marsha.drenth at gmail.com
> <mailto:marsha.drenth at gmail.com>>
> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] anyone on this list at hknc?
> Message-ID: <0E00189B-4739-4D86-9AB5-77B1AB1C47A5 at gmail.com
> <mailto:0E00189B-4739-4D86-9AB5-77B1AB1C47A5 at gmail.com>>
> Content-Type: text/plain; charset="utf-8"
>
> Gene,
> I am not yet at HKNC but will be starting my training in 11days. I
> took a tour first before deciding to do the training. If you can that
> would be useful for you to see. DARS should pay for the tour.
> Yes the audiologist is great. What I know is that they will fit you
> for aids, you try them out. If they do not work, then on to another
> brand or type. If you go out and need tweeking of something with your
> aids, then the audi will do so. I have even heard that if needed, the
> audi will go out to different places to help with the hearing aid
> equipment fitting and tweeking.
> When I was looking into going to HKNC, I talked to several people to
> see what their experience was. I found a few bad experiences, but
> mostly I found good ones.
> I have heard that people get frustrated with the long process of
> fitting and tweeking aids, but its well worth it.
> Its awesome that you have goals, keep at DARS.
> Getting into HKNC takes a long time as they have a huge waiting list.
> I know of several others who are waiting to get into too. I have been
> waiting 3 months myself, and this is supposedly a short wait.
>
> If you have other questions, please do ask...
>
> Marsha drenth
> Sent with my IPhone
>
> On Nov 1, 2013, at 1:03 PM, "Gene Richburg" <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>> wrote:
>
> > Hi, I heard that there are people on this list who are at HKNC, I
> would like to know if anyone knows how there system works in regards
> to getting hearing aids? I hear that they have an awesome audiologist,
> and they would be able to get the right technologys together that will
> allow me to hear in any environment. Now, my hearing loss is severe
> to profound, I have a very severe to profound loss in my left ear,
> with 25% hearing, then I believe in my right ear, it?s just very
> severe, with only 15% hearing left in that ear. What I?m wanting to
> know, is how the process works, will they let me try aids out before
> Dars makes a commitment? I am supposed to be going to HKNC at some
> point, I just have to get my I e p plan developed through Dars, then
> I gotta get this New york state medical evaluation form done, and do
> what ever that requires, and all that, I?ll get there some day
> hopefully soon though, and I can?t wait, cause like Heather said, this
> db program here in austin tx sucks. For example, they have made so
> many promices about what they were gonna help me with, then broke
> them. Last year, I took a business class, and they took notes for me,
> and they said that when the training was in the halfway period, they
> would go over the notes, and make sure I understood them, then when
> the classes wer all finished, we would go over all the notes, well
> they decided that they didn?t wanna do that, then after it was all
> over with, then they told me that they couldn?t help me run the
> business, and I said, I know you can?t help me do that, but you can at
> leaste help me get the training and everything I needed to get
> started, and they just kept repeating them selves, so I just told them
> screw it for now, then I got an opportunity to go to HKNC, and I?m
> taking it, cause I want enough indipendents to not have to depend on
> the db program for anything. If anyone wants to hear of anything else
> the db program didn?t do, I?ll tell you, I just don?t wanna go on and
> on unless people wanna hear about it Lol.
> > _______________________________________________
> > nfb-db mailing list
> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> -------------- next part --------------
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> ------------------------------
>
> Message: 7
> Date: Fri, 1 Nov 2013 13:31:42 -0400
> From: Scott Davert <scottdavert at gmail.com <mailto:scottdavert at gmail.com>>
> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] anyone on this list at hknc?
> Message-ID:
>
> <CAOHXxEaVwUtuCChpEMBYqEr_2dpZ=e0SNVb-AHiCbLQDhBFXyg at mail.gmail.com
> <mailto:e0SNVb-AHiCbLQDhBFXyg at mail.gmail.com>>
> Content-Type: text/plain; charset=windows-1252
>
> Hi Gene.
> I currently work at HKNC. Carol is an awesome audiologist, she is the
> one who set me up with the hearing aids I currently use. I cannot say
> for certain, as I'm sure you are aware, how much hearing aids will
> help you, it's a personal thing where your experience may vary. Also,
> hearing aids will not allow you, for example, to hear in loud
> environments under most circumstances. Yes, you can try a pair out for
> a couple of weeks to see if you like it. However, once you've decided
> on a pair, HKNC cannot provide you with funding to get them. That
> would fall back onto Dars, who would hopefully be inclined to include
> that as an amendment on your IPE. Do you have contact with C C davis?
> I assume all this work is being done with him? And so you are aware, I
> do work at HKNC, but don't post messages here in the capacity of
> someone working here. I'm my own person, and tell people both the
> positive and negative aspects of things here as I see them. I was a
> student here in 2006.
>
> Hope this helps,
> Scott
> Sent from my iPhone
>
> On 11/1/13, Gene Richburg <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>> wrote:
> > Hi, I heard that there are people on this list who are at HKNC, I
> would like
> > to know if anyone knows how there system works in regards to getting
> hearing
> > aids? I hear that they have an awesome audiologist, and they would
> be able
> > to get the right technologys together that will allow me to hear in any
> > environment. Now, my hearing loss is severe to profound, I have a very
> > severe to profound loss in my left ear, with 25% hearing, then I
> believe in
> > my right ear, it?s just very severe, with only 15% hearing left in
> that ear.
> > What I?m wanting to know, is how the process works, will they let
> me try
> > aids out before Dars makes a commitment? I am supposed to be going
> to HKNC
> > at some point, I just have to get my I e p plan developed through Dars,
> > then I gotta get this New york state medical evaluation form done,
> and do
> > what ever that requires, and all that, I?ll get there some day hopefully
> > soon though, and I can?t wait, cause like Heather said, this db
> program here
> > in austin tx sucks. For example, they have made so many promices
> about what
> > they were gonna help me with, then broke them. Last year, I took a
> business
> > class, and they took notes for me, and they said that when the
> training was
> > in the halfway period, they would go over the notes, and make sure I
> > understood them, then when the classes wer all finished, we would go
> over
> > all the notes, well they decided that they didn?t wanna do that,
> then after
> > it was all over with, then they told me that they couldn?t help me
> run the
> > business, and I said, I know you can?t help me do that, but you can at
> > leaste help me get the training and everything I needed to get
> started, and
> > they just kept repeating them selves, so I just told them screw it
> for now,
> > then I got an opportunity to go to HKNC, and I?m taking it, cause I want
> > enough indipendents to not have to depend on the db program for
> anything.
> > If anyone wants to hear of anything else the db program didn?t do,
> I?ll tell
> > you, I just don?t wanna go on and on unless people wanna hear about
> it Lol.
>
>
>
> ------------------------------
>
> Message: 8
> Date: Fri, 1 Nov 2013 12:44:37 -0500
> From: "heather albright" <kd5cbl at gmail.com <mailto:kd5cbl at gmail.com>>
> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] un believable
> Message-ID: <DA5AC61CD38A41AA95DEE8F52E51C163 at supersystem
> <mailto:DA5AC61CD38A41AA95DEE8F52E51C163 at supersystem>>
> Content-Type: text/plain; charset="iso-8859-1"
>
> Yes, the only update is that he is still in the nursing home because, he
> does not have a place to go that the court deems safe! I think I was
> brushed off by the NFB of Texas, preparing for the convention was more
> important than helping someone gain freedom out an isolating place!
> National has not called back, like they said they would do by today!
> I did
> not say drop everything, they could at least look in to it here in Texas!
> But I am the only one trying to look in to this. I sure do miss tommie's
> leadership when this type of stuff comes out! Someone suggest to
> contact
> NAD do they have the dallas contact to this organization because I
> live in
> Austin. I posted it on facebook on my wall and to a deaf
> organization, no
> responses at all! I don't know if it is because he is also blind or they
> cant do anything about it! Heather
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> ------------------------------
>
> Message: 9
> Date: Fri, 1 Nov 2013 13:00:54 -0500
> From: "heather albright" <kd5cbl at gmail.com <mailto:kd5cbl at gmail.com>>
> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: [nfb-db] humh just wondering
> Message-ID: <BACD6C69E0DD4047AE5DD2FE46E62D54 at supersystem
> <mailto:BACD6C69E0DD4047AE5DD2FE46E62D54 at supersystem>>
> Content-Type: text/plain; charset="windows-1252"
>
> Has anyone thought about a how to video for signing. They can have
> audio to
> tell you how to make the signs. Like at HKC! Heather
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> ------------------------------
>
> Message: 10
> Date: Fri, 1 Nov 2013 13:10:27 -0500
> From: "Gene Richburg" <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>>
> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] anyone on this list at honk?
> Message-ID: <CFFA93EE23A149A89D52D1C73DA0D4A7 at genePC
> <mailto:CFFA93EE23A149A89D52D1C73DA0D4A7 at genePC>>
> Content-Type: text/plain; charset="utf-8"
>
> Hi Marsha, yeah, oh don?t I ever know what a time consuming pain it
> can be tweaking aids, I?ve struggled for the last 3 years trying new
> aids only to be disappointed, I?m sure others on this list have
> experienced new aids where they sound like they are turning everything
> down, then, when some one talks to you they purp up just to let you
> either miss the first few words they?ve said, or you get the very last
> part of what was said. As far as I know, all new aids do this, it?s a
> way, in my opinion for the companies to show off there fancy, and deaf
> blind people are not the only ones that are frustrated with new aids
> either. According to this therapist I saw, she said that even sighted
> people are frustrated, so that tells me, that just because all the
> hearing specialists, and audiologists say that most people prefer the
> aids to cut down all the noise in there environment is obviously not
> entirely true. I can?t even begin to tell you how many times I?ve had
> to go back for adjustments to some Siemens aids I have, I can?t even
> use them, because there no longer strong enough for my loss, I?ve had
> to go back to my resound aids from 2006, and I?m concerned that they
> might not hold up until I can get them replaced, the multi directional
> microphone in the right one has gone out, and the feedback calibration
> feature is failing, so now I can?t put the phone up to my ear with out
> them squealing, and I can?t hear on a cell phone, so I just use the
> speaker on my landline cordless phone for now, and aye know, people
> who talk to people like us that have to use the speaker phone just
> have to except that.
>
> From: Marsha Drenth
> Sent: Friday, November 01, 2013 12:24 PM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] anyone on this list at hknc?
>
> Gene,
> I am not yet at HKNC but will be starting my training in 11days. I
> took a tour first before deciding to do the training. If you can that
> would be useful for you to see. DARS should pay for the tour.
> Yes the audiologist is great. What I know is that they will fit you
> for aids, you try them out. If they do not work, then on to another
> brand or type. If you go out and need tweeking of something with your
> aids, then the audi will do so. I have even heard that if needed, the
> audi will go out to different places to help with the hearing aid
> equipment fitting and tweeking.
> When I was looking into going to HKNC, I talked to several people to
> see what their experience was. I found a few bad experiences, but
> mostly I found good ones.
> I have heard that people get frustrated with the long process of
> fitting and tweeking aids, but its well worth it.
> Its awesome that you have goals, keep at DARS.
> Getting into HKNC takes a long time as they have a huge waiting list.
> I know of several others who are waiting to get into too. I have been
> waiting 3 months myself, and this is supposedly a short wait.
>
> If you have other questions, please do ask...
>
> Marsha drenth
> Sent with my IPhone
>
> On Nov 1, 2013, at 1:03 PM, "Gene Richburg" <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>> wrote:
>
>
> Hi, I heard that there are people on this list who are at HKNC, I
> would like to know if anyone knows how there system works in regards
> to getting hearing aids? I hear that they have an awesome
> audiologist, and they would be able to get the right technologys
> together that will allow me to hear in any environment. Now, my
> hearing loss is severe to profound, I have a very severe to profound
> loss in my left ear, with 25% hearing, then I believe in my right ear,
> it?s just very severe, with only 15% hearing left in that ear. What
> I?m wanting to know, is how the process works, will they let me try
> aids out before Dars makes a commitment? I am supposed to be going to
> HKNC at some point, I just have to get my I e p plan developed
> through Dars, then I gotta get this New york state medical evaluation
> form done, and do what ever that requires, and all that, I?ll get
> there some day hopefully soon though, and I can?t wait, cause like
> Heather said, this db program here in austin tx sucks. For example,
> they have made so many promices about what they were gonna help me
> with, then broke them. Last year, I took a business class, and they
> took notes for me, and they said that when the training was in the
> halfway period, they would go over the notes, and make sure I
> understood them, then when the classes wer all finished, we would go
> over all the notes, well they decided that they didn?t wanna do that,
> then after it was all over with, then they told me that they couldn?t
> help me run the business, and I said, I know you can?t help me do
> that, but you can at leaste help me get the training and everything I
> needed to get started, and they just kept repeating them selves, so I
> just told them screw it for now, then I got an opportunity to go to
> HKNC, and I?m taking it, cause I want enough indipendents to not have
> to depend on the db program for anything. If anyone wants to hear of
> anything else the db program didn?t do, I?ll tell you, I just don?t
> wanna go on and on unless people wanna hear about it Lol.
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
>
> --------------------------------------------------------------------------------
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> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
>
> --------------------------------------------------------------------------------
>
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> Checked by AVG - www.avg.com
> Version: 2014.0.4158 / Virus Database: 3615/6799 - Release Date: 11/01/13
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> Message: 11
> Date: Fri, 1 Nov 2013 13:18:34 -0500
> From: "Gene Richburg" <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>>
> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] anyone on this list at hknc?
> Message-ID: <D0010A580FEA48D1BF89EBFE246CB00C at genePC
> <mailto:D0010A580FEA48D1BF89EBFE246CB00C at genePC>>
> Content-Type: text/plain; format=flowed; charset="Windows-1252";
> reply-type=original
>
> Hi Scott, no, actually I'm working with Christine Chan, she is my dars
> case
> manager, she has a lot of experience under her belt, she use to work with
> the deaf consumers back when we had the texas rehave connition, trc,
> then I
> have Gail Ploman, who is the team leader of the db apartment program
> that I
> live in. Cc Davis is in Dalas, and we have 2 or 3 db specialests here in
> austin, so things are probably just about as covered as they can, if
> ya know
> what I mean! Yes, it is in my plan for dars to get me aids, and
> that's one
> of the reasons I'm coming, I'm tired of putting up with local specialests
> who want to know how to work with a db person, they just don't know
> how, and
> some of them don't know all the ends and outs of hearing aids. There
> telling me that my expectations are to high, but what doesn't make
> since, is
> that I seem to hear better with older aids then I do with new ones,
> like go
> figure.
>
> -----Original Message-----
> From: Scott Davert
> Sent: Friday, November 01, 2013 12:31 PM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] anyone on this list at hknc?
>
> Hi Gene.
> I currently work at HKNC. Carol is an awesome audiologist, she is the
> one who set me up with the hearing aids I currently use. I cannot say
> for certain, as I'm sure you are aware, how much hearing aids will
> help you, it's a personal thing where your experience may vary. Also,
> hearing aids will not allow you, for example, to hear in loud
> environments under most circumstances. Yes, you can try a pair out for
> a couple of weeks to see if you like it. However, once you've decided
> on a pair, HKNC cannot provide you with funding to get them. That
> would fall back onto Dars, who would hopefully be inclined to include
> that as an amendment on your IPE. Do you have contact with C C davis?
> I assume all this work is being done with him? And so you are aware, I
> do work at HKNC, but don't post messages here in the capacity of
> someone working here. I'm my own person, and tell people both the
> positive and negative aspects of things here as I see them. I was a
> student here in 2006.
>
> Hope this helps,
> Scott
> Sent from my iPhone
>
> On 11/1/13, Gene Richburg <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>> wrote:
> > Hi, I heard that there are people on this list who are at HKNC, I would
> > like
> > to know if anyone knows how there system works in regards to getting
> > hearing
> > aids? I hear that they have an awesome audiologist, and they would be
> > able
> > to get the right technologys together that will allow me to hear in any
> > environment. Now, my hearing loss is severe to profound, I have a very
> > severe to profound loss in my left ear, with 25% hearing, then I
> believe
> > in
> > my right ear, it?s just very severe, with only 15% hearing left in that
> > ear.
> > What I?m wanting to know, is how the process works, will they let
> me try
> > aids out before Dars makes a commitment? I am supposed to be going to
> > HKNC
> > at some point, I just have to get my I e p plan developed through Dars,
> > then I gotta get this New york state medical evaluation form done,
> and do
> > what ever that requires, and all that, I?ll get there some day hopefully
> > soon though, and I can?t wait, cause like Heather said, this db program
> > here
> > in austin tx sucks. For example, they have made so many promices about
> > what
> > they were gonna help me with, then broke them. Last year, I took a
> > business
> > class, and they took notes for me, and they said that when the training
> > was
> > in the halfway period, they would go over the notes, and make sure I
> > understood them, then when the classes wer all finished, we would go
> over
> > all the notes, well they decided that they didn?t wanna do that, then
> > after
> > it was all over with, then they told me that they couldn?t help me
> run the
> > business, and I said, I know you can?t help me do that, but you can at
> > leaste help me get the training and everything I needed to get started,
> > and
> > they just kept repeating them selves, so I just told them screw it for
> > now,
> > then I got an opportunity to go to HKNC, and I?m taking it, cause I want
> > enough indipendents to not have to depend on the db program for
> anything.
> > If anyone wants to hear of anything else the db program didn?t do, I?ll
> > tell
> > you, I just don?t wanna go on and on unless people wanna hear about it
> > Lol.
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
> -----
> No virus found in this message.
> Checked by AVG - www.avg.com
> Version: 2014.0.4158 / Virus Database: 3615/6799 - Release Date: 11/01/13
>
>
>
>
> ------------------------------
>
> Message: 12
> Date: Fri, 01 Nov 2013 14:32:00 -0400
> From: Patricia Hubschman <palhub at optonline.net
> <mailto:palhub at optonline.net>>
> To: 'NFB Deaf-Blind Division Mailing List' <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] anyone on this list at hknc?
> Message-ID: <004801ced730$a74349d0$f5c9dd70$@net>
> Content-Type: text/plain; charset=us-ascii
>
> Thank you, Scott. YYou just answered my question - where you do Outreach.
> I'm not sure what that is though.
> I'm seeing Carol H on Thursday to try a hearing aid on my non ci
> ear. My
> CI audi wants to balance me out.
> I was told too that they don't help with funding, but Carol said that
> sometimes the state will help out.
>
>
> Trish
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org
> <mailto:nfb-db-bounces at nfbnet.org>] On Behalf Of Scott Davert
> Sent: Friday, November 01, 2013 1:32 PM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] anyone on this list at hknc?
>
> Hi Gene.
> I currently work at HKNC. Carol is an awesome audiologist, she is the one
> who set me up with the hearing aids I currently use. I cannot say for
> certain, as I'm sure you are aware, how much hearing aids will help you,
> it's a personal thing where your experience may vary. Also, hearing aids
> will not allow you, for example, to hear in loud environments under most
> circumstances. Yes, you can try a pair out for a couple of weeks to see if
> you like it. However, once you've decided on a pair, HKNC cannot
> provide you
> with funding to get them. That would fall back onto Dars, who would
> hopefully be inclined to include that as an amendment on your IPE. Do you
> have contact with C C davis?
> I assume all this work is being done with him? And so you are aware, I do
> work at HKNC, but don't post messages here in the capacity of someone
> working here. I'm my own person, and tell people both the positive and
> negative aspects of things here as I see them. I was a student here in
> 2006.
>
> Hope this helps,
> Scott
> Sent from my iPhone
>
> On 11/1/13, Gene Richburg <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>> wrote:
> > Hi, I heard that there are people on this list who are at HKNC, I
> > would like to know if anyone knows how there system works in regards
> > to getting hearing aids? I hear that they have an awesome
> > audiologist, and they would be able to get the right technologys
> > together that will allow me to hear in any environment. Now, my
> > hearing loss is severe to profound, I have a very severe to profound
> > loss in my left ear, with 25% hearing, then I believe in my right ear,
> it's just very severe, with only 15% hearing left in that ear.
> > What I'm wanting to know, is how the process works, will they let me
> > try aids out before Dars makes a commitment? I am supposed to be
> > going to HKNC at some point, I just have to get my I e p plan
> > developed through Dars, then I gotta get this New york state medical
> > evaluation form done, and do what ever that requires, and all that,
> > I'll get there some day hopefully soon though, and I can't wait, cause
> > like Heather said, this db program here in austin tx sucks. For
> > example, they have made so many promices about what they were gonna
> > help me with, then broke them. Last year, I took a business class,
> > and they took notes for me, and they said that when the training was
> > in the halfway period, they would go over the notes, and make sure I
> > understood them, then when the classes wer all finished, we would go
> > over all the notes, well they decided that they didn't wanna do that,
> > then after it was all over with, then they told me that they couldn't
> > help me run the business, and I said, I know you can't help me do
> > that, but you can at leaste help me get the training and everything I
> > needed to get started, and they just kept repeating them selves, so I
> > just told them screw it for now, then I got an opportunity to go to
> HKNC,
> and I'm taking it, cause I want enough indipendents to not have to
> depend on
> the db program for anything.
> > If anyone wants to hear of anything else the db program didn't do,
> > I'll tell you, I just don't wanna go on and on unless people wanna hear
> about it Lol.
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
>
>
> ------------------------------
>
> Message: 13
> Date: Fri, 1 Nov 2013 16:38:05 -0400
> From: Scott Davert <scottdavert at gmail.com <mailto:scottdavert at gmail.com>>
> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
> <mailto:nfb-db at nfbnet.org>>
> Subject: Re: [nfb-db] anyone on this list at hknc?
> Message-ID: <8745D59D-79B1-4C04-B288-6E693D1E588C at gmail.com
> <mailto:8745D59D-79B1-4C04-B288-6E693D1E588C at gmail.com>>
> Content-Type: text/plain; charset=utf-8
>
> Hi Gene.
> Actually, it makes perfect sense that you can hear better with older
> hearing aids. The digital side of things is very different from that
> of the older analogue side of things. Until your ears get used to
> thesound of the digital processing, you will struggle with digital
> hearing aids. It's interesting that your preference is also Resound. I
> also always liked the analogue sound best, and resound is what I
> prefer. I've tried Seamons, Phonak, and a couple of others, but they
> just didn't do it for me. Other people sware by each of these brands,
> but I love the Resound hearing aids.
> I wish you theest of luck getting your paper work completed and hope
> to meet you at some point.
>
> Scott
>
> Sent from my iPhone
>
> On Nov 1, 2013, at 2:18 PM, "Gene Richburg" <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>> wrote:
>
> > Hi Scott, no, actually I'm working with Christine Chan, she is my
> dars case manager, she has a lot of experience under her belt, she use
> to work with the deaf consumers back when we had the texas rehave
> connition, trc, then I have Gail Ploman, who is the team leader of the
> db apartment program that I live in. Cc Davis is in Dalas, and we
> have 2 or 3 db specialests here in austin, so things are probably just
> about as covered as they can, if ya know what I mean! Yes, it is in
> my plan for dars to get me aids, and that's one of the reasons I'm
> coming, I'm tired of putting up with local specialests who want to
> know how to work with a db person, they just don't know how, and some
> of them don't know all the ends and outs of hearing aids. There
> telling me that my expectations are to high, but what doesn't make
> since, is that I seem to hear better with older aids then I do with
> new ones, like go figure.
> >
> > -----Original Message----- From: Scott Davert
> > Sent: Friday, November 01, 2013 12:31 PM
> > To: NFB Deaf-Blind Division Mailing List
> > Subject: Re: [nfb-db] anyone on this list at hknc?
> >
> > Hi Gene.
> > I currently work at HKNC. Carol is an awesome audiologist, she is the
> > one who set me up with the hearing aids I currently use. I cannot say
> > for certain, as I'm sure you are aware, how much hearing aids will
> > help you, it's a personal thing where your experience may vary. Also,
> > hearing aids will not allow you, for example, to hear in loud
> > environments under most circumstances. Yes, you can try a pair out for
> > a couple of weeks to see if you like it. However, once you've decided
> > on a pair, HKNC cannot provide you with funding to get them. That
> > would fall back onto Dars, who would hopefully be inclined to include
> > that as an amendment on your IPE. Do you have contact with C C davis?
> > I assume all this work is being done with him? And so you are aware, I
> > do work at HKNC, but don't post messages here in the capacity of
> > someone working here. I'm my own person, and tell people both the
> > positive and negative aspects of things here as I see them. I was a
> > student here in 2006.
> >
> > Hope this helps,
> > Scott
> > Sent from my iPhone
> >
> > On 11/1/13, Gene Richburg <gene5402 at austin.rr.com
> <mailto:gene5402 at austin.rr.com>> wrote:
> >> Hi, I heard that there are people on this list who are at HKNC, I
> would like
> >> to know if anyone knows how there system works in regards to
> getting hearing
> >> aids? I hear that they have an awesome audiologist, and they would
> be able
> >> to get the right technologys together that will allow me to hear in any
> >> environment. Now, my hearing loss is severe to profound, I have a very
> >> severe to profound loss in my left ear, with 25% hearing, then I
> believe in
> >> my right ear, it?s just very severe, with only 15% hearing left in
> that ear.
> >> What I?m wanting to know, is how the process works, will they let
> me try
> >> aids out before Dars makes a commitment? I am supposed to be going
> to HKNC
> >> at some point, I just have to get my I e p plan developed through Dars,
> >> then I gotta get this New york state medical evaluation form done,
> and do
> >> what ever that requires, and all that, I?ll get there some day
> hopefully
> >> soon though, and I can?t wait, cause like Heather said, this db
> program here
> >> in austin tx sucks. For example, they have made so many promices
> about what
> >> they were gonna help me with, then broke them. Last year, I took a
> business
> >> class, and they took notes for me, and they said that when the
> training was
> >> in the halfway period, they would go over the notes, and make sure I
> >> understood them, then when the classes wer all finished, we would
> go over
> >> all the notes, well they decided that they didn?t wanna do that,
> then after
> >> it was all over with, then they told me that they couldn?t help me
> run the
> >> business, and I said, I know you can?t help me do that, but you can at
> >> leaste help me get the training and everything I needed to get
> started, and
> >> they just kept repeating them selves, so I just told them screw it
> for now,
> >> then I got an opportunity to go to HKNC, and I?m taking it, cause I
> want
> >> enough indipendents to not have to depend on the db program for
> anything.
> >> If anyone wants to hear of anything else the db program didn?t do,
> I?ll tell
> >> you, I just don?t wanna go on and on unless people wanna hear about
> it Lol.
> >
> > _______________________________________________
> > nfb-db mailing list
> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> >
> >
> > -----
> > No virus found in this message.
> > Checked by AVG - www.avg.com
> > Version: 2014.0.4158 / Virus Database: 3615/6799 - Release Date:
> 11/01/13
> >
> >
> > _______________________________________________
> > nfb-db mailing list
> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
>
> ------------------------------
>
> Message: 14
> Date: Sat, 02 Nov 2013 01:28:22 -0600
> From: Sheila Leigland <sleigland at bresnan.net
> <mailto:sleigland at bresnan.net>>
> Cc: db <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>>
> Subject: [nfb-db] fm systems and flying
> Message-ID: <5274A996.1020600 at bresnan.net
> <mailto:5274A996.1020600 at bresnan.net>>
> Content-Type: text/plain; charset=ISO-8859-1; format=flowed
>
> hi I understand that we are screened and posibly have our hands checked
> for materials and explosive making items if we have medical devices.
> Does this include hearing aides andd fm systems? I will be flying to
> Baltimore with a small deligation from Montana for Maryland's convention
> so was wondering what would be involved in getting through airport
> security. thanks in advance.
>
>
>
> ------------------------------
>
> Message: 15
> Date: Sat, 2 Nov 2013 07:56:41 -0400
> From: April Brown <aprilbrownwrite at gmail.com
> <mailto:aprilbrownwrite at gmail.com>>
> To: <nfbktad at nfbnet.org <mailto:nfbktad at nfbnet.org>>,
> <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>>
> Subject: [nfb-db] Trying to use the computer with just a Keyboard
> Message-ID: <003a01ced7c2$99051f00$cb0f5d00$@com>
> Content-Type: text/plain; charset="us-ascii"
>
> Following advice, I've tried to learn to use a computer with just a
> keyboard. I don't get it. I can't open or close anything.
>
>
>
> With the trial JAWs program, I tried to use both Firefox and Safari with
> just the keyboard. I had the 11 page keyboard guide open. And none of the
> commands worked on either browser. They worked in Word and PDF.
>
>
>
> I have no idea what "key" I am missing. I am sure it is some silly
> something that I'm supposed to toggle on or off to do it, and everyone
> else
> in the world knows how without being told.
>
>
>
> So far, the biggest problem I can see with JAWs, other than not being able
> to configure it for the browsers, is the volume. With my massive hearing
> loss as well, and the volume at 100%, it sounds like a whisper. Is it
> worth
> my time to learn this program, if I can't hear the speakers? My
> hearing and
> comprehension is rapidly decreasing. I'm going to ask on the deaf blind
> group what they use.
>
>
>
> April Brown
>
>
>
> Writing dramatic adventure novels uncovering the myths we hide behind.
>
>
>
>
>
>
>
> ---
> This email is free from viruses and malware because avast! Antivirus
> protection is active.
> http://www.avast.com <http://www.avast.com/>
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