[nfb-db] *****SPAM***** Re: ALD's and convention
Randy Pope
randy.pope at aadb.org
Sun Nov 3 05:24:39 UTC 2013
ALD stand for Assistive Listening Device. Hope this help.
Randy
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Gerardo Corripio
Sent: Saturday, November 02, 2013 4:00 PM
To: NFB Deaf-Blind Division Mailing List
Subject: *****SPAM***** Re: [nfb-db] ALD's and convention
What's Ald stand for exactly? the Fm transmitter one uses to hear people and such where the person wears a mike and the deafblind person has a receiver?
El 02/11/2013 01:55 p.m., Scott Davert escribió:
Hi Tracie.
Would you say that using an ALD this year was more challenging than before? I had to return mine once, but that was all when I was in Dallas last year. I was not in Orlando during this convention, as I had just returned from running a seminar in California and and work wouldn't give me 2 weeks in a row off. I had also been in Michigan earlier in June, so I could understand there point.
Scott
Sent from my iPhone
On Nov 2, 2013, at 3:28 PM, Tracie Inman <tracieinman at yahoo.com> wrote:
Heather, Marsha, Janice, and All:
You are not alone. I, too struggled with the ALD's. I took them back several times and told Curtis they weren't working properly. I was told to change the setting on my C.I. and to hold the cord out on the ALD . That was unsuccessful. We heard from many others who were struggling with the ALD's. In short, the ALD situation at the 2013 convention was not a good one. President Naulty has written to Mark Riccobono and requested a meeting. The situation with the ALD's is one of the subjects on the agenda for that meeting. The Deaf-Blind division plans to work closely with National to improve this situation and others.
While there are still many areas that we need to improve to make the conventions fully accessible to all, I do believe that we have made a LOT of improvement int he last few months. Operation Outreach is making a HUGE impact on the federation, the Deaf-Blind is speaking up for their needs, and the federation family as a whole is beginning to accept the Deaf-Blind. Yes, it takes time (and a lot of hard work), but we are getting there slowly but surely.
Please keep advocating for your needs, keep working towards the goal of changing what it means to be Deaf-Blind, and keep overcoming your obstacles. Together we can make a difference.
Sincerely,
Tracie Inman
NFB Deaf-Blind Division
First Vice President
On Saturday, November 2, 2013 8:01 AM, "nfb-db-request at nfbnet.org" <nfb-db-request at nfbnet.org> wrote:
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Today's Topics:
1. Re: nfb-db Digest, Vol 57, Issue 12 (Marsha Drenth)
2. Re: nfb-db Digest, Adjusting and A Few Questions (Marsha Drenth)
3. Re: un believable (Marsha Drenth)
4. Re: nfb-db Digest, Adjusting and A Few Questions (Marsha Drenth)
5. anyone on this list at hknc? (Gene Richburg)
6. Re: anyone on this list at hknc? (Marsha Drenth)
7. Re: anyone on this list at hknc? (Scott Davert)
8. Re: un believable (heather albright)
9. humh just wondering (heather albright)
10. Re: anyone on this list at honk? (Gene Richburg)
11. Re: anyone on this list at hknc? (Gene Richburg)
12. Re: anyone on this list at hknc? (Patricia Hubschman)
13. Re: anyone on this list at hknc? (Scott Davert)
14. fm systems and flying (Sheila Leigland)
15. Trying to use the computer with just a Keyboard (April Brown)
----------------------------------------------------------------------
Message: 1
Date: Fri, 1 Nov 2013 11:41:06 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] nfb-db Digest, Vol 57, Issue 12
Message-ID: <6EA06295-9C20-4487-BD4A-6D47F15CF708 at gmail.com>
Content-Type: text/plain; charset="us-ascii"
Janice and All,
I completely agree with you in this regard. Although the NFB for many years had a deafblind division, still we haven't until recently been accepted. Not that we are completely now, but as we have all seen, that trend is changing. Its the same with the guide dog division, for many years persons who use guides dogs were brushed off for their choice. No longer, NAGDU has worked hard to change that thinking. We as deafblind people are starting to stand up for our rights, we have a long way to go but will get there. I suppose if I have anything to do with it..
I have also used the assistive listening devices at convention, two years ago. We came to convention with my own batteries, with my own ear buds and other related equipment that would connect it to my hearing aids. In the long run it still did not work. Its incredibly frustrating. Two years ago, when the ALD worked, I could hear, today if I tried to use one, that would probably not be the case.
Does anyone know anything about the ALD's used at conventions? Whose are they? When were they purchased? And would there be a better options now? And is this something that the deafblind division should look at taking over?
Just some thoughts...
Marsha drenth
Sent with my IPhone
On Oct 31, 2013, at 8:25 PM, Janice Toothman <janice.toothman at verizon.net> wrote:
> Hi Heather I think a common problem with DB people willingness to come to Conventions (apart from finances) is whether their will have the accommodations they need to get the benefits of the convention. It is sad that many feel they do not have adequate support (e.g. SSP, alternative to listening devices) and people who are appreciative of their difficulties and willing to work with them rather than brush them off as a minority, who has to fend for themselves. I know that not everyone is rude but their are many people who do not understand our unique needs. National seems to think that they can offer listening devices and expect that they will work for the DB. I complained three times that I could not hear last July; they exchanged the listening device-with no improvement. They said try changing adjust my hearing aids but that was also unsuccessful. I gave up. I really needed to listening because of the resolutions that the DB Division had to have passed. It was frustrating. It costs money to invest in technology that will assist the greater needs of the DB rather than someone perhaps with mild hearing loss.
> Janice
> On 10/31/2013 2:28 PM, heather albright wrote:
>> I think I know 3 here in Austin! But the DB program in austin is a joke! I wish I knew someone who could make it better! Our state convention is next week, and I have not heard from any DB persons who are going to be there! Heather
>>
>>
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Message: 2
Date: Fri, 1 Nov 2013 12:12:09 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] nfb-db Digest, Adjusting and A Few Questions
Message-ID: <8CBD8D05-0201-4CCD-BB4C-7FFD6BD8ABC0 at gmail.com>
Content-Type: text/plain; charset="us-ascii"
April,
Doing all you can is good, keep on doing that. I understand what you mean by lossing your vision. Most of the time its out of our control, in which we lose first or last.
Like others have said, keep on posting, these are all things as deafblind persons need to discuss and think about..
Marsha drenth
Sent with my IPhone
On Oct 31, 2013, at 12:18 PM, April Brown <aprilbrownwrite at gmail.com> wrote:
> I am sorry I haven't responded. It isn't easy for me to figure out how to respond easily.
>
> heather albright - That is a great idea. My regular doctor finally developed an online system a year ago. The specialists don't appear to have one. I think I need to request one. Though I generally get blank stares when I request anything.
>
> Marsha Drenth- I've always ignored my hearing loss. As long sight, that was what mattered. Now, with my sight undependeable, it's not easy. One thing that often isn't covered, is denial is as much about those around us, as ourselves. As a society, we're so set on everyone being the same, and if you aren't, you almost don't exist. It's as if people are scared to admit that someone can live differently than they do. Some days, those around us deny our needs to meet theirs, and it's sad. I would rather lose my hearing than my eye. I think my vision will be gone first though. With all my other disabilities, it's not easy. I keep going as best I can. Some days, it feels as if my eye is filling in for me, even though I'm not really seeing. As if that makes any sense.
>
> DELCINA M BROWN - I'm hoping to get the specialists to work through emails. It would help. I will keep posting, and reading every day. I don't want to ask questions that have been answered hundreds of times. I still have a little time, though how much, I can't guarantee. I have set a date to start seriously learning Braille though, so I can eventually learn refreshable Braille.
>
> Catherine Miller- Thanks! I think I need a stronger advocate than my husband. He sits there and trusts every word they say. He's been in the military too long. He lets them brush it off, and disappear as if that's normal. Twice now, a specialist has said what they had to say, and been gone from the room before I had even figured out the first sentence they said. I hear blind people complain about people speaking slower and louder to them, and yet, that's often just what I need to be able to comprehend people, especially males with low voices. He says I don't respond fast enough. And yet, I can't respond till I fully hear it. Listening to most people talk is like listening to a VHS tape played at double speed. I can never catch up! That's why I spend more time online. I can think, process, and then reply.
>
> I do not look forward to the day I have to learn how to use only keyboard commands to use a computer. As often as weird things show up as I type now, that will be a disaster. I will have to keep writing and publishing though.
>
> Thanks,
>
>
>
>
>
> April Brown
>
> Writing dramatic adventure novels uncovering the myths we hide behind.
>
>
>
>
> This email is free from viruses and malware because avast! Antivirus protection is active.
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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Message: 3
Date: Fri, 1 Nov 2013 12:16:04 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] un believable
Message-ID: <50D271A0-F414-44E0-B389-67A4CECC7D26 at gmail.com>
Content-Type: text/plain; charset="us-ascii"
I've never heard of a deafblind program in Dallas, but I haven't lived their for a few years. Again this might be something for NAD. Do you have an update?
Marsha drenth
Sent with my IPhone
On Oct 30, 2013, at 5:44 PM, "heather albright" <kd5cbl at gmail.com> wrote:
> I finally have contact with the fokes who know the individual and I told them I would ask on this list, is there a DB program in Dallas? There trying to find him a place to live and I don't know yet weather or not he is out of the nursing home! I suspect, they cant get him released till he has a place to stay! That is all I know for now! Heather
> _______________________________________________
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Message: 4
Date: Fri, 1 Nov 2013 12:29:09 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] nfb-db Digest, Adjusting and A Few Questions
Message-ID: <31A578D8-F9B5-46F8-AB20-682239358A0F at gmail.com>
Content-Type: text/plain; charset=us-ascii
Cathy,
Thanks for the backing. I like to think that some of my social work classes are soaking in. LOL
I am interested in hearing more about the total immersion program you attended to learn ASL. Where was this program? How long were you there? Any details you would like to share, would be interesting.
Thanks,
Marsha drenth
Sent with my IPhone
On Oct 31, 2013, at 10:37 AM, Catherine Miller <guillcat at gmail.com> wrote:
> Doctors' staff are busy, and if they don't truly undeerstand what you need, they will brushhhhh you off. They are accustomed to knowing everything health-wise, but it will be up to you to teachh them about deaf-blindness. this is a tall order given your weakened emotionaal state brought on by the stresses of accepting the tremendous changes demanded by your senses during this time. An idea might be to send a letter explaining what your needs will be, making sure your dooctor reads it before your scheduled appointment.
>
> Congratulations on your decision to learn braille. I'm sure you knoow that it will open many new avenues of communication to you. It can be an arduous process, but try to read, learn, and practice everry single day to hasten the process. It will bring many rewards.
>
> I attended a total immersion program to learn ASL. All my teachers were Deaf.. Based on their prior experience, they urged me to learn the signs first, and to use tactile methods after I learned the signs. April, this waas a profound waste of time for three months of my life. I felt so stupiddbecause I could not follow the signs. They ddid not seem to realize I could see only movement. Finally I switched to tactile reception, and my learning rate became airborne. I had been standing on my head to see the signs, when all Ireally needed was a light touch of the fingers to assist my residual vision. Today I have lost more vision and mut rely totally on tactile; but my message is that no one knows better than you what you can and cannot see or hear.
>
> Finally, I want to address Marsha's disclaimer. I am a trained counselor, and everything she said is accu April: First I want to comment on your need to coommunicate optimally with your doctors. I urge you to embark on a new paradigm based in the assurance that you are totally within your rights to demand andd expect that your health care proffessionals are obligated to provide the form of communication that accommodates your individual needs. Visit your doctors with an advocate until you are strong enough to do it alone. Your advocate can be a good friend, a family member, or someone who understandds what your needs are, as long as it's someone you believe can stand behind you and not back down
>
> I'm sorry, but my software needs updating. It has switcheed the position of the first and last part of this email, and if I try to repair it, this email won't get sent. Know that we care, and that we are very glad you have found us here. We gain strength from your experience, April.. We hope you will continue to share with us.
>
> Cathy Miller.
>
> Sent from my iPad
>
>> On Oct 30, 2013, at 7:00 AM, nfb-db-request at nfbnet.org wrote:
>>
>> Send nfb-db mailing list submissions to
>> nfb-db at nfbnet.org
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>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>> nfb-db-request at nfbnet.org
>>
>> You can reach the person managing the list at
>> nfb-db-owner at nfbnet.org
>>
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of nfb-db digest..."
>>
>>
>> Today's Topics:
>>
>> 1. Re: montana convention (Marsha Drenth)
>> 2. Re: Adjusting, and a few questions (Marsha Drenth)
>> 3. Re: montana convention (maurice mines)
>> 4. Re: nfb-db Digest, Vol 57, Issue 12 (DELCINA M BROWN)
>> 5. Re: Adjusting, and a few questions (DELCINA M BROWN)
>> 6. Re: nfb-db Digest, Vol 57, Issue 12 (Sheila Leigland)
>> 7. Re: Adjusting, and a few questions (DELCINA M BROWN)
>> 8. Re: Adjusting, and a few questions (MemberService)
>> 9. un believable (heather albright)
>> 10. Re: nfb-db Digest, Vol 57, Issue 12 (DELCINA M BROWN)
>> 11. unbelievable (Janice Toothman)
>>
>>
>> ----------------------------------------------------------------------
>>
>> Message: 1
>> Date: Tue, 29 Oct 2013 16:22:05 -0400
>> From: Marsha Drenth <marsha.drenth at gmail.com>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
>> Subject: Re: [nfb-db] montana convention
>> Message-ID: <A10D0778-4FA7-4972-B92E-CF5258689BBE at gmail.com>
>> Content-Type: text/plain; charset=us-ascii
>>
>> Sheila,
>> Congradulations on the new board position. I am happy to hear that the ICC presentation went well. But sorry to hear that you didn't get to formally gather a commiitee or division. It will all come in due time. Your on the right track though.
>>
>> This brings up another very good point, how many deafblind persons are on state boards? This would be an interesting fact to know. Have deafblind persons been excluded from the boards? I would hope not intentionally. And if we as deafblind persons can get on the state boards of affiliate would this increase our efforts. Of course I am not suggesting this just so we can increase the deafblind issues, but in general. Anyone who is elected to a board, must have the greater state affiliate in mind.
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>>> On Oct 29, 2013, at 2:18 PM, Sheila Leigland <sleigland at bresnan.net> wrote:
>>>
>>> Hi a gentleman from I can connect spoke via skype at our state convention and the presentation was excellent. I have also been elected to the board and am second vice president so I'm hoping to influence and encourage positive feedback in our state concerning deaf blind issues.I didn't get to speak about forming a committee about these issues but hope to be able to bring this before the board sometime in the near distant future.
>>>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>>
>> ------------------------------
>>
>> Message: 2
>> Date: Tue, 29 Oct 2013 16:40:20 -0400
>> From: Marsha Drenth <marsha.drenth at gmail.com>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
>> Subject: Re: [nfb-db] Adjusting, and a few questions
>> Message-ID: <C57D6EB0-F39B-4D88-8EA4-A0FBF119E529 at gmail.com>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> April,
>> I don't have an answer for the doctor forms part of your post. I do want to responde to your post about your denial of your hearing and vision loss.
>> The loss of any sense can be hard, some of us deal with it in different ways. When a person deals with the loss of two senses, it is doubly hard. Its a griving process, and denial is one of those stages.
>> In my experience, taking action, getting involved, meeting others, learning, helps the process along. The reason I say this is, again in my experience, over the last two years I have lost 80percent of my hearing. I was blind all of my life. I swing back and forth from being absolutely frustrated to sad to acceptance. Getting involved, learning new skills, talking to others, asking questions, taking action, all give your mind, body and soul something else to work on. And even if that means one or two days you have to force the issue, of just getting out of bed, or getting out of the house, or making a call, or learning a new skill. Of course a counselor who is trained in mental health and the adjustment of disability, can also help.
>> Your not the only onw in denial, in lossing your vision or your hearing. I know many other deafblind persons who struggle with this on a daily basis, some shut themselves into a house, others do something about, and then a majority of us, are some where in the middle.
>> I wish I had some great words of wisdom, its a one day at time thing.
>> I am sure if you keeping on posting about this, you will find that your not alone. Which can help that denial too.
>>
>> Here is my disclaimer, I am not a counselor, but a social worker. So my advice above is not official.
>>
>>
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>>> On Oct 29, 2013, at 3:23 PM, April Brown <aprilbrownwrite at gmail.com> wrote:
>>>
>>> Hello,
>>>
>>> Until a year ago, I mostly ignored my low hearing. I've worn a hearing aid for years. A year ago, my vision suddenly failed drastically. Obviously, it was never good to begin with either, and I never did learn to read lips. I still don't have an official diagnosis or prognosis.
>>>
>>> Both of these issues have caused me issues in the past. Even as my vision fails, and my eye hurts constantly, I still comprehend better by seeing and reading. I intend to learn Braille in January. (Novemeber is a busy month for writers, and December is busy with in laws).
>>>
>>> Many, many years ago, in college, I attempted to take a sign language course. I didn't learn a thing. All I ever saw was motion, and nothing that made sense. At the time, I blamed it on the stress of my life. Now, I'm not so sure it was just stress. Still, I wish I had learned!
>>>
>>> In the meantime, and in the future, how do I convince doctors, and other professionals, that an email is better than trying to comprehend a phone conversation?
>>>
>>> To go along with another thread or two, a few times I asked for help on a blind list I had the "I can call you and talk you though it" response. Which is great, except, I don't really comprehend well on the phone, even from people I know. Especially if there is any background sound. I do appreciate the sentiment.
>>>
>>> I'm still very new in this situation, and yes, I'm partially still in denial, I'm sure.
>>>
>>> Thanks,
>>>
>>> April Brown
>>>
>>>
>>> _______________________________________________
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>>> nfb-db at nfbnet.org
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>> ------------------------------
>>
>> Message: 3
>> Date: Tue, 29 Oct 2013 14:10:24 -0700
>> From: maurice mines <kd0iko at icloud.com>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
>> Subject: Re: [nfb-db] montana convention
>> Message-ID: <2194663A-3DCE-4D37-A143-85D514B81EA8 at icloud.com>
>> Content-Type: text/plain; charset=us-ascii
>>
>> Graduations. Hope everything goes well for you in the future.
>>
>>
>> Sincerely Maurice Mines. Phone 360-524-0791. Work/school email, maurice.mines at pcc.edu.
>>> On Oct 29, 2013, at 11:18 AM, Sheila Leigland <sleigland at bresnan.net> wrote:
>>>
>>> Hi a gentleman from I can connect spoke via skype at our state convention and the presentation was excellent. I have also been elected to the board and am second vice president so I'm hoping to influence and encourage positive feedback in our state concerning deaf blind issues.I didn't get to speak about forming a committee about these issues but hope to be able to bring this before the board sometime in the near distant future.
>>>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 4
>> Date: Tue, 29 Oct 2013 21:57:04 -0400
>> From: "DELCINA M BROWN" <delcenia at prodigy.net>
>> To: "Tracie Inman" <tracieinman at yahoo.com>, "NFB Deaf-Blind Division
>> Mailing List" <nfb-db at nfbnet.org>
>> Subject: Re: [nfb-db] nfb-db Digest, Vol 57, Issue 12
>> Message-ID: <BF7663D5797C4F738B20EA261C31AE88 at johne38069127c>
>> Content-Type: text/plain; charset="utf-8"
>>
>> First, let me introduce my self. My name is Delcenia Brown and I am a member of the National Federation of the blind of Cleveland, Ohio. I am new to this mailing list. Therefore alot of you I do not know and alot of abbreviation I do not know. It will be nice if sometimes some of you would spell out what you are talking about and it would be nice to know what state you are in.
>>
>> ?
>>
>> Tracy, I understand and appreciate what you are saying, your identity does not change because of your situation or how you handle certain settings. Taking advantage of what you have left is understandable. I am greatful for what little hearing and vision I have left. I also take advantage of that by reading with a CCTV when I can and using a fm system or pocket talker at the appropriate time.
>>
>> ?
>>
>> At the same time I wish someone had taken the time to teach me braille, sign language when I was younger. Now as I grow older and have other obstacles it is a struggle to learn braille. I still have no one to teach me sign language. So, yes, reminding Randy, that there are some deafblind that are hard of hearing and do not sign was a gentle response.
>>
>> ?
>>
>> Just recently, I have posted a notice asking if anyone in my state share my interests and got no response. However my state president does share my interest and I believe at the state convention which is to be held November 1 thru 3, 2013, the agenda does include information about the I can connect program.
>>
>> ?
>>
>> Now, the downside of things. I have completed my application and it was approved. I have had my assessment and I believe all of the equipment has been ordered based on messages that I have received. However, I still have not actually recieve anything as of today. This process started back in March or April. I am grateful for the possibility of obtaining the equipment, it is frustrating that it has taken so long and no one is returning my call.
>>
>>
>>
>> I gladly get on board!
>>
>> Delcenia
>>
>>
>>
>> ----- Original Message -----
>> From: Tracie Inman
>> To: nfb-db at nfbnet.org
>> Sent: Tuesday, October 29, 2013 9:06 AM
>> Subject: Re: [nfb-db] nfb-db Digest, Vol 57, Issue 12
>>
>>
>>
>>
>> Hi Randy: I hope you're doing well and AADB is growing stronger under your leadership. I wish you all the best always. Just a gentle reminder my friend that many many Deaf - Blind are hard of hearing (non sign speaking) blind folks. Randy, indeed since getting the two C.I.'s I'm guilty of using voice, Assisted listening devices and voice interpreters as opposed to using my signing, using interpreters, etc. I have switched to English. My excuses has been that my vision is going "bye bye" and depending on tactile scares me. In time, that may be my only option but for now I'm surrounded by hearing family and friends so I've gotten into a "comfort zone" with the success of my C.I.'s. What I'm trying to say here is, remember that, just because you might not observe the folks signing doesn't mean they're not Deaf-blind.
>> All the folks in the NFB Deaf-Blind division who are promoting ICC are Deaf-Blind. In fact, every one assigned to Operation Outreach (our outreach project to raise awareness of the ICC and the Deaf-Blind community requesting ALL 50 affiliates and the D.C. affiliate to form committees for the Deaf-Blind in their individual committee) - including our mutual friend Marsha drenth are Deaf-Blind.
>> Speaking of, hey Scott if you want to help please contact me or Joe Naulty. We could always use more helping hands. We got two projects going on at the moment and probably will start a third. You know about Operation Outreach. We've also started a committee on SSP issues. If you want to help us, we can always use another helping hand. I do believe the Deaf-Blind division is working harder than it ever has before. I dare to say that we've accomplished more in the last few months than we have in many years. The latest announcement we heard was that Scott Labarre (affiliate President of Colorado and a National NFB Board Member) has agreed to set up a Deaf-Blind Issues committee in the Colorado affiliate. We also heard that the President of the Alaska affiliate is Deaf-Blind. So climb abaord the NFB DB Express and lets get chugging along on this exciting adventure raising awareness of Deaf-Blind issues, ICC, and the need for SSP's. All are welcome aboard.
>>
>>
>> Best Wishes,
>> Tracie Inman
>> NFB Deaf-Blind Division
>> First Vice President
>> tracieinman at yahoo.com
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> On Tuesday, October 29, 2013 8:08 AM, "nfb-db-request at nfbnet.org" <nfb-db-request at nfbnet.org> wrote:
>>
>> Send nfb-db mailing list submissions to
>> nfb-db at nfbnet.org
>>
>> To subscribe or unsubscribe via th
------------------------------
Message: 5
Date: Fri, 1 Nov 2013 12:03:24 -0500
From: "Gene Richburg" <gene5402 at austin.rr.com>
To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org>
Subject: [nfb-db] anyone on this list at hknc?
Message-ID: <2DB0B2A56BC84901A8727E672F23B63D at genePC>
Content-Type: text/plain; charset="utf-8"
Hi, I heard that there are people on this list who are at HKNC, I would like to know if anyone knows how there system works in regards to getting hearing aids? I hear that they have an awesome audiologist, and they would be able to get the right technologys together that will allow me to hear in any environment. Now, my hearing loss is severe to profound, I have a very severe to profound loss in my left ear, with 25% hearing, then I believe in my right ear, it?s just very severe, with only 15% hearing left in that ear. What I?m wanting to know, is how the process works, will they let me try aids out before Dars makes a commitment? I am supposed to be going to HKNC at some point, I just have to get my I e p plan developed through Dars, then I gotta get this New york state medical evaluation form done, and do what ever that requires, and all that, I?ll get there some day hopefully soon though, and I can?t wait, cause like Heather said, this db program here in austin tx sucks. For example, they have made so many promices about what they were gonna help me with, then broke them. Last year, I took a business class, and they took notes for me, and they said that when the training was in the halfway period, they would go over the notes, and make sure I understood them, then when the classes wer all finished, we would go over all the notes, well they decided that they didn?t wanna do that, then after it was all over with, then they told me that they couldn?t help me run the business, and I said, I know you can?t help me do that, but you can at leaste help me get the training and everything I needed to get started, and they just kept repeating them selves, so I just told them screw it for now, then I got an opportunity to go to HKNC, and I?m taking it, cause I want enough indipendents to not have to depend on the db program for anything. If anyone wants to hear of anything else the db program didn?t do, I?ll tell you, I just don?t wanna go on and on unless people wanna hear about it Lol.
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Message: 6
Date: Fri, 1 Nov 2013 13:24:03 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] anyone on this list at hknc?
Message-ID: <0E00189B-4739-4D86-9AB5-77B1AB1C47A5 at gmail.com>
Content-Type: text/plain; charset="utf-8"
Gene,
I am not yet at HKNC but will be starting my training in 11days. I took a tour first before deciding to do the training. If you can that would be useful for you to see. DARS should pay for the tour.
Yes the audiologist is great. What I know is that they will fit you for aids, you try them out. If they do not work, then on to another brand or type. If you go out and need tweeking of something with your aids, then the audi will do so. I have even heard that if needed, the audi will go out to different places to help with the hearing aid equipment fitting and tweeking.
When I was looking into going to HKNC, I talked to several people to see what their experience was. I found a few bad experiences, but mostly I found good ones.
I have heard that people get frustrated with the long process of fitting and tweeking aids, but its well worth it.
Its awesome that you have goals, keep at DARS.
Getting into HKNC takes a long time as they have a huge waiting list. I know of several others who are waiting to get into too. I have been waiting 3 months myself, and this is supposedly a short wait.
If you have other questions, please do ask...
Marsha drenth
Sent with my IPhone
On Nov 1, 2013, at 1:03 PM, "Gene Richburg" <gene5402 at austin.rr.com> wrote:
> Hi, I heard that there are people on this list who are at HKNC, I would like to know if anyone knows how there system works in regards to getting hearing aids? I hear that they have an awesome audiologist, and they would be able to get the right technologys together that will allow me to hear in any environment. Now, my hearing loss is severe to profound, I have a very severe to profound loss in my left ear, with 25% hearing, then I believe in my right ear, it?s just very severe, with only 15% hearing left in that ear. What I?m wanting to know, is how the process works, will they let me try aids out before Dars makes a commitment? I am supposed to be going to HKNC at some point, I just have to get my I e p plan developed through Dars, then I gotta get this New york state medical evaluation form done, and do what ever that requires, and all that, I?ll get there some day hopefully soon though, and I can?t wait, cause like Heather said, this db program here in austin tx sucks. For example, they have made so many promices about what they were gonna help me with, then broke them. Last year, I took a business class, and they took notes for me, and they said that when the training was in the halfway period, they would go over the notes, and make sure I understood them, then when the classes wer all finished, we would go over all the notes, well they decided that they didn?t wanna do that, then after it was all over with, then they told me that they couldn?t help me run the business, and I said, I know you can?t help me do that, but you can at leaste help me get the training and everything I needed to get started, and they just kept repeating them selves, so I just told them screw it for now, then I got an opportunity to go to HKNC, and I?m taking it, cause I want enough indipendents to not have to depend on the db program for anything. If anyone wants to hear of anything else the db program didn?t do, I?ll tell you, I just don?t wanna go on and on unless people wanna hear about it Lol.
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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Message: 7
Date: Fri, 1 Nov 2013 13:31:42 -0400
From: Scott Davert <scottdavert at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] anyone on this list at hknc?
Message-ID:
<CAOHXxEaVwUtuCChpEMBYqEr_2dpZ=e0SNVb-AHiCbLQDhBFXyg at mail.gmail.com>
Content-Type: text/plain; charset=windows-1252
Hi Gene.
I currently work at HKNC. Carol is an awesome audiologist, she is the
one who set me up with the hearing aids I currently use. I cannot say
for certain, as I'm sure you are aware, how much hearing aids will
help you, it's a personal thing where your experience may vary. Also,
hearing aids will not allow you, for example, to hear in loud
environments under most circumstances. Yes, you can try a pair out for
a couple of weeks to see if you like it. However, once you've decided
on a pair, HKNC cannot provide you with funding to get them. That
would fall back onto Dars, who would hopefully be inclined to include
that as an amendment on your IPE. Do you have contact with C C davis?
I assume all this work is being done with him? And so you are aware, I
do work at HKNC, but don't post messages here in the capacity of
someone working here. I'm my own person, and tell people both the
positive and negative aspects of things here as I see them. I was a
student here in 2006.
Hope this helps,
Scott
Sent from my iPhone
On 11/1/13, Gene Richburg <gene5402 at austin.rr.com> wrote:
> Hi, I heard that there are people on this list who are at HKNC, I would like
> to know if anyone knows how there system works in regards to getting hearing
> aids? I hear that they have an awesome audiologist, and they would be able
> to get the right technologys together that will allow me to hear in any
> environment. Now, my hearing loss is severe to profound, I have a very
> severe to profound loss in my left ear, with 25% hearing, then I believe in
> my right ear, it?s just very severe, with only 15% hearing left in that ear.
> What I?m wanting to know, is how the process works, will they let me try
> aids out before Dars makes a commitment? I am supposed to be going to HKNC
> at some point, I just have to get my I e p plan developed through Dars,
> then I gotta get this New york state medical evaluation form done, and do
> what ever that requires, and all that, I?ll get there some day hopefully
> soon though, and I can?t wait, cause like Heather said, this db program here
> in austin tx sucks. For example, they have made so many promices about what
> they were gonna help me with, then broke them. Last year, I took a business
> class, and they took notes for me, and they said that when the training was
> in the halfway period, they would go over the notes, and make sure I
> understood them, then when the classes wer all finished, we would go over
> all the notes, well they decided that they didn?t wanna do that, then after
> it was all over with, then they told me that they couldn?t help me run the
> business, and I said, I know you can?t help me do that, but you can at
> leaste help me get the training and everything I needed to get started, and
> they just kept repeating them selves, so I just told them screw it for now,
> then I got an opportunity to go to HKNC, and I?m taking it, cause I want
> enough indipendents to not have to depend on the db program for anything.
> If anyone wants to hear of anything else the db program didn?t do, I?ll tell
> you, I just don?t wanna go on and on unless people wanna hear about it Lol.
------------------------------
Message: 8
Date: Fri, 1 Nov 2013 12:44:37 -0500
From: "heather albright" <kd5cbl at gmail.com>
To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] un believable
Message-ID: <DA5AC61CD38A41AA95DEE8F52E51C163 at supersystem>
Content-Type: text/plain; charset="iso-8859-1"
Yes, the only update is that he is still in the nursing home because, he
does not have a place to go that the court deems safe! I think I was
brushed off by the NFB of Texas, preparing for the convention was more
important than helping someone gain freedom out an isolating place!
National has not called back, like they said they would do by today! I did
not say drop everything, they could at least look in to it here in Texas!
But I am the only one trying to look in to this. I sure do miss tommie's
leadership when this type of stuff comes out! Someone suggest to contact
NAD do they have the dallas contact to this organization because I live in
Austin. I posted it on facebook on my wall and to a deaf organization, no
responses at all! I don't know if it is because he is also blind or they
cant do anything about it! Heather
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Message: 9
Date: Fri, 1 Nov 2013 13:00:54 -0500
From: "heather albright" <kd5cbl at gmail.com>
To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org>
Subject: [nfb-db] humh just wondering
Message-ID: <BACD6C69E0DD4047AE5DD2FE46E62D54 at supersystem>
Content-Type: text/plain; charset="windows-1252"
Has anyone thought about a how to video for signing. They can have audio to
tell you how to make the signs. Like at HKC! Heather
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Message: 10
Date: Fri, 1 Nov 2013 13:10:27 -0500
From: "Gene Richburg" <gene5402 at austin.rr.com>
To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] anyone on this list at honk?
Message-ID: <CFFA93EE23A149A89D52D1C73DA0D4A7 at genePC>
Content-Type: text/plain; charset="utf-8"
Hi Marsha, yeah, oh don?t I ever know what a time consuming pain it can be tweaking aids, I?ve struggled for the last 3 years trying new aids only to be disappointed, I?m sure others on this list have experienced new aids where they sound like they are turning everything down, then, when some one talks to you they purp up just to let you either miss the first few words they?ve said, or you get the very last part of what was said. As far as I know, all new aids do this, it?s a way, in my opinion for the companies to show off there fancy, and deaf blind people are not the only ones that are frustrated with new aids either. According to this therapist I saw, she said that even sighted people are frustrated, so that tells me, that just because all the hearing specialists, and audiologists say that most people prefer the aids to cut down all the noise in there environment is obviously not entirely true. I can?t even begin to tell you how many times I?ve had to go back for adjustments to some Siemens aids I have, I can?t even use them, because there no longer strong enough for my loss, I?ve had to go back to my resound aids from 2006, and I?m concerned that they might not hold up until I can get them replaced, the multi directional microphone in the right one has gone out, and the feedback calibration feature is failing, so now I can?t put the phone up to my ear with out them squealing, and I can?t hear on a cell phone, so I just use the speaker on my landline cordless phone for now, and aye know, people who talk to people like us that have to use the speaker phone just have to except that.
From: Marsha Drenth
Sent: Friday, November 01, 2013 12:24 PM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] anyone on this list at hknc?
Gene,
I am not yet at HKNC but will be starting my training in 11days. I took a tour first before deciding to do the training. If you can that would be useful for you to see. DARS should pay for the tour.
Yes the audiologist is great. What I know is that they will fit you for aids, you try them out. If they do not work, then on to another brand or type. If you go out and need tweeking of something with your aids, then the audi will do so. I have even heard that if needed, the audi will go out to different places to help with the hearing aid equipment fitting and tweeking.
When I was looking into going to HKNC, I talked to several people to see what their experience was. I found a few bad experiences, but mostly I found good ones.
I have heard that people get frustrated with the long process of fitting and tweeking aids, but its well worth it.
Its awesome that you have goals, keep at DARS.
Getting into HKNC takes a long time as they have a huge waiting list. I know of several others who are waiting to get into too. I have been waiting 3 months myself, and this is supposedly a short wait.
If you have other questions, please do ask...
Marsha drenth
Sent with my IPhone
On Nov 1, 2013, at 1:03 PM, "Gene Richburg" <gene5402 at austin.rr.com> wrote:
Hi, I heard that there are people on this list who are at HKNC, I would like to know if anyone knows how there system works in regards to getting hearing aids? I hear that they have an awesome audiologist, and they would be able to get the right technologys together that will allow me to hear in any environment. Now, my hearing loss is severe to profound, I have a very severe to profound loss in my left ear, with 25% hearing, then I believe in my right ear, it?s just very severe, with only 15% hearing left in that ear. What I?m wanting to know, is how the process works, will they let me try aids out before Dars makes a commitment? I am supposed to be going to HKNC at some point, I just have to get my I e p plan developed through Dars, then I gotta get this New york state medical evaluation form done, and do what ever that requires, and all that, I?ll get there some day hopefully soon though, and I can?t wait, cause like Heather said, this db program here in austin tx sucks. For example, they have made so many promices about what they were gonna help me with, then broke them. Last year, I took a business class, and they took notes for me, and they said that when the training was in the halfway period, they would go over the notes, and make sure I understood them, then when the classes wer all finished, we would go over all the notes, well they decided that they didn?t wanna do that, then after it was all over with, then they told me that they couldn?t help me run the business, and I said, I know you can?t help me do that, but you can at leaste help me get the training and everything I needed to get started, and they just kept repeating them selves, so I just told them screw it for now, then I got an opportunity to go to HKNC, and I?m taking it, cause I want enough indipendents to not have to depend on the db program for anything. If anyone wants to hear of anything else the db program didn?t do, I?ll tell you, I just don?t wanna go on and on unless people wanna hear about it Lol.
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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nfb-db at nfbnet.org
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Message: 11
Date: Fri, 1 Nov 2013 13:18:34 -0500
From: "Gene Richburg" <gene5402 at austin.rr.com>
To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] anyone on this list at hknc?
Message-ID: <D0010A580FEA48D1BF89EBFE246CB00C at genePC>
Content-Type: text/plain; format=flowed; charset="Windows-1252";
reply-type=original
Hi Scott, no, actually I'm working with Christine Chan, she is my dars case
manager, she has a lot of experience under her belt, she use to work with
the deaf consumers back when we had the texas rehave connition, trc, then I
have Gail Ploman, who is the team leader of the db apartment program that I
live in. Cc Davis is in Dalas, and we have 2 or 3 db specialests here in
austin, so things are probably just about as covered as they can, if ya know
what I mean! Yes, it is in my plan for dars to get me aids, and that's one
of the reasons I'm coming, I'm tired of putting up with local specialests
who want to know how to work with a db person, they just don't know how, and
some of them don't know all the ends and outs of hearing aids. There
telling me that my expectations are to high, but what doesn't make since, is
that I seem to hear better with older aids then I do with new ones, like go
figure.
-----Original Message-----
From: Scott Davert
Sent: Friday, November 01, 2013 12:31 PM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] anyone on this list at hknc?
Hi Gene.
I currently work at HKNC. Carol is an awesome audiologist, she is the
one who set me up with the hearing aids I currently use. I cannot say
for certain, as I'm sure you are aware, how much hearing aids will
help you, it's a personal thing where your experience may vary. Also,
hearing aids will not allow you, for example, to hear in loud
environments under most circumstances. Yes, you can try a pair out for
a couple of weeks to see if you like it. However, once you've decided
on a pair, HKNC cannot provide you with funding to get them. That
would fall back onto Dars, who would hopefully be inclined to include
that as an amendment on your IPE. Do you have contact with C C davis?
I assume all this work is being done with him? And so you are aware, I
do work at HKNC, but don't post messages here in the capacity of
someone working here. I'm my own person, and tell people both the
positive and negative aspects of things here as I see them. I was a
student here in 2006.
Hope this helps,
Scott
Sent from my iPhone
On 11/1/13, Gene Richburg <gene5402 at austin.rr.com> wrote:
> Hi, I heard that there are people on this list who are at HKNC, I would
> like
> to know if anyone knows how there system works in regards to getting
> hearing
> aids? I hear that they have an awesome audiologist, and they would be
> able
> to get the right technologys together that will allow me to hear in any
> environment. Now, my hearing loss is severe to profound, I have a very
> severe to profound loss in my left ear, with 25% hearing, then I believe
> in
> my right ear, it?s just very severe, with only 15% hearing left in that
> ear.
> What I?m wanting to know, is how the process works, will they let me try
> aids out before Dars makes a commitment? I am supposed to be going to
> HKNC
> at some point, I just have to get my I e p plan developed through Dars,
> then I gotta get this New york state medical evaluation form done, and do
> what ever that requires, and all that, I?ll get there some day hopefully
> soon though, and I can?t wait, cause like Heather said, this db program
> here
> in austin tx sucks. For example, they have made so many promices about
> what
> they were gonna help me with, then broke them. Last year, I took a
> business
> class, and they took notes for me, and they said that when the training
> was
> in the halfway period, they would go over the notes, and make sure I
> understood them, then when the classes wer all finished, we would go over
> all the notes, well they decided that they didn?t wanna do that, then
> after
> it was all over with, then they told me that they couldn?t help me run the
> business, and I said, I know you can?t help me do that, but you can at
> leaste help me get the training and everything I needed to get started,
> and
> they just kept repeating them selves, so I just told them screw it for
> now,
> then I got an opportunity to go to HKNC, and I?m taking it, cause I want
> enough indipendents to not have to depend on the db program for anything.
> If anyone wants to hear of anything else the db program didn?t do, I?ll
> tell
> you, I just don?t wanna go on and on unless people wanna hear about it
> Lol.
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
-----
No virus found in this message.
Checked by AVG - www.avg.com
Version: 2014.0.4158 / Virus Database: 3615/6799 - Release Date: 11/01/13
------------------------------
Message: 12
Date: Fri, 01 Nov 2013 14:32:00 -0400
From: Patricia Hubschman <palhub at optonline.net>
To: 'NFB Deaf-Blind Division Mailing List' <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] anyone on this list at hknc?
Message-ID: <004801ced730$a74349d0$f5c9dd70$@net>
Content-Type: text/plain; charset=us-ascii
Thank you, Scott. YYou just answered my question - where you do Outreach.
I'm not sure what that is though.
I'm seeing Carol H on Thursday to try a hearing aid on my non ci ear. My
CI audi wants to balance me out.
I was told too that they don't help with funding, but Carol said that
sometimes the state will help out.
Trish
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Scott Davert
Sent: Friday, November 01, 2013 1:32 PM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] anyone on this list at hknc?
Hi Gene.
I currently work at HKNC. Carol is an awesome audiologist, she is the one
who set me up with the hearing aids I currently use. I cannot say for
certain, as I'm sure you are aware, how much hearing aids will help you,
it's a personal thing where your experience may vary. Also, hearing aids
will not allow you, for example, to hear in loud environments under most
circumstances. Yes, you can try a pair out for a couple of weeks to see if
you like it. However, once you've decided on a pair, HKNC cannot provide you
with funding to get them. That would fall back onto Dars, who would
hopefully be inclined to include that as an amendment on your IPE. Do you
have contact with C C davis?
I assume all this work is being done with him? And so you are aware, I do
work at HKNC, but don't post messages here in the capacity of someone
working here. I'm my own person, and tell people both the positive and
negative aspects of things here as I see them. I was a student here in 2006.
Hope this helps,
Scott
Sent from my iPhone
On 11/1/13, Gene Richburg <gene5402 at austin.rr.com> wrote:
> Hi, I heard that there are people on this list who are at HKNC, I
> would like to know if anyone knows how there system works in regards
> to getting hearing aids? I hear that they have an awesome
> audiologist, and they would be able to get the right technologys
> together that will allow me to hear in any environment. Now, my
> hearing loss is severe to profound, I have a very severe to profound
> loss in my left ear, with 25% hearing, then I believe in my right ear,
it's just very severe, with only 15% hearing left in that ear.
> What I'm wanting to know, is how the process works, will they let me
> try aids out before Dars makes a commitment? I am supposed to be
> going to HKNC at some point, I just have to get my I e p plan
> developed through Dars, then I gotta get this New york state medical
> evaluation form done, and do what ever that requires, and all that,
> I'll get there some day hopefully soon though, and I can't wait, cause
> like Heather said, this db program here in austin tx sucks. For
> example, they have made so many promices about what they were gonna
> help me with, then broke them. Last year, I took a business class,
> and they took notes for me, and they said that when the training was
> in the halfway period, they would go over the notes, and make sure I
> understood them, then when the classes wer all finished, we would go
> over all the notes, well they decided that they didn't wanna do that,
> then after it was all over with, then they told me that they couldn't
> help me run the business, and I said, I know you can't help me do
> that, but you can at leaste help me get the training and everything I
> needed to get started, and they just kept repeating them selves, so I
> just told them screw it for now, then I got an opportunity to go to HKNC,
and I'm taking it, cause I want enough indipendents to not have to depend on
the db program for anything.
> If anyone wants to hear of anything else the db program didn't do,
> I'll tell you, I just don't wanna go on and on unless people wanna hear
about it Lol.
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------------------------------
Message: 13
Date: Fri, 1 Nov 2013 16:38:05 -0400
From: Scott Davert <scottdavert at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] anyone on this list at hknc?
Message-ID: <8745D59D-79B1-4C04-B288-6E693D1E588C at gmail.com>
Content-Type: text/plain; charset=utf-8
Hi Gene.
Actually, it makes perfect sense that you can hear better with older hearing aids. The digital side of things is very different from that of the older analogue side of things. Until your ears get used to thesound of the digital processing, you will struggle with digital hearing aids. It's interesting that your preference is also Resound. I also always liked the analogue sound best, and resound is what I prefer. I've tried Seamons, Phonak, and a couple of others, but they just didn't do it for me. Other people sware by each of these brands, but I love the Resound hearing aids.
I wish you theest of luck getting your paper work completed and hope to meet you at some point.
Scott
Sent from my iPhone
On Nov 1, 2013, at 2:18 PM, "Gene Richburg" <gene5402 at austin.rr.com> wrote:
> Hi Scott, no, actually I'm working with Christine Chan, she is my dars case manager, she has a lot of experience under her belt, she use to work with the deaf consumers back when we had the texas rehave connition, trc, then I have Gail Ploman, who is the team leader of the db apartment program that I live in. Cc Davis is in Dalas, and we have 2 or 3 db specialests here in austin, so things are probably just about as covered as they can, if ya know what I mean! Yes, it is in my plan for dars to get me aids, and that's one of the reasons I'm coming, I'm tired of putting up with local specialests who want to know how to work with a db person, they just don't know how, and some of them don't know all the ends and outs of hearing aids. There telling me that my expectations are to high, but what doesn't make since, is that I seem to hear better with older aids then I do with new ones, like go figure.
>
> -----Original Message----- From: Scott Davert
> Sent: Friday, November 01, 2013 12:31 PM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] anyone on this list at hknc?
>
> Hi Gene.
> I currently work at HKNC. Carol is an awesome audiologist, she is the
> one who set me up with the hearing aids I currently use. I cannot say
> for certain, as I'm sure you are aware, how much hearing aids will
> help you, it's a personal thing where your experience may vary. Also,
> hearing aids will not allow you, for example, to hear in loud
> environments under most circumstances. Yes, you can try a pair out for
> a couple of weeks to see if you like it. However, once you've decided
> on a pair, HKNC cannot provide you with funding to get them. That
> would fall back onto Dars, who would hopefully be inclined to include
> that as an amendment on your IPE. Do you have contact with C C davis?
> I assume all this work is being done with him? And so you are aware, I
> do work at HKNC, but don't post messages here in the capacity of
> someone working here. I'm my own person, and tell people both the
> positive and negative aspects of things here as I see them. I was a
> student here in 2006.
>
> Hope this helps,
> Scott
> Sent from my iPhone
>
> On 11/1/13, Gene Richburg <gene5402 at austin.rr.com> wrote:
>> Hi, I heard that there are people on this list who are at HKNC, I would like
>> to know if anyone knows how there system works in regards to getting hearing
>> aids? I hear that they have an awesome audiologist, and they would be able
>> to get the right technologys together that will allow me to hear in any
>> environment. Now, my hearing loss is severe to profound, I have a very
>> severe to profound loss in my left ear, with 25% hearing, then I believe in
>> my right ear, it?s just very severe, with only 15% hearing left in that ear.
>> What I?m wanting to know, is how the process works, will they let me try
>> aids out before Dars makes a commitment? I am supposed to be going to HKNC
>> at some point, I just have to get my I e p plan developed through Dars,
>> then I gotta get this New york state medical evaluation form done, and do
>> what ever that requires, and all that, I?ll get there some day hopefully
>> soon though, and I can?t wait, cause like Heather said, this db program here
>> in austin tx sucks. For example, they have made so many promices about what
>> they were gonna help me with, then broke them. Last year, I took a business
>> class, and they took notes for me, and they said that when the training was
>> in the halfway period, they would go over the notes, and make sure I
>> understood them, then when the classes wer all finished, we would go over
>> all the notes, well they decided that they didn?t wanna do that, then after
>> it was all over with, then they told me that they couldn?t help me run the
>> business, and I said, I know you can?t help me do that, but you can at
>> leaste help me get the training and everything I needed to get started, and
>> they just kept repeating them selves, so I just told them screw it for now,
>> then I got an opportunity to go to HKNC, and I?m taking it, cause I want
>> enough indipendents to not have to depend on the db program for anything.
>> If anyone wants to hear of anything else the db program didn?t do, I?ll tell
>> you, I just don?t wanna go on and on unless people wanna hear about it Lol.
>
> _______________________________________________
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>
>
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------------------------------
Message: 14
Date: Sat, 02 Nov 2013 01:28:22 -0600
From: Sheila Leigland <sleigland at bresnan.net>
Cc: db <nfb-db at nfbnet.org>
Subject: [nfb-db] fm systems and flying
Message-ID: <5274A996.1020600 at bresnan.net>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
hi I understand that we are screened and posibly have our hands checked
for materials and explosive making items if we have medical devices.
Does this include hearing aides andd fm systems? I will be flying to
Baltimore with a small deligation from Montana for Maryland's convention
so was wondering what would be involved in getting through airport
security. thanks in advance.
------------------------------
Message: 15
Date: Sat, 2 Nov 2013 07:56:41 -0400
From: April Brown <aprilbrownwrite at gmail.com>
To: <nfbktad at nfbnet.org>, <nfb-db at nfbnet.org>
Subject: [nfb-db] Trying to use the computer with just a Keyboard
Message-ID: <003a01ced7c2$99051f00$cb0f5d00$@com>
Content-Type: text/plain; charset="us-ascii"
Following advice, I've tried to learn to use a computer with just a
keyboard. I don't get it. I can't open or close anything.
With the trial JAWs program, I tried to use both Firefox and Safari with
just the keyboard. I had the 11 page keyboard guide open. And none of the
commands worked on either browser. They worked in Word and PDF.
I have no idea what "key" I am missing. I am sure it is some silly
something that I'm supposed to toggle on or off to do it, and everyone else
in the world knows how without being told.
So far, the biggest problem I can see with JAWs, other than not being able
to configure it for the browsers, is the volume. With my massive hearing
loss as well, and the volume at 100%, it sounds like a whisper. Is it worth
my time to learn this program, if I can't hear the speakers? My hearing and
comprehension is rapidly decreasing. I'm going to ask on the deaf blind
group what they use.
April Brown
Writing dramatic adventure novels uncovering the myths we hide behind.
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Enviado desde mi lap
Gerardo J Corripio Flores Psicólogo, Terapéuta Reiki
Saludos desde Tampico, Tamaulipas México
RompiendoBarreras espacio de psicología/Superación Personal Sábados 10PM México http://radiogeneral.com ¡los esperamos!
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