[nfb-db] Delcenia -- Usher2

Fri Mar 21 13:07:02 UTC 2014

Oh, I have to  jump on this for something else too, if that's okay.
Delcenie, I just asked a woman from another list about the regional rep for
Ohio;.  I think it would be Northeast, which would be4 Christ Windfill.  

For email, put a period between his first and last name and @ hknc.org.

Trish

From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
Sent: Friday, March 21, 2014 8:55 AM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] Delcenia -- Usher2

Hi Cheri,
I've also tried Seamans almost a decade ago, when hearing aids were still
monologue, before the digital ones came out. Seamans are not the best on the
market. Right now, I have a Phonak. Phonaks are among the best on the market
today. The audiologist at HKNC says most students that she's sees has a
Phonak. Probably because the brand is stronger, works well with FM systems
and bluetooths for cell phones and etc. Phonaks are quite popular and I
think you might want to ask your audiologist about this hearing aid brand
and give it a try. 

--S.W. 

On 3/20/2014 5:49 PM, Cherifields at aol.com <mailto:Cherifields at aol.com>
wrote:

Hey Trish,

You said you just got your hearing aids that are great?   I wondered if you
know what kind?  I have an aid in my left ear that is a Seamans and I am not
real thrilled with it.  The last aids were from Starky and they were okay.
I went to the Speech and Hearing Clenic to get this one.  The audiologist
told me it was the top of the line.  The sounds are distorted and I still
miss a lot.

Blessings,  

Cheri

In a message dated 3/20/2014 1:02:28 P.M. Pacific Daylight Time,
palhub at optonline.net <mailto:palhub at optonline.net>  writes:

Thanks, Delcenie.  I have optic atrophy and auditory  neuropathy.  I don't
know anything about RP or Ushers.  I have a bgalance problem.  The fact that
people with RP and Usher don't have the balance issue tells me that its not
hearing related.  This past January, I received a top of the line hearing
aid at HKNC for my right ear.  I have a CI on the left side.  I think I'm
doing better now with hearing and functioning than I have in a long time. I
live on Long Island, but I've never been a full time student at HKNC.  When
I need training in something, I get at-home services, not because I'm house
bound, its cheaper for NYS.   I am, though, going to to be going up to HKNC
in a few weeks to finish a tech evaluation I started back in Januray.  

Trish 

-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Darlene
Laibl-Crowe
Sent: Thursday, March 20, 2014 3:46 PM
To: 'NFB Deaf-Blind Division Mailing List'
Subject: [nfb-db] Delcenia -- Usher2

Hello, Delcenia!  Nice to meet you!  I am from Florida and I also have Usher
2.  I was able to go to HKNC because I advocated for myself to the state and
justified as to why I needed their services.  My reasoning was that there
are NO services for Adult Deaf Blind individuals in the State and I had also
been a client of DBS since 1986.  By the way, DBS means Division of Blind
Services.  Anyway, after a few years I kind of got lost in the state's
system and was not getting the services I needed.  So when I began to lose
more hearing and vision I struggled in a huge way.  I didn't know anything
about HKNC until I started doing research And found out about the Florida
Deaf Blind Association.  I soon met HKNC Southeast rep and many of the
members of that organization and within a year I was hearing to NY.  

The training is very expensive but the state more than willingly paid for
that service.  I am so grateful that they have.  Now, the state has grown
because I do all I can advocate and educate them and others as needed.  I
don't know everything but what I don't know I do my best to find out.  One
thing that I have learned is that it is important to know what resources are
out there and how you can use it for your specific needs.  HKNC taught that
to me and it is something that needs to be taught to many.

As for the balance issue, I, too, did not have problems with balance but
I've noticed more lately that I am getting dizzy...I think it is because I
can't quite focus on something to maintain a sense of balance.  It isn't too
bad...and hopefully it won't get worse.  

My guide dog is wonderful about being sure I am good on my feet.  I've
noticed when I get a little off balanced she will slow down and let me kind
of lean on her a bit to get myself oriented again.  She is amazing and I am
so glad I have her.  

I, too, am fairly new to NFB...a little over a year now.  NFB is a great
learning experience as well!

Hope you are able to go to HKNC, it is very a rewarding experience!!

(smile)
Darlene

"God wants to breathe new life into your dreams. He wants to breathe new
hope into your heart. Don't give up. Hold on and you'll begin to see Him do
amazing things"
   ~               Joel Osteen

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-- 
*~Shadow Wolf~*
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