[nfb-db] About This Group List

Sat Mar 22 00:14:45 UTC 2014

Hey Janet, good to hear from you.
I feel like when I was young I refused to use a cane until one  daya 
mobility instructor told me it was for your won safety more than  anything.  Then 
to my amazment many people who saw you with acane wanted to  give you 
assistance.  I welcomed the help.  But it is not that way  with hearing loss.  
Many people react in different ways.  Some  doctors have ignored me and talked 
only to my husband as if he were the  patient.  I  

In a message dated 3/21/2014 12:58:55 P.M. Pacific Daylight Time,  
sandboxxx at aol.com writes:

Hi Cheri,

I found your comment  "Having hearing loss is the only disability where 
people get angry  at you because you don't understand what they are saying" 
thought-provoking. I  was hard of hearing all my life, and on reflection 
realized people were  impatient with me but more than anything I just missed a 
lot. I got very  little information from the ambient conversation around me, 
but had no idea  how important it was.  There is no reason for professionals 
to  treat me as if I didn't exist.  Other people would not know how  to 
approach me and therefore would avoid me.  I can remember people  in public 
school many years ago saying why were you so stuck up.  I  wasn't able to 
recognize who they were.  But the hearing loss has caused  more arguments then any 
of the vision loss problems.  Too many  misunderstandings from not hearing 
correctly cause family  disruptions.
Blessings,
Cheri

When my  speech comprehension plunged as a result of my increased 
blindness, I got my  two Cochlear Implants. Without them I would not be able to 
understand speech  at all. With them I have moderate hearing loss and so still 
find many people  impatient when speaking with me.

I had a lot of angry reactions when my  RP made me bump into people 
constantly. I got a lot of dirty looks. I resisted  starting to use the cane, but 
once I did I was amazed at the lack of dirty  looks in my life. What a 
pleasure.

Isn't it amazing how people without  certain handicaps have no idea how to 
interact with such people? A large  proportion of Americans have some kind 
of a severe disability and yet for some  reason the majority prefer to remain 
ignorant about how to deal with the  disabled as normal people and move on 
with life in a normal way. This comment  applied not only to people without 
disabilities but also to people who may  have one or two disabilities and 
remain totally ignorant about  others.

Janet Sand

-----Original Message-----
From: Cherifields  <Cherifields at aol.com>
To: nfb-db <nfb-db at nfbnet.org>
Sent:  Wed, Mar 19, 2014 10:13 pm
Subject: Re: [nfb-db] About This Group  List

Hey Shadow Wolf,

You are very observant, yes I meant perplexed.  I hope  this group is all 
that you need it to be.
I have Optic Neuropathy, which effects both vision and  hearing.  It is 
hereditary.  My vision has only gotten worse with  age.  I also use Zoomtext at 
a 16 to 24X.  While I took braille 1  and 2 in the past, I haven't any 
equipment either.  My hearing is at a  moderate loss.  I didn't until recently 
consider that I was deaf-blind  since I didn't use sign language like other 
members of my family.  There  is no real neat package to fit into when you 
are not totally deaf blind.   I accept that I have both hearing and vision 
loss.  Having hearing loss  is the only disability where people get angry at 
you because you don't  understand what they are saying.  
I will be happy to communicate with  you.  

Blessings,

Cheri  

In a message dated 3/19/2014 6:00:52 P.M. Pacific Daylight Time, 
_soulalibi at gmail.com_ (mailto:soulalibi at gmail.com)  writes:

Hi  Cheri,
Thanks for the brief intro about this group. And I think you meant  to say 
"perplexed at first". 
Anyhow, I have been a Deaf-Blind individual  my whole life. I am visually 
impaired with a common eye degenerate known as  RP (retinitis pigmentosa). I 
am also hard of hearing (H of H) wearing both a  CI and a digital hearing 
aid. But I did not go by this term (Deaf-Blind)  until 2009 when I was first 
exposed to the Deaf-Blind community. But it took  me another year to learn to 
accept the term. I didn't know a DB community or  such groups existed, 
until around that time. I'm no stranger to the  Deaf-Blind realities as I live 
with it my whole life. I just successfully  completed my 11 month long 
training at the Helen Keller National Center this  past Jan. 31st. And I am fully 
aware of the many needs and challenges we DBs  face in everyday life.  My 
personal needs may not be the same as yours  and others in this group. For 
example, I am not yet a skilled Braille  reader. My skills ended in Grade 2 
Uncontracted Braille somewhere in the  beginning of the first couple chapters. 
I prefer to read with my own eyes  using the ZoomText 10 software. That 
means I may lack some basic knowledge  in Braille related equipment and 
associated Braille products. 

I hope  to keep up with certain discussions that I can relate to. 

--Shadow  Wolf

On 3/19/2014 4:53 PM, _Cherifields at aol.com_ (mailto:Cherifields at aol.com)  
wrote:

Hello Shadow,

My understanding is that it started out to help those of  us who had both 
hearing and vision loss to ask us how we voted and we all  gave our responses 
as to what would help us to be able to vote in  elections.  When that was 
finished this board was to let others ask  questions and give responses.  I 
hope this helps you.  I was  somewhat complexed at first and then I just 
jumped in and answered  someones questions or said hello to new members.

Blessings,

Cheri Fields

In a message dated 3/19/2014 10:01:19 A.M. Pacific Daylight Time, 
_soulalibi at gmail.com_ (mailto:soulalibi at gmail.com)  writes:

Thanks for the clarification. Looking forward to some  interesting 
discussions in this forum.

On 3/19/2014 6:35 AM,  Gerardo Corripio wrote:
>  This list is mainly talk about  deafblind, people who have both, 
> hearing and vission  impairments. For instance I start talking about 
> let's say  hearing aids, and others chime in by replying to my  EMail.
>
> El 19/03/2014 06:58 a.m., Shadow Wolf  escribió:
>> Hello Lisa or David,
>> I first sent an  email to Lisa Hall, but unfortunately her email 
>> address as  provided in this group information page, did not go through.
>>  I just joined the NFB-DB list yesterday. But I am not familiar with  
>> how this list works. I am getting occasional emails from  individuals 
>> where I have no clue what the topic of  discussion is about. Or from 
>> someone in response to someone  else's comment as part of a broader 
>> discussion. Perhaps  from before I joined. I haven't posted anything 
>> yet. Until  I fully understand how the list works. Any helpful 
>>  suggestions?
>>
>>  Thanks,
>>
>

-- 
*~Shadow  Wolf~*

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--  *~Shadow Wolf~*

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