[NFB-NM] FW: Charles Bonnet Syndrome Information

Fri Aug 22 20:48:54 UTC 2025

Nathalie Martin writes:

Here is the information promised at the San Juan Chapter meeting last night. 

It includes an invitation to a support group that’s happening tomorrow morning. 

Thank you very much!

Nathalie Martin
National Federation Of The Blind of NM
801–574–1268

Begin forwarded message:

From: Eva Potts <evapotts at hotmail.com <mailto:evapotts at hotmail.com> >
Date: August 22, 2025 at 10:11:27 AM MDT
Subject: Charles Bonnet Syndrome Information

Dear Natalie and NFB, San Juan Chapter Group Members,

Thank you for the honor of presenting to the San Juan Chapter Of the NFB. I hope you all found the information relevant and will continue to ask questions.

As promised, I've attached the information I mentioned on our call. Attached are the Letter to Doctors, our Brochure, and the MCL Information Packet. Please share this information with your family, friends, and health care providers. 

Getting the information out there about CBS... that's how we begin to normalize what is affecting the quality of life for many people. 

Here are some additional resources:

On our website: https://marycarmelslight.com/, you can fill out the contact page to stay in touch and receive updates about our virtual support group. 

The Charles Bonnet Podcast:   <https://cbsyndromepodcast.com/> https://cbsyndromepodcast.com/

Shaimond Foye has recorded close to 50 podcasts dedicated to CBS. He is a caregiver for someone who lives with CBS.

Esme's Umbrella:   <https://www.charlesbonnetsyndrome.uk/> https://www.charlesbonnetsyndrome.uk/

Judith Potts (no relation) heads this charitable organization in the UK where the majority of research is being conducted on CBS. Without them, I would have been completely lost. 

Our virtual support groups are held every Saturday from 12:00 pm to 2:00 pm EST. It's a great place to meet people who understand what you are going through. I wish it had been going on while my Mom was living. Call Dr. Cusick at 502.439.0398 if you would like to know more about CBS and receive a deeper clinical perspective. Our virtual support group invite is:

Charles Bonnet Support Group Meeting August 23rd Noon Eastern

 <https://us02web.zoom.us/j/8441224564?omn=87006361711> https://us02web.zoom.us/j/8441224564?omn=87006361711

Gary M. Cusick, PhD is inviting you to a scheduled Zoom meeting. 

Join Zoom Meeting  <https://www.google.com/url?q=https://us02web.zoom.us/j/8441224564?omn%3D87006361711&sa=D&source=calendar&usd=2&usg=AOvVaw1qAhfgMR8NOvaSHzV6ubra> https://us02web.zoom.us/j/8441224564?omn=87006361711 Meeting ID: 844 122 4564 --- 

One tap mobile +13092053325,,8441224564# US +13126266799,,8441224564# US (Chicago) Join instructions  <https://www.google.com/url?q=https://us02web.zoom.us/meetings/87006361711/invitations?signature%3D6yRNWkn0m-s92p1orxIbnJycS5jPyLm5lvZXzquXjxQ&sa=D&source=calendar&usd=2&usg=AOvVaw2IMHVGQZJIJAhGu4NeNKNW> https://us02web.zoom.us/meetings/87006361711/invitations?signature=6yRNWkn0m-s92p1orxIbnJycS5jPyLm5lvZXzquXjxQ

Please reach out if you need someone to talk to. The helpline number is 704.389.0160.  Or call Dr. Cusick; he's incredible and knows just about everything regarding CBS and sight loss. 

I hope this information is helpful to you. Take a deep breath and remember to take care of yourself as well.

Kind Regards,

Eva M. Potts, President & Co-founder

Mary Carmel's Light...empowering people living with Charles Bonnet Syndrome

marycarmelslight.com

704.681.3473

evapotts at hotmail.com <mailto:evapotts at hotmail.com> 

"It always seems impossible until it's done." Nelson Mandela

Disclaimer:  Please note that I am not qualified to give medical advice or treatment and any guidance given or inferred must be discussed with your own family doctor or consultant. Views expressed in this email are those of the individual sender and not those of the MCL Board of Directors. The content of this email should be regarded as confidential to the intended recipient. We make efforts to protect our IT systems, however no responsibility is accepted for any malicious files inadvertently transmitted with this email.

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