[nfb-db] About This Group List
Cherifields at aol.com
Cherifields at aol.com
Sat Mar 22 00:54:08 UTC 2014
Hey Marsha, thanks for the bio and I'm with you on the treatment of
deaf-blind being second class or trying to discourage us. We are blind too and
should be treated with the same respect.
Enjoy your stay at HKNC and wish you well on your achievements in college.
Blessings to you,
Cheri
In a message dated 3/21/2014 2:54:51 P.M. Pacific Daylight Time,
marsha.drenth at gmail.com writes:
Hi Delcenia,
Sorry it has taken me so long to respond.
My name is Marsha. I am currently a student at HKNC, taking a LOA from my
university degree. I am a non-traditional student presuing a degree in
Social work, with one year to go. Once I am done with my bachelors, I will go
on to my Masters program. I hope to be a mental helth counselor for persons
who are deafblind, deaf, and hard of hearing. I live in PA, with my hubby,
and guide dog from GDF. I am the mother of three teenagers who live with
their father. I have been hard of hearing since 2007, but have lost a
majority of my hearing in the last 2 to 3 years. I wear two aids, Oticon Chili
sp7, with Stream pro. I have had these aids for a year in June. I went
recently for a CI evaluation, and will be doing some further testing to see if I
am a candidate.
Lojng time federationists. I have been very critical of the NFB because of
the way most of the blind people treat us deafblind folks. I won't stand
for it. I will not be a second class citizen in any population, including
the blind one.
Hope you like the list,
Marsha drenth
Sent with my IPhone
> On Mar 20, 2014, at 3:26 PM, "Delcenia Brown" <delcenia at prodigy.net>
wrote:
>
> First let me say hello to everyone on this list and happy belated
birthday to Trish. To those that do not know me which is most of you. My name is
Delcenia and I live outside of Cleveland, ohio area. I am a little new to
this list as of September 2013. Welcome Shadow. I do not normally respond
to anything other than the question regarding the voting issues because I do
not personally know any of you. After reading the last thread I am
compelled to say something.
>
> I begin to wear one hearing aid at the age of 10 in my right ear.
Maybe 10 or 15 years later I needed to wear two hearing aids in both ears. Now
I only wear one hearing aid in my left ear. I was diagnose with RP at the
age of 21.
> Many years later I was told I had Usher Syndrom 2In 2005 I was told I
have MS. . I never had balance problems. I drove a car until I was around 28.
I have always excepted whatever condition I was dealt. however, I never
place myself into a category until recently. It was not because I did not
accept it, it was I felt like I did not belong because my situation was
unique and never heard any one else with similar problems. I say this because
until I joined this list I did not know you all exist as far as having
similar problems. Darlene I also enjoyed playing cards and once I learned
braille from Hadley I could still play just not as fast as I use to. One of my
question is, how did you and others get to go to HK? Now after turning 50 on
December 31, 2013 and my situation is getting worse. I want to continue
to take charge of my life. I also want to work and this has been a
challenge. I had place a question on this list back in January 14 and no one
responded. Maybe I am
using this list the wrong way as far as trying to post a question or
comment. At the time I was doing a 3 day assessment to see if call center
setting would work. I had post a question looking for suggestions on how to
handle the setting that I had at the time.
>
> Could some of you when responding or posting say what state you are from
so that I and others would know. Personally, I think this list is a good
idea. I have learned a lot from all of you since September 2013. I hope
to meet all of you one day. Unfortunately, it will not be the National
Convention this year in orlando. My oldest granddaughter who live in North
Carolina turn 10 on July 3 and I want to spend time with her and my husband's
family reunion is in Detroit the same week. I will be stretching myself
across the border that week.
>
> Meanwhile, Anna Trotman, I am grateful for the I Can Connect program
(ICCP). I am learning to use my IPAD, Iphone and Braille Display. I can not
wait for the training to began again. Meanwhile the internet and Hadley has
been a great tool for learning.
>
> So keep on keeping on everybody and remember with a little determination
we can accomplish a lot.
>
> Delcenia
> -----Original Message----- From: Darlene Laibl-Crowe
> Sent: Thursday, March 20, 2014 10:51 AM
> To: 'NFB Deaf-Blind Division Mailing List'
> Subject: Re: [nfb-db] About This Group List
>
> First, Shadow, I want to say 'AWESOME!' about the CI and getting your
best
> ear back. Yes, I understand what you say about one ear being better than
> the other. Mine is the right ear. I have heard many positive things
from
> CI wearers as I have many friends who have them. I found out when I
began
> to lose more hearing that I was not a good candidate for CI because I
could
> still hear with a hearing aid...so for now, I am bi-lateral hearing aid
> user. One day I might have to become a CI-user but for now I do what I
do.
>
>
> I got new HAs about three weeks ago and they are great along with the
> Assistive listening Devices I got with them! Unfortuantely there are
some
> areas that need to be worked out and that is the issue of background
noises.
> Sigh! It will get better as I know from experience technology is
improving
> all the time!
>
> I really enjoyed Bernie's class, too! What did you do your presentation
on?
> Mine was called 'Laugh Out Loud' and everyone had a blast. I recently
used
> it for a speech at my local Lion's Club for St Patrick's Day and the
> audience loved it. Everyone had a great time laughing! It isn't stand
up
> comedy, just pure laughter which is good for the heart, mind, body and
soul!
>
> Did they have the leadership class while you were there? I took that
class
> because I wanted to know the 'right' way to advocate for myself. We
learned
> a lot in that class and it has helped me tremendously with all I do.
>
> Well, gotta go, take care of yourself!
> (smile)
> Darlene
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
> Sent: Thursday, March 20, 2014 10:37 AM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] About This Group List
>
> Hi Darlene,
> Nice to meet you. I was at HKNC for 11 months. I took full advantage of
the
> training they offered there. I took up whatever classes they offered
besides
> just learning Braille, Technology, ASL-TSL-Haptic Signs and Independent
> Living. I even took Sr. Bernie's presentation class last fall prior to
her
> retirement last Dec. after 34 or 35 years she worked there. It was a
great
> learning experience.
>
> I first started wearing hearing aids in both ears at 6 years old. I lost
my
> hearing as a toddler. I was told I had RP during my early teens once I
was
> diagnosed. But I was still driving up until I was 24. Then later on,
around
> in 2010. I was told I had Usher's type-2. I was confused about that,
because
> Usher's also affects balance. Whereas I do not have balance issues. In
> fact, I think most people with Usher's type-2 do not have balance issues.
> On New Year's eve 2000, I was involved in a really bad car accident.
> Although I was not a driver but a passenger. I suffered head trauma
where I
> also suffered an ear fracture in left side. I lost my hearing in that
ear 2
> days later. For 9 and half years I was hearing with only 1 ear, a hearing
> aid. My left ear was my better ear then. If you are a right hand person,
> writing with a right hand, it was like losing your right hand and trying
to
> write with your left hand. Same with my hearing after that accident. I
had
> communication issues and kept to myself during most of that time. Until
one
> day in fall 2009, I got lucky and became a candidate in my state to
receive
> a Cochlear Implant. After all is said and done. After 3 months of my
brain
> trying to adjust to my CI and hearing in my left ear again. My left ear
> where my CI is, became the better ear once again. I now understand people
> best with my CI. It is loud and clear. The CI boosted my communication
> skills and gave me a great deal of confidence. I am now happy that I
> received the CI and I hold no regrets about it. It is medically amazing
that
> the CI can restore your hearing if someone suffered dramatic hearing loss
> from an ear fracture. I admit I was skeptical at first when I first sat
down
> with CI specialists prior to my surgery. I didn't think it was gonna
work.
> But I was wrong. The CI did work for me.
>
> --S.W.
>
>> On 3/20/2014 4:49 AM, Darlene Laibl-Crowe wrote:
>> Good morning, Shadow!
>>
>> Welcome to the NFB DB Division. I, too, have RP and am HOH. I wear
>> bi-lateral hearing haids. But I did not grow up knowing that I had
>> RP. I found out as an adult at the age of 28 and had to give up
>> driving. I was able to see to read print and see people's faces to
>> read lips to accommodate for what I could hear for about 22 years after
I
> was diagnosed with RP.
>> That means when I turned 50 almost 6 years ago, I struggled with what
>> to do as I could not longer see to do things that I kept doing as a
>> sighted person.
>>
>> Since I grew up wearing hearing aids, I never considered myself a 'deaf'
>> person and can remember someone telling me 'oh, you're deaf' when I
>> told them I wore hearing aids. I quickly responded and told them 'oh,
>> no, I can hear something'.
>>
>> So six years ago when I began to struggle with vision loss, I finally
>> met many who were dealing with similar issues and I recognized that I
>> was Deaf-Blind. Once I was able to define this, I soon went to Helen
>> Keller National Center (January 2011 -- September 2011) where I
>> learned much about my specific needs. HKNC is a great place to learn
>> all you can about resources and gives a great sense of confidence.
>>
>> Since returning home, I have continued to learn and made great progress.
>> How long were you at HKNC? Also, if you are home, are you learning
>> Braille through Hadley's?
>>
>> That was how I completed my Braille...through Hadley School for the
Blind.
>> The Braille teacher at HKNC was very good and so glad I got the
>> beginnings of it there and the teacher at Hadley was also very good.
>> I use Braille in my everyday life but I am not that fluent because I
>> have not made myself sit and read as I should. Need to get myself
>> back on track there. I use Braille in business meetings, identifying
>> things in my home and I also use it often when playing cards. My
>> family loves to play canasta and I missed playing it. Now I can play
>> it again! (smile) My sister (who is sighted) and I always play
>> partners against our spouses and we win the majority of the time!
>>
>> Take your time learning Braille. It can be daunting as times but very
>> rewarding when it is completed.
>>
>> Anyway, This list is a good source for information and sharing. I do
>> have a question...you state that you have been Deaf-Blind all your
>> life. When did you find out about your RP?
>>
>> Have a Thrilling Thursday!!
>>
>> (smile)
>> Darlene
>>
>>
>>
>>
>> _______________________________________________
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>> nfb-db at nfbnet.org
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>
> --
> *~Shadow Wolf~*
>
>
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