[Nfb-krafters-korner] O T, question to other caregivers

[Susan Roe]

I am glad your husband is where the both of you want him to be.  My aunt was 
in a rehab/care facility before her insurance said her time had run out. 
There was no way we could aford $3,000 to $4,000 a month for such care, so 
we opted to bring her home to my sister's house next door for hospis.  She 
only lived 4 days and passed away early Palm Sunday morning.

I think both you and your husband will be more satisfied together.  Pain 
management is hard enough to deal with and it is easier on everyone where 
you are most comfortable.

You and your husband will be in my thoughts and prayers.
Love,
Susan
dogwoodfarm at verizon.net
----- Original Message ----- 
From: "Henrietta Brewer" <gary.brewer at comcast.net>
To: "List for blind crafters and artists" <nfb-krafters-korner at nfbnet.org>
Sent: Tuesday, May 10, 2011 6:49 PM
Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers


> Hi Annette and all
>
> I appreciate all of the messages about the pic line. I am glad to let you 
> know that Dan's lung doctor suggested some meds by mouth that seem to be 
> working well.
>
> The hospital did recommend that Dan go to an extended care home. We did 
> not agree and after a few times that I had to be called because no one 
> knew how to manage his breathing equiptment, I told them not to mention it 
> again. If I am managing his care from here, he will be here and they can 
> come to care for him.
>
> He is home and true to their word, they are in and out of here like I had 
> swinging doors. But he is coming along. His compression Fracture is the 
> main reason he is having trouble. The pain keeps him from breathing well. 
> With his limited ability to breathe we don't need this fracture. but we 
> have it so we are working on ways to help him.
>
> This group is amazing. There is always someone with experiences and 
> suggestions for any problem.  Thank you all for being here for each other.
>
> On May 5, 2011, at 9:12 PM, Annette Carr wrote:
>
>> A few years ago my husband came home with a PIC line for administrating
>> antibiotics.  We could not find a way for me to manage it.  It required 
>> that
>> you visually inspect the line to ensure that all of the bubbles were out
>> before connecting to his port.  Our insurance allowed for 2 visits the 
>> first
>> day at home to teach me to manage the PIC line.  The second nurse noticed
>> that he had an infection at the Port site and sent us back to the 
>> hospital.
>> Neither my husband nor the first nurse knew that he had the infection. 
>> When
>> he told her about the pain he was experiencing, she told him it was from 
>> the
>> procedure of putting in the port.  So not only was I unable to manage the
>> PIC Line, but I would have never been able to detect the infection. 
>> After
>> his second release from the hospital, he was admitted to a nursing home 
>> for
>> three weeks to finish the course of IV antibiotics.  This was only my
>> experience, so I am not saying that someone who is blind cannot manage a 
>> PIC
>> Line.
>>
>> Annette
>>
>>
>> -----Original Message-----
>> From: nfb-krafters-korner-bounces at nfbnet.org
>> [mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Carol Osmar
>> Sent: Thursday, May 05, 2011 9:05 AM
>> To: List for blind crafters and artists
>> Subject: [Nfb-krafters-korner] O T, question to other caregivers
>>
>> Hello all,
>> My sister Henrietta, asked me to inquire if any other blind caregiver has
>> used a PIC line and done an infusion.
>>
>> Her husband Dan is in the hospital  and may be sent home with a PIC line.
>> Since she is responsible for all his care she is concerned about
>> being able to    safely care for it.
>>
>> If any of you have had experience with this please let her know.
>> Also please keep Dan in your prayers.
>>
>> Carol
>>
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>
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