[Nfb-greeley] Fw: Thanks For Your Support

[Melissa Green]

Dear <Name>, president of <Chapter>,If interested take the survey.
Thank you.


Have a blessed and wonderful day.
Blessings!
Sincerely,
Melissa and Pj Green
Failure is not fatal, but failure to change might be

----- Original Message ----- 
From: Annie Gallagher 
To: graduate56 at juno.com 
Sent: Monday, December 05, 2011 8:06 AM
Subject: Thanks For Your Support


Dear Melissa Green, President of NFB of Colorado Greeley Chapter,

 

NFB National has recently sent out information about an article on Improving Sleep and Alertness in the Blind recently published in the Matilda Ziegler Magazine for the Blind. A little over a year ago, we launched a clinical study to evaluate a potential treatment for Non-24-Hour Sleep-Wake Disorder.  Non-24 is a chronic sleep disorder that affects approximately 50% of individuals who are totally blind. Their inability to perceive light causes a severe disruption of the 24-hour sleep-wake pattern causing cyclical bouts of nighttime sleeplessness and excessive daytime fatigue and napping. The disorder can make it extremely difficult to do well in school, hold down a job or have satisfying relationships. Non-24 has been called an "invisible disability," and can go undiagnosed for years.  

 

Recently, our 24SleepWake website has launched an exclusive new audio series, "Meet the Experts: Sleep Disorders in the Blind." This 3 part series features interviews with leading sleep experts and covers all aspects of Non-24-Hour Sleep-Wake Disorder, including its impact on the blind community. The two that have been released are linked below.

http://www.24sleepwake.com//en/index.php/news_info/exclusive_audio_series/

 

http://www.24sleepwake.com//en/index.php/news_info/exclusive_audio_series1/

 

The enrollment deadline for our clinical research study is forthcoming. Without enough patients in the study, it will be difficult to develop a treatment for this severe condition. Vanda appreciates any assistance you can give in spreading awareness about Non-24. For every person who completes our sleep survey, Vanda will donate $25. Thus far, we have been able to donate more than $ 8,000 to the NFB national and local NFB chapters. See below the announcement about this survey and our study.

 

 

Sincerely,

Annie Gallagher

Outreach Specialist

Vanda Pharmaceuticals Inc.

(240) 599-4524

Annie.gallagher at vandapharma.com 

 

For more information on Non-24 visit www.24sleepwake.com, follow us on Twitter @24SleepWake or "Like" us on Facebook!

 

 

 

 

 

 

Announcement:

Do you ever feel like your sleep patterns are different than the rest of the world? If you are totally blind, this could be due to a real sleep problem related to the lack of light needed by your body's internal clock.  If you think you might be affected, you can call 1-888-389-7033 or email info at non24registry.com to take a sleep survey or to learn more about an ongoing clinical research study, or go to www.non24registry.com

 
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