[nfb-db] Delcenia -- Usher2

[Trish Hubschman]

Hi  Cheri,

 

I tried a couple of Has at HKNC.  The one below this sounded a bit
distorted. It was too loud and when the audi lowered the  internal volume,
there was nothing.  The one I have now came out in December.   I don't know
what kind it is.  Its small with two push   buttons, one for volume, the
other t-coil.  I don't know how to use either control.  The HA compliments
the CI.  

 

Trish

 

From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of
Cherifields at aol.com
Sent: Thursday, March 20, 2014 8:50 PM
To: nfb-db at nfbnet.org
Subject: Re: [nfb-db] Delcenia -- Usher2

 

Hey Trish,

 

You said you just got your hearing aids that are great?   I wondered if you
know what kind?  I have an aid in my left ear that is a Seamans and I am not
real thrilled with it.  The last aids were from Starky and they were okay.
I went to the Speech and Hearing Clenic to get this one.  The audiologist
told me it was the top of the line.  The sounds are distorted and I still
miss a lot.

Blessings,  

Cheri

 

In a message dated 3/20/2014 1:02:28 P.M. Pacific Daylight Time,
palhub at optonline.net <mailto:palhub at optonline.net>  writes:

Thanks, Delcenie.  I have optic atrophy and auditory  neuropathy.  I don't
know anything about RP or Ushers.  I have a bgalance problem.  The fact that
people with RP and Usher don't have the balance issue tells me that its not
hearing related.  This past January, I received a top of the line hearing
aid at HKNC for my right ear.  I have a CI on the left side.  I think I'm
doing better now with hearing and functioning than I have in a long time. I
live on Long Island, but I've never been a full time student at HKNC.  When
I need training in something, I get at-home services, not because I'm house
bound, its cheaper for NYS.   I am, though, going to to be going up to HKNC
in a few weeks to finish a tech evaluation I started back in Januray.  

Trish 

-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Darlene
Laibl-Crowe
Sent: Thursday, March 20, 2014 3:46 PM
To: 'NFB Deaf-Blind Division Mailing List'
Subject: [nfb-db] Delcenia -- Usher2

Hello, Delcenia!  Nice to meet you!  I am from Florida and I also have Usher
2.  I was able to go to HKNC because I advocated for myself to the state and
justified as to why I needed their services.  My reasoning was that there
are NO services for Adult Deaf Blind individuals in the State and I had also
been a client of DBS since 1986.  By the way, DBS means Division of Blind
Services.  Anyway, after a few years I kind of got lost in the state's
system and was not getting the services I needed.  So when I began to lose
more hearing and vision I struggled in a huge way.  I didn't know anything
about HKNC until I started doing research And found out about the Florida
Deaf Blind Association.  I soon met HKNC Southeast rep and many of the
members of that organization and within a year I was hearing to NY.  

The training is very expensive but the state more than willingly paid for
that service.  I am so grateful that they have.  Now, the state has grown
because I do all I can advocate and educate them and others as needed.  I
don't know everything but what I don't know I do my best to find out.  One
thing that I have learned is that it is important to know what resources are
out there and how you can use it for your specific needs.  HKNC taught that
to me and it is something that needs to be taught to many.

As for the balance issue, I, too, did not have problems with balance but
I've noticed more lately that I am getting dizzy...I think it is because I
can't quite focus on something to maintain a sense of balance.  It isn't too
bad...and hopefully it won't get worse.  

My guide dog is wonderful about being sure I am good on my feet.  I've
noticed when I get a little off balanced she will slow down and let me kind
of lean on her a bit to get myself oriented again.  She is amazing and I am
so glad I have her.  

I, too, am fairly new to NFB...a little over a year now.  NFB is a great
learning experience as well!

Hope you are able to go to HKNC, it is very a rewarding experience!!


(smile)
Darlene

"God wants to breathe new life into your dreams. He wants to breathe new
hope into your heart. Don't give up. Hold on and you'll begin to see Him do
amazing things"
   ~               Joel Osteen




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