[nfb-db] Delcenia -- Usher2

Fri Mar 21 12:55:05 UTC 2014

Hi Cheri,
I've also tried Seamans almost a decade ago, when hearing aids were 
still monologue, before the digital ones came out. Seamans are not the 
best on the market. Right now, I have a Phonak. Phonaks are among the 
best on the market today. The audiologist at HKNC says most students 
that she's sees has a Phonak. Probably because the brand is stronger, 
works well with FM systems and bluetooths for cell phones and etc. 
Phonaks are quite popular and I think you might want to ask your 
audiologist about this hearing aid brand and give it a try.

--S.W.
On 3/20/2014 5:49 PM, Cherifields at aol.com wrote:
> Hey Trish,
> You said you just got your hearing aids that are great?   I wondered 
> if you know what kind?  I have an aid in my left ear that is a Seamans 
> and I am not real thrilled with it.  The last aids were from Starky 
> and they were okay.  I went to the Speech and Hearing Clenic to get 
> this one.  The audiologist told me it was the top of the line.  The 
> sounds are distorted and I still miss a lot.
> Blessings,
> Cheri
> In a message dated 3/20/2014 1:02:28 P.M. Pacific Daylight Time, 
> palhub at optonline.net writes:
>
>     Thanks, Delcenie.  I have optic atrophy and auditory  neuropathy.
>     I don't
>     know anything about RP or Ushers.  I have a bgalance problem.  The
>     fact that
>     people with RP and Usher don't have the balance issue tells me
>     that its not
>     hearing related.  This past January, I received a top of the line
>     hearing
>     aid at HKNC for my right ear.  I have a CI on the left side.  I
>     think I'm
>     doing better now with hearing and functioning than I have in a
>     long time. I
>     live on Long Island, but I've never been a full time student at
>     HKNC.  When
>     I need training in something, I get at-home services, not because
>     I'm house
>     bound, its cheaper for NYS.   I am, though, going to to be going
>     up to HKNC
>     in a few weeks to finish a tech evaluation I started back in Januray.
>
>     Trish
>
>     -----Original Message-----
>     From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Darlene
>     Laibl-Crowe
>     Sent: Thursday, March 20, 2014 3:46 PM
>     To: 'NFB Deaf-Blind Division Mailing List'
>     Subject: [nfb-db] Delcenia -- Usher2
>
>     Hello, Delcenia!  Nice to meet you!  I am from Florida and I also
>     have Usher
>     2.  I was able to go to HKNC because I advocated for myself to the
>     state and
>     justified as to why I needed their services.  My reasoning was
>     that there
>     are NO services for Adult Deaf Blind individuals in the State and
>     I had also
>     been a client of DBS since 1986.  By the way, DBS means Division
>     of Blind
>     Services.  Anyway, after a few years I kind of got lost in the state's
>     system and was not getting the services I needed.  So when I began
>     to lose
>     more hearing and vision I struggled in a huge way.  I didn't know
>     anything
>     about HKNC until I started doing research And found out about the
>     Florida
>     Deaf Blind Association.  I soon met HKNC Southeast rep and many of the
>     members of that organization and within a year I was hearing to NY.
>
>     The training is very expensive but the state more than willingly
>     paid for
>     that service.  I am so grateful that they have.  Now, the state
>     has grown
>     because I do all I can advocate and educate them and others as
>     needed.  I
>     don't know everything but what I don't know I do my best to find
>     out.  One
>     thing that I have learned is that it is important to know what
>     resources are
>     out there and how you can use it for your specific needs. HKNC
>     taught that
>     to me and it is something that needs to be taught to many.
>
>     As for the balance issue, I, too, did not have problems with
>     balance but
>     I've noticed more lately that I am getting dizzy...I think it is
>     because I
>     can't quite focus on something to maintain a sense of balance.  It
>     isn't too
>     bad...and hopefully it won't get worse.
>
>     My guide dog is wonderful about being sure I am good on my feet.  I've
>     noticed when I get a little off balanced she will slow down and
>     let me kind
>     of lean on her a bit to get myself oriented again.  She is amazing
>     and I am
>     so glad I have her.
>
>     I, too, am fairly new to NFB...a little over a year now. NFB is a
>     great
>     learning experience as well!
>
>     Hope you are able to go to HKNC, it is very a rewarding experience!!
>
>
>     (smile)
>     Darlene
>
>     "God wants to breathe new life into your dreams. He wants to
>     breathe new
>     hope into your heart. Don't give up. Hold on and you'll begin to
>     see Him do
>     amazing things"
>        ~               Joel Osteen
>
>
>
>
>     _______________________________________________
>     nfb-db mailing list
>     nfb-db at nfbnet.org
>     http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
>     _______________________________________________
>     nfb-db mailing list
>     nfb-db at nfbnet.org
>     http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org

-- 
*~Shadow Wolf~*

-------------- next part --------------
An HTML attachment was scrubbed...
URL: <http://nfbnet.org/pipermail/nfb-db_nfbnet.org/attachments/20140321/6f9871a4/attachment.html>