[nfb-db] Usher 3

[Shadow Wolf]

Hi Janice,
I'm not surprised. I've always been confused about Ushers 3. All I knew 
is that folks with Ushers type 3, also have a combination of other 
physical disabilities.  As for me, I haven't been *officially* diagnosed 
with having Usher's type-2, yet. Just the fact that the "experts", like 
the one over at HKNC, told me I have Usher's type-2. The only changes 
I've seen over the years are with my eyes. My vision had decreased since 
I was 25. And I only started using a white cane after HKNC. But my 
hearing remains intact. Even after receiving a CI. It had only boost my 
hearing capacity in that regard.

--S.W.
On 3/25/2014 5:09 PM, Janice Toothman wrote:
> Hi S.W.
> I have Usher's 3 I did not receive this diagnosis until I was 42 years 
> old. I lost my sight within two years and most of my hearing. I have 
> balance problems neuropathy and other problems.
> Janice
>
> On 3/21/2014 9:08 AM, Shadow Wolf wrote:
>> Hello April,
>>
>> Everyone who has Usher's will eventually lose their vision at one 
>> time or another. And I think those with Usher's 1 and 3 also have 
>> balance problems. I believe that Usher's 1 starts at birth or at a 
>> young age. I admit, I don't know much about either Usher's 1 or 3. 
>> But those who suffer from Usher's 1 or 3 tend to have other psychical 
>> disabilities other than just the eyes and ears.
>>
>> --S.W.
>>
>> On 3/21/2014 4:05 AM, April Brown wrote:
>>> Good Morning,
>>>
>>>         Even though I can't get a proper diagnosis, I am leaning 
>>> toward Usher 3.  I only have one eye with vision, and it has 
>>> dramatically decreased in the last year, with all kinds of odd 
>>> symptoms.   Of course, my vision issues are complicated by double 
>>> colobomas.
>>>
>>>        My hearing is worse as well.  I do not hear low toned voices 
>>> well.  And comprehension of spoken words is extremely slow.  In 
>>> fact, for over a decade, I had used closed captioning on the tv to 
>>> understand most shows, until my vision loss no longer allows me to.  
>>> So now, many science shows I would otherwise enjoy, I can not hear 
>>> or see.
>>>
>>>       I have much much information on the prognosis of Usher 1 and 
>>> 2.  Not much on Usher 3.
>>>
>>>         Will my vision reach a spot and stay there?  I only have 
>>> about 1/4 of an eye left.  The tiny lower corner of my right eye 
>>> next to my nose.
>>>
>>>         Does anyone have a link to a site with good information 
>>> about Usher 3?
>>>
>>> Thanks,
>>>
>>>
>>> April Brown
>>>
>>> Writing dramatic adventure novels uncovering the myths we hide behind.
>>>
>>>
>>>
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>>
>
>
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-- 
*~Shadow Wolf~*