[nfb-db] Usher 3

[Cherifields at aol.com]

Hey April,
 
I'm sorry to hear this.  I don't know anything about  Ushers.  Are you 
considering Ci surgery?  It seems that you would be a  good candadate for this 
surgery.  
 
Where do you live?  The Mayo Clenic is doing research on  different eye 
conditions as I am sure most of your big research centers should  be.  
 
Do they make anything that can attach to close caption to read  it in 
braille yet?
 
Blessings,
Cheri
 
 
In a message dated 3/21/2014 9:40:58 A.M. Pacific Daylight Time,  
aprilbrownshade at gmail.com writes:

Good  Morning,

Even though I can't get a proper  diagnosis, I am leaning toward Usher 3.  
I only have one eye with vision,  and it has dramatically decreased in the 
last year, with all kinds of odd  symptoms.   Of course, my vision issues are 
complicated by double  colobomas.

My hearing is worse as well.  I do  not hear low toned voices well.  And 
comprehension of spoken words is  extremely slow.  In fact, for over a decade, 
I had used closed captioning  on the tv to understand most shows, until my 
vision loss no longer allows me  to.  So now, many science shows I would 
otherwise enjoy, I can not hear  or see.

I have much much information on the  prognosis of Usher 1 and 2.  Not much 
on Usher 3.  

Will my vision reach a spot and stay there?  I only  have about 1/4 of an 
eye left.  The tiny lower corner of my right eye  next to my nose. 

Does anyone have a link to  a site with good information about Usher 3?

Thanks,


April  Brown

Writing dramatic adventure novels uncovering the myths we hide  behind.



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