[NFB-DB] New Member from VA

[Rox Homstad]

Hello Tony May,
I'm Rox and I have been basically full deafblind for 15 years. But before that I had the same situation as you. Lots of ear ringing, sometimes I could hear and other times I couldn't, plus vertigo/dizziness to the point where I needed to get physical therapy multiple times a week to get assistance with relearning how to walk and complete activities of daily living. In around 2006 I lost all of my hearing and it has never come back after an event which basically caused my immune system to attack itself. The doctors say I have Ménière's disease.  I started using a braille display and learned American Sign Language when it was clear to me that I would probably lose all of my hearing. Please let me know if you have questions and I hope you find the support you need on the list!
Have a great night. 
Best,


Rox'E and the Kitchen Bitches
Soleil, Rowan, Phoenix
pawpower4me at gmail.com

> On May 12, 2021, at 5:32 AM, kg 6sxy (kg6sxy) via NFB-DB <nfb-db at nfbnet.org> wrote:
> 
> Hello everyone,
> 
> I've recently joined the DeadBlind division and as a Member-at-Large since I live in a remote area without easy access to any local meetings.  I also found out recently that the DeafBlind division and the Charlottesville chapter in VA have gone dormant.
> 
> I've been blind since July 2019 and I've suffered with tinnitus since I was very young that often leaves me completely deaf for hours to days at a time.  Coupled with migraines and a serious case of annoying vertigo the never seem to go away, it makes mobility very challenging, especially on days that I can't hear anything.
> 
> Are there any other DeafBlind members that are only temporarily deaf like I am?  If so, how do you deal with mobility?
> 
> Take care,  
> Tony May
> 
> 
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