[NFB-DB] Fwd: Now Hiring - Please Share

Tue Mar 15 21:34:11 UTC 2022

I'm curious what some of you mean by a hard of hearing deafblind culture? I
am definitely deafblind, I use a cochlear implant and a hearing aid, but
never considered myself part of a distinct culture. I certainly have
challenges like in background noise, etc. but use speech to communicate. I
live in Pennsylvania also, but I'm taking more of a wait and see approach.
Deafstone is just getting started having just been awarded the contract
fully. It may not be ideal, but if they make good hires, I think it could
work. Just because someone is fluent in ASL doesn't mean that they can't
understand and serve the needs of the hard of hearing, which should be
easier to serve as they probably use speech primarily. Just my two cents.

On Tue, Mar 15, 2022 at 4:44 PM Tracie Inman via NFB-DB <nfb-db at nfbnet.org>
wrote:

> Hello:
>  Please remove the hyphen between the words "Deaf" and "Blind". We no
> longer use it. We are DeafBlind. A couple of thoughts on your statements
> come to mind. First, I am a bit offended by your statement of "bringing
> baggage from my former life" when I became DeafBlind. For me, I was much
> too young to remember life before becoming DeafBlind, so how could I have
> "baggage"? One does not carry "baggage" into a disability. Maybe that is
> your perception, but it is not mine.
>   PT (ProTactile) is itself now a language of the DeafBlind. It is a
> language unique to the DeafBlind. None of the concepts of PT are "borrowed"
> from either the ASL or the English languages. It is a language of tactile
> communication providing visual and auditory information to the DeafBlind.
>   That said, we have not two, not three, but four languages. TASL (Tactile
> ASL) must also be counted.
>   The DeafBlind world is a "melting pot" of culture, language, and
> lifestyles unique only to our community. Joe Naulty once explained it this
> way: (We love you Joe and your unique perceptions are so awesome!) "The
> DeafBlind community is like a pretzel: there are many parts in the whole
> pretzel"
>   The challenge we face is full inclusion and integration in our
> communities.  We have so many barriers to overcome.  We are, in so many
> ways, a "forgotten" minority.  We face so many isolations and obstacles.
> Yet, when we come together we are joyful. We can "touch" each other in a
> positive way to communicate directly with one another in a language that is
> ours.
>   I believe with all my heart that our community is special. We are
> unique. We have a lot to give back to society. We show people, and the
> world around us, that we, too, can live the life we want - with joy, love,
> and peace - together through touch, through total communication, and
> through peer support.
>
> Kind regards,
> Tracie
>
> On Tue, Mar 15, 2022 at 4:03 PM Rod and Ele Macdonald via NFB-DB <
> nfb-db at nfbnet.org> wrote:
>
>> Hello Scott,
>>
>> The situation is not likely to improve much until someone who actually
>> wants "the job" challenges the discriminatory practice.
>>
>> The underlying issue is that blind people regard themselves to be part of
>> a community, while Deaf people regard themselves to be part of a culture.
>> There is a big difference. When a blind person or a Deaf person "becomes"
>> deaf-blind, that person brings baggage from their "former life" into a new
>> identity.
>>
>> I wrote a paper in 1989 entitled, "Deaf-Blindness: An Emerging Culture?"
>> That paper introduced the "possibility" that a culture unique to deaf-blind
>> people exists, or at least was in the process of developing. "Deaf-Blind
>> Culture" was a controversial topic back then, but it is a cherished belief
>> among many now. The question is - is there a comprehensive culture of
>> deaf-blind people?
>>
>> I know of no other culture that has TWO languages - and both English and
>> ASL are not "ours" but are borrowed from hearing people and Deaf people,
>> and that does not even take PT into account. We do not even have a unified
>> means of receiving and expresssing our language, even assuming we came from
>> one sid3e or the other. Braille can be a "natural" means of accessing
>> written information, but ASL does not have a written component and those
>> who grew up relying on visual ASL find it hard to learn or feel comfortable
>> with braille.
>>
>> I think that at some point we - us, not professionals who serve our group
>> - need to decide: do we embrace the concept of an umbrella culture we all
>> belong to, a culture with two languages and many, often competing needs? Or
>> are we to go for two separate groups based opon language needs?
>>
>> I am wholeheartedly in favor of the "umbrella". I think we are too small
>> a group to divide into sub-groups. I think we share toomuchtogether to
>> focus on how we are different.
>>
>> One can be blind and become deaf, and one can be deaf and become blind.
>> The new person ... physically there is no difference, but culturally? The
>> baggage from our "former" life will dictate our outlook, needs and our
>> approach. I am all for an identity that embraces who we have become, and
>> not who we once were.
>>
>> Rod
>>
>> ----- Original Message -----
>> From: Scott Davert via NFB-DB  <nfb-db at nfbnet.org>
>> To:  nfb-db at nfbnet.org
>> CC: scottdavert at gmail.com
>> Date: Tuesday, March 15, 2022 8:08 am
>> Subject: Re: [NFB-DB] Fwd: Now Hiring - Please Share
>>
>> >
>> >
>> > Hi Rod.
>> > It's very concerning. Unless PA has another form of service delivery
>> > for those who are "ASL illiterate?" I find the entire thing sad and
>> > agree 100% with your views on this subject. This is a sad example of
>> > how far we have not progressed.
>> >
>> > Scott
>> >
>> > On 3/14/22, Rod and Ele Macdonald via NFB-DB <nfb-db at nfbnet.org> wrote:
>> > Scott,
>> >
>> > You are spot-on in my opinion.
>> >
>> > The deaf-blind "culture" - I introduced this concept over 30 years ago
>> and
>> > still believe in it - is the only culture I know of with TWO languages,
>> > neither of which is "ours". (We borrow English from hearing people and
>> ASL
>> > from Deaf people, then try to adapt as best we can.) I believe that any
>> > person who is (1) blind, has low vision, or has tunnel vision AND (2) is
>> > deaf or hard-of-hearing, is a deaf-blind person, and any attempt to
>> provide
>> > services to this group should take into account the needs of the entire
>> > population to be served.
>> >
>> > I would presumably be a consumer of such services if I lived in the
>> service
>> > area, but I neither use ASL nor have usable hearing: What should the
>> hiring
>> > authority put in the job description such that my communication needs
>> are
>> > "covered"?
>> >
>> > It is a challenge, but an issue that should be challenged.
>> >
>> > Rod
>> >
>> > ----- Original Message -----
>> > From: Scott Davert via NFB-DB  <nfb-db at nfbnet.org>
>> > To:  nfb-db at nfbnet.org
>> > CC: scottdavert at gmail.com
>> > Date: Monday, March 14, 2022 12:52 pm
>> > Subject: [NFB-DB] Fwd: Now Hiring - Please Share
>> >
>> >>
>> >>
>> >>
>> >>
>> >> Passing along. I noticed there is no mention of the requirement
>> forhard of
>> >> hearing culture and that ASL fluency is required. I guess they only
>> want a
>> >> someone who is DEAF STRONG for this. Maybe my impression is off? I'm
>> >> passing this along as FYI...
>> >>
>> >> Scott
>> >>
>> >> Sent from my iPhone
>> >>
>> >> Begin forwarded message:
>> >>
>> >> From: Richard <prmcgann at comcast.net>
>> >> Date: March 14, 2022 at 10:47:04 EDT
>> >> To: NADBAmericans at groups.io, aadb-l at googlegroups.com, "Professionals
>> >> Serving DeafBlind Consumers (PSDBC)" <psdbc at googlegroups.com>
>> >> Subject: [AADB-L] Fwd: Now Hiring - Please Share
>> >> Reply-To: aadb-l at googlegroups.com
>> >>
>> >> ?
>> >> to all,
>> >>
>> >>
>> >>
>> >> passing around.
>> >>
>> >>
>> >>
>> >> -------- Forwarded Message --------
>> >> Subject:     Now Hiring - Please Share
>> >> Date:        Mon, 14 Mar 2022 10:39:02 -0400
>> >> From:        SSP Program <ssp at deafstone.org>
>> >> To:  SSP Program <ssp at deafstone.org>
>> >>
>> >>
>> >> Hello!
>> >>
>> >> Please share the following open positions:
>> >>
>> >> * Director of DeafBlind Services - West PA
>> >> * Director of DeafBlind Services - East PA
>> >> * SSP Coordinator - East PA
>> >>
>> >> Job descriptions attached in Word and PDF documents.
>> >>
>> >> Thank you,
>> >> Jessica K Adams, CI & CT
>> >> COO
>> >> Email: JAdams at DeafStone.org
>> >> Phone/Text/FaceTime: 412-616-0400
>> >> Pronouns: She/Her/Hers
>> >>
>> >> www.DeafStone.org
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>
>
> --
> *Tracie Inman*
>
>
>
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