[Nfb-krafters-korner] Fwd: A Note of Appreciation

[Denise Shaible]

Joyce,

It's interesting that you should mention this.  My husband Adam is currently 
participating in the study and it is very involved.  He had to stop the 
urine testing for a while because he got bronchitis and had to take 
medications.  they don't want any meds in your system which would compromize 
the testing.  He's back in it now and I'm sure it will be successful for 
him.  I was not a candidate because I have light perception and have been 
diagnosed with sleep apnea.  Anyway, I'm sure some of the KK members would 
benefit from this study.

Regards,

Denise

-----Original Message----- 
From: Blindhands at aol.com
Sent: Wednesday, September 07, 2011 7:17 AM
To: nfb-krafters-korner at nfbnet.org
Subject: [Nfb-krafters-korner] Fwd: A Note of Appreciation

For your information.  I went thru the questionaire and they did not  keep
the location near me openand I did not want to travel too far.

Joyce  Kane
_www.KraftersKorner.org_ (http://www.krafterskorner.org/)
Blindhands at AOL.com



____________________________________
From: outreachbox at vandapharma.com
To: blindhands at aol.com
Sent: 9/7/2011  9:45:29 A.M. Eastern Daylight Time
Subj: A Note of Appreciation



September 7, 2011
Dear Joyce  Kane,
On behalf of Vanda and all of  those who suffer from Non-24-Hour Sleep-Wake
Disorder (N24HSWD or Non-24) we  thank you for participating in our sleep
survey. Because of your participation  we have so far donated more than
$23,000 to various national and local  organizations that support 
individuals
with blindness. We wish to especially  thank those individuals who have
expressed interest in our ongoing clinical  study.
The deadline to enroll patients  is approaching and we are writing to you
now because we want your help to  spread the word about this very important
research among your friends and  colleagues who may be interested.  Our
research is taking place at 25  locations in the US, and in  France and 
Germany.
However, without enough  participants, it will be challenging to develop a
treatment for Non-24.
If you know of anyone who may be  interested in our research, please refer
them to 1-888-389-7033. As a  reminder, we have set up a registry and a
survey that are available by phone  and on the web. Below is the 
announcement of
our study with phone, email and  web contact information and eligibility
criteria.
Your efforts are sincerely  appreciated. Thank you for your ongoing
support.
Sincerely,
The Vanda Outreach  Team
P.S. A screen-reader friendly  website (_www.24sleepwake.com_
(http://www.24sleepwake.com/) ) dedicated to  Non-24 is now available. This 
site contains
News and  Information, FAQs, and a forum to share your experience with
Non-24.

Announcement:
Do you ever  feel like your sleep patterns are different than the rest of
the world?   Do you sometimes feel the unwanted urge or need to fall asleep
during the day  time when you need to be awake?  Do you also find that you
feel just too  wide awake to fall or stay asleep during the night time?  If
you are  blind, this could be due to a real sleep problem related to the 
lack
of light  needed to keep your body's internal clock in sync with the day and
night  cycle.  If you or someone you know might be affected, please call
1-888-389-7033 or email _info at non24registry.com_
(mailto:info at non24registry.com)  to learn about  an ongoing clinical 
research study that is evaluating a
new investigational  treatment for this type of sleep problem. When calling
or online at  _www.non24registry.com_ (http://www.non24registry.com/) , you
can also  complete a short sleep survey.  For each completed survey, $25
will be  donated to an organization that supports individuals with 
blindness.
You may  be eligible to participate in the clinical trial if you are between
18 and 75  years of age and are totally blind. Volunteers will be
compensated for their  participation in the clinical study and will receive 
study
related medication,  medical evaluations, and transportation at no cost.

We  respect your privacy.
If  you no longer wish to receive promotional email from Vanda
Pharmaceuticals,  please send an email to 
_unsubscribe at vandapharmaceuticals.com_
(mailto:unsubscribe at vandapharmaceuticals.com)   to let us know.  Thank you.



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