[Nfb-krafters-korner] Fwd: A Note of Appreciation
Denise Shaible
denise.shaible at att.net
Thu Sep 8 18:17:20 UTC 2011
Joyce,
It's interesting that you should mention this. My husband Adam is currently
participating in the study and it is very involved. He had to stop the
urine testing for a while because he got bronchitis and had to take
medications. they don't want any meds in your system which would compromize
the testing. He's back in it now and I'm sure it will be successful for
him. I was not a candidate because I have light perception and have been
diagnosed with sleep apnea. Anyway, I'm sure some of the KK members would
benefit from this study.
Regards,
Denise
-----Original Message-----
From: Blindhands at aol.com
Sent: Wednesday, September 07, 2011 7:17 AM
To: nfb-krafters-korner at nfbnet.org
Subject: [Nfb-krafters-korner] Fwd: A Note of Appreciation
For your information. I went thru the questionaire and they did not keep
the location near me openand I did not want to travel too far.
Joyce Kane
_www.KraftersKorner.org_ (http://www.krafterskorner.org/)
Blindhands at AOL.com
____________________________________
From: outreachbox at vandapharma.com
To: blindhands at aol.com
Sent: 9/7/2011 9:45:29 A.M. Eastern Daylight Time
Subj: A Note of Appreciation
September 7, 2011
Dear Joyce Kane,
On behalf of Vanda and all of those who suffer from Non-24-Hour Sleep-Wake
Disorder (N24HSWD or Non-24) we thank you for participating in our sleep
survey. Because of your participation we have so far donated more than
$23,000 to various national and local organizations that support
individuals
with blindness. We wish to especially thank those individuals who have
expressed interest in our ongoing clinical study.
The deadline to enroll patients is approaching and we are writing to you
now because we want your help to spread the word about this very important
research among your friends and colleagues who may be interested. Our
research is taking place at 25 locations in the US, and in France and
Germany.
However, without enough participants, it will be challenging to develop a
treatment for Non-24.
If you know of anyone who may be interested in our research, please refer
them to 1-888-389-7033. As a reminder, we have set up a registry and a
survey that are available by phone and on the web. Below is the
announcement of
our study with phone, email and web contact information and eligibility
criteria.
Your efforts are sincerely appreciated. Thank you for your ongoing
support.
Sincerely,
The Vanda Outreach Team
P.S. A screen-reader friendly website (_www.24sleepwake.com_
(http://www.24sleepwake.com/) ) dedicated to Non-24 is now available. This
site contains
News and Information, FAQs, and a forum to share your experience with
Non-24.
Announcement:
Do you ever feel like your sleep patterns are different than the rest of
the world? Do you sometimes feel the unwanted urge or need to fall asleep
during the day time when you need to be awake? Do you also find that you
feel just too wide awake to fall or stay asleep during the night time? If
you are blind, this could be due to a real sleep problem related to the
lack
of light needed to keep your body's internal clock in sync with the day and
night cycle. If you or someone you know might be affected, please call
1-888-389-7033 or email _info at non24registry.com_
(mailto:info at non24registry.com) to learn about an ongoing clinical
research study that is evaluating a
new investigational treatment for this type of sleep problem. When calling
or online at _www.non24registry.com_ (http://www.non24registry.com/) , you
can also complete a short sleep survey. For each completed survey, $25
will be donated to an organization that supports individuals with
blindness.
You may be eligible to participate in the clinical trial if you are between
18 and 75 years of age and are totally blind. Volunteers will be
compensated for their participation in the clinical study and will receive
study
related medication, medical evaluations, and transportation at no cost.
We respect your privacy.
If you no longer wish to receive promotional email from Vanda
Pharmaceuticals, please send an email to
_unsubscribe at vandapharmaceuticals.com_
(mailto:unsubscribe at vandapharmaceuticals.com) to let us know. Thank you.
_______________________________________________
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