[nfb-db] Delcenia -- Usher2

Fri Mar 21 19:51:45 UTC 2014

Hey Trish, thanks.  I'm not jumping for joy about this aid and have  gone 
back a few times and each time the audi changed things which are not a  
marketable improvement.  I know that she put the aid on her computer and  changed 
the button so that I can have more or less volume.  she also gave  it less 
lower frequency which I think has made it harder to hear people.   So I am 
going to have to go back and change that part.  I am making  payments for the 
aid.  She did not recommend an aid for the other ear  saying I couldn't 
hear enough comprehension in it.
Blessing for the day, 
Cheri

In a message dated 3/21/2014 10:47:49 A.M. Pacific Daylight Time,  
palhub at optonline.net writes:

Hi  Cheri, 
I  tried a couple of Has at HKNC.  The one below this sounded a bit  
distorted. It was too loud and when the audi lowered the  internal  volume, there 
was nothing.  The one I have now came out in  December.   I don’t know what 
kind it is.  Its small with two  push   buttons, one for volume, the other 
t-coil.  I don’t know  how to use either control.  The HA compliments the CI. 

Trish 

From: nfb-db  [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of  
Cherifields at aol.com
Sent: Thursday, March 20, 2014 8:50  PM
To: nfb-db at nfbnet.org
Subject: Re: [nfb-db] Delcenia --  Usher2

Hey  Trish,

You  said you just got your hearing aids that are great?   I wondered if  
you know what kind?  I have an aid in my left ear that is a Seamans and I  am 
not real thrilled with it.  The last aids were from Starky and they  were 
okay.  I went to the Speech and Hearing Clenic to get this  one.  The 
audiologist told me it was the top of the line.  The  sounds are distorted and I 
still miss a lot.

Blessings,   

Cheri

In a  message dated 3/20/2014 1:02:28 P.M. Pacific Daylight Time, 
_palhub at optonline.net_ (mailto:palhub at optonline.net)   writes:

Thanks,  Delcenie.  I have optic atrophy and auditory  neuropathy.  I  don't
know anything about RP or Ushers.  I have a bgalance  problem.  The fact 
that
people with RP and Usher don't have the  balance issue tells me that its not
hearing related.  This past  January, I received a top of the line hearing
aid at HKNC for my right  ear.  I have a CI on the left side.  I think I'm
doing better  now with hearing and functioning than I have in a long time. I
live on  Long Island, but I've never been a full time student at HKNC.   
When
I need training in something, I get at-home services, not because  I'm house
bound, its cheaper for NYS.   I am, though, going to  to be going up to HKNC
in a few weeks to finish a tech evaluation I  started back in Januray.  

Trish 

-----Original  Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org]  On Behalf Of Darlene
Laibl-Crowe
Sent: Thursday, March 20, 2014 3:46  PM
To: 'NFB Deaf-Blind Division Mailing List'
Subject: [nfb-db]  Delcenia -- Usher2

Hello, Delcenia!  Nice to meet you!  I  am from Florida and I also have 
Usher
2.  I was able to go to HKNC  because I advocated for myself to the state 
and
justified as to why I  needed their services.  My reasoning was that there
are NO services  for Adult Deaf Blind individuals in the State and I had 
also
been a  client of DBS since 1986.  By the way, DBS means Division of  Blind
Services.  Anyway, after a few years I kind of got lost in the  state's
system and was not getting the services I needed.  So when I  began to lose
more hearing and vision I struggled in a huge way.  I  didn't know anything
about HKNC until I started doing research And found  out about the Florida
Deaf Blind Association.  I soon met HKNC  Southeast rep and many of the
members of that organization and within a  year I was hearing to NY.  

The training is very expensive but  the state more than willingly paid for
that service.  I am so  grateful that they have.  Now, the state has grown
because I do all  I can advocate and educate them and others as needed.  I
don't know  everything but what I don't know I do my best to find out.   One
thing that I have learned is that it is important to know what  resources 
are
out there and how you can use it for your specific  needs.  HKNC taught that
to me and it is something that needs to be  taught to many.

As for the balance issue, I, too, did not have  problems with balance but
I've noticed more lately that I am getting  dizzy...I think it is because I
can't quite focus on something to  maintain a sense of balance.  It isn't 
too
bad...and hopefully it  won't get worse.  

My guide dog is wonderful about being sure I  am good on my feet.  I've
noticed when I get a little off balanced  she will slow down and let me kind
of lean on her a bit to get myself  oriented again.  She is amazing and I am
so glad I have her.   

I, too, am fairly new to NFB...a little over a year now.  NFB  is a great
learning experience as well!

Hope you are able to go to  HKNC, it is very a rewarding  experience!!

(smile)
Darlene

"God wants to breathe new  life into your dreams. He wants to breathe new
hope into your heart.  Don't give up. Hold on and you'll begin to see Him do
amazing  things"
~             Joel  Osteen

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