[Nfb-krafters-korner] O T, question to other caregivers

Powers, Terry (NIH/OD/DEAS) [E] Terry.Powers at nih.gov
Wed May 11 12:06:54 UTC 2011


Henrietta;
We all wish you well in caring for your husband.  We have faith that you will do a good job.  A sick person is always best in their home, with those who love them.  We took care of my grandmother for many years instead of putting her in a nursing home. Thanks to me, we turned our dining room into a bedroom for her, so she would be with the family and not be alone, upstairs, by herself.  

Terry P.
  

-----Original Message-----
From: Henrietta Brewer [mailto:gary.brewer at comcast.net] 
Sent: Tuesday, May 10, 2011 8:49 PM
To: List for blind crafters and artists
Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers

Hi Annette and all

I appreciate all of the messages about the pic line. I am glad to let you know that Dan's lung doctor suggested some meds by mouth that seem to be working well.

The hospital did recommend that Dan go to an extended care home. We did not agree and after a few times that I had to be called because no one knew how to manage his breathing equiptment, I told them not to mention it again. If I am managing his care from here, he will be here and they can come to care for him. 

He is home and true to their word, they are in and out of here like I had swinging doors. But he is coming along. His compression Fracture is the main reason he is having trouble. The pain keeps him from breathing well.  With his limited ability to breathe we don't need this fracture. but we have it so we are working on ways to help him.

This group is amazing. There is always someone with experiences and suggestions for any problem.  Thank you all for being here for each other.

On May 5, 2011, at 9:12 PM, Annette Carr wrote:

> A few years ago my husband came home with a PIC line for 
> administrating antibiotics.  We could not find a way for me to manage 
> it.  It required that you visually inspect the line to ensure that all 
> of the bubbles were out before connecting to his port.  Our insurance 
> allowed for 2 visits the first day at home to teach me to manage the 
> PIC line.  The second nurse noticed that he had an infection at the Port site and sent us back to the hospital.
> Neither my husband nor the first nurse knew that he had the infection.  
> When he told her about the pain he was experiencing, she told him it 
> was from the procedure of putting in the port.  So not only was I 
> unable to manage the PIC Line, but I would have never been able to 
> detect the infection.  After his second release from the hospital, he 
> was admitted to a nursing home for three weeks to finish the course of 
> IV antibiotics.  This was only my experience, so I am not saying that 
> someone who is blind cannot manage a PIC Line.
> 
> Annette
> 
> 
> -----Original Message-----
> From: nfb-krafters-korner-bounces at nfbnet.org
> [mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Carol 
> Osmar
> Sent: Thursday, May 05, 2011 9:05 AM
> To: List for blind crafters and artists
> Subject: [Nfb-krafters-korner] O T, question to other caregivers
> 
> Hello all,
> My sister Henrietta, asked me to inquire if any other blind caregiver 
> has used a PIC line and done an infusion.
> 
> Her husband Dan is in the hospital  and may be sent home with a PIC line.
> Since she is responsible for all his care she is concerned about  
> being able to    safely care for it.
> 
> If any of you have had experience with this please let her know.  
> Also please keep Dan in your prayers.
> 
> Carol
> 
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