[NFB-DB] cochlear implant experiences

Chris Westbrook westbchris at gmail.com
Mon Nov 4 00:49:21 UTC 2019


I can imagine that would be a real mourning process. I have had hearing and
vision loss all my life, I could have gotten a cochlear implant a long time
ago but was too scared. Lol. So I dont know what normal sounds like. I will
say music sounds really bad through the implant, but that might get better
still, I have been focusing more on practicing speech recognition than
music. So interesting that people can have such different experiences.

On Sun, Nov 3, 2019 at 7:26 PM Showe Trela via NFB-DB <nfb-db at nfbnet.org>
wrote:

> Hello. I had a CI put in about a year and a half ago and I personally am
> glad I have it, but don't use it as much as I should. I got randomly sick a
> couple of years ago and lost all my hearing in my right ear. I am still
> going through a terible mourning process so I think that is why I hate my
> CI so much. It didn't hurt at all for me. I find the app pretty accessible.
> I hate how it sounds because I still have normal hearing in my left ear and
> my CI gives me a headache and I have to slow down voiceover to understand
> my phone. Never had to do that before... I still have lots of trouble
> localizing sound even when I wear the darn thing. Like I said. I am still
> mourning my hearing loss. Blindness is nothing to me because I've been
> blind all my life but losing my hearing was hard...
>
> Showe
>
> Sent from my iPhone
>
> On Nov 3, 2019, at 12:21 PM, kara bohnenstiel via NFB-DB <
> nfb-db at nfbnet.org> wrote:
>
> 
>
> As the mother of a 14 year old who is totally blind and on Nov 21 will
> receive the surgery-- I would love to hear anyone's experience... Here's
> one question: firstly, did you wake up in a lot of pain from the surgery?
> Glad to hear you are glad you did it, Chris!
>
> Best,
> Kara
>
> On Sun, Nov 3, 2019 at 1:58 PM Chris Westbrook via NFB-DB <
> nfb-db at nfbnet.org> wrote:
>
>> I thought it would be neat to start a thread on cochlear implants. I have
>> been "activated" for almost three months now and am glad I did it, but it
>> has been a challenging journey. Just curious what others' experiences have
>> ben. I am considering writing an article for the braille monitor on my
>> experiences, as I feel that the broader blind community needs to be more
>> educated about the experiences of some of us. I am also willing ot answer
>> any questions anyone may have. Look forward to responses. Thanks and have a
>> great day.
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