[NFB-DB] cochlear implant experiences

[marsha.drenth at gmail.com]

This is what I thought before hearing loss, is that life was over. That life would never be the same. And that having my hearing was the “all and be all”. But its not I know now. The reason I know differently now is that I am connected with so many persons who are hard of hearing/blind or DeafBlind that it gives me such joy to know that I am not the only one. 

 

Do you have anyone else in your state or city who is also deafblind? What state are you located in? I could connect you with others who are in the same boat if you want?

 

Thank you, 

 

From: NFB-DB <nfb-db-bounces at nfbnet.org> On Behalf Of Showe Trela via NFB-DB
Sent: Sunday, November 3, 2019 7:25 PM
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Cc: Showe Trela <myshowe86 at gmail.com>
Subject: Re: [NFB-DB] cochlear implant experiences

 

Hello. I had a CI put in about a year and a half ago and I personally am glad I have it, but don't use it as much as I should. I got randomly sick a couple of years ago and lost all my hearing in my right ear. I am still going through a terible mourning process so I think that is why I hate my CI so much. It didn't hurt at all for me. I find the app pretty accessible. I hate how it sounds because I still have normal hearing in my left ear and my CI gives me a headache and I have to slow down voiceover to understand my phone. Never had to do that before... I still have lots of trouble localizing sound even when I wear the darn thing. Like I said. I am still mourning my hearing loss. Blindness is nothing to me because I've been blind all my life but losing my hearing was hard... 

 

Showe

Sent from my iPhone





On Nov 3, 2019, at 12:21 PM, kara bohnenstiel via NFB-DB <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org> > wrote:



As the mother of a 14 year old who is totally blind and on Nov 21 will receive the surgery-- I would love to hear anyone's experience... Here's one question: firstly, did you wake up in a lot of pain from the surgery? Glad to hear you are glad you did it, Chris!

 

Best,

Kara

 

On Sun, Nov 3, 2019 at 1:58 PM Chris Westbrook via NFB-DB <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org> > wrote:

I thought it would be neat to start a thread on cochlear implants. I have been "activated" for almost three months now and am glad I did it, but it has been a challenging journey. Just curious what others' experiences have ben. I am considering writing an article for the braille monitor on my experiences, as I feel that the broader blind community needs to be more educated about the experiences of some of us. I am also willing ot answer any questions anyone may have. Look forward to responses. Thanks and have a great day.

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