[Nfb-krafters-korner] O T, question to other caregivers

Becky Frankeberger b.butterfly at comcast.net
Fri May 13 15:04:29 UTC 2011 

Or the speech we use can help your husband communicate with you and others.

I love brainstorming.  Include me, please?

Do you both know morris code?

There is a program that types out phrases.  Your husband would just type a
few letters and the phrase pops up for you to hear. Might be worth a netbook
with your speech loaded on it for him to use. Oh or if you have a laptop,
note taker something like that.  

Building words using magnet letters, if typing is a problem.

Oh the NFB store has these cute Braille block things.  You push the bumps up
and down to form words, if he knows some Braiulle.

Warmest hugs,

Becky and guide dog Jake     

   

-----Original Message-----
From: nfb-krafters-korner-bounces at nfbnet.org
[mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Annette Carr
Sent: Thursday, May 12, 2011 7:51 PM
To: 'List for blind crafters and artists'
Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers

Henrietta,

Maybe you and your husband can come up with some type of signal or sign that
he can use if he is experiencing discomfort.  This would allow you to relax
and not have to be guessing.  The sign could be as simple as your husband
tapping his toe twice or using his hand to tap you twice on whatever body
part he can reach.  

Do you have a need to communicate for other reasons while he is connected to
this equipment.  If so, you could come up with an alternative  communication
system that would be used only during this time.  This might be a sheet of
paper with key words listed in print with the braille above them.  Your
husband would point to the print word and you would read the braille word
above his finger.  Another idea would be a set of index cards with entire
messages written out in print and braille.  The index cards would be kept on
a ring or loop of yarn to keep them together.  Your husband would flip to
the message that represents what he wants to say and you would read the
braille.  

These are just ideas off of the top of my head.  If you give me more
specific info off line, I can help you develop a system that better meets
your needs.

Keep up the good work, and we will all keep you in our thoughts and prayers.

Annette

-----Original Message-----
From: nfb-krafters-korner-bounces at nfbnet.org
[mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Henrietta
Brewer
Sent: Thursday, May 12, 2011 4:29 PM
To: List for blind crafters and artists
Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers

Hi Susan,
Well, another day and another full list of medical visitors.  But with the
help of our son we have ordered some awesome equiptment. If anyone is
interested, there is a site 

www.stander.com

They have lots of things. I haven't totally checked it out but looks like i
could enjoy some of the things my son read to me.  

There is always a chance to learn from events like this.  My Husband and I
are learning to deal with each others panic modes without paniccing
ourselves.  When he seems upset, especially when he is on equiptment that
doesn't allow him to speak, I get panicced that I am doing something wrong.
I have learned to whistle to myself in these times and then he laughs.  Sure
does help. lol

Henrietta
On May 11, 2011, at 11:28 PM, Susan Roe wrote:

> Hi Henrietta,
> 
> I say talk away my dear, because then I know someone has been listening.
LOL!
> 
> I know all about those short notice visits.  I didn't mind them at my 
> sister's house because we both had tourn the house apart for a week 
> before my aunt came to stay in order to accomidate the hospital bed 
> and her oxygen generator.  The visits to their house were quite 
> another thing.  It was simply unfit, no way around it.  That is why I 
> put my foot down and told them she was not going back there.  I 
> couldn't make my uncle leave before hand, though after my aunt passed 
> and he was already in the hospital for gout and an infection in his 
> hand, his doctor and I were calling the shots and he was then 
> transfered to a rehab facility to strengthen his legs enough to use a 
> walker.  Now when he leaves there, he will go and live with my sister 
> next door.  Because of his dementia, he can't be left alone.  I also 
> have control of his truck keys and he won't be sneeking down to the 
> feed store to buy cat or horse feed when no one is looking.  He turns 
> 87 in August and I sware he's gonna live
 longer than any of us or drive us crazy in the process!
> 
> Susan
> dogwoodfarm at verizon.net
> ----- Original Message ----- From: "Henrietta Brewer" 
> <gary.brewer at comcast.net>
> To: "List for blind crafters and artists" 
> <nfb-krafters-korner at nfbnet.org>
> Sent: Wednesday, May 11, 2011 3:48 PM
> Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers
> 
> 
>> Hi Susan.
>> 
>> You know, I am a caregiver at heart. I love my house and often I am in a
cleaning mode.  So this is where I want to be.
>> 
>> It is a good thing I am in clean mode, People are in and out of here 
>> all day. They don't only check on him but need to see my toilet and 
>> our bed. Sure glad i had cleaned up the bathroom this morning and 
>> made the bed and put the load of laundry away. They came with about 
>> fifteen minutes notice today. lol
>> 
>> But, again, I thank all of you for the thoughts and prayers. We are so
grateful for the good friends here at Krafter's Korner.  Dan feels like he
knows all  of you by name. Yes, if that is gossip, I am guilty. I am always
telling him about the things my Krafter friends are doing.
>> 
>> Well, I think little miss homemaker is late with dinner.
>> Henrietta
>> On May 10, 2011, at 10:44 PM, Susan Roe wrote:
>> 
>>> I am glad your husband is where the both of you want him to be.  My aunt
was in a rehab/care facility before her insurance said her time had run out.
There was no way we could aford $3,000 to $4,000 a month for such care, so
we opted to bring her home to my sister's house next door for hospis.  She
only lived 4 days and passed away early Palm Sunday morning.
>>> 
>>> I think both you and your husband will be more satisfied together.  Pain
management is hard enough to deal with and it is easier on everyone where
you are most comfortable.
>>> 
>>> You and your husband will be in my thoughts and prayers.
>>> Love,
>>> Susan
>>> dogwoodfarm at verizon.net
>>> ----- Original Message ----- From: "Henrietta Brewer" 
>>> <gary.brewer at comcast.net>
>>> To: "List for blind crafters and artists" 
>>> <nfb-krafters-korner at nfbnet.org>
>>> Sent: Tuesday, May 10, 2011 6:49 PM
>>> Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers
>>> 
>>> 
>>>> Hi Annette and all
>>>> 
>>>> I appreciate all of the messages about the pic line. I am glad to let
you know that Dan's lung doctor suggested some meds by mouth that seem to be
working well.
>>>> 
>>>> The hospital did recommend that Dan go to an extended care home. We did
not agree and after a few times that I had to be called because no one knew
how to manage his breathing equiptment, I told them not to mention it again.
If I am managing his care from here, he will be here and they can come to
care for him.
>>>> 
>>>> He is home and true to their word, they are in and out of here like I
had swinging doors. But he is coming along. His compression Fracture is the
main reason he is having trouble. The pain keeps him from breathing well.
With his limited ability to breathe we don't need this fracture. but we have
it so we are working on ways to help him.
>>>> 
>>>> This group is amazing. There is always someone with experiences and
suggestions for any problem.  Thank you all for being here for each other.
>>>> 
>>>> On May 5, 2011, at 9:12 PM, Annette Carr wrote:
>>>> 
>>>>> A few years ago my husband came home with a PIC line for 
>>>>> administrating antibiotics.  We could not find a way for me to 
>>>>> manage it.  It required that you visually inspect the line to 
>>>>> ensure that all of the bubbles were out before connecting to his 
>>>>> port.  Our insurance allowed for 2 visits the first day at home to 
>>>>> teach me to manage the PIC line.  The second nurse noticed that he had
an infection at the Port site and sent us back to the hospital.
>>>>> Neither my husband nor the first nurse knew that he had the 
>>>>> infection. When he told her about the pain he was experiencing, 
>>>>> she told him it was from the procedure of putting in the port.  So 
>>>>> not only was I unable to manage the PIC Line, but I would have 
>>>>> never been able to detect the infection. After his second release 
>>>>> from the hospital, he was admitted to a nursing home for three 
>>>>> weeks to finish the course of IV antibiotics.  This was only my 
>>>>> experience, so I am not saying that someone who is blind cannot manage
a PIC Line.
>>>>> 
>>>>> Annette
>>>>> 
>>>>> 
>>>>> -----Original Message-----
>>>>> From: nfb-krafters-korner-bounces at nfbnet.org
>>>>> [mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Carol 
>>>>> Osmar
>>>>> Sent: Thursday, May 05, 2011 9:05 AM
>>>>> To: List for blind crafters and artists
>>>>> Subject: [Nfb-krafters-korner] O T, question to other caregivers
>>>>> 
>>>>> Hello all,
>>>>> My sister Henrietta, asked me to inquire if any other blind 
>>>>> caregiver has used a PIC line and done an infusion.
>>>>> 
>>>>> Her husband Dan is in the hospital  and may be sent home with a PIC
line.
>>>>> Since she is responsible for all his care she is concerned about
>>>>> being able to    safely care for it.
>>>>> 
>>>>> If any of you have had experience with this please let her know.
>>>>> Also please keep Dan in your prayers.
>>>>> 
>>>>> Carol
>>>>> 
>>>>> _______________________________________________
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>>>>> 
>>>>> _______________________________________________
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>>>> 
>>>> 
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>> 
>> 
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> 
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