[NFB-Maryland] Research Participation Request: Designed with You

David Andrews dandrews920 at comcast.net
Mon Nov 4 23:31:47 UTC 2024



Research Participation Request: Designed with You



The below research participant solicitation is being provided for 
informational purposes only. The National Federation of the Blind has 
no involvement in this research, but we believe that it may 
contribute to our research mission.




Research Title: Designed with You

Being conducted by: Johns Hopkins School of Nursing


Purpose of the Study

This research study is looking to meet with unpaid family 
caregivers/care partners who have physical or sensory disabilities of 
their own. From this research we hope to learn more about this lived 
experience, identify unmet needs and partner with these individuals 
to develop a tailored intervention.


Role of the Participants and Anticipated Length of the Study

Each participant is asked to join a 30 minutes to 2 hour in-person 
interview at the location, date and time of the participants 
choosing. Most interviews are in the home as it is easier for people 
to share about their daily activities of caring for their family 
member. There is a second phase of the study that is IRB approved 
that would include participation in a workshop with other 
participants, former caregivers with disabilities and community 
health partners to identify unmet needs and discuss possible interventions.


Proposed Participant Compensation

Yes, $50 VISA gift card for the interview

$40 VISA gift card for participation in the workshop





Link or Instructions for Participants to Enter the Study

Please reach out to:

Email: <mailto:designedwithyoustudy at gmail.com>designedwithyoustudy at gmail.com

Phone: 443-842-6547


Contact the following individual with any questions

Ashley Booth

4105500510

<mailto:abooth8 at jhmi.edu>abooth8 at jhmi.edu


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