[nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund

John Heim john at johnheim.net
Sat Apr 23 21:42:54 UTC 2011 

I think you're making way too much out of this whole blindness thing. What 
difference does it make if you're blind other than being a severe nuisance? 
If you could get rid of that nuisance, why not do it?

----- Original Message ----- 
From: "Constance Canode" <satin-bear at sbcglobal.net>
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
Sent: Friday, April 22, 2011 9:51 PM
Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon 
Gund


> If someone came up to me today and said they could give me full sight, I 
> would tell them unequivocally to get lost.  I am a well-adjusted person 
> and I have lived my life in a happy and secure manner, I work, own a home 
> and am happily married.  I have done everything I want to do as a blind 
> person, travel, shop, etc.  The part of the brain that knows how to see 
> has never worked on those of us who have never seen anything and it would 
> be a tremendous aadjustment, the same as a sighted person losing their 
> vision all at once.  Besides, they are not restoring what you have never 
> had...sight. What a shock it would be to see a car coming towards you or 
> your own face.  I have always joked that my face would probably be a 
> disappointment, another reason that makeup has always been a priority for 
> me.
> At 03:45 PM 4/22/2011, you wrote:
>>I'm  uncertain as to what you mean.  I said I'd rather not be blind. Are 
>>you saying you prefer to be blind?
>>
>>----- Original Message ----- From: "Gloria Whipple" 
>><ladygloria at webband.com>
>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>Sent: Friday, April 22, 2011 3:25 PM
>>Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon 
>>Gund
>>
>>
>>>To each his own!
>>>
>>>
>>>Gloria Whipple
>>>Corresponding Secretary
>>>Inland Empire chapter
>>>nfb of WA
>>>
>>>
>>>-----Original Message-----
>>>From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] On
>>>Behalf Of John Heim
>>>Sent: Friday, April 22, 2011 12:54
>>>To: NFB Talk Mailing List
>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom 
>>>ChairmanGordon
>>>Gund
>>>
>>>Yes, Gloria, call me crazy but I'd prefer not to be blind.  Thanks for
>>>caring though.
>>>
>>>
>>>
>>>----- Original Message ----- From: "Gloria Whipple" 
>>><ladygloria at webband.com>
>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>Sent: Friday, April 22, 2011 11:11 AM
>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom 
>>>ChairmanGordon
>>>Gund
>>>
>>>
>>>>Bull. Are you in that category? I feel for you if you are.
>>>>
>>>>Sure it would be nice if sight could be given to those who want it, but 
>>>>it
>>>>isn't the end of the world!
>>>>
>>>>
>>>>Gloria Whipple
>>>>Corresponding Secretary
>>>>Inland Empire chapter
>>>>nfb of WA
>>>>
>>>>
>>>>-----Original Message-----
>>>>From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] 
>>>>On
>>>>Behalf Of John Heim
>>>>Sent: Friday, April 22, 2011 07:02
>>>>To: NFB Talk Mailing List
>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>>ChairmanGordon
>>>>Gund
>>>>
>>>>A lot of people don't like being blind. In fact, I would say that most
>>>>people who are blind would prefer not to be blind.
>>>>
>>>>----- Original Message ----- From: "Gloria Whipple" 
>>>><ladygloria at webband.com>
>>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>>Sent: Thursday, April 21, 2011 4:19 PM
>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>>ChairmanGordon
>>>>
>>>>Gund
>>>>
>>>>
>>>>>What in the heck is wrong with being blind!
>>>>>
>>>>>
>>>>>Gloria Whipple
>>>>>Corresponding Secretary
>>>>>Inland Empire chapter
>>>>>nfb of WA
>>>>>
>>>>>
>>>>>-----Original Message-----
>>>>>From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] 
>>>>>On
>>>>>Behalf Of S Baker
>>>>>Sent: Thursday, April 21, 2011 14:14
>>>>>To: AMoLList
>>>>>Subject: [nfb-talk] {Disarmed} FW: A personal report from Chairman 
>>>>>Gordon
>>>>>Gund
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>SRBaker
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>>From: GGund at FightBlindness.org
>>>>>To: srbaker at charter.net
>>>>>Subject: A personal report from Chairman Gordon Gund
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>Like you, Steven, I follow the work of the Foundation Fighting 
>>>>>Blindness
>>>>>closely. As a donor, I want to know that my donations make a 
>>>>>difference.
>>>>>
>>>>>And believe me, they do.  When I reflect on the last year and listen to
>>>>>this
>>>>>video, I am reminded that we have more clinical trials for sight-saving
>>>>>treatments underway than ever before.  Clearly, hope and optimism are
>>>>>running high.  Incredible strides have been made in the last few years,
>>>>>and
>>>>>these remarkable advances would not have been made without your support
>>>>>of
>>>>>the Foundation. They include:
>>>>>
>>>>>Vision Restored.  We are continuing to build on remarkable gains in 
>>>>>gene
>>>>>therapy.  As you may recall, in a Foundation-funded trial, 9-year-old
>>>>>Corey
>>>>>Haas and 19 others received a gene therapy treatment and can now see.
>>>>>And
>>>>>as the trial has expanded, participants have shown sustained 
>>>>>improvement
>>>>>in
>>>>>vision.  Building on this success, similar gene therapy treatments are
>>>>>moving into clinical trials for choroideremia, Stargardt disease and
>>>>>Usher
>>>>>syndrome.
>>>>>
>>>>>Innovative Technology.  The high-tech industry has a treatment I'm
>>>>>incredibly excited about-- the world's first commercially available
>>>>>artificial or "bionic" eye. Early funding from the Foundation was key 
>>>>>to
>>>>>getting this engineered retina off the ground.  Building on the studies
>>>>>we
>>>>>funded, the light-sensing, implantable "chip" has been tested in a
>>>>>clinical
>>>>>trial in Europe with great results. In the study, people who were
>>>>>profoundly
>>>>>blind experienced improved vision that could help them to be more
>>>>>independent.  In fact, many can now see shapes and recognize large
>>>>>letters.
>>>>>
>>>>>Groundbreaking Therapies.  A research team funded by the Foundation
>>>>>Fighting
>>>>>Blindness developed an innovative technique for correcting the
>>>>>disease-causing gene by using stem cells derived from a person's skin.
>>>>>While
>>>>>more work is needed to ensure safety, this advancement suggests that
>>>>>doctors
>>>>>may someday be able to treat a patient's retinal disease using their 
>>>>>own
>>>>>skin cells.
>>>>>These few accomplishments barely begin to tell the story of all the
>>>>>progress
>>>>>that's being made.  And this is why words can never express my personal
>>>>>gratitude for your passionate and committed support.
>>>>>
>>>>>I hope you will take a few minutes to watch the video and see the 
>>>>>results
>>>>>of
>>>>>your support and the hope it has generated. But most importantly, I 
>>>>>hope
>>>>>you
>>>>>will see that research is progressing at a terrific rate.  It's been a
>>>>>long
>>>>>time coming, but we crossed a critical threshold when our researchers
>>>>>actually restored sight. It launched us into a new era when more and 
>>>>>more
>>>>>people will have their sight saved or restored every year.  A lot of 
>>>>>work
>>>>>remains.  But we'll get there by continuing to work together.
>>>>>
>>>>>The Foundation Fighting Blindness values the support you give us by
>>>>>donating, talking to your friends, and advocating for increased 
>>>>>research
>>>>>funding.  As we continue our relentless pursuit to eradicate blindness,
>>>>>we
>>>>>hope you will continue your steadfast support of our mission. Thanks 
>>>>>for
>>>>>envisioning a bright future for the millions affected by retinal
>>>>>degenerative diseases.
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>Sincerely,
>>>>>
>>>>>Gordon Gund
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>Check us out on:
>>>>>
>>>>>Tell a Friend  |  Subscribe  |  Change email address  |  Unsubscribe
>>>>>Foundation Fighting Blindness
>>>>>www.FightBlindness.org
>>>>>7168 Columbia Gateway Drive, Suite 100
>>>>>Columbia, MD 21046
>>>>>1-800-683-5555
>>>>>
>>>>>nonprofit software
>>>>>_______________________________________________
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>>>>>
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>>>>t
>>>>
>>>>
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>>
>>
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>
>
>
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