[NFB-DB] cochlear implant discussion on zoom

Fri May 15 03:33:09 UTC 2020

Hi Peanut,
I'm Rox and I am also pretty much full Deafblind. I used the CC with my braille display and iphone but yes, you do have to have fast braille reading skills. I also use TASL interpreters every day for work and communication with friends. I don't have anyone to interpret the Zoom calls for me so use CC. I'm so glad you could help your friend out.
There will also be a transcript if she would like to review any of the information on the call.
Have a great night.
Best,

Rox'E and the Kitchen Bitches
Soleil, Rowan, Phoenix
pawpower4me at gmail.com

> On May 14, 2020, at 10:12 PM, Ineko Gary via NFB-DB <nfb-db at nfbnet.org> wrote:
> 
> Hi my name is peanut, I am a friend of Ineko Gary. She’s deaf blind. I did listen and tactile sign language to her. It’s just easier and faster then Ineko trying to read the close caption because I saw myself it was going to fast for her to try to read it. So I listened and did tactile sign language in her hand. She only sees a light perception and not hard of hearing. Without hearing aids she’s deaf and with hearing aids she can hear sound but no words. So I came over to spend the weekend and decided we wanted to listen to This zoom meeting tonight. And I want to say thank you for providing the close caption for those who do have some vision to see the close caption. But I just wanted to let you know if you don’t mind slowing it down for some of those who do have some vision to try to read it because I saw it was going a little bit too fast for those who are legally blind. And again my friend is deaf blind. With only light perception and totally deaf About hearing aids it only can hear a sound as long as her hearing aids are turned all the way up to the max. And she used as a guide dog for 23 years for safety. She’s been a guide dog users for 23 years she just feel safer with a guide dog and a cane. She went blind at six months old in the hands of her birth mother. Left her in the car with the windows Rolled up and she rolled off the seat into plastic suffocated and that’s how she became blind and a little brain damage. And then when she was the ages 10 through 13 years old she started losing her hearing. And now today she’s totally deaf. But agreed with her new audiologist three years ago almost 4 years ago that it will be a good idea to wear hearing aids to catch sounds good to let people know she have hearing loss. And she does use a tactile sign language interpreter.
> 
> Always 
> Peanut& Ineko 
> 
> Sent from my iPhone
> 
>> On May 14, 2020, at 10:32 PM, Marsha Drenth via NFB-DB <nfb-db at nfbnet.org> wrote:
>> 
>> All, for everyones knowledge the NFB of PA call tonight May 14th was indeed captioned. Our one and only Danielle, who is deafblind herself stepped up and volunteered to help out with this. Since we, Joe and I had not played with and tested the captioning process on zoom before the meeting began. Danielle was not able to do the captions. With that said, Joe, my husband did the captioning, knowing that folks who are deafblind might be relying on this accommodation. 
>> 
>> So although we know it was not perfect or accurate., :e did try his best. There will be audio recording and transcript available on the NFB of PA website soon. 
>> 
>> So before anyone is super critical about being left out, captioning was provided and available. 
>> 
>> as I mentioned in an earlier email, if requested ahead of time arrangements can be made to provide this. 
>> 
>> Thank you!
>> 
>> Marsha drenth  
>> email: marsha.drenth at gmail.com  
>> Sent with my IPhone  
>> Please note that this email communication has been sent using my iPhone. As such, I may have used dictation and had made attempts to mitigate errors. Please do not be hesitant to ask for clarification as necessary. 
>> 
>>> On May 14, 2020, at 8:33 PM, Jack Zimmerman via NFB-DB <nfb-db at nfbnet.org> wrote:
>>> 
>>> Tell it SISTUH!  
>>> You gettin it said! 
>>> I am frankly so TIRED of being disinfranchised and thwarted  at   seemingly every TURN that I COULD SCREAM!!! 
>>>  
>>> 
>>> Sent from my iPhone
>>> 
>>>> On May 14, 2020, at 1:26 PM, Rox Homstad via NFB-DB <nfb-db at nfbnet.org> wrote:
>>>> 
>>>> Chris,
>>>> I'm not starting a war. I simply asked a question and then made a statement. I find it problematic that an organization who claims they support equality for folks who are blind and deafblind leaves out deafblind people who can't hear well enough. It happens across the federation in many ways, large and small. If we do not point these failures out and talk about them, how can we ever improve.
>>>> We either believe in equality, or we don't. I am aware of the other ways you mentioned to access this information, but we don't accept that as good enough, thats why we advocate for accessible voting, and reading and testing materials in education systems. Because we deserve equal access to the same information as everyone else.
>>>> That is my only point.
>>>> Best,
>>>> 
>>>> Rox'E and the Kitchen Bitches
>>>> Soleil, Rowan, Phoenix
>>>> pawpower4me at gmail.com
>>>> 
>>>>> On May 14, 2020, at 1:20 PM, Chris Westbrook via NFB-DB <nfb-db at nfbnet.org> wrote:
>>>>> 
>>>>> Firstly, this is not a db sponsored event, I merely thought it would be of interest. I also stated that if anyone has any questions they could email and I would answer. This is simply one more avenue for those who can participate. No need to start world war 3. ugh.
>>>>> 
>>>>>> On Thu, May 14, 2020 at 2:15 PM Rox Homstad via NFB-DB <nfb-db at nfbnet.org> wrote:
>>>>>>  Hello,
>>>>>> Is this event sponsored by the DB Division? I find it extremely ... disconcerting that an event about someone who is D/hh and their lived experiences is not accessible to people who are themselves having the same lived experience.
>>>>>> Please understand, I am not directing this at you personally Chris but at the organization in charge of this event.
>>>>>> I have read your article in the Monitor and will you well this evening.
>>>>>> 
>>>>>> 
>>>>>> Rox'E and the Kitchen Bitches
>>>>>> Soleil, Rowan, Phoenix
>>>>>> pawpower4me at gmail.com
>>>>>> 
>>>>>>> On May 14, 2020, at 12:50 PM, Chris Westbrook via NFB-DB <nfb-db at nfbnet.org> wrote:
>>>>>>> 
>>>>>>> Unfortunately none of our affiliate events are captioned. It will be recorded, and perhaps we can try to caption it afterwords. I wrote an article in the Braille Monitor earlier this year regarding my experiences, don't have the link at the moment. Would love to do something in the future, but have no clue how to set up captioning for an event and/or what the costs are. Perhaps someone in the division who knows more can write up a guide.
>>>>>>> 
>>>>>>>> On Thu, May 14, 2020 at 1:45 PM Rox Homstad via NFB-DB <nfb-db at nfbnet.org> wrote:
>>>>>>>> Is this being captioned? I'm assuming so but just wanted to confirm.
>>>>>>>> 
>>>>>>>> Rox'E and the Kitchen Bitches
>>>>>>>> Soleil, Rowan, Phoenix
>>>>>>>> pawpower4me at gmail.com
>>>>>>>> 
>>>>>>>>> On May 14, 2020, at 12:30 PM, Chris Westbrook via NFB-DB <nfb-db at nfbnet.org> wrote:
>>>>>>>>> 
>>>>>>>>> Hey guys, I should have put this on this list earlier, but tonight at 8 pm I will be talking about my experiences obtaining and using a cochlear implant. Please feel free to come and ask questions, or if you can't make it feel free to respond here and I will answer any questions you have. I have pasted instructions below on how to join the meeting. You can also read down to see the other events the NFB of PA is hosting. Thanks NFB of PA for the opportunity to hold this event.
>>>>>>>>> Here is how you can participate in these events. No registration is necessary, and everyone is invited to join. Simply use one of the following methods to connect with us on the Zoom platform:
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> 1. From within the free Zoom Cloud Meetings app on your iPhone or Android, just hit the “Join” button on the “Meet and Chat” tab and then enter our meeting ID: 215 988 0888.
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> 2. Click the following link, which will open the meeting using the app or your web browser:
>>>>>>>>> 
>>>>>>>>> https://zoom.us/my/nfbpennsylvania
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> 3. On a mobile phone, click either of the  following "One Tap" links, based on which one is nearest to your location:
>>>>>>>>> 
>>>>>>>>> +13126266799,,2159880888# (Chicago)
>>>>>>>>> 
>>>>>>>>> +16468769923,,2159880888# (New York)
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> 4. Using a standard telephone, dial 646-876-9923,
>>>>>>>>> 
>>>>>>>>> and then enter our meeting ID when prompted: 215 988 0888.
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> ---------- Forwarded message ---------
>>>>>>>>> From: Joseph Drenth via NFBP-Talk <nfbp-talk at nfbnet.org>
>>>>>>>>> Date: Thu, May 14, 2020 at 11:48 AM
>>>>>>>>> Subject: [NFBP-Talk] Zoom Events Today
>>>>>>>>> To: <nfbp-talk at nfbnet.org>
>>>>>>>>> Cc: Joseph Drenth <joe.drenth at gmail.com>
>>>>>>>>> 
>>>>>>>>> 
>>>>>>>>> Hello everyone,
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> Here are today’s Zoom events from the NFB of Pennsylvania:
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> Kernel Book Discussions with Justin – Thursday, May 14, from 5PM to 6PM EDT.
>>>>>>>>> 
>>>>>>>>> Join us as we discuss the Kernel Book story “Ice Cream, Peanuts, Popcorn, and Worms” by Kevan Worley, which appears in Beyond the Funny Tree. Here are links to the story in both text and audio formats:
>>>>>>>>> 
>>>>>>>>> Text: https://www.nfb.org/sites/www.nfb.org/files/images/nfb/publications/books/kernel1/kernbk29/kernbk29.htm#8
>>>>>>>>> 
>>>>>>>>> Audio: https://nfb.org/images/nfb/audio/kernel_books/kern29/11-ice-cream-peanuts-popcorn-and-worms.mp3
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> Apps, Apps, Apps with Marsha – Thursday, May 14, from 6:30PM to 8PM EDT.
>>>>>>>>> 
>>>>>>>>> If you have an iPhone but would like to know more about specific apps, how to get them, how to download them, what they are for, and how to use them; This presentation is for you. Marsha will present on one app at a time. If you have suggestions for apps you would like to see featured please email: marsha.drenth at gmail.com  
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> Cochlear Implants Discussion with Chris – Thursday, May 14, from 8PM to 9PM, EDT.
>>>>>>>>> 
>>>>>>>>> Are you struggling with your hearing using traditional hearing aids? Have you been told to consider a cochlear implant but are scared of what the implications might be? Would you like to become more informed about one option for hearing impaired individuals? If you answered yes to any of these questions, come join me this Thursday at 8 pm. I have had cochlear implant surgery and have lived to tell the tale!! I will discuss my experiences and answer questions.
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> Here is how you can participate in these events. No registration is necessary, and everyone is invited to join. Simply use one of the following methods to connect with us on the Zoom platform:
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> 1. From within the free Zoom Cloud Meetings app on your iPhone or Android, just hit the “Join” button on the “Meet and Chat” tab and then enter our meeting ID: 215 988 0888.
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> 2. Click the following link, which will open the meeting using the app or your web browser:
>>>>>>>>> 
>>>>>>>>> https://zoom.us/my/nfbpennsylvania
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> 3. On a mobile phone, click either of the  following "One Tap" links, based on which one is nearest to your location:
>>>>>>>>> 
>>>>>>>>> +13126266799,,2159880888# (Chicago)
>>>>>>>>> 
>>>>>>>>> +16468769923,,2159880888# (New York)
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> 4. Using a standard telephone, dial 646-876-9923,
>>>>>>>>> 
>>>>>>>>> and then enter our meeting ID when prompted: 215 988 0888.
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> Recordings of our training events can be found at the following web page:
>>>>>>>>> 
>>>>>>>>> http://nfbp.org/archive
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> Joseph Drenth
>>>>>>>>> 
>>>>>>>>> First Vice-President, National Federation of the Blind of Pennsylvania
>>>>>>>>> 
>>>>>>>>> Pennsylvania State Board of Vocational Rehabilitation
>>>>>>>>> 
>>>>>>>>> Senior R&D Software Engineer, JBT Corporation, Automated Systems Division
>>>>>>>>> 
>>>>>>>>> Cell: 215-827-7787
>>>>>>>>> 
>>>>>>>>> Email: joe.drenth at gmail.com
>>>>>>>>> 
>>>>>>>>>  
>>>>>>>>> 
>>>>>>>>> _______________________________________________
>>>>>>>>> NFBP-Talk mailing list
>>>>>>>>> NFBP-Talk at nfbnet.org
>>>>>>>>> http://nfbnet.org/mailman/listinfo/nfbp-talk_nfbnet.org
>>>>>>>>> To unsubscribe, change your list options or get your account info for NFBP-Talk:
>>>>>>>>> http://nfbnet.org/mailman/options/nfbp-talk_nfbnet.org/westbchris%40gmail.com
>>>>>>>>> _______________________________________________
>>>>>>>>> NFB-DB mailing list
>>>>>>>>> NFB-DB at nfbnet.org
>>>>>>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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