[Nfb-krafters-korner] St. Patty's Day

Tue Feb 7 00:05:38 UTC 2012

No that was very interesting, Heather.  I am glad you explained  it.

Joyce  Kane
_www.KraftersKorner.org_ (http://www.krafterskorner.org/) 
Blindhands at AOL.com   

In a message dated 2/6/2012 6:38:19 P.M. Eastern Standard Time,  
hkdawn at yahoo.com writes:

Sorry -  Hermansky-Pudlak Syndrome. It's a type of albinism that also 
involves a  bleeding disorder. Some types also cause Crohn's disease and 
pulmonary  fibrosis - an ultiimately fatal lung disease. The vision issues are due 
to the  lack of pigment in eye development. Our conference tends to be a 
little  different than say, an NFB conference, as we tend to focus more on 
medical  issues. HPS is so very rare that our families can't even always rely on 
their  local docs to know specifics about treatment etc. There are only a 
few docs in  the world that really know much about it. The conference gives 
the families a  chance to learn from them and meet with them to ask questions 
etc.  

Sorry - hope that wasn't too off topic! Grin!  

Heather Kirkwood
Director of Outreach, Vice  President
Hermansky-Pudlak Syndrome Network
One South Road
Oyster  Bay, NY 11771
1 (800) 789-9HPS
www.hpsnetwork.org

Personal  blog: www.heatherkirkwood.blogspot.com

Search the Web at  www.goodsearch.com and choose the HPS Network as your 
charity!  

HPS New York Conference - March 16-18, 2012

--- On  Mon, 2/6/12, Zimmer, Cindy <cindy.zimmer at nebraska.gov>  wrote:

From: Zimmer, Cindy  <cindy.zimmer at nebraska.gov>
Subject: Re: [Nfb-krafters-korner] St.  Patty's Day
To: "List for blind crafters and artists"  <nfb-krafters-korner at nfbnet.org>
Date: Monday, February 6, 2012, 5:06  PM

HPS???

-----Original Message-----
From:  nfb-krafters-korner-bounces at nfbnet.org  
[mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Heather  Kirkwood
Sent: Monday, February 06, 2012 4:57 PM
To: List for blind  crafters and artists
Subject: Re: [Nfb-krafters-korner] St. Patty's  Day

I tried it twice more, and on the second try, it worked! Probably a  
problem on my end. Thanks!!!! 

We have our HPS conference coming  up. Our kids always do a craft project. 
We try to either make it something  that we can give to our researchers as a 
gift, or something that ties into our  banquet dinner. 

This year our banquet dinner is on St. Patty's  Day. If anyone has any 
inexpensive and kid friendly St. Patty's Day project  ideas, I'd LOVE to hear 
them. Grin! 

(PS - kids with HPS  are usually legally blind - thus the tie -in to the 
list)  

Heather Kirkwood
Director of Outreach, Vice  President
Hermansky-Pudlak Syndrome Network
One South Road
Oyster  Bay, NY 11771
1 (800) 789-9HPS
www.hpsnetwork.org

Personal  blog: www.heatherkirkwood.blogspot.com

Search the Web at  www.goodsearch.com and choose the HPS Network as your 
charity!  

HPS New York Conference - March 16-18, 2012

--- On  Mon, 2/6/12, Blindhands at aol.com <Blindhands at aol.com>  wrote:

From: Blindhands at aol.com  <Blindhands at aol.com>
Subject: Re: [Nfb-krafters-korner] A website for  all!
To: nfb-krafters-korner at nfbnet.org
Date: Monday, February 6, 2012,  4:48 PM

Heather,

I did copy and pasted the website  
_http://mysite.mweb.co.za/residents/stephlin/_  
(http://mysite.mweb.co.za/residents/stephlin/) 

Joyce   Kane
So try this  as it did come out as a link before I sent this  email.
_www.KraftersKorner.org_ (http://www.krafterskorner.org/)  
Blindhands at AOL.com 

In a message dated 2/6/2012 5:40:18 P.M.  Eastern Standard Time,  
hkdawn at yahoo.com writes:

I'm   having trouble getting the site to come up. Is it just me? This 
Webpage  cannot  be found is sort of a good discription for my brain today, 
so it  
wouldn't  surprise me. 

Heather Kirkwood
Director of  Outreach, Vice  President
Hermansky-Pudlak Syndrome Network
One  South Road
Oyster  Bay, NY 11771
1 (800)  789-9HPS
www.hpsnetwork.org

Personal  blog:  www.heatherkirkwood.blogspot.com

Search the Web at   www.goodsearch.com and choose the HPS Network as your 
charity!   

HPS New York Conference - March 16-18, 2012

--- On  Mon,  2/6/12, Blindhands at aol.com <Blindhands at aol.com>   wrote:

From: Blindhands at aol.com   <Blindhands at aol.com>
Subject: [Nfb-krafters-korner] A website  for  all!
To: nfb-krafters-korner at nfbnet.org
Date: Monday, February  6, 2012,  4:31 PM

This is Lindey's website.  Check  it  out!

Accessible Arts and Crafts - Paper Crafts for blind and  visually  impaired 

children and   adults
_http://mysite.mweb.co.za/residents/stephlin/_   
(http://mysite.mweb.co.za/residents/stephlin/) 
This  site is  the  home of the Accessible Origami Project, which is part 
of 
an  effort   to make the art of paper folding accessible to  visually 
impaired  
children
and  adults around the world.  Accessible Origami - File  Series - 1 
contains 
text-only   folding instructions for 20 origami  models. These instructions 

are
provided  free of charge and are  aimed at beginners with  no prior 
experience of paper  folding and may  also be used by  teachers and 
instructors who 
would
like to  teach   origami to visually impaired children or adults.
Text-only   instructions  as well as links to find pictures and/or 
graphical  

information are available for  the following easy origami   models
CORNER BOOKMARK; SAILBOAT; CUP; HOUSE;  PARTY HAT; GIFT  BOW;  FORTUNE 
TELLER; TRADITIONAL MASU OR SQUARE BOX;  TRADITIONAL   RECTANGULAR BOX; 
RECTANGULAR  
BOX/TRAY;
EASY ENVELOPE - VARIATION 1  (from a  square); EASY  ENVELOPE - VARIATION 2 
(from a rectangle);  OPEN POUCH OR  PACKET;  CLOSED POUCH OR PACKET; 
DECORATIVE  
DISH;
CROWN;  CUBE OR DICE; SAMURAI HELMET;  MINI FOLDER OR WALLET;  INSIDE-OUT  
SQUARE BOX; BULKY BOWL; HEART (from a square);  SQUARE  BASKET;  POCKET 
CARD. 
... with many more models to be added  in   future!

Joyce   Kane
_www.KraftersKorner.org_  (http://www.krafterskorner.org/)  
Blindhands at AOL.com   
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