[nfb-db] About This Group List

Fri Mar 21 12:21:57 UTC 2014

Oh God, Cheri,

Trish

From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of
Cherifields at aol.com
Sent: Thursday, March 20, 2014 10:02 PM
To: nfb-db at nfbnet.org
Subject: Re: [nfb-db] About This Group List

Hey Shadow,

I'm sorry to hear of your paralysis to your left side.  I'm glad it's not
worst than that.  I know that is a tragedy enough.  I wish it could recover
for you.  Are the nerves dead?  

I lost my son when he was 20 years of age .  He was a passenger in a car and
the driver was speeding and ran off the road.  He was thrown from the car
and they said he died instantly.  The police report said he probably broke
his neck.

Maybe sometime in the near future things like stem cell will be used to heal
us all.

Blessings,

Cheri

In a message dated 3/20/2014 4:57:01 P.M. Pacific Daylight Time,
soulalibi at gmail.com <mailto:soulalibi at gmail.com>  writes:

Hi Cheri,
Yes I am fortunate to be alive and well today. No brain trauma or damage.
Just damage to my nerves in my left side of the face where I'm still
paralyzed today (left facial paralysis). The doctor said I was lucky to have
a head strong like a rock. Some people could have died from that type of
injury that I experienced. Anyway, thanks for the nice comment. 

--S.W. 

On 3/20/2014 3:27 PM, Cherifields at aol.com <mailto:Cherifields at aol.com>
wrote:

Hey Shadow Wolf,

I was saddened to hear of your accident.  It is almost like a miracle that
you can hear again out of that ear.  I hope that you didn't suffer any long
term brain disorders as a result of this accident.  

It sounds like you are doing much better since the CI surgery.  

Blessings,

Cheri

In a message dated 3/20/2014 7:37:42 A.M. Pacific Daylight Time,
soulalibi at gmail.com <mailto:soulalibi at gmail.com>  writes:

Hi Darlene,
Nice to meet you. I was at HKNC for 11 months. I took full advantage of 
the training they offered there. I took up whatever classes they offered 
besides just learning Braille, Technology, ASL-TSL-Haptic Signs and 
Independent Living. I even took Sr. Bernie's presentation class last 
fall prior to her retirement last Dec. after 34 or 35 years she worked 
there. It was a great learning experience.

I first started wearing hearing aids in both ears at 6 years old. I lost 
my hearing as a toddler. I was told I had RP during my early teens once 
I was diagnosed. But I was still driving up until I was 24. Then later 
on, around in 2010. I was told I had Usher's type-2. I was confused 
about that, because Usher's also affects balance. Whereas I do not have 
balance issues.  In fact, I think most people with Usher's type-2 do not 
have balance issues.
On New Year's eve 2000, I was involved in a really bad car accident. 
Although I was not a driver but a passenger. I suffered head trauma 
where I also suffered an ear fracture in left side. I lost my hearing in 
that ear 2 days later. For 9 and half years I was hearing with only 1 
ear, a hearing aid. My left ear was my better ear then. If you are a 
right hand person, writing with a right hand, it was like losing your 
right hand and trying to write with your left hand. Same with my hearing 
after that accident. I had communication issues and kept to myself 
during most of that time. Until one day in fall 2009, I got lucky and 
became a candidate in my state to receive a Cochlear Implant. After all 
is said and done. After 3 months of my brain trying to adjust to my CI 
and hearing in my left ear again. My left ear where my CI is, became the 
better ear once again. I now understand people best with my CI. It is 
loud and clear. The CI boosted my communication skills and gave me a 
great deal of confidence. I am now happy that I received the CI and I 
hold no regrets about it. It is medically amazing that the CI can 
restore your hearing if someone suffered dramatic hearing loss from an 
ear fracture. I admit I was skeptical at first when I first sat down 
with CI specialists prior to my surgery. I didn't think it was gonna 
work. But I was wrong. The CI did work for me.

--S.W.

On 3/20/2014 4:49 AM, Darlene Laibl-Crowe wrote:
> Good morning, Shadow!
>
> Welcome to the NFB DB Division.  I, too, have RP and am HOH.  I wear
> bi-lateral hearing haids.  But I did not grow up knowing that I had RP.  I
> found out as an adult at the age of 28 and had to give up driving.  I was
> able to see to read print and see people's faces to read lips to
accommodate
> for what I could hear for about 22 years after I was diagnosed with RP.
> That means when I turned 50 almost 6 years ago, I struggled with what to
do
> as I could not longer see to do things that I kept doing as a sighted
> person.
>
> Since I grew up wearing hearing aids, I never considered myself a 'deaf'
> person and can remember someone telling me 'oh, you're deaf' when I told
> them I wore hearing aids.  I quickly responded and told them 'oh, no, I
can
> hear something'.
>
> So six years ago when I began to struggle with vision loss, I finally met
> many who were dealing with similar issues and I recognized that I was
> Deaf-Blind.  Once I was able to define this, I soon went to Helen Keller
> National Center (January 2011 -- September 2011) where I learned much
about
> my specific needs.  HKNC is a great place to learn all you can about
> resources and gives a great sense of confidence.
>
> Since returning home, I have continued to learn and made great progress.
> How long were you at HKNC?  Also, if you are home, are you learning
Braille
> through Hadley's?
>
> That was how I completed my Braille...through Hadley School for the Blind.
> The Braille teacher at HKNC was very good and so glad I got the beginnings
> of it there and the teacher at Hadley was also very good.  I use Braille
in
> my everyday life but I am not that fluent because I have not made myself
sit
> and read as I should.  Need to get myself back on track there.  I use
> Braille in business meetings, identifying things in my home and I also use
> it often when playing cards.  My family loves to play canasta and I missed
> playing it.  Now I can play it again!  (smile)  My sister (who is sighted)
> and I always play partners against our spouses and we win the majority of
> the time!
>
> Take your time learning Braille.  It can be daunting as times but very
> rewarding when it is completed.
>
> Anyway, This list is a good source for information and sharing.  I do have
a
> question...you state that you have been Deaf-Blind all your life.  When
did
> you find out about your RP?
>
> Have a Thrilling Thursday!!
>
> (smile)
> Darlene
>
>
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org> 
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org

-- 
*~Shadow Wolf~*

_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org> 
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org

_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org> 
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org

-- 
*~Shadow Wolf~*

_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org> 
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org

-------------- next part --------------
An HTML attachment was scrubbed...
URL: <http://nfbnet.org/pipermail/nfb-db_nfbnet.org/attachments/20140321/b07a4a44/attachment.html>