[Nfb-krafters-korner] Fwd: A Note of Appreciation

[Blindhands at aol.com]

For your information.  I went thru the questionaire and they did not  keep 
the location near me openand I did not want to travel too far.
 
Joyce  Kane
_www.KraftersKorner.org_ (http://www.krafterskorner.org/) 
Blindhands at AOL.com   

 
  
____________________________________
 From: outreachbox at vandapharma.com
To: blindhands at aol.com
Sent: 9/7/2011  9:45:29 A.M. Eastern Daylight Time
Subj: A Note of Appreciation



September 7, 2011 
Dear Joyce  Kane, 
On behalf of Vanda and all of  those who suffer from Non-24-Hour Sleep-Wake 
Disorder (N24HSWD or Non-24) we  thank you for participating in our sleep 
survey. Because of your participation  we have so far donated more than 
$23,000 to various national and local  organizations that support individuals 
with blindness. We wish to especially  thank those individuals who have 
expressed interest in our ongoing clinical  study.  
The deadline to enroll patients  is approaching and we are writing to you 
now because we want your help to  spread the word about this very important 
research among your friends and  colleagues who may be interested.  Our 
research is taking place at 25  locations in the US, and in  France and Germany. 
However, without enough  participants, it will be challenging to develop a 
treatment for Non-24.   
If you know of anyone who may be  interested in our research, please refer 
them to 1-888-389-7033. As a  reminder, we have set up a registry and a 
survey that are available by phone  and on the web. Below is the announcement of 
our study with phone, email and  web contact information and eligibility 
criteria.   
Your efforts are sincerely  appreciated. Thank you for your ongoing 
support.    
Sincerely, 
The Vanda Outreach  Team 
P.S. A screen-reader friendly  website (_www.24sleepwake.com_ 
(http://www.24sleepwake.com/) ) dedicated to  Non-24 is now available. This site contains 
News and  Information, FAQs, and a forum to share your experience with  
Non-24. 

Announcement: 
Do you ever  feel like your sleep patterns are different than the rest of 
the world?   Do you sometimes feel the unwanted urge or need to fall asleep 
during the day  time when you need to be awake?  Do you also find that you 
feel just too  wide awake to fall or stay asleep during the night time?  If 
you are  blind, this could be due to a real sleep problem related to the lack 
of light  needed to keep your body's internal clock in sync with the day and 
night  cycle.  If you or someone you know might be affected, please call  
1-888-389-7033 or email _info at non24registry.com_ 
(mailto:info at non24registry.com)  to learn about  an ongoing clinical research study that is evaluating a 
new investigational  treatment for this type of sleep problem. When calling 
or online at  _www.non24registry.com_ (http://www.non24registry.com/) , you 
can also  complete a short sleep survey.  For each completed survey, $25 
will be  donated to an organization that supports individuals with blindness. 
You may  be eligible to participate in the clinical trial if you are between 
18 and 75  years of age and are totally blind. Volunteers will be 
compensated for their  participation in the clinical study and will receive study 
related medication,  medical evaluations, and transportation at no cost.   

We  respect your privacy. 
If  you no longer wish to receive promotional email from Vanda 
Pharmaceuticals,  please send an email to _unsubscribe at vandapharmaceuticals.com_ 
(mailto:unsubscribe at vandapharmaceuticals.com)   to let us know.  Thank you.