[nfb-talk] {Disarmed} FW: A personal reportfrom ChairmanGordonGund

[Jeanette Fortin]

my mom has macualr degeneration, because of some of the research that has 
been done in this field mom has been able to regain her vision and is doing 
well.
 it seems there are folks who think it would be just fine for folks like my 
mom to go ahead and lose their vision and adjust, why not give folks the 
opportunity to keep what they have, being blind is for sure not the worst 
thing that could happen to someone but working towards a cure for different 
diseases and toward treatments to  help people regain or keep their vision 
seems like a very worthwhile cause, the name of the organiaztion might leave 
a little to be desired, but it is the work that counts.
----- Original Message ----- 
From: "John Heim" <john at johnheim.net>
To: <blind.grizzly at gmail.com>; "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
Sent: Friday, April 22, 2011 2:05 PM
Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom 
ChairmanGordonGund


> It depends on what you mean by "inches". Research funded in part by the 
> Foundation Fighting Blindness has developed therapies that have actually 
> restored people's vision.
>
> But the main reason the research hasn't done much yet is that the science 
> is too new. FFB focuses entirely on retinal diseases like macular 
> degeneration and retinitis pigmentosa. These diseases have to be treated 
> with gene therapy and stem cell therapy. Here at the University of 
> Wisconsin, there is a doctor working to take a person's own cells, induce 
> them to act like stem cells, and then use these cells to replace the 
> damaged cells in the person's retina. The entire science of gene therapy 
> and stem cell therapy are only about 10 to 15 years old.  But enormous 
> progress has already been made.
>
>
> ----- Original Message ----- 
> From: <blind.grizzly at gmail.com>
> To: "Jeanette Fortin" <jeanette at fortin-home.com>; "NFB Talk Mailing List" 
> <nfb-talk at nfbnet.org>
> Sent: Friday, April 22, 2011 1:25 PM
> Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom 
> ChairmanGordon Gund
>
>
>> No one is angry about others getting sight back.  However, many are angry 
>> about charities using negative stereotypes to leverage more money for the 
>> research.  The end does not justify the means, especially when the means 
>> take blind people backwards so fiercely.
>>
>> And about that research.  Exactly what is all the fear and pity mongering 
>> buying?  Seems to me that miles are promised, but only inches are gained. 
>> Perhaps it's not about the research, but rather more about the money.
>>
>> Jim Marks
>> blind.grizzly at gmail.com
>>
>> On 4/22/2011 10:15 AM, Jeanette Fortin wrote:
>>> no it isn't the end of the world and not being able to walk isn't the
>>> end of the world and not being able to hear isn't the end of the world
>>> but research is amazing in regard to what can be done to give people
>>> improved situations, being angry about folks getting their sight back
>>> seems odd to me.
>>
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