[nfb-db] About This Group List

Fri Mar 21 19:36:20 UTC 2014

Thanks Trish.  I miss him dearly. 
Blessings, Cheri

In a message dated 3/21/2014 10:45:17 A.M. Pacific Daylight Time,  
palhub at optonline.net writes:

Oh  God, Cheri, 
Trish 

From: nfb-db  [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of  
Cherifields at aol.com
Sent: Thursday, March 20, 2014 10:02  PM
To: nfb-db at nfbnet.org
Subject: Re: [nfb-db] About This  Group List

Hey  Shadow,

I'm  sorry to hear of your paralysis to your left side.  I'm glad it's not  
worst than that.  I know that is a tragedy enough.  I wish it could  
recover for you.  Are the nerves dead?  

I  lost my son when he was 20 years of age .  He was a passenger in a car  
and the driver was speeding and ran off the road.  He was thrown from the  
car and they said he died instantly.  The police report said he probably  
broke his neck.

Maybe  sometime in the near future things like stem cell will be used to 
heal us  all.

Blessings,

Cheri

In a  message dated 3/20/2014 4:57:01 P.M. Pacific Daylight Time, 
_soulalibi at gmail.com_ (mailto:soulalibi at gmail.com)   writes:

Hi  Cheri,
Yes I am fortunate to be alive and well today. No brain trauma or  damage. 
Just damage to my nerves in my left side of the face where I'm still  
paralyzed today (left facial paralysis). The doctor said I was lucky to have  a 
head strong like a rock. Some people could have died from that type of  injury 
that I experienced. Anyway, thanks for the nice comment.  

--S.W.  

On  3/20/2014 3:27 PM, _Cherifields at aol.com_ (mailto:Cherifields at aol.com)   
wrote:

Hey  Shadow Wolf,

I  was saddened to hear of your accident.  It is almost like a miracle  
that you can hear again out of that ear.  I hope that you didn't  suffer any 
long term brain disorders as a result of this accident.   

It  sounds like you are doing much better since the CI surgery.   

Blessings,

Cheri

In  a message dated 3/20/2014 7:37:42 A.M. Pacific Daylight Time, 
_soulalibi at gmail.com_ (mailto:soulalibi at gmail.com)   writes:

Hi  Darlene,
Nice to meet you. I was at HKNC for 11 months. I took full  advantage of 
the training they offered there. I took up whatever  classes they offered 
besides just learning Braille, Technology,  ASL-TSL-Haptic Signs and 
Independent Living. I even took Sr.  Bernie's presentation class last 
fall prior to her retirement last  Dec. after 34 or 35 years she worked 
there. It was a great learning  experience.

I first started wearing hearing aids in both ears at  6 years old. I lost 
my hearing as a toddler. I was told I had RP  during my early teens once 
I was diagnosed. But I was still driving  up until I was 24. Then later 
on, around in 2010. I was told I had  Usher's type-2. I was confused 
about that, because Usher's also  affects balance. Whereas I do not have 
balance issues.  In  fact, I think most people with Usher's type-2 do not 
have balance  issues.
On New Year's eve 2000, I was involved in a really bad car  accident. 
Although I was not a driver but a passenger. I suffered  head trauma 
where I also suffered an ear fracture in left side. I  lost my hearing in 
that ear 2 days later. For 9 and half years I was  hearing with only 1 
ear, a hearing aid. My left ear was my better  ear then. If you are a 
right hand person, writing with a right hand,  it was like losing your 
right hand and trying to write with your  left hand. Same with my hearing 
after that accident. I had  communication issues and kept to myself 
during most of that time.  Until one day in fall 2009, I got lucky and 
became a candidate in my  state to receive a Cochlear Implant. After all 
is said and done.  After 3 months of my brain trying to adjust to my CI 
and hearing in  my left ear again. My left ear where my CI is, became the 
better ear  once again. I now understand people best with my CI. It is 
loud and  clear. The CI boosted my communication skills and gave me a 
great  deal of confidence. I am now happy that I received the CI and I 
hold  no regrets about it. It is medically amazing that the CI can 
restore  your hearing if someone suffered dramatic hearing loss from an 
ear  fracture. I admit I was skeptical at first when I first sat down  
with CI specialists prior to my surgery. I didn't think it was gonna  
work. But I was wrong. The CI did work for  me.

--S.W.

On 3/20/2014 4:49 AM, Darlene Laibl-Crowe  wrote:
> Good morning, Shadow!
>
> Welcome to the NFB  DB Division.  I, too, have RP and am HOH.  I wear
>  bi-lateral hearing haids.  But I did not grow up knowing that I had  RP. 
 I
> found out as an adult at the age of 28 and had to  give up driving.  I was
> able to see to read print and see  people's faces to read lips to 
accommodate
> for what I could hear  for about 22 years after I was diagnosed with RP.
> That means  when I turned 50 almost 6 years ago, I struggled with what to 
do
>  as I could not longer see to do things that I kept doing as a  sighted
> person.
>
> Since I grew up wearing hearing  aids, I never considered myself a 'deaf'
> person and can remember  someone telling me 'oh, you're deaf' when I told
> them I wore  hearing aids.  I quickly responded and told them 'oh, no, I  
can
> hear something'.
>
> So six years ago when I  began to struggle with vision loss, I finally met
> many who were  dealing with similar issues and I recognized that I was
>  Deaf-Blind.  Once I was able to define this, I soon went to Helen  Keller
> National Center (January 2011 -- September 2011) where I  learned much 
about
> my specific needs.  HKNC is a great  place to learn all you can about
> resources and gives a great  sense of confidence.
>
> Since returning home, I have  continued to learn and made great progress.
> How long were you at  HKNC?  Also, if you are home, are you learning 
Braille
>  through Hadley's?
>
> That was how I completed my  Braille...through Hadley School for the 
Blind.
> The Braille  teacher at HKNC was very good and so glad I got the 
beginnings
>  of it there and the teacher at Hadley was also very good.  I use  
Braille in
> my everyday life but I am not that fluent because I  have not made myself 
sit
> and read as I should.  Need to get  myself back on track there.  I use
> Braille in business  meetings, identifying things in my home and I also 
use
> it often  when playing cards.  My family loves to play canasta and I  
missed
> playing it.  Now I can play it again!   (smile)  My sister (who is 
sighted)
> and I always play  partners against our spouses and we win the majority of
> the  time!
>
> Take your time learning Braille.  It can be  daunting as times but very
> rewarding when it is  completed.
>
> Anyway, This list is a good source for  information and sharing.  I do 
have a
> question...you state  that you have been Deaf-Blind all your life.  When 
did
> you  find out about your RP?
>
> Have a Thrilling  Thursday!!
>
> (smile)
>  Darlene
>
>
>
>
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--  
*~Shadow  Wolf~*

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-- 
*~Shadow Wolf~*

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=

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