[nfb-db] Usher 3

[Janice Toothman]

Hi S.W.
I have Usher's 3 I did not receive this diagnosis until I was 42 years 
old. I lost my sight within two years and most of my hearing. I have 
balance problems neuropathy and other problems.
Janice

On 3/21/2014 9:08 AM, Shadow Wolf wrote:
> Hello April,
>
> Everyone who has Usher's will eventually lose their vision at one time 
> or another. And I think those with Usher's 1 and 3 also have balance 
> problems. I believe that Usher's 1 starts at birth or at a young age. 
> I admit, I don't know much about either Usher's 1 or 3. But those who 
> suffer from Usher's 1 or 3 tend to have other psychical disabilities 
> other than just the eyes and ears.
>
> --S.W.
>
> On 3/21/2014 4:05 AM, April Brown wrote:
>> Good Morning,
>>
>>         Even though I can't get a proper diagnosis, I am leaning 
>> toward Usher 3.  I only have one eye with vision, and it has 
>> dramatically decreased in the last year, with all kinds of odd 
>> symptoms.   Of course, my vision issues are complicated by double 
>> colobomas.
>>
>>        My hearing is worse as well.  I do not hear low toned voices 
>> well.  And comprehension of spoken words is extremely slow.  In fact, 
>> for over a decade, I had used closed captioning on the tv to 
>> understand most shows, until my vision loss no longer allows me to.  
>> So now, many science shows I would otherwise enjoy, I can not hear or 
>> see.
>>
>>       I have much much information on the prognosis of Usher 1 and 
>> 2.  Not much on Usher 3.
>>
>>         Will my vision reach a spot and stay there?  I only have 
>> about 1/4 of an eye left.  The tiny lower corner of my right eye next 
>> to my nose.
>>
>>         Does anyone have a link to a site with good information about 
>> Usher 3?
>>
>> Thanks,
>>
>>
>> April Brown
>>
>> Writing dramatic adventure novels uncovering the myths we hide behind.
>>
>>
>>
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>