[Nfb-or] Asking for prayers

[Chrys Buckley]

Joseph, thanks for sharing.

I think, really, as far as cancer goes, the news you got is fairly good news. It sounds like it will be treatable, and the fact that it hasn't metastasized is great! I'm also glad to hear you have good doctors that are consulting with other good doctors, and having a conference on exactly the kind of situation you are dealing with. It sounds like you are in good and capable hands. Please keep us updated. I will be thinking of you, as I'm sure everyone on this list and lots of people in the Federation at large will be.

Also, are you still looking for medical professionals who specialize in albinism? If so, I will continue to do some digging on that topic.

Chrys



> Date: Wed, 30 Jun 2010 02:00:53 -0700
> From: carter.tjoseph at gmail.com
> To: nfb-or at nfbnet.org; nfb-talk at nfbnet.org
> Subject: [Nfb-or] Asking for prayers
> 
> Hi everyone,
> 
> Word's already circulating to some extent, but I wanted to wait until 
> they had done some tests so we know what we're dealing with.
> 
> I won't be attending national convention this year, because I found 
> out on 6/21 that I have an unusual cancer called a sarcoma.  Being 
> me, it would figure that this particular cancer is quite rare, even 
> among other sarcomas.  The good news is that there is no metastasis 
> (spreading to other organs) which is one of those things that cause 
> them to start giving you survival statistics.
> 
> The other bit of good news is that being the rare sort of cancer that 
> it is, it's located in fat tissue.  Even though it's a 7 cm tumor of 
> what they call intermediate grade, because it hasn't spread it's not 
> the kind of thing that would become life-threatening with modern 
> cancer treatment.
> 
> Being in fat tissue, obviously there will be surgery to remove the 
> tumor and some surrounding healthy fat tissue.  There will probably 
> be radiation and a pretty good chance of chemotherapy as well.  
> People react to these differently, but aside from my weight I'm 
> actually very healthy, which works in my favor.  (I did of course 
> suggest that the doctors could remove extra fat tissue during the 
> surgery, you know, just to make sure they got it all!)
> 
> The question remaining is what order do we do the things that we are 
> likely to do?  Emerging research says that chemo before surgery might 
> give me a lower chance of recurrence in the future, but the chance 
> might already be so low that giving me some relief might be in order.
> 
> I see a medical oncologist tomorrow after OHSU's sarcoma conference 
> meets to discuss cases like mine.  My surgical oncologist has already 
> consulted at least one other sarcoma specialist from Baltimore.  So 
> really, I have a team of experts in this kind of cancer treating me, 
> and they are consulting with other teams.
> 
> Even so, this is pretty serious, so I welcome your prayers.  I'll 
> miss you guys (and the wardrobe update of blindness-related T-shirts 
> of course! *grin*
> 
> Joseph
> 
> 
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