[nfb-db] About This Group List

Fri Mar 21 02:02:04 UTC 2014

Hey Shadow,
I'm sorry to hear of your paralysis to your left side.   I'm glad it's not 
worst than that.  I know that is a tragedy enough.   I wish it could recover 
for you.  Are the nerves dead?  

I lost my son when he was 20 years of age .  He was a  passenger in a car 
and the driver was speeding and ran off the road.  He  was thrown from the 
car and they said he died instantly.  The police report  said he probably 
broke his neck.

Maybe sometime in the near future things like stem cell will  be used to 
heal us all.
Blessings,
Cheri

In a message dated 3/20/2014 4:57:01 P.M. Pacific Daylight Time,  
soulalibi at gmail.com writes:

Hi  Cheri,
Yes I am fortunate to be alive and well today. No brain trauma or  damage. 
Just damage to my nerves in my left side of the face where I'm still  
paralyzed today (left facial paralysis). The doctor said I was lucky to have a  
head strong like a rock. Some people could have died from that type of injury  
that I experienced. Anyway, thanks for the nice comment. 

--S.W. 
On 3/20/2014 3:27 PM, _Cherifields at aol.com_ (mailto:Cherifields at aol.com)  
wrote:

Hey Shadow Wolf,
I was saddened to hear of your accident.  It is  almost like a miracle that 
you can hear again out of that ear.  I hope  that you didn't suffer any 
long term brain disorders as a result of this  accident.  
It sounds like you are doing much better since the CI  surgery.  
Blessings,
Cheri

In a message dated 3/20/2014 7:37:42 A.M. Pacific Daylight Time, 
_soulalibi at gmail.com_ (mailto:soulalibi at gmail.com)  writes:

Hi  Darlene,
Nice to meet you. I was at HKNC for 11 months. I took full  advantage of 
the training they offered there. I took up whatever  classes they offered 
besides just learning Braille, Technology,  ASL-TSL-Haptic Signs and 
Independent Living. I even took Sr. Bernie's  presentation class last 
fall prior to her retirement last Dec. after  34 or 35 years she worked 
there. It was a great learning  experience.

I first started wearing hearing aids in both ears at 6  years old. I lost 
my hearing as a toddler. I was told I had RP during  my early teens once 
I was diagnosed. But I was still driving up until  I was 24. Then later 
on, around in 2010. I was told I had Usher's  type-2. I was confused 
about that, because Usher's also affects  balance. Whereas I do not have 
balance issues.  In fact, I think  most people with Usher's type-2 do not 
have balance issues.
On New  Year's eve 2000, I was involved in a really bad car accident. 
Although  I was not a driver but a passenger. I suffered head trauma 
where I  also suffered an ear fracture in left side. I lost my hearing in 
that  ear 2 days later. For 9 and half years I was hearing with only 1 
ear,  a hearing aid. My left ear was my better ear then. If you are a 
right  hand person, writing with a right hand, it was like losing your 
right  hand and trying to write with your left hand. Same with my hearing  
after that accident. I had communication issues and kept to myself  
during most of that time. Until one day in fall 2009, I got lucky and  
became a candidate in my state to receive a Cochlear Implant. After  all 
is said and done. After 3 months of my brain trying to adjust to  my CI 
and hearing in my left ear again. My left ear where my CI is,  became the 
better ear once again. I now understand people best with my  CI. It is 
loud and clear. The CI boosted my communication skills and  gave me a 
great deal of confidence. I am now happy that I received the  CI and I 
hold no regrets about it. It is medically amazing that the CI  can 
restore your hearing if someone suffered dramatic hearing loss  from an 
ear fracture. I admit I was skeptical at first when I first  sat down 
with CI specialists prior to my surgery. I didn't think it  was gonna 
work. But I was wrong. The CI did work for  me.

--S.W.

On 3/20/2014 4:49 AM, Darlene Laibl-Crowe  wrote:
> Good morning, Shadow!
>
> Welcome to the NFB DB  Division.  I, too, have RP and am HOH.  I wear
>  bi-lateral hearing haids.  But I did not grow up knowing that I had  RP. 
 I
> found out as an adult at the age of 28 and had to give  up driving.  I was
> able to see to read print and see people's  faces to read lips to 
accommodate
> for what I could hear for about  22 years after I was diagnosed with RP.
> That means when I turned  50 almost 6 years ago, I struggled with what to 
do
> as I could not  longer see to do things that I kept doing as a sighted
>  person.
>
> Since I grew up wearing hearing aids, I never  considered myself a 'deaf'
> person and can remember someone telling  me 'oh, you're deaf' when I told
> them I wore hearing aids.  I  quickly responded and told them 'oh, no, I 
can
> hear  something'.
>
> So six years ago when I began to struggle with  vision loss, I finally met
> many who were dealing with similar  issues and I recognized that I was
> Deaf-Blind.  Once I was  able to define this, I soon went to Helen Keller
> National Center  (January 2011 -- September 2011) where I learned much 
about
> my  specific needs.  HKNC is a great place to learn all you can  about
> resources and gives a great sense of  confidence.
>
> Since returning home, I have continued to  learn and made great progress.
> How long were you at HKNC?   Also, if you are home, are you learning 
Braille
> through  Hadley's?
>
> That was how I completed my Braille...through  Hadley School for the 
Blind.
> The Braille teacher at HKNC was very  good and so glad I got the 
beginnings
> of it there and the teacher  at Hadley was also very good.  I use Braille 
in
> my everyday  life but I am not that fluent because I have not made myself 
sit
>  and read as I should.  Need to get myself back on track there.   I use
> Braille in business meetings, identifying things in my home  and I also 
use
> it often when playing cards.  My family loves  to play canasta and I 
missed
> playing it.  Now I can play it  again!  (smile)  My sister (who is 
sighted)
> and I always  play partners against our spouses and we win the majority of
> the  time!
>
> Take your time learning Braille.  It can be  daunting as times but very
> rewarding when it is  completed.
>
> Anyway, This list is a good source for  information and sharing.  I do 
have a
> question...you state  that you have been Deaf-Blind all your life.  When 
did
> you  find out about your RP?
>
> Have a Thrilling  Thursday!!
>
> (smile)
>  Darlene
>
>
>
>
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--  
*~Shadow  Wolf~*

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